Pride in Patient Engagement in Research

Redefining Patient Engagement: Shaping Research Together Symposium - May 8 2025 Report Link: https://www.womensacademics.ca/wp-content/uploads/2025/10/Final-WCH-x-PiPER-Report_09_17_2025.pdf

On May 8th 2025, Women's College Hospital and Pride in Patient Engagement in Research (PiPER) at UHN co-hosted a hybrid event called Redefining Patient Engagement: Shaping Research Together Symposium. Check out the report and share your thoughts!

Report Link: tinyurl.com/mu27d4d3

We're always looking for ways to improve and expand our PiPER Community of Practice! Your feedback is invaluable in helping us create a space that supports learning, collaboration, and innovation in involving people with lived experience in research. Whether you're a long-time member or just getting started, we want to hear from you! Survey Link: https://www.surveymonkey.com/r/8GXCQZP

We're always looking for ways to improve and expand our PiPER Community of Practice! Your feedback is invaluable in helping us create a space that supports learning, collaboration, and innovation in involving people with lived experience in research.

Survey Link: www.surveymonkey.com/r/8GXCQZP

Our Keynote Panel - moderated by Angela M. Cheung with panelists Alexandra Rendely, Rebecca Lewkowicz, and Susie Goulding explored "The Important Role of People with Lived Experience in Long-COVID Care and Research".

#PiPERResearchDay2025

Check out the live illustration from ThinkLink Graphics — capturing the key insights and moments from today’s event in real time. Stay tuned for more visual highlights!

#PiPERResearchDay2025

We’re honoured to welcome our Keynote Speaker, Dr. Mahadeo Sukhai — a trailblazer in advancing accessibility and inclusion across the sciences and healthcare. Dr. Sukhai’s is presenting on “Anti-Ableism in Patient Engagement and Research: A Personal and Professional Journey". #PiPERResearchDay2025

🚀 Today is PiPER Research Day 2025!

Have you had a chance to explore the program yet? Follow along for highlights, key takeaways, and moments from our presenters throughout the day. drive.google.com/file/d/1vPaU...

Don’t forget to tag us and share your experience using #PiPERResearchDay2025!

🚨 Only 2 DAYS to go! 🚨

PiPER Research Day 2025 is almost here—happening this October 8th at the beautiful Guild Inn Estate.

🗺️ Make sure you're ready! Check out the venue details and directions. Learn more here: site.pheedloop.com/event/PiPER2...

PiPER Research Day 2025 is just around the corner!
We're excited to share the venue map to help you plan your day. There will be quiet spaces and accessible washrooms. Fuel your day with continental breakfast, buffet lunch and burgers and bar during networking hour.

Can't wait to see you there!

**PiPER | Pride in Patient Engagement in Research** **RESEARCH DAY PROGRAM** **OCTOBER 8, 2025** *PLEX = People with lived experience* **9:00 - 9:30 AM** | Registration | Breakfast & Networking **9:30 - 10:00 AM** | Welcome & Opening Remarks **10:00 - 11:00 AM** | Keynote: Accessibility & PLEX Engagement **11:00 - 11:30 AM** | Morning Break | Posters & Art Exhibit Viewing **11:30 AM - 12:15 PM** | PLEX Storysharing - Oral Presentations: PLEX Engagement in Research Showcase | Oral Presentations: Do the Right Thing **12:15 - 1:45 PM** | Lunch & Networking | Posters & Art Exhibit Viewing **1:45 - 2:45 PM** | Panel: The Important Role of PLEX in Long-COVID Care and Research **2:45 - 3:15 PM** | Panel: When Challenges Become Opportunities: Insights from Researchers **3:15 - 3:45 PM** | Afternoon Break | Posters & Art Exhibit Viewing **3:45 - 4:45 PM** | Interactive Panels: Build a Better Tomorrow Oral Presentations: Build a Better Tomorrow Workshop: The Future of PLEX Engagement **4:45 - 5:00 PM** | Closing Remarks **5:00 - 6:00 PM** | Networking Event: To be confirmed

Check out the PiPER Research Day 2025 program below!

✅ Build meaningful relationships and exchange insights
✅ Share success stories and lived experiences
✅ Promote best practices in PLEX engagement in research

🕰️ Registration Closes Sep 30th!

🎟️Register here to join us: lnkd.in/eQeu4u-u

Did You Know? Over 7.8 Million Canadians over the age of 15 provide informal care (i.e., unpaid) to family members of friends with a: Chronic condition Physical or mental disability Complications related to aging 39% of Ontarians are facing financial hardship caused by caregiving duties.

