Gregg Beratan

#RestinPower Alice Wong The Disability Community is forever stronger because of your words, your strength, and your leadership! I am better because of your friendship which I can't begin describe how much I will miss. I will always be be grateful for that friendship.

June 22, always a good day to say a word of thanks for Lois Curtis and Elaine Wilson for their roles as lead plaintiffs in the case that gave us the Olmstead decision and set down in case law that we all have the right to live in the community.

Getting sick listening to @govkathyhochul.bsky.social
defend forcibly institutionalizing disabled people as compassion. As if institutionalization is the way to treat someone. God forbid you support someone to live in the community to prevent MH crises. #CripTheVote #StateoftheState2025

How restraint in schools is traumatising children with SEND and injuring teachers Children's tsar raises alarm over 'terrible' use of restraint as poll finds more than half of teachers have had no training on how to do it safely

Becky Gillespie, heads the UK division of ICARS and said it had been contacted by increasing numbers of parents about restraints “endured by their children”. Please repost and share with your networks. inews.co.uk/news/restrai... #AgainstRestraint

I have said repeatedly that homecare growth must be looked at in context of usage in all model. Thank you Jessica.

Jose is a friend and fellow advocate, but even if he wasn't I would still fight for his right to live independently in his community, work, and raise his family. Governor Hochul wants to pawn off a model designed by the Disabled community to a Single Out-of-State For-Profit.

As the holidays approach, many celebrate with heavy hearts due to the decisions of our elected officials. Read my statement and tag your representatives. #ProtectHomeCare

@votejgr.bsky.social makes a great point. @govkathyhochul.bsky.social sold her #CDPAP boondoggle on 1200% growth. But economists say home care, counting CDPAP, grew at 3.7% - equal to aging growth.

Guess Mark Twain nailed it, "Lies, damn lies, & statistics"

#ProtectHomeCare

Sharing video via Nick Reisman of NY Playbook from that other site as #CDPAP consumer confronted @govkathyhochul.bsky.social at Crossgates Mall in Albany.

www.awesomescreenshot.com/video/347535...

How Fast is New York's Home Care Program Growing? - Fiscal Policy Institute By Michael Kinnucan, Senior Health Policy Advisor December 12, 2024 Download PDF Key Findings Much recent reporting has focused on the growth of CDPAP in isolation, but this perspective exagg...

When put in perspective of home care, #CDPAP growth is only 3.7%. This dramatically changes conversation on upending care for 250,000 older & disabled NYers.

#ProtectHomeCare

Header: NY's Consumer Directed Personal Assistance Program (CDPAP) empowers New Yorkers to self-direct their home health care. CDPAP is supported by Fiscal Intermediaries: community-based champions of home health care, with deep roots in the state's communities. The Program supports the state's growing population of older adults by providing long-term care assistance needed to age in place as well as supporting individuals with disabilities. A yellow line divides the page. The lower section says: The Consumer Directed Personal Assistance Program (CDPAP) empowers New Yorkers to self-direct their home health care needs. CDPAP Personal Assistants support patients with activities of daily living (ADLs), personal hygiene, and light housekeeping. Unlike traditional home health aides, CDPAP personal assistants can administer medication, use medical equipment, and provide wound care. Many aides are trusted relatives or friends. CDPAP Personal Assistants can be anyone aged 21 and over who is not a spouse of the patient. Fiscal intermediaries (FIs) support administrative duties on behalf of consumers and care providers.

The top half is divided into 2 columns, Providers and Recipients. Column 1: Providers Home health aides are disproportionately older women of color compared to the statewide workforce. - 81% of home health aides are women, compared to 51% of workers statewide. - 51% of home health aides are aged 55 or older, compared to 40% of workers statewide. - 70% of home health aides are People of Color, compared to 44% of workers statewide. Column 2, Recipients Care recipients across the state are often older New Yorkers, a group that has grown significantly in the last decade. - 4.3M Aged 65+ (2034) projected signified by a dotted line pointing to growth between three numbers. - 3.7M Aged 65+ (2024) - 2.9M Aged 65+ (2014) A yellow line separates the page. The bottom half reads: In Massachusetts and Pennsylvania, consolidating from multiple to one statewide Fiscal Intermediary caused: • Disruption to care • Disruption to provider pay, and • No cost savings to the State. Citations to all data are in small print at the bottom.

