NativeBio Data Consortium

Hello National Congress of American Indians. @nativebio.bsky.social are with you in DC to explain the project below and the dangers around your data made possible by the Wild West of Artificial Intelligence

@nytimes.com shut the Comments section down to soon. Here's a sample. Smart people defended us. Others wanted to know how to support. Look up Donor-Advised Funds (DAFs). We have that and other ways to financially support us! Tell your favorite Philanthropist about us! We are righteous and visionary!

Native BioData Consortium | Official Merchandise | Bonfire Check out Native BioData Consortium on Bonfire and shop official merchandise today! Featuring limited edition custom apparel, printed with care in the USA just for you.

The NYTs comment section for our feature yesterday got so heated, they shut it down immediately. However, people want to donate to #IDSov. Here’s ours: www.bonfire.com/store/native... donorbox.org/help-to-empo... www.bonfire.com/store/native... Here’s the movement’s indigenousdata.org nativegov.org

Native BioData Consortium | Official Merchandise | Bonfire Check out Native BioData Consortium on Bonfire and shop official merchandise today! Featuring limited edition custom apparel, printed with care in the USA just for you.

The NYTs comment section for our feature yesterday got so heated, they shut it down immediately. However, people want to donate to #IDSov. Here’s ours: www.bonfire.com/store/native... donorbox.org/help-to-empo... www.bonfire.com/store/native... Here’s the movement’s indigenousdata.org nativegov.org

D4I TDR The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

Our current funding stream for the D4I Tribal Data Repository project has ended. The last two years have been momentous as our multi-site collaboration has created the first federally funded repository framework and cyberinfrastructure for Indigenous communities by Indigenous teams. (1/4)

D4I TDR The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

As part of our mission to build educational capacity for Tribal communities, we will not deactivate our social media accounts as we hope our YouTube videos, SEEDs database, and website will continue to educate. These are linked below:
(3/4)

D4I TDR The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

Youtube: youtube.com/@D4ITDR
SEEDS: d4itdr.org/seeds/
D4I website: d4itdr.org
Email: info@d4itdr.org
We are actively applying for funding to continue this impactful work (4/4)

YouTube video by Native BioData Consortium GIVING TUESDAY with MASS DESIGN Group

See our YouTube content and this short teaser about who and what we are about. (Thanks to MASS Design) www.youtube.com/watch?v=c21y...

NYT Told it in the 3rd (he built) person but there were many of us fighting this fight across 7 institutions, including our Great GREAT PARTNERS Stanford University and all of our Indigenous colleagues and allies at OSU, UW Seattle, UW Madison, UC Santa Cruz, ASU and the Tribes in RADx UP

He Built a Server to Protect Indigenous Health Data

LOVE seeing the work on @nativebio.bsky.social and @joseph-yracheta.bsky.social highlighted in the NYT.

More good news of Indigenous data champions!

www.nytimes.com/2026/02/05/s...

He Built a Server to Protect Indigenous Health Data

Native Bio has made the @nytimes.com for the second time. The #IDsov movement is a tidal wave....and a solution for these difficult times. “We are at a fork in the road. Do not choose hate & do not choose unsustainability.” ~ 21st Century Maxim, Author Unknown www.nytimes.com/2026/02/05/s...

YouTube video by CRISPRcon Indigenous perspectives on gene editing in health and agriculture

NativeBio is comprised of leading Indigenous Scientists & Ethicists in fields of technology that will affect, or steal Indigenous Data & Resources for the "discovery" behemoth of today's world economy. Here, OUR scholars talk about CRISPR in relation to Native plant, microbial & animal relatives.

YouTube video by CRISPRcon CRISPRcon Midwest - What’s at Stake? The Promise and Perils of Gene Editing

We have been lucky to make such good friends & strong partners around the world. Here, at 5:50, you will hear me sort of predict our current moment & how we could have avoided it. CRISPR Con was a series of conferences dedicated to helping create the best policies around Gene Editing Technologies.

'The ground on which we stand': innovation and Indigenous sovereignty In national innovation policy, the knowledge and concerns of Indigenous peoples are often treated as constraints to be overcome rather than strengths to be supported.

2/2 This excuse of "National Strategic Action" or urgency allows an all manner of sins, including stealing Indigenous DNA (human, animal, plant, microbial, and ancestors). Read this great piece by Cree thinker, Jessica Kolopenuk. www.hilltimes.com/story/2026/0...

'The ground on which we stand': innovation and Indigenous sovereignty In national innovation policy, the knowledge and concerns of Indigenous peoples are often treated as constraints to be overcome rather than strengths to be supported.

