Pride in Patient Engagement in Research

PLEX Engagement in Research Community of Practice Onil Bhattacharyya and Sandra Holdsworth will be presenting "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience". March 25th from 12-1 pm

We are excited to announce this month's PiPER Community of Practice! Save the date on *March 25th 2026* from 12-1 pm for a dynamic session entitled "Patient Partners in Learning Health Systems: The Centre for Digital Health Evaluation Experience".

Join at this Zoom link: lnkd.in/eHbU6zE9

@uhnresearch.ca @uhn.ca

PLEX Engagement in Research Community of Practice James Khan, Cathy Ammendolea, Therese Lane, Nour Ayach, and Sarah Miles will be speaking about "Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials. PLEX are People with Lived Experience (Patients, Families, Carers( Jan 28th 2026 12-1 pm EST Zoom Link (above) Contact Us at piper@uhn.ca

Save the date on January 28th 2026 from 12-1 pm for a dynamic Community of Practice session titled “Lessons Learned by a Research Team New to Engaging PLEX in Randomized Controlled Trials!

Zoom Link: lnkd.in/eHbU6zE9

The 3rd annual PiPER Research Day on October 8th, 2025, welcomed over 175 attendees to share work under the theme of "Do the Right Thing, Share it With Others, Build a Better Tomorrow". Check out our summary report from the event, showcasing event highlights and key takeaways: bit.ly/4aGsCJJ

Have you had a chance to check out last month's newsletter? kite-uhn-piper.s3.ca-central-1.amazonaws.com/docs/Novembe...

Become a PiPER Member to learn more about upcoming updates, opportunities, and events: www.surveymonkey.com/r/MTZJYTF

Kudos to @amaybee.bsky.social, Dawn Barker, Margaret Keatings, and Camille Orridge who were instrumental in co-developing the event and report!

Engaging people with lived experience can occur at the end of a research project during the sharing phase. Here are some key considerations identified by our symposium participants: Value contributions (e.g., co-authorship and team celebrations) Ask for feedback on project outputs Use creative ways to share project outputs (e.g., graphic novel, photo collage)

Ready to share outputs co-created with people with lived experience on a research project?

Check Out Our Full Report: lnkd.in/e_vcyK-n

Share the report considerations that resonate with you—and add your own ideas for the doing phase of research!

@wchospital.bsky.social

@uhnresearch.ca

Registration is open for the first OSSU World Café Conversation! We will explore what “meaningful engagement” means, who defines it, and how to move beyond tokenism toward real co-production. Dec 10 at 12 p.m. EST. Register: us06web.zoom.us/meeting/regi...

#HealthResearch #PatientEngagement

Kudos to @amaybee.bsky.social, Dawn Barker, Margaret Keatings, and Camille Orridge who were instrumental in co-developing the event and report!

Engaging people with lived experience can occur during the doing phase of a research project. Here are some key considerations identified by our symposium participants: Make a concerted effort to meaningfully engage those often not engaged Provide several ways to engage (e.g., in-person, virtual, emails) Leverage the knowledge and skills that have people with lived experience have beyond their lived experience

Collaborating with people with lived experience on a research project?

Check Out Our Full Report: www.womensacademics.ca/wp-content/u...

Share the report considerations that resonate with you—and add your own ideas for the doing phase of research!

@wchospital.bsky.social

@uhnresearch.ca

The PiPER team is thrilled to announce the 2025 PiPER Grant awardees (Community, Partnership, and Innovation streams). The full list of awardees can be found on the “Our Resources” tab on the PiPER website. kite-uhn.com/piper

PLEX Engagement in Research Nov 26th from 12:00 - 1:00 pm EST Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario” Zoom Link: https://lnkd.in/eiuE82FR

Our next Community of Practice session is on Nov 26th from 12-1 pm!

Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario”

Zoom Link: lnkd.in/eiuE82FR

Kudos to @amaybee.bsky.social, Dawn Barker, Margaret Keatings, and Camille Orridge who were instrumental in co-developing the event and report!

Engaging people with lived experience can begin as early as the planning phase of a research project. Here are some key considerations identified by our symposium participants: Recognize and address power imbalances at the start of a project Use and share existing engagement resources and toolkits Build in time for personal introductions and connecting at meetings Full summary report link: https://www.womensacademics.ca/wp-content/uploads/2025/10/Final-WCH-x-PiPER-Report_09_17_2025.pdf

Preparing to involve people with lived experience in your research?

Check Out Our Full Report: lnkd.in/e_vcyK-n

Share the report considerations that resonate with you—and add your own ideas for the planning phase of research!

@wchospital.bsky.social @uhnresearch.ca

@uhn.ca's Patient Engagement in Research (@piper-uhn.bsky.social) team recently hosted its 3rd annual Research Day. Over 200 attendees explored how partnering with people with lived experience (PLEX) makes research more relevant & impactful. Read more: www.uhnresearch.ca/news/piper-r...

Congratulations Gabriela and team! Looking forward to seeing this project take flight! 🎊

PLEX Engagement in Research Nov 26th from 12:00 - 1:00 pm EST Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario” Zoom Link: https://lnkd.in/eiuE82FR

Our next Community of Practice session is on Nov 26th from 12-1 pm!

Arani Hiritharan, Corinne Rose, and Justin Hayes-Lemke will be speaking about “Collaboration not Consultation: Learning from the Digital Action Youth Advisory at Youth Wellness Hubs Ontario”

Zoom Link: lnkd.in/eiuE82FR

Redefining Patient Engagement: Shaping Research Together Symposium - May 8 2025 Report Link: https://www.womensacademics.ca/wp-content/uploads/2025/10/Final-WCH-x-PiPER-Report_09_17_2025.pdf

On May 8th 2025, Women's College Hospital and Pride in Patient Engagement in Research (PiPER) at UHN co-hosted a hybrid event called Redefining Patient Engagement: Shaping Research Together Symposium. Check out the report and share your thoughts!

