@pkdinternational.bsky.social
A Global Alliance of #PKD Patient Groups promoting research and improved care for everyone affected by #ADPKD and #ARPKD
🇨🇦 Empowering the PKD Community — The Canadian PKD Summit Awaits!
On 5–6 November, PKD Foundation of Canada will host its annual online PKD Summit — two days dedicated to learning, support, and connection for everyone affected by PKD.
👉 Register here:
myemail.constantcontact.com/Register-Now...
Managing a rare disease is not only about the clinical aspects — the psychological and emotional impact is just as significant. To address these challenges, @eurordis.bsky.social has developed the Mental Health & Wellbeing Toolkit: mhtoolkit.eurordis.org#tools-resour...
#PKDInternational #EURORDIS
In a new blog post published by PKD Foundation of Canada, Emily Campbell, shares practical and easy-to-apply strategies to help people with PKD make informed choices when eating out, without giving up the pleasure of good food 👉 www.endpkd.ca/smart_strate...
#PKD #PKDInternational
#PKDInternational is a non-profit association based in Geneva, Switzerland, that brings together patients, patient groups, scientists, and healthcare professionals from across the globe to improve the lives of those affected by #PKD.
👉 pkdinternational.org
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@theracilproject.bsky.social @erknet.bsky.social
🔬 From Lab to Life: How Multi-Omics is Revolutionizing Kidney Research
Multi-omics is transforming research into ARPKD and ADPKD, unlocking insights that bring us closer to personalized therapies.
What Makes Multi-Omics Different 👇
#PKDInternational #PKDResearch
🤝 Stronger Together: #PKDInternational & PKD Familiäre Zystennieren
🌍 Together, we are working to advance research, provide resources that improve patient care and outcomes worldwide, and strengthen our collective voice.
🔗 pkdcure.de
💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families.
🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org
#PKDInternational #RareDiseases
💛 Support the PKD community today – your generosity truly matters!
🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments.
💻 Be part of the change today: pkdinternational.org/donate
#PKDInternational #DonateForPKD
#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich.
💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.
🌍 Global Collaboration for a PKD-Free Future
We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease.
🔗 pkdcharity.org.uk
#PKD
🌍 Welcome to our global PKD family!
We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨
#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration
Diagnosing #ARPKD in children is challenging.
Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...
@theracilproject.bsky.social
#PKDInternational
🌍 At PKD International, we’re committed to amplifying key educational opportunities for our community. Don’t miss the @pkdfoundation.bsky.social webinar on the unique challenges of ADPKD for women, pregnancy & children. All info in the original post.👇💛
25.09.2025 10:59 — 👍 2 🔁 1 💬 0 📌 0
🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!
PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛
#PKDResearch #ADPKD #ARPKD
❤️ Today we celebrate 20 years of AIRP in Milan!
PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.
We are proud to stand alongside AIRP in this shared mission
👉 renepolicistico.it/save-the-date
💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.
🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...
In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.
12.09.2025 06:32 — 👍 5 🔁 2 💬 0 📌 0
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU
#PKDInternational
🌍 Today is #PKDAwarenessDay !
The global community comes together to raise awareness, share knowledge, and support one another.
Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease.
#PKDInternational
🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.
#PKDInternational #EndPKD #ADPKD #PKDResearch
💛 Together, we can transform the future of PKD care
Polycystic Kidney Disease (PKD) affects millions of lives worldwide — but with your help, there is hope.
💻 Be part of the change today: pkdinternational.org/donate
#PKDInternational #DonateForPKD
Eating well with PKD doesn’t have to be complicated. In this helpful blog post, Emily Campbell shares practical strategies to build healthy eating habits that last.
Read the full article by the PKD Foundation of Canada to learn how small: www.endpkd.ca/a_simple_gui...
🗓️ September 20, 2025
PKD International is honoured to join the celebration of the 20th anniversary of our founding member AIRP, marking two decades of dedication to the fight against polycystic kidney disease.
👉 renepolicistico.it/save-the-date
🤝🇦🇺 Proud to Partner with PKD Australia 🌏
💛 Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide.
#PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases #StrongerTogether
Did you know there’s a Mental Health & Wellbeing Toolkit created specifically for people affected by rare diseases?
This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals.
👉 mhtoolkit.eurordis.org
#PKDInternational
@eurordis.bsky.social
When living with polycystic kidney disease, knowing which fruits and vegetables to choose can make a big difference.
In this blog from the PKD Foundation of Canada, dietitian Emily Campbell shares tips to safely balance your diet: www.endpkd.ca/vegetables_a...
Supporting #PKDInternational means investing in research, education, and advocacy for people living with Polycystic Kidney Disease worldwide. Every donation, big or small, brings us closer to better treatments and real hope for the future.
💻 pkdinternational.org/donate
🤝💛 Proud to collaborate with Niervereniging Nederland
🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇
