What Autistic People Want From Autism Research: AutINSAR 2025
AutINSAR is a much-needed discussion between autistic people and autism researchers about priorities in autism research.
"Autism research is highly focused on causation and autism 'treatments,' areas most autistic people neither benefit from nor want studied." AutINSAR brought together #ActuallyAutistic, their families, autism researchers & professionals RE: research priorities.
thinkingautismguide.com/2025/05/what...
27.05.2025 13:35 β
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@jadefarrington.bsky.social @elizafricker.bsky.social @jodieclarke.bsky.social @drnaomifisher.bsky.social @notfineinschool.bsky.social @aut2ask.bsky.social @drjenniferhuffman.bsky.social @dean-beadle.bsky.social @sedsconnective.org @lillyjade.bsky.social you are all listed :)
26.05.2025 09:30 β
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Thank you for adding me to that wonderful starter pack :) What a great resource
28.05.2025 06:26 β
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@ndjourneys.bsky.social @jornbettin.bsky.social @ndsltuk.bsky.social @againstrestraint.com @icarszoey.bsky.social @autisticgirlsnet.bsky.social @autisticteacher.bsky.social @itsemilykaty.bsky.social @semascot.bsky.social you are all included:)
26.05.2025 09:30 β
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@gr0ve.bsky.social @thepdaspace.bsky.social @petewharmby.com @kieranrose.bsky.social @ot-expert.bsky.social @autismadvocate.co.uk @dr-nicky.bsky.social @thinkingautism.com @autisticdoctor.bsky.social @not-so-nt.bsky.social you are all included:)
26.05.2025 09:30 β
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@stimpunks.org @amase.org.uk @laurahellfeld.bsky.social @autisticallyscott.bsky.social @vivdawes.bsky.social @emergentdivergence.com @bexmilgatetherapy.bsky.social @annmemmott.bsky.social @commonsenseslt.bsky.social @scrappapertiger.bsky.social you are all included :)
26.05.2025 09:30 β
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Resharing my starter pack of neuro-affirming Autistic advocates, orgs and charities if you are looking for a good list of people to follow
go.bsky.app/9N5UEUC
26.05.2025 08:57 β
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Excited to be joining @stimpunks.org and @covingtonedu.bsky.social from @humrespro.bsky.social for a podcast soon :)
19.05.2025 12:12 β
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"With the founding of ASAN....information and advocacy model changed. And parents like me can opt for better choices."
When you know better, you can do better!
Great words from @shannonrosa.bsky.social @thinkingautism.com about the amazing work @autisticadvocacy.org do for our community.
18.05.2025 19:25 β
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β¨To everyone.....Listen to this!β¨
I wanted to share this short but mind sparking interview on neuroqueering.
Thank you @dr-nicky.bsky.social , and I've now got many, many more exciting thoughts to explore :)
#Neurodivergent
#OccupationalTherapy
18.05.2025 06:29 β
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Flyer titled "Recruitment call: Supporting autistic students at university". The University of Portsmouth logo is in the top-left corner and the University of Nottingham logo is in the top-right corner.
It says "Are you an autistic university student in the UK?
We are inviting you to take part in our study on support experiences and needs", followed by
"You can take part if:
β’ You are a university student in the UK (18 and above)
β’ You have a formal autism diagnosis or you self-identify as autistic"
"To complete the questionnaire, scan the QR code, which will take you to a draft email to the researcher. Please send this email to get your unique ID to complete the questionnaire." The QR code is presented to the right.
The flyer ends with "For questions, please email emine.gurbuz@port.ac.uk".
Calling autistic uni students in UK (UG, masters): our survey on your support experiences & needs, developed from community-based participatory research w/ autistic & non-autistic students & disability support staff. Pls share widely
Scan QR code in flyer -> send drafted email to receive direct link
04.03.2025 16:48 β
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Thereβs growing discourse around the βoverdiagnosisβ of Autism and ADHDβparticularly in adults. Critics say these diagnoses are now being handed out too easily, "its all gone too far", even framing them as trendy. But this view misses something fundamental. 1/24
21.04.2025 10:49 β
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YouTube video by Mental Elf
Funding mental health research collaborations across sectors and communities
Partnerships between researchers, clinicians, patients & local communities are essential for producing research that is useful in the real world.