Top headline reads "In-Home care program changes in other states" The top half is Pennsylvania. In 2012, Pennsylvania consolidated from 36 fiscal intermediaries to 1 : Public Partnerships, LLC. Administrative challenges during the transition resulted in disruptions to care and provider pay. Column 1 under that text. Under an image of the state of Pennsylvania it says: Disruption to Care Nearly 2,000 consumers switched care to the state’s more expensive agency-directed model. Column 2 under an image of money in an envelope it says: Disruption to Provider Pay Caregivers went weeks without pay, some for over two pay cycles. Others were overpaid, with wage overpayments exceeding $475,000 to select providers in 2013. A red box on the far right side has an image of money changing hands and reads: +7M Costs to the state in the first year. A yellow line divides the page in half. The bottom half says Massachusetts. In 2022, Massachusetts consolidated from 3 fiscal intermediaries to 1: Tempus Unlimited. Administrative challenges during the transition resulted in the state needing to bring on an additional vendor. Column 1 under this text is under an image of Massachusetts Disruption to Care Tempus received 32,000 support calls in the first week. Column 2 is under an image of, presumably, a paycheck. Disruption to Provider Pay FI missed 10% of paychecks during the transition, forcing the state to publicly direct the FI to pay 4,000 workers who missed at least two paychecks. A red box on the far right has a picture of money changing hands and reads +2.5M Costs to the State in the first year. Citations for all data is in small text at the bottom of the page.

Text about HR&A Advisors and a disclaimer. HR&AAdvisors, Inc. (HR&A) helps create more equitable, resilient, and dynamic communities. Our work turns vision into action through rigorous analysis, strategy development, and implementation planning. DISCLAIMER: All figures cited in this report are for general informational purposes only. All information is sourced from publicly-available datasets, reports, and periodicals. HR&A relied on information, data, and forecasts provided by U.S. Bureau of Labor Statistics, Lightcast, U.S. Census Bureau, and public reports by the States of Massachusetts and Pennsylvania. HR&A reviewed the information and projections provided using its independent professional judgment and skills in good faith. HR&A assumes no liability resulting from errors, omissions or any other inaccuracies with respect to the information referenced in this study.​ No opinion is intended to be expressed and no responsibility is assumed for any matters that are legal in nature or require legal expertise or specialized knowledge beyond that of an economic and fiscal impact consultant.​ If this study is referred to or included in any offering material or prospectus, it shall be deemed to have been included for informational purposes only and its use shall be subject to this disclaimer. HR&A, its directors, officers and employees have no liability to recipients of any such offering material or prospectus. HR&A disclaims any and all liability to any party.​

Lots of new analysis on NY's #CDPAP & it's impact. An infographic from HR&A Advisors here that shows @govkathyhochul.bsky.social changes are dangerous & run counter to an equity agenda.

#ProtectHomeCare

YouTube video by CDPAANYS Donate to CDPAANYS

If anyone is looking for a great organization to support on Giving Tuesday, I'd like to recommend the CDPAANYS. They have led the fight to save CDPA from Governor Hochul's attempts to sell it off to PPL. Give if you can. youtu.be/ATGpB8pZFhk cdpaanys.org/donate/

Hi all! Happy Election Day! Please go out and #CripTheVote today! #Election2024 #ElectionDay2024

Our Executive Director Bryan O'malley w. NYAIL comms specialist Blaise_Bryant on @CapPressRoom discussing how dangerous of @GovKathyHochul budget amendments will be to many so many NYers who depend on CDPA to live their lives. #CDPAisEssential #CripTheVote capitolpressroom.org/2024/02/28/h...

