Yellow background with a large white circle inside of which is the text Support us through easy fundraising. Below is our Long Covid Support logo. There are piles of presents in bottom right and left corners of the image.
🎄🎁 If you’re shopping online, why not raise funds for our charity & help us continue vital work - it costs you nothing!!
Easy Fundraising partners with 8,000+ brands who donate part of what you spend to a cause of your choice.
➡️ Take a look: www.easyfundraising.org.uk/causes/longc...
#LongCovid
10.12.2024 10:41 — 👍 9 🔁 8 💬 0 📌 1
📣 We are proud to be selected as the Secretariat for the APPG on #LongCovid. We take with us the voices from the Long Covid community, ensuring focus remains on Long Covid & what is needed to progress Prevention, Awareness, Support & Treatment of this life altering illness.
10.12.2024 16:01 — 👍 69 🔁 25 💬 10 📌 3
Really looking forward to this Binita - thank you 💙
07.12.2024 11:31 — 👍 0 🔁 0 💬 0 📌 0
Looking forward to this one! Dr Dempsey is a leading authority on MCAS.
Join us 7pm GMT on Wednesday evening ⬇️
07.12.2024 11:23 — 👍 37 🔁 14 💬 1 📌 0
“Globally, accepted estimates have suggested between 65m & 200m people have #LongCovid… between 19.5m & 60m people face years of impairment”
Let’s compare with recent global figures from the WHO:
🟠 Dementia: 55m+
🟠 Rheumatoid arthritis: 18m
🟠 Parkinson’s disease: 8.5m+
🟠 MS: 1.8m+
#CureLongCovid
15.11.2024 06:39 — 👍 61 🔁 23 💬 2 📌 2
Image with blue background and header in white reading Follow us on Social Media. There are images of our accounts on Bluesky, Facebook, Instagram, LinkedIn, Threads and X.
At the bottom is our Long Covid Support logo and website address www.longcovid.org.
We continue to raise #LongCovidAwareness across various social media platforms - Take a look! ⬇️
#LongCovid
linktr.ee/longcovidsup...
15.11.2024 15:08 — 👍 37 🔁 12 💬 1 📌 0
NEW: COVID19 variant of interest JN.1 with update for health workers
🚨From the World Health Organization:
“For health workers and health facilities, WHO advises:
-Universal masking in health facilities”
#LongCovid
#LongCovidRuinsLives
#ItCouldHappenToYou
worldhealthorganizationdepartmentofcommunications.cmail20.com/t/d-e-vkkjyu...
20.12.2023 07:40 — 👍 11 🔁 9 💬 0 📌 0
Poster with text saying There is no cure for Long Covid. Support our letter to number ten by signing the petition and writing to your M P. Fund and Research and Treat Long Covid. longcovidgroups.org
📣Join the movement!
Write to your MP to urge them to support our campaign calling for a 5-step road map for #LongCovid.
Let them know why their support matters!!
➡️ Letter template: www.longcovidgroups.org/it-could-hap...
#LongCovidAwareness
15.12.2023 18:10 — 👍 8 🔁 4 💬 0 📌 0
Just goes to show that anyone can get #LongCovid, even the most fit out of all of us.
Thank you @oonaghcousins.bsky.social for being a fantastic advocate!
10.12.2023 21:41 — 👍 8 🔁 4 💬 0 📌 0
Long Covid Support Advisor Dr Ziyad Al-Aly talked last week in Melbourne about #LongCovid:
“It affects nearly every organ system, the kidneys, and the heart, and the brain, and can lead to diabetes, and blood clotting disorders… they deserve treatment yesterday”
www1.racgp.org.au/newsgp/clini...
11.12.2023 08:14 — 👍 10 🔁 2 💬 0 📌 0
🚨At #covidinquiryuk PM Rishi Sunak apologises:
“I wanted to start by saying how deeply sorry I am to all those who lost loved ones and also all those who suffered in the various ways as a result of the actions were taken”
We’re still suffering lad, it’s not over!!
#LongCovid
#ItCouldHappenToYou
11.12.2023 11:02 — 👍 11 🔁 4 💬 3 📌 1
🚨More from the UK Covid Inquiry - Sunak is asked about #LongCovid:
Q. Do you recall at what time Long Covid presented itself on the Exchequer’s horizon?
A. I don’t specifically. I recall in the May plan having a conversation with the CMO about consideration of other health impacts.
May! May!!
11.12.2023 13:04 — 👍 6 🔁 1 💬 1 📌 0
💚 At #CovidInquiryUK the #LongCovidGroups push for answers, along with our fantastic legal team!
Thank you to all attending in person & working away behind the scenes (including on social media! 😉) ❤️
Exhausted we may be but we will not stop!
#LongCovid
#ItCouldHappenToYou
11.12.2023 14:52 — 👍 6 🔁 2 💬 1 📌 0
Urgent Investment for Long Covid: Call to Action for Prime Minister...
Our collective appeal is centred around the urgent need for a clear road map on targeted investment in biomedical and health research. We propose a comprehensive 5-step strategy that...
🚨📩Today’s the day we hand-deliver our letter to No.10!
We need:
♦️Dedicated research funding
♦️Treatment trials
♦️Public #LongCovid awareness campaigns
Help us reach 3000 signatures!
