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SAIA’s IBDesis

@ibdesis.bsky.social

Award-winning Patient Advocacy arm of 501c3 charitable organization @saia-gi | Dedicated to uniting & empowering #SouthAsians living with #IBD

209 Followers  |  140 Following  |  9 Posts  |  Joined: 17.11.2024
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Posts by SAIA’s IBDesis (@ibdesis.bsky.social)

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Our 2025 Impact Report is out! 🗞️ Read about our accomplishments in 2025 & receive other updates from SAIA by signing up for membership: saibda.memberclicks.net/new-member-a...

What an incredible year! Thank you to our sponsors and community for making this possible! 💥 🙌🏽

10.02.2026 13:07 — 👍 2    🔁 2    💬 0    📌 0
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Our latest newsletter is here! 🎉

This special edition celebrates 5 years of SAIA's @ibdesis.bsky.social, exciting new additions to our team, plus important educational resources & research publications!

Become a member & receive our newsletter today! saibda.memberclicks.net/new-member-a... 💜

16.01.2026 13:24 — 👍 2    🔁 2    💬 0    📌 0
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We are thrilled to welcome pediatric GI Dr. Ashish Patel to our Medical Advisory Panel! 🎉 🙌🏽

Learn more about Ashish here: saia-gi.org/medical-advi...

We’re so proud to continue growing to better serve & empower our pediatric patients and their caregivers 💜

10.01.2026 14:29 — 👍 2    🔁 2    💬 0    📌 0
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Last month at AIBD, we asked attendees about their favorite IBD myth to bust! Check out our new vid to see the responses, which range from 😂 to 😱

SAIA is proud to work alongside you all, busting these myths to improve the lives of patients with IBD and other GI conditions 💜

08.01.2026 14:08 — 👍 2    🔁 3    💬 0    📌 0
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Patient voices in #IBD #research matter. Both @ownyourcrohns.bsky.social
& @voiceforibd.bsky.social had the honor to contribute to a @bmj.com State of the Art Review on IBD medical mgmt, written for clinicians & including a patient perspective section to ground PROs👇🏼

🔗 bit.ly/MedicalMgmtO...

07.01.2026 16:07 — 👍 6    🔁 3    💬 0    📌 1

Welcome, Dr. Abraham! 👏🏽💜

05.01.2026 13:32 — 👍 1    🔁 0    💬 0    📌 0

👏🏽👏🏽👏🏽

29.12.2025 13:27 — 👍 0    🔁 0    💬 0    📌 0
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IBD doesn’t have a single cause — it’s influenced by genetics, environmental triggers, changes in the gut microbiome, and immune system dysregulation.

#COREIBD #IBD #Crohns #UlcerativeColitis #IBDAwareness

@drsmeena.bsky.social
@saia-gi.bsky.social
@connectingtocure.bsky.social

19.11.2025 16:10 — 👍 6    🔁 3    💬 0    📌 1
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🌙 Observing #Ramadan with #IBD 🌙

📖 @southasianibd.bsky.social has put together helpful guidance on fasting with IBD, including religious exemptions and medical advice. Find their resources here:
👉 Tips for fasting during Ramadan southasianibd.org/resources/ob...

14.03.2025 16:13 — 👍 3    🔁 3    💬 1    📌 0

Happy World Ostomy Day!! We are so proud to partner with them on educational resources and partners to support and empower patients and their families & friends with IBD

07.10.2025 16:48 — 👍 4    🔁 3    💬 0    📌 0
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It’s Gastro Gyan time 🥁🎉

In this episode of SAIA’s Gastro Gyan Series, Dr. Sanket Patel & Patient Advocate Aisha Memon discuss tips & tricks to make infusions & injections easy, accessible & acceptable for all patients 💥🙏🏽

Tune in: youtu.be/nHGfBREFSzQ?...

10.11.2025 14:24 — 👍 2    🔁 2    💬 0    📌 0
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At #ACG2025, we announced @saia-gi.bsky.social expansion into #CultureAndGI as “Strategic Alliance for Intercultural Advocacy in GI,” something we’ve been doing, just now our name has caught up 💥

Thank you for the support as we usher in a new era! Special thank you to @amcollegegastro.bsky.social 🙏🏽

04.11.2025 15:05 — 👍 3    🔁 2    💬 0    📌 0
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SAIA is expanding! 🥳

At ACG 2025, we announced a brand new SAIA! We’re grateful for our growth as South Asian IBD Alliance, but we are now...

✨️ Strategic Alliance for Intercultural Advocacy in GI ✨️

Still SAIA, but we're now encompassing "Culture & GI" to ensure inclusion for all. 🙏🏼

30.10.2025 13:08 — 👍 2    🔁 3    💬 0    📌 0
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Honored to be speaking at Indo US Rare’s Summit on accessible & culturally inclusive #clinicaltrials

I plan to share @southasianibd.bsky.social & @amergastroassn.bsky.social’s critical work on inclusion of Asian MENA & Pacific Islander #IBD community

Join us: summit.indousrare.org/register-now

29.10.2025 23:32 — 👍 4    🔁 2    💬 0    📌 0
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Have you checked out J&J’s IBD Social Circle’s whitepaper on the need for community in #IBD? 😊

This is a powerful paper with staggering statistics on isolation, stigma and the need for multidisciplinary care for us IBD patients. Check it out: www.ibdsocialcircle.com/community-ib...

23.10.2025 00:35 — 👍 4    🔁 2    💬 0    📌 0
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This #WorldOstomyDay, @ownyourcrohns.bsky.social shares how it’s absolutely possible to wear a saree with confidence as an #ostomate!