Join us today at 12:00 pm EST to learn more about how we can best support caregivers!

Zoom Link: lnkd.in/eiuE82FR

The PiPER Research Day 2025 program is now live! Join us for a chance to build relationships, share success stories and exchange the latest information while promoting and strengthening the current practices of PLEX engagement in research. Register here: site.pheedloop.com/event/PiPER2...

Did You Know? Over 7.8 Million Canadians over the age of 15 provide informal care (i.e., unpaid) to family members of friends with a: Chronic Condition Physical or Mental Disability Complications Related to Aging 39% of Ontarians are facing financial hardship caused by caregiving duties.

📢 Join us this WEDNESDAY on September 24th from 12:00 - 1:00 pm EST to learn from Judy Gargaro and Jackie Quemby about “How to Make Caregiving ‘E.A.S.I.E.R’? Advocating for Better Caregiver Support After Brain Injury”

Zoom link: us02web.zoom.us/j/8491067757...

Did You Know? There are 171,000 people who sustain a brain injury every year in Ontario 41,000 will go on to have persisting symptoms (physical, cognitive, behavioral and emotional). To learn more, check out PiPER's Community of Practice on September 24th 2025 from 12-1 PM (EST). Judy Gargaro and Jackie Quemby will be speaking about "How to Make Caregiving EASIER'? Advocating for Better Caregiver Support After Brain Injury

📢 Join us on September 24th from 12:00 - 1:00 pm EST to learn from Judy Gargaro and Jackie Quemby about “How to Make Caregiving ‘E.A.S.I.E.R’? Advocating for Better Caregiver Support After Brain Injury”

Zoom link: lnkd.in/eiuE82FR

📢 Join us on September 24th from 12:00 - 1:00 pm EST to learn from Judy Gargaro and the team’s PLEX partner about “How to Make Caregiving ‘E.A.S.I.E.R’? Advocating for Better Caregiver Support After Brain Injury”

Zoom link: us02web.zoom.us/postattendee...

We’re building a new online space dedicated to sharing Research at UHN with the public in a way that is easy to understand. The website will be a searchable space where scientists will share their… | ... We’re building a new online space dedicated to sharing Research at UHN with the public in a way that is easy to understand. The website will be a searchable space where scientists will share their ong...

We’re building a new online space dedicated to sharing research @uhn.ca with the public in a way that is easy to understand. The website will be a searchable space where scientists will share their ongoing or completed work.
We want YOU to help us name the website:

www.linkedin.com/posts/piperu...

LATE-BREAKING POSTER SUBMISSIONS are open until Sept 17, 11:59 pm EST. Share your experiences and expertise engaging people with lived experience as partners in #research by submitting a poster here: site.pheedloop.com/portal/event....
Attendance is eligible to SOCRA/ACRP credits.

Did You Know? Attending PiPER Research Day is a great way to earn SOCRA and ACRP continuing education credits. Check out our website for more details and to register! In-Person Attendance $150 per person (+fees and HST) *Registrations are non-refundable

Attending PiPER Research Day on October 8th 2025 is a great way to earn #SOCRA and/or #ACRP continuing education credits!

To learn more and register visit our PiPER Research Day website: lnkd.in/enckBeGk

#ClinicalTrials
#ClinicalResearch
#ClinicalResearchProfessionals

PLEX Engagement in Research - Community of Practice Missed on of our CoP sessions? Check out the PiPER Website to watch the recordings and read co-created one-page summaries! PLEX are People with Lived Experience (Patients, Families, Carers) Our next CoP sessions will be: September 24th, October 29th, and November 26th from 12-1 pm on Zoom. www.uhnpiper.ca

Missed one of our Community of Practice sessions? We've got you covered! Visit our website (www.uhnpiper.ca) under the Community of Practice tab to watch past recordings and read co-created summaries.

🗓️ Mark your calendar for our next session on September 24th from 12-1 pm EST via Zoom.

Event Venue - Guild Inn Estate To get to the venue: The Guildwood Go Train station is a 5-minute drive (25-minute walk) from the venue. The #116 Morningside bus stops directly on Guildwood Parkway outside of the venue (Stop is called Guild Park and Gardens East Side). Accessible parking is available and all parking at the venue is free. Wheeltrans will drop you off and pick you up at the accessible entrance at the venue.

The University Health Network's Pride in Pride in Patient Engagement in Research (PiPER) team is excited to host its Third Annual PiPER Research Day on October 8, 2025 at the beautiful Guild Inn Estate in Scarborough! See below for more details about the event venue.

