NativeBio Data Consortium

Registration is open for one of the most important Conferences in the 21st Century. Right here in the USA, an Indigenous led, Indigenous informed, and an Indigenous centric convening, about Data, Biologicals, Demographics, Environment, Climate Change, ETHICS and ML/AI s2.goeshow.com/usidsn/summi...

The Power of Meso-Level Levers for Enhancing Genomics Research Partnerships Published in The American Journal of Bioethics (Vol. 25, No. 12, 2025)

Dr Shawneequa Callier does very good work. www.tandfonline.com/doi/full/10....

Impact of the 23andMe bankruptcy on preserving the public benefit of scientific data - Nature Genetics The bankruptcy of 23andMe was an inflection point for the direct-to-consumer genetics market. Although the privacy of consumer data has been highlighted by many as a concern, we discuss another key te...

Big New Important Paper by our colleague Jonathan LoTempio et. al. www.nature.com/articles/s41...

This is what NativeBio is trying to fight. DNA is a business, estimated to be worh $172 billion/year by 2035. We live in a glut of information, including disinformation. The Genomics field already has a history of racism, power dynamics, data theft, surgical/chemical sterilization and murder.

Many people don't know but Stanford was instrumental in the formation of NativeBio. We do a lot of policy, ethics and law work. Stanford Law school please reach out and share our Vision with the world #GivingTuesday bsky.app/profile/nati...

Are there immunological and genetics differences in Amerindigenous populations with a long history of interacting with legume species in the Americas? Help us find out. Support by sharing our Mission & Vision with the world. #GivingTuesday bsky.app/profile/nati...

As Maine's largest ever HIV outbreak rages on, reasons for hope emerge.

@aneripattani.bsky.social discusses her reporting on the story for @kffhealthnews.org on Public Health On Call.

podcast.publichealth.jhu.edu/981-maines-l...

I think we'd be right in saying that the Berman Institute would agree with NativeBio that the Common Rule is antiquated and can't handle Synthetic Data, the Microbiome, the Virome or eDNA questions. Support our vision! #GivingTuesday bsky.app/profile/nati...

We support TFA and hope your fans can support us! They can show that support by sharing our Mission & Vision with the world. #GivingTuesday bsky.app/profile/nati...

Hello Dr. Raff, we know you've been a supporter. Please continue that support by sharing our Mission & Vision with the world. #GivingTuesday bsky.app/profile/nati...

Hi Ericka! If you're not a supporter, please become one and share that support by sharing our Mission & Vision with the world. #GivingTuesday bsky.app/profile/nati...

Hello Dr. TallBear, we know you've been a supporter. Please continue that support by sharing our Mission & Vision with the world. #GivingTuesday bsky.app/profile/nati...

Hello Dr. Nelson, we know you've been a supporter. Please continue that support by sharing our Mission & Vision with the world. #GivingTuesday bsky.app/profile/nati...

Hi Stefan, we know you've been a supporter. Please continue that support by sharing our Mission & Vision with the world. #GivingTuesday bsky.app/profile/nati...

251202-NBD-ReelSize-CMag This is "251202-NBD-ReelSize-CMag" by MASS on Vimeo, the home for high quality videos and the people who love them.

It's GIVING TUESDAY. Help us out and we will help the world! Thanks to Joseph Kunkel (Northern Cheyenne) and MASS Design Group! vimeo.com/1142541296/e...

Summer 2025, MASS completed the Snow Country Prison Japanese American Internment Memorial in North Dakota. That project was steered by the Santa Fe branch of MASS, led by Joseph Kunkel, principal & director of the firm’s Sustainable Native Communities Design Lab. www.archpaper.com/2025/11/mass...

Thanks so much to MASS Design Group- Santa Fe and Boston for partnering with us and helping our conjoined mission to make a better future for all. mailchi.mp/modelofarchi...

