What Autistic People Want From Autism Research: AutINSAR 2025
AutINSAR is a much-needed discussion between autistic people and autism researchers about priorities in autism research.
"Autism research is highly focused on causation and autism 'treatments,' areas most autistic people neither benefit from nor want studied." AutINSAR brought together #ActuallyAutistic, their families, autism researchers & professionals RE: research priorities.
thinkingautismguide.com/2025/05/what...
27.05.2025 13:35 β π 8 π 4 π¬ 1 π 0
@jadefarrington.bsky.social @elizafricker.bsky.social @jodieclarke.bsky.social @drnaomifisher.bsky.social @notfineinschool.bsky.social @aut2ask.bsky.social @drjenniferhuffman.bsky.social @dean-beadle.bsky.social @sedsconnective.org @lillyjade.bsky.social you are all listed :)
26.05.2025 09:30 β π 5 π 1 π¬ 1 π 1
Thank you for adding me to that wonderful starter pack :) What a great resource
28.05.2025 06:26 β π 1 π 0 π¬ 0 π 0
@ndjourneys.bsky.social @jornbettin.bsky.social @ndsltuk.bsky.social @againstrestraint.com @icarszoey.bsky.social @autisticgirlsnet.bsky.social @autisticteacher.bsky.social @itsemilykaty.bsky.social @semascot.bsky.social you are all included:)
26.05.2025 09:30 β π 2 π 1 π¬ 1 π 0
@gr0ve.bsky.social @thepdaspace.bsky.social @petewharmby.com @kieranrose.bsky.social @ot-expert.bsky.social @autismadvocate.co.uk @dr-nicky.bsky.social @thinkingautism.com @autisticdoctor.bsky.social @not-so-nt.bsky.social you are all included:)
26.05.2025 09:30 β π 4 π 1 π¬ 2 π 0
@stimpunks.org @amase.org.uk @laurahellfeld.bsky.social @autisticallyscott.bsky.social @vivdawes.bsky.social @emergentdivergence.com @bexmilgatetherapy.bsky.social @annmemmott.bsky.social @commonsenseslt.bsky.social @scrappapertiger.bsky.social you are all included :)
26.05.2025 09:30 β π 6 π 1 π¬ 1 π 0
Resharing my starter pack of neuro-affirming Autistic advocates, orgs and charities if you are looking for a good list of people to follow
go.bsky.app/9N5UEUC
26.05.2025 08:57 β π 108 π 41 π¬ 8 π 3
Excited to be joining @stimpunks.org and @covingtonedu.bsky.social from @humrespro.bsky.social for a podcast soon :)
19.05.2025 12:12 β π 19 π 8 π¬ 2 π 0
"With the founding of ASAN....information and advocacy model changed. And parents like me can opt for better choices."
When you know better, you can do better!
Great words from @shannonrosa.bsky.social @thinkingautism.com about the amazing work @autisticadvocacy.org do for our community.
18.05.2025 19:25 β π 3 π 3 π¬ 0 π 0
β¨To everyone.....Listen to this!β¨
I wanted to share this short but mind sparking interview on neuroqueering.
Thank you @dr-nicky.bsky.social , and I've now got many, many more exciting thoughts to explore :)
#Neurodivergent
#OccupationalTherapy
18.05.2025 06:29 β π 7 π 2 π¬ 0 π 0
Flyer titled "Recruitment call: Supporting autistic students at university". The University of Portsmouth logo is in the top-left corner and the University of Nottingham logo is in the top-right corner.
It says "Are you an autistic university student in the UK?
We are inviting you to take part in our study on support experiences and needs", followed by
"You can take part if:
β’ You are a university student in the UK (18 and above)
β’ You have a formal autism diagnosis or you self-identify as autistic"
"To complete the questionnaire, scan the QR code, which will take you to a draft email to the researcher. Please send this email to get your unique ID to complete the questionnaire." The QR code is presented to the right.
The flyer ends with "For questions, please email emine.gurbuz@port.ac.uk".
Calling autistic uni students in UK (UG, masters): our survey on your support experiences & needs, developed from community-based participatory research w/ autistic & non-autistic students & disability support staff. Pls share widely
Scan QR code in flyer -> send drafted email to receive direct link
04.03.2025 16:48 β π 22 π 17 π¬ 1 π 1
Thereβs growing discourse around the βoverdiagnosisβ of Autism and ADHDβparticularly in adults. Critics say these diagnoses are now being handed out too easily, "its all gone too far", even framing them as trendy. But this view misses something fundamental. 1/24
21.04.2025 10:49 β π 50 π 15 π¬ 3 π 7
YouTube video by Mental Elf
Funding mental health research collaborations across sectors and communities
Partnerships between researchers, clinicians, patients & local communities are essential for producing research that is useful in the real world.
