Kailey

have you looked at the #epilepsy feed yet on here? i use it as my main feed 💜

Purple decorations on a Christmas tree to spread epilepsy awareness during the holiday season.

here’s a sneak peek of my purple Christmas tree!! 💜 i noticed that since last year, one house in my neighborhood did red for AIDS 🫶🏻

that’s okay! i do too even if i don’t have a seizure. sending lots of love & support your way!! 💜💜

can we all collectively agree not to compare #epilepsy to other medical conditions when advocating or spreading awareness? each experience with a medical condition is different 💜

yes, it’s so annoying. the subtitles are clear one moment and the next they’re super blurry. it does feel like i’m wearing the wrong pair of glasses if i watch TV sometimes 💜

several! they started off when i was sleeping at night and eventually naps 💜

same- when it come to #epilepsy, physical symptoms aren’t worth looking into unless the person is actually intoxicated or injured. when i had TCs, the post TC rewinded me a day back. one year, post TC i remember i kept asking when people were arriving for Thanksgiving! it was a Friday 🤦🏻‍♀️💜

i once got accused of being on drugs (by another person with #epilepsy) because my pupils were dilated 🤦🏻‍♀️ i had just started another medication and got maybe 5-6 hours of sleep

oh definitely!! fast paced games stress me out. playing Rocket League one time induced a seizure so i stick with calm games like the Sims or Animal Crossing 💜

the only time they will shave your hair is if you have surgery. they do it while you’re under anesthesia and it’s a small area usually. they actually tell you not to shave your hair yourself before

•keep emergency meds with you wherever you go, even if it’s a holiday party!
•not feeling well? it is 100% okay to stay at home

note that i have told the host that they could induce #seizures in those who are photosensitive when they asked for feedback. lots of ableists on that app sadly 🙁💜

if you shop on Poshmark and watch the lives, please be careful!! they are coming out with unnecessary graphics that strobe and move fast. shop carefully 💜

love this list! as someone who had surgery, i would also add tapering off some medications (if applicable) 💜

in my city, they made a play/musical and it was awesome and safe for those with photosensitive #epilepsy! but i agree, nothing beats the true story in the book. the new Wicked has some plot holes too so i plan on listening to the audiobook

went to see it one at a tiny theater (closed down) and there was no warning at all!! not photosensitive but i ended up seizing. apparently the theater cropped it out. love going to the movies but streaming is WAY safer 💜

I read the original book, it's an excellent story, if you can't watch the movie you can enjoy the book

yes! my mom and i love the book! it’s a great alternative- also, the soundtrack is available on iTunes, Spotify, etc.

thanks for posting the book! might read it again to compare actually 😊💜

if you’re an iPhone user and have auras before a #seizure, ask Siri to time it if you are alone! 💜💜

i pack a day’s worth of meds in my backpack, wear comfy clothes, and tell my travel companions when i go to the bathroom 💜

yup they also fake seizures for attention sadly. i had to delete the app- no intention on going on there ever again

if you have photosensitive #epilepsy, it may not be best to watch the movie Wicked as there were some flashing lights in the musical/movie 💜

no problem! i used it as an example in one of my classes to show lack of understanding in regards to epilepsy 💜

YouTube video by Doctor Grumpy Emergency Medicine Review (Doc Thoughts) -- "Grey's Anatomy" Seizure and Code Management

don’t have the best representation but here is the worst imo from Grey’s Anatomy

youtu.be/HZwb9k14tzw?...

that’s why i chose it for the feed- it’s a sign of support to me 💜💜

i’d say sometimes my appetite disappears due to my meds for a bit and randomly comes back. if i don’t swallow the pill fully, it kinda dissolves and leaves a bitter taste 💜

this can be understandable in some cases but having #epilepsy itself can be traumatizing for anyone, especially parents and entire families.
keep in mind, not everyone with epilepsy has siblings 💜

here you go! 💜

btw there is an epilepsy feed you can join/like!! 💜

if you haven’t yet, please join the #epilepsy feed! my boyfriend and i created it for #epilepsyawareness month for the community on here 💜🫶🏻