Register NOW: lnkd.in/eJC9Nvg6

Become a Sponsor! Sponsor a Person with Lived Experience ($200) Platinum Sponsor (>$6,000) Gold Sponsors ($4,500 - $6,000) Silver Sponsors ($2,500-$4,000) Bronze Sponsors ($2,500) QR Code for Full Prospectus

🔦Looking for an opportunity to elevate your brand and connect with patients, researchers, and healthcare leaders? PiPER is inviting your organization to be a sponsor for PiPER Research Day 2025!

Interested in being a sponsor? Reach out to piper@uhn.ca by September 12th.

@uhnresearch.ca

📣 REMINDER: PROPOSAL DEADLINE The deadline for proposals for the 2025 PiPER Grants: Partnership Stream is this *Friday, August 15th at 11:59 pm EST*. Submit your application for an opportunity to receive one of at least 15 awards of $1,500 to advance the engagement of people with lived experience (PLEX) in research. These awards will be given to UHN research teams and PLEX who will use the funds to develop partnerships and support the early stages of PLEX engagement. More information can be found in the Call for Proposals located under the "Our Resources" tab at www.uhnpiper.ca All questions and submissions can be directed to piper@uhn.ca

📣2025 PiPER Grants: Partnership Stream - Friday August, 15th @ 11:59 PM EST.

Submit your application for an opportunity to receive one of at least 15 awards of $1,500 to advance the engagement of people with lived experience (PLEX) in research!

Submit your application to piper@uhn.ca

Become a Sponsor! Sponsor a Person with Lived Experience ($200) Platinum Sponsor (>$6,000) Gold Sponsors ($4,500 - $6,000) Silver Sponsors ($2,500-$4,000) Bronze Sponsors ($2,500)

Looking for an opportunity to elevate your brand and connect with patients, researchers, and healthcare leaders? PiPER is inviting your organization to be a sponsor for PiPER Research Day 2025!

Interested in being a sponsor? Reach out to piper@uhn.ca by September 12th.

Registration is Open for PiPER Research Day 2025! Join us for a chance to build relationships, share success stories, and exchange the latest information while promoting and strengthening the current practices of patient engagement in research! Register here: https://site.pheedloop.com/event/PiPER2025/registrationinfo/reginfo

📣Join us at PiPER Research Day on October 8th for a chance to build relationships, share success stories, and exchange the latest information while promoting and strengthening the current practices of patient engagement in research!

Register NOW: site.pheedloop.com/event/PiPER2...

@uhnresearch.ca

Join us TOMORROW from 12:00 - 1:00 pm EST to learn from Emine Kocabas, Ashley Berger, & Vishma Sookdeo who will be speaking about “Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research”.

📢 Join us TOMORROW from 12:00 - 1:00 pm EST to learn from Emine Kocabas, Ashley Berger, & Vishma Sookdeo who will be speaking about “Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research”.

Zoom Link: lnkd.in/eiuE82FR

Registration is Open! Registration includes: Networking Breakfast, Conference Materials, Morning & Afternoon Coffee Breaks, and Lunch. In-Person Attendance $150 per person (+fees and HST). Note: Registrations are non-refundable.

Registration is Open for PiPER Research Day 2025! Join us for a chance to build relationships, share success stories, and exchange the latest information while promoting and strengthening the current practices of patient engagement in research! Register here: lnkd.in/eJqDihUw

Only 2 days left to submit your abstract for PiPER Research Day 2025! Don’t miss your chance to contribute to a day focused on advancing authentic, equitable patient engagement in research. Submit your abstract here: https://lnkd.in/eKzW2dkr

Only 2 days left to submit your abstract for PiPER Research Day 2025! Don’t miss your chance to contribute to a day focused on advancing authentic, equitable patient engagement in research. Submit your abstract here: lnkd.in/eKzW2dkr

On July 30th from 12:00 - 1:00 pm EST Emine Kocabas, Ashley Berger, & Vishma Sookdeo will be speaking about “Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research”.

📢 On July 30th from 12:00 - 1:00 pm EST Emine Kocabas, Ashley Berger, & Vishma Sookdeo will be speaking about “Beyond Inclusion: Co-Designing with Lived Experience to Build Meaningful Partnerships in Stroke Research”.

Zoom Link: lnkd.in/eiuE82FR

Follow us on LinkedIn to stay updated on the latest PiPER news, upcoming events, and exciting opportunities!

www.linkedin.com/in/piperuhn/