Sam Carlisle's Avatar

Sam Carlisle

@samcarlisle.bsky.social

Charity comms expert. 25 years in national newspapers. Mum of two one of whom has complex needs.

212 Followers  |  173 Following  |  38 Posts  |  Joined: 22.12.2023  |  1.9299

Latest posts by samcarlisle.bsky.social on Bluesky

Peter Beale and Lauren Branning in a waiting room in the hospital. The walls are light blue with a tree painted on one of them. Peter is standing cradling baby Jimmy and looking at him lovingly. Lauren is slumped on a sofa in the front of the image. She's staring down at the floor with a worried look.

Peter Beale and Lauren Branning in a waiting room in the hospital. The walls are light blue with a tree painted on one of them. Peter is standing cradling baby Jimmy and looking at him lovingly. Lauren is slumped on a sofa in the front of the image. She's staring down at the floor with a worried look.

On EastEnders, Baby Jimmy has been diagnosed with chorioretinal coloboma.

And in the latest episode, his parents Lauren and Peter, met with an Eye Care Liaison Officer.

But what are Eye Care Liaison Officers (ECLOs)? 1/4

10.07.2025 18:43 β€” πŸ‘ 4    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0
Pic shows Sam’s daughter Elvi doing her favourite thing, wheelchair skating. It is a sunny day in Battersea Park. Elvi’s dark brown hair is tied back and she is wearing a pink floral AC/DC t-shirt.

Pic shows Sam’s daughter Elvi doing her favourite thing, wheelchair skating. It is a sunny day in Battersea Park. Elvi’s dark brown hair is tied back and she is wearing a pink floral AC/DC t-shirt.

@shelaghfogarty.bsky.social thank you for having me on your show today, Shelagh. I can’t quite believe our SEND journey with Elvi will be over in days with families still having to go through hell for their children. πŸ’œβ€οΈ #EHCPs

09.07.2025 17:26 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
Call for public inquiry into deaths after coroner rules suicide was β€˜triggered’ by DWP The mother of a disabled woman who took her own life after the Department for Work and Pensions (DWP) wrongly stopped her benefits has called for a public inquiry into the years of deaths linked to…

The mother of a disabled woman who took her own life after the Department for Work and Pensions wrongly stopped her benefits has called for a public inquiry into the years of deaths linked to the department’s actions.
#DWP
www.disabilitynewsservice.com/call-for-pub...

07.06.2025 06:40 β€” πŸ‘ 51    πŸ” 25    πŸ’¬ 0    πŸ“Œ 3
Preview
Rail travel has become less accessible since pandemic and cost-of-living crises, researchers are told There are fewer staff at stations and ticket counters and increased ticket prices since the emergence of the Covid pandemic and the cost-of-living crisis, disabled rail passengers have told researc…

Rail travel has become less accessible since pandemic and cost-of-living crises, researchers are told
www.disabilitynewsservice.com/rail-travel-...

05.06.2025 16:59 β€” πŸ‘ 5    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

Particularly the episodes about SEND. Eye-wateringly accurate.

18.05.2025 21:51 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Youthclubs | The Observer The lure of online misogynistic and violence is damaging vulnerable teens. A new group of youth centres is determined to turn the tide

In the wake of TV show Adolescence, let's stop wringing our hands about the threat of toxic masculinity and do something about it. Great to work with Maya Oppenheim of The Observer on this report on the role of focused youth work at OnSide youth charity's Youth Zones. observer.co.uk/news/nationa...

11.05.2025 08:36 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Empty spaces and unwanted freedom: When caring comes to an end - Special Needs Jungle Unwanted freedom when caring comes to an end. Catriona Moore writes of the aftermath of losing a child whose daily care structures everything

This is beautiful. Please read. www.specialneedsjungle.com/empty-spaces...

01.05.2025 11:27 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I need this book. 23 years of parenting my daughter and the trauma is laid on thicker year after year by authorities. Particularly bad at the moment as she transitions out of education to ... well, nothing.

26.04.2025 12:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
I felt I failed my brother on day he died & hid my pain, says Traitors' star When The Traitors star Alexander Dragonetti talks about his little brother, James, his smile widens and his eyes light up. Then the tears come. He says: β€œJames was my North Star, my world was SO mu…

I interviewed Alexander from The Traitors about his beautiful relationship with his brother & the funding raised by fans for @mencap.org.uk in James’s memory. Holidays can be tough for siblings, if you need support look at sibs.org.uk #SEND @thetraitors.bsky.social www.thesun.co.uk/health/34385...

