Stephen Schueller

You could be the recipient of CBITs Inaugural Future of Digital Mental Health Rising Star Award! This award includes the opportunity to present at CBITs' final webinar for the academic year!
Applications are NOW OPEN 🌠: cbits.northwestern.edu/education-an...

"WTF, this is so dangerous!" Social media influencers & youth mental health Join our event and hear youth-led insights on what good and bad mental health communication looks like online.

Sign up here:
www.eventbrite.co.uk/e/wtf-this-i...

#YouthMentalHealth #DigitalWellbeing #SocialMediaResearch #InfluencerCulture #MentalHealthCommunication #ChildAndAdolescentMentalHealth #OnlineSafety #MentalHealthPolicy #MentalHealthProfessionals #PublicMentalHealth

Pls share with your networks 🙏🏽

Tenure track assistant professor @uarizona Psychology Department Clinical Area; many areas of emphasis including the development of next generation, scalable assessment or intervention tools. Come be our colleague! Supportive/awesome colleagues & students arizona.csod.com/ux/ats/caree...

You can see Tim's presentation here: osf.io/zvp8k/files/...

Emphasizing in the presentation that this is a pilot! With some limitations of being a pilot - only open to a few specific areas of research, researcher's must meet eligibility, 6-month maximum timeframe for data collection, and certain Instagram data can be requested

Instagram Data Access Pilot for Well-being Research This pilot program aims to share certain Instagram data with independent academic researchers to use in conjunction with their own study data on social or emotional health.

Last presentation! Tim Errington from the Center for Open Science presenting on the Instagram Data Access Pilot for Well-Being Research: www.cos.io/meta

Princeton-Screenlake Mobile Analytics & Recording Tool Open-source repo for social scientists and public health researchers to collect and analyze passive longitudinal screenshots from mobile panels for weeks or months.

In her newly NIMH-funded work @xiaoransun.bsky.social is using the Princeton-SMART platform (formerly Screenlake): www.screenlake.com/princeton-sm...

reporter.nih.gov/search/efG37...

Getting the IRB for this study was hard - 11 months and 8 rounds of revisions raising issues such as the necessity of collecting such data, consent/assent procedures, potential of explicit images from children's smartphones, and safety protocols if content is concerning

@xiaoransun.bsky.social is the PI of the Adolescent and Family Screenomics Study, a study of 163 adolescents and 107 parents who contributed 6 months of screenomic data (screenshots every 5 seconds). It resulted in ~50 million screenshots with ~38 million screenshots coming from adolescents

Agreement between self-reported and objectively measured smartphone use among adolescents and adults Almost everything we think we know about the prevalence, correlates, risks, and benefits of smartphone use is based on individuals’ self-reported esti…

@xiaoransun.bsky.social is a real expert in this space and has done work looking at comparisons between self-report and objectively collected data, demonstrating the benefits of considering data donation paradigms: www.sciencedirect.com/science/arti...

Next up! @xiaoransun.bsky.social talks to us about some of the nuts and bolts of data donation and ethics covering aspects like IRB, consent, privacy protections, and data storage

Media Content Atlas: A Pipeline to Explore and Investigate Multidimensional Media Space using Multimodal LLMs | Proceedings of the Extended Abstracts of the CHI Conference on Human Factors in Computin...

Super interesting work by Merve Cerit on using LLMs to understand digital life of individuals through multi-dimensional data: dl.acm.org/doi/abs/10.1...

More info about the Screenomic project here: stanfordscreenomics.github.io

Nilam Ram talks about the human screenome project, collecting smartphone screenshots every 5 seconds. They've collected around 4 centuries of data at this point 😮

Nilam also gives a shout out to work by Doug Perry and Roland Path to provide a primer on using log data: www.aup-online.com/content/jour...

Digital Trace Data Collection for Social Media Effects Research: APIs, Data Donation, and (Screen) Tracking In social media effects research, the role of specific social media content is understudied, in part attributable to the fact that communication science previously lacked methods to access social m...

Nilam Ram notes different ways to think about digital trace data - APIs, data donation, and tracking. Highlighted in this paper:

www.tandfonline.com/doi/full/10....

Next presentation Nilam Ram! Presenting on collecting, cleaning, and analyzing super-intensive longitudinal data

One aspect of participant's needs are educating them about how this data might be used

Love how @munmun10.bsky.social emphasizes that the CANDOR platform has different user types - study coordinators and participants

They also have used a browser-based user agent to pull videos and other multimedia content from public social media spaces to link with user data

Their team saves data as Parquet files which is a post-processed output format that can be easily read and scanned across participants. Can improve deserialization times and are modular and easy to share compared to a database

You can learn more about @munmun10.bsky.social 's CANDOR platform here: vorcha.cc.gatech.edu

@munmun10.bsky.social notes the challenges of understanding relationships we're interested in due to the skew of research towards publicly accessible data which limits the ecologically validity of data

Next presentation - @munmun10.bsky.social presenting on CANDOR - a platform they've built to support observational and causal analysis specifically focused on understanding the relationships between social media and mental health

Dr. Christina Haag talks about the logistical challenges of doing data donation analysis

Emphasizing that the difficulty in analyzing this data is often not a technical challenge, but a conceptual challenge

Valerie Yap shares insights around ethical concerns with doing data donation work with young people.

They have a comprehensive consent process that includes a plain language information sheet, video demonstration, Q&A opportunities

And also be prepared for a long IRB review and back and forth

Valerie Yap discusses some ways to build trust through clear communication in data donation work with young people:

-Lead with validation, respecting adolescent's expertise on their digital life
-Frame data donation as a solution to platform gatekeeping
-Build agency and reciprocity

Valerie Yap indicates it's not just about data security it's also about communication and transparency

Valerie Yap discusses sentiments from their work that young people realize that companies are already collecting their data and have a willingness to share for research to help achieve positive outcomes - but want to make sure there's trust, credibility, and accountability in the use

Valerie Yap provides three main takeaways of data collection in data donation - 1) co-design is essential, 2) build trust through clear communication, and 3) address ethical concerns