We’re proud to collaborate with @coreibd.bsky.social on this important video. www.coreibd.org

To explore SAIA's resources visit: southasianibd.org/patient-educ...

05.10.2025 14:34 — 👍 4    🔁 2    💬 0    📌 1
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An honor to present at #PIBDRD25 on the epidemiology, phenotypes, clinical features & sex-based differences of #IBD in #SouthAsians 🙌🏽

This was my 1st time presenting on a wide scale as a RESEARCHER at an IBD conference. Thank you to @neeraguptamd.bsky.social for the kind invitation 🙏🏽

16.04.2025 00:13 — 👍 4    🔁 2    💬 0    📌 0

Makes you wonder about the high prevalence of anxiety and depression in #IBD - in people who have damaged gut epithelium, and therefore are more likely to have issues with gut serotonin.

11.04.2025 20:55 — 👍 10    🔁 2    💬 1    📌 0
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SAIA collaborated with researchers globally on important new research in @lancetgastrohep.bsky.social, 'IBD in South Asia: A Scoping Review'
www.sciencedirect.com/science/arti...

This article comprehensively reviews #IBD to state that IBD in South Asia is NOT DISSIMILAR from North America & Europe.

16.02.2025 11:48 — 👍 4    🔁 4    💬 0    📌 1

This @lancetgastrohep.bsky.social publication took our team & collaborators 3+ years in the making👏🏽

Congratulations to all the authors!

16.02.2025 11:55 — 👍 5    🔁 5    💬 0    📌 0
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We’re honoured to have tabled & presented at GAPIO’s 15th Annual Meeting in Mysuru, India 🇮🇳

Thrilled to have Madhura, Tanya, Tina represent SAIA & Tina speak about ‘GI Surgery: Comprehensive Care for IBD’ discussing #biologics & #ostomy #jpouch surgeries & the growing need for #IBD care in India.

31.01.2025 14:07 — 👍 2    🔁 2    💬 0    📌 1
Login • Instagram Welcome back to Instagram. Sign in to check out what your friends, family & interests have been capturing & sharing around the world.

During #ACG2024, #SAIA hosted an insightful panel featuring Dr. Bincy Abraham on the growing role of #IntestinalUltrasound (IUS) in #IBD care 🙌🏽

Click below to watch the video for expert insights on how #IUS can improve patient acceptance & uptake of therapies 🙏🏽

🎥 www.instagram.com/reel/DFLA5Nh...

23.01.2025 15:25 — 👍 1    🔁 3    💬 0    📌 0
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It's norovirus season🚨

With the increase in cases, through this resource, SAIA's own Dr. Tauseef Ali explains how the virus spreads, symptoms & prevention strategies 🦠

Let's prevent further spread & keep ourselves & our loved ones safe 🙏🏽

Read more: www.cdc.gov/norovirus/ou...

16.01.2025 12:58 — 👍 1    🔁 1    💬 0    📌 0
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We are so proud of the work Tina(@ownyourcrohns.bsky.social) and Natalie are doing to make IBD conference content comprehensible for patients 🙌🏽🙌🏽

In this well-written article, learn more about the key themes from #AIBD2024: ownyourcrohns.com/key-takeaway...

08.01.2025 14:00 — 👍 4    🔁 3    💬 0    📌 1
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SAIA is a proud partner of #CCCongress25, a Crohn's & Colitis Foundation & @amergastroassn.bsky.social conference being held in San Francisco on Feb 6-8.

Join us to learn about the latest scientific breakthroughs & treatment strategies revolutionizing #IBD care.

Register: crohnscolitiscongress.org

05.01.2025 14:15 — 👍 5    🔁 4    💬 0    📌 0
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In the 📕#RedJournal:

Medical Therapies for Prevention and Treatment of Inflammatory Pouch Disorders—A Systematic Review and Meta-Analysis
Syal, et al.

👉 bit.ly/4fURs7K

@manasiagrawal.bsky.social @jhaydek.bsky.social

06.01.2025 21:59 — 👍 9    🔁 2    💬 1    📌 0
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Walking into 2025 like… 💃🏽

Having been diagnosed 19 years ago with #IBD, I never realized how much the condition would change my life. I’m grateful to be owning my Crohn’s everyday helping run @southasianibd.bsky.social @ibdesis.bsky.social w/ brilliant patients & doctors 🧿🙏🏽

03.01.2025 20:12 — 👍 7    🔁 2    💬 0    📌 0
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Team SAIA / @ibdesis.bsky.social wishes you a #HappyNewYear! We hope 2025 brings you & your loved ones good health & joy!

2024 was a big year for us and we are truly thankful for your support 💜💜

In 2025 & beyond, we will continue to work hard to improve #IBD care globally 🙏🏽🙏🏽

31.12.2024 16:20 — 👍 5    🔁 3    💬 1    📌 0
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Happy Holidays from all of us at SAIA / @ibdesis.bsky.social ✨✨🎄🎄

We send our love and best wishes to you and your loved ones💜💜

We hope you have a wonderful time filled with happiness, good health, and festive cheer🥳🎉🎇

24.12.2024 15:23 — 👍 3    🔁 3    💬 0    📌 0
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The latest edition of our newsletter is out 🎉

This edition is filled with updates from our physician & patient advocacy team around the 🌏

To receive our newsletter & become a part of the SAIA / IBDesis community, sign up to be a SAIA member today: saibda.memberclicks.net/newsletters 💜

20.12.2024 13:23 — 👍 2    🔁 2    💬 0    📌 0