Itβs #MentalHealthAwarenessWeek and the theme this year is COMMUNITY.
π§΅ THREAD
#MentalHealthResearch #Collaboration
www.youtube.com/watch?v=o2aW...
16.05.2025 07:06 β π 19 π 10 π¬ 2 π 1
If youβre dealing with Long Covid - thereβs a chance youβre also dealing with MCAS and/or POTS/Dysautonomia.
Theyβre two of the most common comorbids - and can have a devastating impact on quality of life.
New allergies? Alcohol intolerance? Dizziness? Fatigue? Fainting?
A mega π§΅ of resources
07.12.2024 03:28 β π 2307 π 707 π¬ 194 π 46
What a lovely image to start off the week with. Thank you @teamswiftparrot.bsky.social π¦
28.04.2025 09:10 β π 3 π 0 π¬ 0 π 0
PROSPERO
PROSPERO
Late registered: aiming to "understand the experiences of neurodivergent healthcare professions students/trainees, based on a systematic review of existing qualitative and mixed methods studies" www.crd.york.ac.uk/PROSPERO/vie... in which "neurodivergent" means "diagnosed and/or self-identified"
28.04.2025 08:53 β π 4 π 1 π¬ 0 π 0
β¨New Ebook..... Autism Awareness or Autism Acceptance? β¨
Definitely recommend reading this new ebook by @autisticrealms.bsky.social @emergentdivergence.com and @tanyaadkin.bsky.social
28.04.2025 09:03 β π 5 π 1 π¬ 1 π 0
Image of someone holding DFE: Use of reasonable force and other restrictive interventions guidance Government consultation papers
@againstrestraint.com is formulating its response to the English governmentβs βUse of Reasonable Forceβ consultation.
This isnβt just flawed guidance β itβs dangerous.
No child should be harmed or at risk.
Submit your views before 29 April
consult.education.gov.uk/behaviour-un...
26.04.2025 06:18 β π 23 π 13 π¬ 2 π 2
Photo of newspaper clipping of book bestsellers. Wired Our Own Way is number 10 on non fiction paperback bestseller list.
Week 3 in the Bestsellers π Thank you dear readers, for your empathy, your willingness to listen to #Autistic Voices.
Wired Our Own Way; An Anthology of Irish Autistic Voices @newislandbooks.bsky.social
19.04.2025 13:05 β π 17 π 3 π¬ 1 π 1
Considering the events of this past week, an old friend suggested that this might be a good time to resurrect this 1989 classic from The Baltimore Sun .
12.04.2025 16:25 β π 183 π 43 π¬ 5 π 1
Autistic 12-year-old 'brutally' restrained in school calming room
The way the boy was held on the floor in a special school was unlawful, a use-of-force expert tells BBC.
This is what Β£70,000 of taxpayersβ money on βde-escalation and restraintβ training gets you.
ICARS obtained this data via FOI (2018β2023) and submitted it to the SEND National Crisis Inquiry.
Another disabled child restrained. This is systemic. Govβt must act.
www.bbc.com/news/article...
09.04.2025 23:42 β π 11 π 4 π¬ 1 π 0
Screen shot of list of books starting with #7 Untypical by Pete Wharmby
#8 The Menopaise Brain by Dr Lisa Mosconi
#9 Being Autistic(and what that actually means) by Niamh Garvey
My kid's book "Being Autistic (and what that actually means)" is no. 9 is the Amazon bestsellers in Neurology β¨ This makes me happy, as I love to know my books are out in the world. Still, please buy from your local bookshops and not amazon.
04.04.2025 19:32 β π 26 π 4 π¬ 1 π 0
β¨Long Covidβ¨
What are some recommended assessment tools to measure the functional impact of Long Covid or ME/CFS?
__
#LongCovid
31.03.2025 05:57 β π 5 π 1 π¬ 1 π 0
Show me how you draw/paint women
#art #portrait #digitalart #graphite
23.03.2025 15:29 β π 13 π 1 π¬ 0 π 0
Wow, that's beautiful!