18.04.2025 06:58 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Always excited to receive a commission from Saba. In this edition I visited Willow Dene School to see how their approach includes the whole family. β€οΈπŸ’œ

18.04.2025 06:52 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I love contributing to Community Living magazine. For this edition I visited a special needs college doing remarkable work with the siblings and grandparents of students.

01.04.2025 12:56 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

I wonder if it’s because we’re both skaters that Teresa and I both seek adventure AND balance πŸ€”

28.03.2025 18:33 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Importantly??? 🀣

26.03.2025 20:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image Post image Post image Post image

Elvi has a super-rare genetic condition. So our worldwide RCDP family is importantly to us. Marley from Texas is probably the most like Elvi of all the young people. So it’s been a delight to host Marley’s sister Delaney this week and for her to finally meet Elves. β€οΈπŸ’œ

26.03.2025 20:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
A picture of a conference stage set up for a panel discussion, with the backs of audience members visible.  Channel 4 News Sport Correspondent, Jordan Jarrett-Bryan, is introducing the panel.

A picture of a conference stage set up for a panel discussion, with the backs of audience members visible. Channel 4 News Sport Correspondent, Jordan Jarrett-Bryan, is introducing the panel.

Really excited to be represented at the Disability Journalism Forum - and with our media lead @samcarlisle.bsky.social on the next panel. We're also sharing an SEND media toolkit for journalists disabledchildrenspartnership.org.uk/journalism-t... #DJF2025

14.03.2025 11:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Yet they keep telling us we can trust them to introduce assisted suicide

05.03.2025 16:11 β€” πŸ‘ 7    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0
Preview
The government are at risk of making a formidable enemy - SEND parents Parents I have spoken to across the country are in shock and are terrified.

Parents are terrified the Government is going to slash rights for disabled children. My piece in Metro. metro.co.uk/2025/03/04/g...

05.03.2025 07:55 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
Ministers plan major changes to Send education in England White paper being prepared as councils hope for relief from huge deficits in special educational needs budgets

The Government just picked the mother of all battles. #SEND www.theguardian.com/education/20...

03.03.2025 22:32 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

That was my dad’s fave Morecambe & Wise joke, Jen and therefore mine too. ❀️

02.03.2025 02:48 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image Post image Post image Post image

First wheels and wheelchairs spring skate. Perfect day β€οΈπŸ’œa

01.03.2025 15:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I have this on my shelf, I’ve taken it on holiday and back and I think on a couple of work trips. But you have inspired me to actually read it, Ramandeep 🀣

25.02.2025 06:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Social care: First cross-party talks on reforms postponed The five largest parties in England were due to meet this week - but the BBC has learned the talks have been cancelled.

Oh for the love of God, if you can’t even agree a calendar date to discuss social care, you’re pretty unlikely to revolutionise it. Get your act together MPs. www.bbc.co.uk/news/article...

25.02.2025 06:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
City law firm vows to hire more partners from poorer backgrounds

A City firm is bucking convention by aiming to have 20 per cent of its partnership from β€œlower socio-economic backgrounds” within the next four years

24.02.2025 21:46 β€” πŸ‘ 40    πŸ” 6    πŸ’¬ 2    πŸ“Œ 1

Excited about this. Self-promote away x

22.02.2025 13:22 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
BlackRock Leaves Major Climate Group Amid Wall Street Exodus BlackRock Inc. is parting ways with one of the world’s biggest climate-investor groups after being targeted by Republican politicians for its efforts on global warming.

They’re not doing it on video with $900k watches, like Zuckerberg, but the way corporate US is running away from its climate commitments now Trump is in office is really significant.

www.bloomberg.com/news/article...

11.01.2025 11:04 β€” πŸ‘ 190    πŸ” 101    πŸ’¬ 9    πŸ“Œ 8
Post image

Friday’s @thetimes.com cartoon times.newsprints.co.uk/morten-morla...

09.01.2025 21:07 β€” πŸ‘ 328    πŸ” 133    πŸ’¬ 7    πŸ“Œ 5
Preview
A legacy of precise, practical skills Young people are learning heritage crafts at a charity inspired by a boy’s life and abilities. Sam Carlisle reports

At its launch party Evan Davis said "A good idea solves one problem, a great idea solves two. Sammy's Foundation solves two."
Sammy's mum has channelled her grief at his unjustified death into creating opportunities for other young disabled people. πŸ’œ πŸ’”
communitylivingmagazine.com/a-legacy-of-...

10.01.2025 00:05 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Yes.

15.12.2024 15:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Wait until she learns that Cameron had sardines on toast every day in Number 10. She will lose her shit.

12.12.2024 21:09 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Busted on MOTD supporting Will’s team. Terrific match Brentford.

07.12.2024 23:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@samcarlisle is following 20 prominent accounts