Itβs #MentalHealthAwarenessWeek and the theme this year is COMMUNITY.
π§΅ THREAD
#MentalHealthResearch #Collaboration
www.youtube.com/watch?v=o2aW...
16.05.2025 07:06 β
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If youβre dealing with Long Covid - thereβs a chance youβre also dealing with MCAS and/or POTS/Dysautonomia.
Theyβre two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega π§΅ of resources
07.12.2024 03:28 β
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What a lovely image to start off the week with. Thank you @teamswiftparrot.bsky.social π¦
28.04.2025 09:10 β
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PROSPERO
PROSPERO
Late registered: aiming to "understand the experiences of neurodivergent healthcare professions students/trainees, based on a systematic review of existing qualitative and mixed methods studies" www.crd.york.ac.uk/PROSPERO/vie... in which "neurodivergent" means "diagnosed and/or self-identified"
28.04.2025 08:53 β
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β¨New Ebook..... Autism Awareness or Autism Acceptance? β¨
Definitely recommend reading this new ebook by @autisticrealms.bsky.social @emergentdivergence.com and @tanyaadkin.bsky.social
28.04.2025 09:03 β
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Image of someone holding DFE: Use of reasonable force and other restrictive interventions guidance Government consultation papers
@againstrestraint.com is formulating its response to the English governmentβs βUse of Reasonable Forceβ consultation.
This isnβt just flawed guidance β itβs dangerous.
No child should be harmed or at risk.
Submit your views before 29 April
consult.education.gov.uk/behaviour-un...
26.04.2025 06:18 β
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Photo of newspaper clipping of book bestsellers. Wired Our Own Way is number 10 on non fiction paperback bestseller list.
Week 3 in the Bestsellers π Thank you dear readers, for your empathy, your willingness to listen to #Autistic Voices.
Wired Our Own Way; An Anthology of Irish Autistic Voices @newislandbooks.bsky.social
19.04.2025 13:05 β
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Considering the events of this past week, an old friend suggested that this might be a good time to resurrect this 1989 classic from The Baltimore Sun .
12.04.2025 16:25 β
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Autistic 12-year-old 'brutally' restrained in school calming room
The way the boy was held on the floor in a special school was unlawful, a use-of-force expert tells BBC.
This is what Β£70,000 of taxpayersβ money on βde-escalation and restraintβ training gets you.
ICARS obtained this data via FOI (2018β2023) and submitted it to the SEND National Crisis Inquiry.
Another disabled child restrained. This is systemic. Govβt must act.
www.bbc.com/news/article...
09.04.2025 23:42 β
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Screen shot of list of books starting with #7 Untypical by Pete Wharmby
#8 The Menopaise Brain by Dr Lisa Mosconi
#9 Being Autistic(and what that actually means) by Niamh Garvey
My kid's book "Being Autistic (and what that actually means)" is no. 9 is the Amazon bestsellers in Neurology β¨ This makes me happy, as I love to know my books are out in the world. Still, please buy from your local bookshops and not amazon.
04.04.2025 19:32 β
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β¨Long Covidβ¨
What are some recommended assessment tools to measure the functional impact of Long Covid or ME/CFS?
__
#LongCovid
31.03.2025 05:57 β
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Show me how you draw/paint women
#art #portrait #digitalart #graphite
23.03.2025 15:29 β
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Wow, that's beautiful!
29.03.2025 22:33 β
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Another of my Audrey Hepburn portraits. (24x30 cm canvas, oil paints )
#Painting #Paintings #Oilpainting #Oilpaintings #Portrait #Portraits #Art #Artwork #Artsky #Blueskyart #Bskyart #Traditionalart #Fineart #Arthistory
28.03.2025 11:38 β
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β¨Creating neurodiversity-affirming environments in schools β¨
Free public lecture by @thewoodbug.bsky.social
See details below, from @autisticrealms.bsky.social π
29.03.2025 07:38 β
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Resources from:
@playradical.bsky.social @commonsenseslt.bsky.social and more!
Signposting includes: @rebeleducator.bsky.social @emmapritchard95.bsky.social @kmunday.bsky.social and more!
29.03.2025 07:29 β
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