29.03.2025 22:33 β π 1 π 0 π¬ 1 π 0
Another of my Audrey Hepburn portraits. (24x30 cm canvas, oil paints )
#Painting #Paintings #Oilpainting #Oilpaintings #Portrait #Portraits #Art #Artwork #Artsky #Blueskyart #Bskyart #Traditionalart #Fineart #Arthistory
28.03.2025 11:38 β π 31 π 1 π¬ 1 π 0
β¨Creating neurodiversity-affirming environments in schools β¨
Free public lecture by @thewoodbug.bsky.social
See details below, from @autisticrealms.bsky.social π
29.03.2025 07:38 β π 16 π 8 π¬ 0 π 0
Resources from:
@playradical.bsky.social @commonsenseslt.bsky.social and more!
Signposting includes: @rebeleducator.bsky.social @emmapritchard95.bsky.social @kmunday.bsky.social and more!
29.03.2025 07:29 β π 1 π 1 π¬ 0 π 0
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
We study the neurobiology of language and its relationship to consciousness, mental health, and wellbeing using neuroimaging and psychedelics at UCL π§ π£οΈ
http://www.lab-lab.org/
UCL Centre for Consciousness Research
https://www.uccr.uk/
my name is june - she/her - evil transsexual disinfo influencer
i am a host on the kill the computer podcast and the ill conceived podcast:
- www.killthecomputer.com
- https://www.illconceivedpodcast.com
a reputable journalist at @theonion.com
Research Fellow. Head of DMT Research Group. Centre for Psychedelic Research, Imperial College London. Neuroscience | Phenomenology | Psychedelics | Meditation
Publications: https://scholar.google.com/citations?user=ezYk7h0AAAAJ&hl=
Psychologist, phenomenologist, and cognitive neuroscientist studying the scientific description and measurement of the psychedelic experience with the DMT Research Group at Imperial College London's Centre for Psychedelic Research.
Artist, painter, husband, father, grandfather, brother. www.johnteiseman.com
Hey I'm Ed, welcome to my page ! This account is dedicated to sharing my artwork and progress pieces , and also to see other artists and fun stuff <3 I dabble in the traditional arts !(mainly oil paints)
https://www.instagram.com/eduardart90/
Occupational Therapy educator and researcher, founder of OccupationalFormulation.com, 2023 OT of the year (Australian Allied Health Awards).
Artist, naturalist, podcaster, art teacher. Graphite, watercolor, oil, acrylic, and digital. By day, I work in IT & health research.
https://MikeHendley.com/links
Candidate for Congress in MO-2. Host of 'On Democracy with FPWellman' Friday's and βIn the Hot Seatβ on MeidasTouch. Army Iraq veteran. Pro-Democracy Advocate. Missourian.
Ex-Hasid now fighting for a true pluralistic democracy | Writer: democracy, peace, extremism, antisemitism, & marketing | MSNBC, DailyBeast, HuffPo, the Forward & more | Founder: justicemarketing.io | Newsletter: eladnehorai.substack.com
Sociologist studying how our social structures make sexual violence more likely to occur. Author of ON THE WRONG SIDE. Co-founder of Beyond Compliance Consulting. PhD UMich.
Senior writer at Slate covering courts and the law. Co-host of the Amicus podcast. Dad.
Your least favorite accountβs favorite account. She/her.
Award-winning writer of The Chronicles of Ara novels. Author and screenwriter. Producer of film and television. WGA member. PEN America member. Words are my weapons and I wear my passion on my sleeve. Lit rep: Scott Kaufman at Buchwald.
On a spinning rock flying through space.
Programmer. Musician. Parent.
Trans. Autistic. Monotropic. ADHD.
https://mastodon.social/@kathryndeplume
NHS Acute Hosp Dr 36 y. GER/GIM. Ex DH Nat Clin Dir. Lapsed Academic. Policy Think Tanker. Ex BGS/RCP Pres/VP
Med Journalism. Byline: @BMJ_latest. Columns: health press newspapers. @mjauk
Manc-in-South. MCFC. Craic, Schlock, Sharing, Learning, Friends
A British and Irish network of academics/clinicians/lived experience/carers interested in the field of βpersonality disorderβ.
Follow #BIGSPD25 for our live reporting throughout conference!
We imagine a world where all lesbian, gay, bi, trans, queer, questioning and ace (LGBTQ+) people are free to be themselves π
LGBTQIA+/HIV activist and writer (he/him/his). GAY TIMES column. Church of England General Synod Member. Trans inclusive. Views my own. Press: lucy@wearelucy.co.uk