IaccSky Updates

I don't want to be responsible for people encountering hate, so the feeds will have a moderation policy in case something comes up. This will probably come up rarely, if ever; Bluesky currently doesn't appear to have the same volume of trolling or malicious discourse that Twitter does (though others may have had a different experience). People should tag me at https://bsky.app/profile/iaccsky-updates.bsky.social if they see behavior that meets any of these criteria. An account can be banned from appearing on the feeds for these reasons:

1) Having a username or handle that supports hate movements. For example, users "hitlerfan1488.bsky.social" and "Proud Terf" would get banned.* 2) Using hashtags (appearing on the IACC Discover feed) to harass people as individuals or groups (including on the basis of race, gender, sexuality, ability etc.). For example, posting "#LongCovid isn't real" or "gay guys shouldn't have jobs #mcas" would get someone banned for harassment using hashtags. 3) Using hashtags (appearing on the IACC Discover feed) to maliciously compare different IACCs for the purpose of hurting others. For example, posting "#mecfs just means you're tired, but #LongCovid is real". This is about pretty egregious cases that I don't see on Bluesky almost ever. 4) Otherwise using the feeds for harassment in some way. I want people to let me know if something obviously bad is going on that involves the feeds, even if it doesn't technically meet the above criteria.

*I'm not going to preemptively ban people (this would be too much work for me), so if you see hitlerfan1488 somewhere other than on one of the IACCSky feeds, please don't tag me. If hitlerfan1488 has Long Covid and posts about it such that they appear on any of the feeds (excluding IACC Secret-if you see them there, it's because you put them on your secret list), let me know.

Moderation policy:

To see a full list of which keywords are associated with which feeds, or to access the code itself:

If you would like to view feeds without replies, you can post or reply "@iaccsky-updates.bsky.social RepliesOff" (no quotes) and you will get an automatic notification that replies will no longer be visible. to turn them back on, post or reply "@iaccsky-updates.bsky.social RepliesOn" (no quotes).

To remove yourself from the Mutual Aid or United Kingdom feeds so your posts will no longer appear, post or reply "@iaccsky-updates.bsky.social RemoveFromMutualAid" or "@iaccsky-updates.bsky.social RemoveFromUnitedKingdom" without the quotes.

IACC Secret: Posts about anything from people on your secret list. To set up your secret list, see bsky.app/profile/iacc...

IACC United Kingdom: Posts from IACC community members in the UK. For your posts to appear on this feed, post or reply "@iaccsky-updates.bsky.social AddToUnitedKingdom" without the quotes and you should get an automatic notification within a few minutes that you are added.

(See blog post for a note about community participation in mutual aid on Bluesky.)

IACC Mutual Aid: Posts from IACC mutual aid community members about mutual aid or about IACCs. For your posts to appear on this feed, post or reply "@iaccsky-updates.bsky.social AddToMutualAid" without the quotes and you should get an automatic notification within a few minutes that you are added.

IACC Links: Posts from people you follow OR discoverable posts that include links with specific keywords. This feed will contain links to research, news, blog posts, etc. about IACCs and related social issues.

IACC Discover: Discoverable posts about IACC thoughts and experiences from people you DO NOT follow. A post is discoverable if it contains "#[keyword]" such as #LongCovid or #mecfs or #fibromyalgia.

IACC Following: Posts about IACC thoughts and experiences from ONLY people you follow.

IACCSky: Bluesky Feeds for People with Long Covid, ME/CFS and Related Diseases (Re)Introduction to Bluesky I started using Bluesky in 2023, soon after developing Long Covid. I’d been mostly a lurker on social media since deleting my...

blog post is up! includes survey results, feed descriptions and moderation policy. for new people who don't want to read a whole blog post, I am gonna post the feeds and other key information below one more time with non-broken links. moderation policy will be at the end. 🧵

Removed from mutualaid

Added to mutualaid.

this is ready for people to try out! here's how it works:

1) message this account the word "password" (no quotes) and you'll get an automated response including a randomly generated password. 1/

at this point @iaccsky-updates.bsky.social feeds should not be down for anyone at any time. if you get an error PLEASE let me know!!!

Removed from mutualaid
Removed from unitedkingdom

Added to unitedkingdom.

Added to mutualaid.

Feeds will now include replies.

Feeds will no longer include replies.

straightforward way, to do this without whoever is managing the queue to theoretically have access to this information.

please let me know if you try this it doesn't work for you, something seems off or if you have suggestions for how to improve it! 5/end

to answer the obvious question people might have, yes I could technically see who has who on their list. it wouldn't be as simple as opening up a document though, there are barriers that would make it annoying to do even if I wanted to (I don't). there's not really a way, or at least not a 4/

following, so you'll need to type their whole handle.

then you can access the feed and see posts from users on your list about anything, not just IACCs! the feed may be empty at first but posts will be pulled into the queue starting when you make your list, or add new users. 3/

2) go to iaccsecret-viralpersistence.pythonanywhere.com and log in using your bluesky handle with NO @ (so for me it would be iaccsky-updates.bsky.social) and your password
3) add whoever you want, following or not, to your list. Note: the text field will not auto fill for someone you're not 2/

this is ready for people to try out! here's how it works:

1) message this account the word "password" (no quotes) and you'll get an automated response including a randomly generated password. 1/

Added to mutualaid.

Removed from mutualaid

You are already a member of mutualaid.

You are already a member of mutualaid.