Report Link: tinyurl.com/mu27d4d3

We're always looking for ways to improve and expand our PiPER Community of Practice! Your feedback is invaluable in helping us create a space that supports learning, collaboration, and innovation in involving people with lived experience in research. Whether you're a long-time member or just getting started, we want to hear from you! Survey Link: https://www.surveymonkey.com/r/8GXCQZP

We're always looking for ways to improve and expand our PiPER Community of Practice! Your feedback is invaluable in helping us create a space that supports learning, collaboration, and innovation in involving people with lived experience in research.

Survey Link: www.surveymonkey.com/r/8GXCQZP

Our Keynote Panel - moderated by Angela M. Cheung with panelists Alexandra Rendely, Rebecca Lewkowicz, and Susie Goulding explored "The Important Role of People with Lived Experience in Long-COVID Care and Research".

#PiPERResearchDay2025

Check out the live illustration from ThinkLink Graphics — capturing the key insights and moments from today’s event in real time. Stay tuned for more visual highlights!

#PiPERResearchDay2025

We’re honoured to welcome our Keynote Speaker, Dr. Mahadeo Sukhai — a trailblazer in advancing accessibility and inclusion across the sciences and healthcare. Dr. Sukhai’s is presenting on “Anti-Ableism in Patient Engagement and Research: A Personal and Professional Journey". #PiPERResearchDay2025

🚀 Today is PiPER Research Day 2025!

Have you had a chance to explore the program yet? Follow along for highlights, key takeaways, and moments from our presenters throughout the day. drive.google.com/file/d/1vPaU...

Don’t forget to tag us and share your experience using #PiPERResearchDay2025!

🚨 Only 2 DAYS to go! 🚨

PiPER Research Day 2025 is almost here—happening this October 8th at the beautiful Guild Inn Estate.

🗺️ Make sure you're ready! Check out the venue details and directions. Learn more here: site.pheedloop.com/event/PiPER2...

PiPER Research Day 2025 is just around the corner!
We're excited to share the venue map to help you plan your day. There will be quiet spaces and accessible washrooms. Fuel your day with continental breakfast, buffet lunch and burgers and bar during networking hour.

Can't wait to see you there!

**PiPER | Pride in Patient Engagement in Research** **RESEARCH DAY PROGRAM** **OCTOBER 8, 2025** *PLEX = People with lived experience* **9:00 - 9:30 AM** | Registration | Breakfast & Networking **9:30 - 10:00 AM** | Welcome & Opening Remarks **10:00 - 11:00 AM** | Keynote: Accessibility & PLEX Engagement **11:00 - 11:30 AM** | Morning Break | Posters & Art Exhibit Viewing **11:30 AM - 12:15 PM** | PLEX Storysharing - Oral Presentations: PLEX Engagement in Research Showcase | Oral Presentations: Do the Right Thing **12:15 - 1:45 PM** | Lunch & Networking | Posters & Art Exhibit Viewing **1:45 - 2:45 PM** | Panel: The Important Role of PLEX in Long-COVID Care and Research **2:45 - 3:15 PM** | Panel: When Challenges Become Opportunities: Insights from Researchers **3:15 - 3:45 PM** | Afternoon Break | Posters & Art Exhibit Viewing **3:45 - 4:45 PM** | Interactive Panels: Build a Better Tomorrow Oral Presentations: Build a Better Tomorrow Workshop: The Future of PLEX Engagement **4:45 - 5:00 PM** | Closing Remarks **5:00 - 6:00 PM** | Networking Event: To be confirmed

Check out the PiPER Research Day 2025 program below!

✅ Build meaningful relationships and exchange insights
✅ Share success stories and lived experiences
✅ Promote best practices in PLEX engagement in research

🕰️ Registration Closes Sep 30th!

🎟️Register here to join us: lnkd.in/eQeu4u-u

Did You Know? Over 7.8 Million Canadians over the age of 15 provide informal care (i.e., unpaid) to family members of friends with a: Chronic condition Physical or mental disability Complications related to aging 39% of Ontarians are facing financial hardship caused by caregiving duties.

Join us today at 12:00 pm EST to learn more about how we can best support caregivers!

Zoom Link: lnkd.in/eiuE82FR

The PiPER Research Day 2025 program is now live! Join us for a chance to build relationships, share success stories and exchange the latest information while promoting and strengthening the current practices of PLEX engagement in research. Register here: site.pheedloop.com/event/PiPER2...

Did You Know? Over 7.8 Million Canadians over the age of 15 provide informal care (i.e., unpaid) to family members of friends with a: Chronic Condition Physical or Mental Disability Complications Related to Aging 39% of Ontarians are facing financial hardship caused by caregiving duties.

📢 Join us this WEDNESDAY on September 24th from 12:00 - 1:00 pm EST to learn from Judy Gargaro and Jackie Quemby about “How to Make Caregiving ‘E.A.S.I.E.R’? Advocating for Better Caregiver Support After Brain Injury”

Zoom link: us02web.zoom.us/j/8491067757...

Did You Know? There are 171,000 people who sustain a brain injury every year in Ontario 41,000 will go on to have persisting symptoms (physical, cognitive, behavioral and emotional). To learn more, check out PiPER's Community of Practice on September 24th 2025 from 12-1 PM (EST). Judy Gargaro and Jackie Quemby will be speaking about "How to Make Caregiving EASIER'? Advocating for Better Caregiver Support After Brain Injury