YouTube video by Dr. B Teaches Indigenous traditional ecological knowledge #landback #history #indigenous

For Native American Heritage Month and how it should dovetail with science and technology. www.youtube.com/shorts/E6Z3_...

Five Ways Native American Communities Honor Turkeys Some Indigenous peoples in the U.S. Southwest have a long relationship with turkeys, which they use for their feathers, eggs, meat, and more.

Lots of ignorance about Turkeys, including their domestication, why they are named Turkeys, how many species of Turkeys there are and their distribution across the Americas. Remember Benjamin Franklin wanted Turkeys as the USA National symbol for a reason? www.sapiens.org/archaeology/...

The Illusion of Inclusion — The “All of Us” Research Program and Indigenous Peoples’ DNA | NEJM The genomes of Indigenous peoples contain vast amounts of unexplored variation. But given the fraught history of genetic studies involving Indigenous peoples, tribal communities are sometimes reluc...

Look at this article. Little has become more fair, in fact in many regards, bio prospectors have become more bold and patent plantations & Intellectual Property Pirates have gained more legitimacy www.nejm.org/doi/full/10....

Third Kentucky infant dies of pertussis; disease rates elevated nationwide Nationwide, there have been more than 25,000 pertussis cases this year.

If only we had something that was invented in the early 1900s to prevent this from happening.

publications.aap.org/aapnews/news...?

NIH shake-up to grant decision-making sparks concern over political meddling Policy drops “paylines” based on peer-review scores and requires geography and other factors to guide approvals

@alondra.bsky.social @kimtallbear.bsky.social @ruha9.bsky.social Whoops?!! See what I predicted? Open data is dangerously putting us all in the hands of unethical and powerful people. Good intentions can only do so much. Strategy & vision do more. www.science.org/content/arti...

4/4 www.ashdin.com/articles/tra...

2/4 ictnews.org/archive/pate...

3/4 www.thepipettepen.com/the-florid-p...

Data in today’s world is King. Indigenous peoples of the Americas have so much unrealized data. Be careful in a land that is becoming increasingly anti-indigenous. The reason for their actions & propaganda is this “new gold”. Remember, Musk said “We’ll coup anyone we want, anytime we want!”

Tuesday, November 25, 2025 – For all its promise, AI is a potential threat to culture » Native America Calling On the cusp of what could be a new era of Artificial Intelligence (AI), some researchers are urging caution and the need for deliberate controls to keep the developing technology from robbing Indigeno...

@ncig2013.bsky.social @indigenousdatalab.bsky.social @scbegonias.bsky.social @mediaindigena.bsky.social NativeBio, Indigenous Data Alliance, US Indigenous Sovereignty Network, GIDA and @localcontexts.bsky.social have been saying all of this since 2009. www.nativeamericacalling.com/tuesday-nove...

YouTube video by Native BioData Consortium NBDC Trailer: Aspiration

Recognize where we are, how we got here and what's about to happen. Move quickly, for all of our sakes. www.youtube.com/watch?v=x_Jh...

Human Genome Diversity Project data use and implications for the governance of legacy genomic data - Nature Genetics To inform deliberations around use of the Human Genome Diversity Project (HGDP) and related legacy data, we conducted a literature review of HGDP-derived data use from 2010 to 2024. Our analysis sugge...

2/2 Genomic discoveries all make things dangerous for the most vulnerable, such as American Indians, Indigenous Latin Americans/First Nations/Pacific Islanders/Alaska Natives and Africans. www.nature.com/articles/s41...

Human Genome Diversity Project data use and implications for the governance of legacy genomic data - Nature Genetics To inform deliberations around use of the Human Genome Diversity Project (HGDP) and related legacy data, we conducted a literature review of HGDP-derived data use from 2010 to 2024. Our analysis sugge...

1/2 An important Commentary in Nature Genetics from people I know and respect. The landscape of the Belmont Report/Common Rule, Technological Prowess, Data Promiscuity and speculative markets around www.nature.com/articles/s41...