➡️ ✍️Sign here: bit.ly/46Hjjn1
#LongCovidGroups
#ItCouldHappenToYou
06.12.2023 06:47 — 👍 6 🔁 2 💬 0 📌 0
📣As Former PM Boris Johnson gives evidence at the UK Covid Inquiry:
Our Founding Trustee Natalie Rogers gives a statement on behalf of the #LongCovidGroups:
“Evidence heard confirmed #LongCovid has been Sidelined, Disbelieved and Ignored”
@longcovidkids.bsky.social
@longcovidsos.bsky.social
06.12.2023 12:17 — 👍 14 🔁 8 💬 0 📌 0
📣 At UK Covid Inquiry our Ambassador Oonagh Cousins is interviewed with @sammiemc.bsky.social (@longcovidkids.bsky.social) by BBC News on Boris Johnson:
“Looking after the health of the Nation is the primary responsibility of our Leaders & he continuously put his ego & self-interest ahead of that”
06.12.2023 12:46 — 👍 6 🔁 4 💬 0 📌 0
📣🚨***DELIVERED!!!***🚨
The #LongCovidGroups’s letter has been delivered to No. 10 Downing Street!!!
We will keep pushing for:
♦️ Dedicated research funding
♦️ Treatment trials
♦️ Public #LongCovid awareness campaigns
➡️ Read more: you.38degrees.org.uk/petitions/ur...
06.12.2023 15:44 — 👍 10 🔁 1 💬 1 📌 0
💚 At #covidinquiryUK today - this photo says it all.
#LongCovid
#ItCouldHappenToYou
#ResearchLongCovid
07.12.2023 13:29 — 👍 9 🔁 3 💬 0 📌 0
Graphic saying Long Covid, Lives Ruined, We need answers.
We've arrived on Bluesky! Please bear with us while we get up and running on here.
If you have suggestions on who to follow on here from the Long Covid and wider chronic illness communities please let us know!
16.10.2023 10:11 — 👍 77 🔁 26 💬 8 📌 6
People think of the pandemic as having been going on for nearly 4 years.
Yes, it has.
But the mass repeat infection experiment has only really been going for 1¾ years.
And its effects are only just starting to truly show.
19.09.2023 13:34 — 👍 168 🔁 36 💬 4 📌 0
We are bringing our call for Covid Action (Now!) to Bluesky!
19.09.2023 17:59 — 👍 15 🔁 2 💬 0 📌 0
Clinically Vulnerable Families has just made it to BlueSky.
Please follow and share if you are interested in staying safe from Covid.
19.09.2023 17:21 — 👍 26 🔁 5 💬 6 📌 0
Director of Policy and Insight at @powertochange.org.uk
Interests include: UK politics, trust, communities, localism, democratic reform, and inequality.
Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Dreaming of a world where ableism, racism and any other ism don't exist!
Husband has Long Covid
Looking for a glimmer of hope.
Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVaxx, AntiGlobuli
@ BFH, Long Covid Switzerland, Europe, Kids Switzerland, ENOVAT, SPO, EUPATI
Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC
Tracking the Covid Pandemic and other health news. Opinions are my own. My YouTube channel: http://tinyurl.com/9cd2zsfp
My website: datareport.info
😎🌁🎷 #LongCovid March 2020 😵💫
Playwright, Celebrant, Theatre Director, Tutor, Husband, Dog-Dad, and Leeds United supporter. I like theatre, nice people, tea, countryside, video-games and cinema. Living with Long Covid and involved in LC patient advocacy. #FBLC. #FBPE
Lost so much down to #LongCovid, but have met a lot of great friends during my journey! Love my family & friends, film & TV 🎬, NBA 🏀 and gaming!
Professor of Cancer Virology, University of Leeds.
Co-Chair, Independent SAGE
Astronomer Royal for Scotland, Professor of Astrophysics, Edinburgh University. Director of the German Centre for Cosmological Lensing, RUB. #LongCovid (She/her)
PhD physical chemistry: interface science
Public governor NHS Hospital
https://www.change.org/Make-Covid-Vaccine-Freely-Available-In-The-UK
https://petition.parliament.uk/petitions/732047
https://mstdn.science/@JoePajak
https://substack.com/@joepajak
Sharing info on COVID since the start of the pandemic.
#COVIDisNotOver #COVIDisAirborne #MaskUp😷
#FBLC #LongCovid #LongCovidKids #MECFS ally. #MillionsMissing #MaskUp #Ireland
Long Covid since March 2020.
“Nothing about me without me” - doesn't seem unreasonable.
Previously: health research, public health, technology assessment and appraisal
Also some Shetland!
Love my dog, my husband, cooking and being creative - not necessarily in that order.
In Long Covid hell since Feb. 2020.
Founding Member and Research Co-Lead of @longcovidsupport. Views my own.
Londoner, mother of two, consultant around questions of health, care, community, influence and impact (previously CEO Richmond Group of Charities and National Voices). Head and heart. 🐈⬛ 🪴 ☕️ 🇪🇺 🌳
National nonprofit led by people with lived experience helping families navigate pediatric Long COVID with support, resources, and advocacy.
Author.
Prof of Math Bio and Public Engagement.
Member of Independent Sage since October 2020.
@Kit_Yates_Maths on twitter
Books -
Math(s) of Life and Death
How to Expect the Unexpected
Get them here: https://tinyurl.com/37rx2yuv
He/Him