1/2 Canada is trying to go blow for blow with the US Trump land grab, data grab, money grab and people grab with it's version of the "Big Beautiful Bill" that makes Indigenous resources objects of National Emergency (economic, military and privacy are all de-siloed because of ML/AI).

Decoding IEEE 2890-2025 Part I: The New Global Baseline for Indigenous Data Governance

Watch this to learn about a global groundbreaking standard to decolonize research, Intellectual property law and environmental responsibility open.spotify.com/episode/0ugg...

U.S. Indigenous Data Sovereignty & Governance Summit 2026 Coming Home: Indigenous Data Governance By Us For Us REGISTER FOR SUMMIT 2026 Call for Abstracts Closed Thank you for your abstract submissions! Decisions will be announced by January 16, 2026. See…

Blockbuster summit for a World changing movement called #IDSov #IndigenousDataSovereignty. It's the best plan of defense against #TheGildedAge2.0 Sign up, watch videos, read academic articles and news stories. #WERISE! usindigenousdatanetwork.org/summit-2026/

Genetic Data From Over 20,000 U.S. Children Misused for ‘Race Science’

This is why Native Bio Data Consortium and other Indigenous peoples have pushed back on folks like @alondra.bsky.social and other proponents of #OpenData and #FAIR. We are in dangerous times. Science is ruined. www.nytimes.com/2026/01/24/u...

YouTube video by MASS Native BioData Consortium | MASS (Model of Architecture Serving Society)

We are a feature, not a bug .....LOL ..... on the MASS YouTube site. www.youtube.com/watch?v=siM8...

MASS At Model of Architecture Serving Society (MASS), our work ensures there is justice in our built environment. Too often access to architecture has been restricted only to those who can afford it, produ...

Please check out our partners page, MASS design group on YouTube. IT's AMAZING!! Really phenomenal work and ethos of praxis. www.youtube.com/@modelofarch...

YouTube video by Dag Hammarskjöld Library UN Open Science and Open Scholarship Conference 2025 - Day 1 – Keynote: Maggie Walter

Just in case you don't know who Maggie Walter is and all the work she's done to recommend how and why Indigenous people need to protect and utilize (for continued cultural continuity and economic survival) their own data! www.youtube.com/watch?v=cfAn...

The current and #dangerousDataLandscape we find ourselves in was predicted by folks like @ruha9.bsky.social and NativeBio. Look at our video, hear our words. Only difference now is that all people are at risk. www.youtube.com/watch?v=xOXb...

3/3 Today, under the guise of Homeland Security, the USA is doing just that. www.ascp.org/news/news-de...

2/3 instead of the natural sequence. As of Oct 2025, Congress is considering lifting the ban on natural sequences anyway. Consider all the movements by alt-right governments to claim ownership over any resource newly extractable by modern tech, including ML/AI.

1/3 In our series of posts about the non-patentability of naturally occurring human DNA, we left out that "synthetic biology" is patentably, including cDNA from human sequences. The cDNA has to be sufficiently longer & be created by a unique process that focuses on the method and use

YouTube video by Wendover Productions The Gene Patent Question

2/2 and the tech has become cheaper and faster, they want to lift the ban and give campaign financiers exclusive rights to your rare and valuable ancestral heritage. This video leaves out public tax funded research as the bulwark for discovery. Something private companies can never & will never do.

YouTube video by Wendover Productions The Gene Patent Question

1/2 Patenting an apple or patenting a common substance like wood is a baffling concept. Much of the ban occurred to prevent angering women voters before an election. Now that politicians feel that women have forgotten

YouTube video by Scott D. Clary - Success Story Podcast The Supreme Court Battle Over Your Genes | Jorge Contreras - Harvard Law Professor

2/2 such as mendelian or highly or isolated local populations (i.e. Indigenous). It's all about money but more to the point its about weird and crazy "Wild West-ing" that is neocolonial beachheading. www.youtube.com/watch?v=lkv3...

YouTube video by Scott D. Clary - Success Story Podcast The Supreme Court Battle Over Your Genes | Jorge Contreras - Harvard Law Professor

1/2 Patents for DNA is a "Lawyer Trick" by defining segments of nature as "compositions of matter". Now with technology going so fast and in so many places, it's likely that only sequences that are very rare and at low frequency with deep penetrance will be patentable..

YouTube video by Seeker Gene Patents: 5 Things You Should Know

DNA patent bans were up for debate in Trump 2016 in Biden Administration and again in Trump 2024. If you are Indigenous, you have to know there are Big Pharma companies side stepping the law in Latin American and island jurisdictions. This video is from 2013. Australia limited patents in 2015.