Have you read our Advocacy Day materials?

These one-pagers and talking points will be used throughout budget season as a guide during your meetings with elected officials.

Download them in PDF format from our website:https://cdactionny.org/cdany-events/advocacy-day-in-albany-february-12-2024/

Today is Advocacy Day! If you are coming to Albany, remember: meet at 'The Well' in the Legislative Office Building. The rally starts at 11am! Can't wait to see you all there.

Disability Thinking Weekday: 11/16/23 Voting, issue accessibility, and a bit of self-help

Disability Thinking Weekday for Thursday, November 16, 2023 ... Voting, issue accessibility, and a bit of self-help.

open.substack.com/pub/disabili...

Bilingual Spanish Peer Mentor Job Posting - CDPAANYS Bilingual Spanish Peer Mentor Job Posting Do you want to work for an organization that makes a difference without asking you to sacrifice everything for the mission? Are you seeking an organization th...

Do you want to make a difference in people's lives working for an organization that won't ask you to sacrifice your own life: Bilingual Spanish Peer Mentor Job Posting - cdpaanys.org/news-updates...

I hope everyone who can goes out to #CripTheVote today. I voted just before 9am. It felt good although I can't say I ever like seeing uncontested races and there were two on my ballot today. People deserve a choice!

One of Us: Tod Browning’s Freaks, Disability Culture, and the Criterion for Inclusion One of Us: Tod Browning’s Freaks, Disability Culture, and the Criterion for Inclusion   Angelo Muredda Content warning: usage of a slur for little people  Spoilers for the film Freaks   T…

New from me, for @sfdirewolf.bsky.social’s Disability Visibility Project: I wrote about the complicated afterlife of Tod Browning’s FREAKS in disability culture, and Criterion’s curiously muted response to that disabilityvisibilityproject.com/2023/10/08/o...

Canvassing For Votes With Worcester D2 Council Candidate Rob Bilotta Rob Bilotta decided to run for city council in 2023 after his involvement in the inclusionary zoning debate earlier this year.

Really enjoying seeing so many people from Disability Community running for office these days. The latest is Rob Bilotta running for District Council in Worcester Massachusetts. #CripTheVote - patch.com/massachusett...

I’m biased but my next anthology DISABILITY INTIMACY is really fucking good. I don’t think a book like it exists (but I could be wrong)

Arriving Feb 2024. Pre-order now!

bookshop.org/p/books/disa...

I haven't seen many folk who fit the category, interrogating the language. The focus has been more on the experience. That said I always love people challenging PFL.

People seem to be under the impression that not giving a platform to hate speech is the same as being against free speech. Not giving a platform to hate speech is about saying when your free speech is violent and harmful there are consequences.

It's hard to describe in just one skeet just how important @tinu.bsky.social
's work has been for the disability community & for the multiply marginalised

There are many folks out there alive, housed because of her, folks able to afford medical procedures and meds

It's time to give back

Help Tinu catch up to August bills As you may know I have Long COVID and cancer, I’ve been unable to work or do my community organizing all summer. My boys went out of town in July but as soon as they came back I fell even more I��...

Please help @tinu.bsky.social move to access consistent chemo treatment!
We cannot lose Tinu, I cannot lose Tinu!
Tinu is a wonderful person who does so much for others always.
Please help her stay alive and no one should have to be in this situation!
www.paypal.com/pools/c/8WLo...

Likewise. Looking forward to your posts.

Always good to hear when a member of the Disability Community is running for office. Just heard that Keith Gurgui a long time advocate is running for a seat in the Ulster NY. County Legislature. For more info go to https://keithforulster.com/ #CripTheVote

Likewise Greg hope all is well with you.

Kind of excited to be here hoping this is where the #DisabilityCommunity now fleeing Elon's destruction lands.