NativeBio Data Consortium

AFN resolution on genomic data sovereignty - GenomeCanada Genome Canada welcomes the opportunity to strengthen dialogue and coordination with the Assembly of First Nations (AFN) and other Indigenous leaders following the adoption of Resolution #11 at the AFN...

First Public News that we are aware of regarding the Assembly of First Nation's decision to challenge the whole country of Canada and their questionable actions around Precision Medicine. genomecanada.ca/afn-resoluti...

Take a look. NativeBio's mission is to protect all Indigenous resources...human, non-human, man-made, natural, products of irresponsible pollution or new biological interactions due to capital extraction and migration. They all belong to Native peoples. www.thegef.org/what-we-do/t...

Indigenous Data Sovereignty is a human right. It represents the future economic viability and political power needed for more basic components of culture, spirituality and land-based occupation/residence to continue unadulterated by the West. Stop labeling Indigenous Professionals as unethical.

We see the Beautiful Artwork of American Indian Science and Engineering Society (AISES). We hope they appreciate the artwork and #IDSov work of Native BioData Consortium

This is just in, Joseph Yracheta has been invited to be the keynote speaker at the University of Idaho's Biennial Tribal Summit. The title of his talk will be the "Data and Tribal Economies: Securing Our Cultural Future Through Sovereignty"

Indigenous Data Sovereignty is so important it's on everyone's lips at #AISES! Even the Cheyenne River Sioux Nation Chairman was up on stage talking about the future of research, data control, sovereignty & economics! I also met the famous Muscogee Geneticist, Dr. John Burnett! #IDSOV is survival.

Native Bio and their project (and partners) @d4itdr.bsky.social knocking it out of the park #AISES Dr. Kali Dale, Rebecca Dickinson (both Ojibwe) and Sakiah Perez (Borikua) demonstrating how our vision of a National Tribal Data Repository would work!

ICCA Consortium Recap: Conversation on Indigenous knowledge, Artificial Intelligence, and funding and financing for territories of life

www.iccaconsortium.org/2025/09/12/r...

YouTube video by D4I TDR D4I Tribal Data Repository - How Data Sharing Systems Work

When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

YouTube video by D4I TDR D4I Tribal Data Repository - Informed, Broad, and Dynamic Consent in Indigenous Based Research

Dynamic consent can promote Tribal sovereignty, this video provides an overview of different informed consent types. youtu.be/_4j8kKh4Zjc?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Consent

YouTube video by D4I TDR D4I Tribal Data Repository - Research Contracts and Partnerships with Tribal Nations

This video provides an intro to data transfer, ownership, and use agreements (DTOUA) as one way to form mutually respectful collaborations with Tribal Nations that recognizes their legal authority, autonomy, and sovereignty to self-direct research partnerships with Tribal citizens in research (1/2)

Are you an educator? Want to teach about data sovereignty? Look no further, we have an educational video series explaining several topics of Indigenous Data Sovereignty! youtube.com/@d4itdr?feat...

#EducationVideos #DataSovereignty #NativeEducators #Indigenous #IDSov

Come check out our website! d4itdr.org/were-in-our-...

#DataSovereignty #Indigenous #IDSov #Tribal #Data #CDE #definitions (3/3)

CDEs provide a way to standardize collected data, ensuring the type & format of data are consistent across projects/sites/studies/trials. This approach minimizes variability between studies. Reusing this data helps future studies & reduce research costs. Learn more at cde.nlm.nih.gov/home (2/3)

What is a Common Data Element (CDE)? And why do we care about them?

CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)

Do you have any questions or thoughts about our work? Feel free to contact us at info@d4itdr.org

#DataSovereignty #Indigenous #IDSov #Tribal #Data

Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research

#DataSovereignty #Indigenous #IDSov #Tribal #Conference #ASHG2025 #ASHG

We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty

We also consulted with Tribal partners to discuss how Tribes can leverage sovereignty to get their data, an ongoing conversation we are always happy to engage in. (2/2)

#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)

Professor creates 'a safe harbor' for Indigenous data | ASU News Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...

When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science

From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social

Ever wonder what IDSov and related topics could look like as a music album?

3/n I applaud Canada for this decades long project of healing. But healing is nothing without economic, political and health restoration. The passing of Bill C5 seems very anti-thetical to Truth and Reconciliation. First Nations (and the Latin American Indigenous

2/n Canada approved a resolution and letter telling Canada, their funders and universities to CEASE AND DESIST collecting all human DNA, non-human DNA in their territories, of their people and from or within their indigenous knowledge systems (food and medicines). It was a great sight to see.

5/n including our precious (as precious as our grandchildren, sacred pipe, stories, songs and language) DNA, Genetics, Genomes, Health Information, Public Health data! Please get louder with your council and on the radio and social media! trw-svr.nctr.ca/lunch-and-le...

4/n that Canada are exploiting re: Guatemala and the Amazon) are not your bioproperty. These gifts are OUR gifts. We should be getting 80/20 remuneration...but right now we can't even get 50/50. Canada and the USA seem to want 100% of our remaining resources,

1/n Truth and Reconciliation Week starts today in Canada! As well as a USA consultation with Tribes about ancient DNA being used for modern Biomedical applications. You might not know by Native Bio was present at the Canadian Assembly of First Nations when the 634 tribes of

Check out this great conference for Native Non Profits Working for their communities! Beautiful event with beautiful Indigenous people. khb2025.funraise.org