Mads

Persistent Attenuation of Lymphocyte Subsets After Mass SARS-CoV-2 Infection Growing evidence suggests that lymphocyte subsets are declined in COVID-19 patients, but it is unclear if these alterations persist after widespread e…

Here's the link without the ":5037" portion of the URL (dunno why Science Direct is including this unusual port # in their URLs):
www.sciencedirect.com/science/arti...

HEPA filtration as standard too please!

I’m hoping the risk mitigation will enable me to maintain these sessions as I’ll need to be unmasked to run them but we’ll hopefully be using a SmartAirUK blast air mini for sessions

I’m pleased to say progress has been made & sessions are due to start next Spring!

Sessions will be HEPA filtered & mask wearing is encouraged!

Identification of Novel Reproducible Combinatorial Genetic Risk Factors for Myalgic Encephalomyelitis in the DecodeME Patient Cohort and Commonalities with Long COVID Background: Myalgic encephalomyelitis (also known as ME/CFS or simply ME) has severely impacted the lives of tens of millions of people globally, but the disease currently has no accurate diagnostic t...

Delighted how @precisionlife.bsky.social and @actionforme.bsky.social et al used consented @decodemestudy.bsky.social data to
-replicate #MEcfs genetic signal &
-show its shared/distinct genetics with Long Covid.
Next: replicate ME/CFS subtypes w/ targeted therapies
www.medrxiv.org/content/10.6...

Can anyone see any of this thread?

a blue heart is surrounded by blue flames on a black background with chris777 written below it ALT: a blue heart is surrounded by blue flames on a black background with chris777 written below it

What a brilliant young woman 💙🌟💙

‘Feminist, Writer, Linguist. Wannabe diplomat with her Irish passport, a gift for Russian & a balanced interest in Israel/Palestine.’

#MEKills #PlanForME #JusticeForME #MaeveInquest

YouTube video by Broken Battery ME/CFS Scandal Explainer (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)

This brilliant video about the #GreatestMEdicalScandal has been out for a while but it’s worth reposting in case you haven’t seen it…

If you don’t know much about #MEcfs or #LongCovid, or aren’t aware of the shocking treatment of people, please watch & help advocate for us!

#JusticeForME #SevereME

#JusticeforME

#MyalgicEncephalomyelitis #pwME

Apologies I forgot to add ALT text for the image which shows a screenshot from the campaign showing money raised which is £17,060

The quoted text is from the most recent November update (5).

Great to see our community coming together on this 💙🫶🏼💙

NHS care for ME now Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness.

Glad to share some encouraging news as I checked back on this campaign recently

www.crowdjustice.com/case/justice...

‘Support for people living with ME is international & has deep roots, so we are not short on knowledge. Thanks to every one of you who has shared, promoted & donated.
We would not be doing this without you, & thanks to you we continue to the next stage - under less pressure of time’

Chronic Fatigue Syndrome: Bundesregierung will Erforschung von ME/CFS stärker fördern Die Zahl der Long-Covid- und ME/CFS-Erkrankungen hat seit der Pandemie stark zugenommen. Bis 2036 sollen deswegen 500 Millionen Euro in die Forschung investiert werden.

Germany pledges €500 million for research through the “National Decade Against Post-Infectious Diseases” (2026-2036), including #MECFS and #LongCOVID.

Addressing what they call “one of the greatest public health challenges of the 21st century.”

www.zeit.de/politik/deut...

An image showing a floating cloud with closed eyes drawn on as two small curves. It’s sits against a pale blue sky with white clouds behind. There is text above the floating cloud that reads: CLOUD SHRINE

#CloudShrine Update:

Our first meeting went well, despite two attendees off sick.

I’m meeting in person towards the end of this month, visiting the space & to try out one of the mats, and to determine next steps.

Meanwhile marketing will be working on spreading the word across #SouthTyneside

An employer who doesn't know the absolute basics of how disability is defined in employment and discrimination law. Massive surprise... 🙄

At the #ICanCME2025 conference today!

Sabrina Poirier & Maeghan Taverner's intros blew me away.

~Acknowledging labor from people with lived experience
~Setting out expectations
~Moment of silence for those we've lost

This is what a conference designed by people with lived experience looks like 🧪

Sounds like they’re still focusing on the same model that hasn’t worked for many years for so many!

Isn’t it unintelligence that does the same thing thinking it will produce a different outcome?

Oh dear
Perhaps get a disabled person to report on what being disabled is, unless this person is?!?

a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy Alt: a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy

Sounds like they’re still focusing on the same model that hasn’t worked for many years for so many!

Isn’t it unintelligence that does the same thing thinking it will produce a different outcome?

Oh dear
Perhaps get a disabled person to report on what being disabled is, unless this person is?!?

a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy Alt: a poster that says great minds discuss ideas average minds discuss events small minds discuss people cliphy

Sounds like they’re still focusing on the same model that hasn’t worked for many years for so many!

Isn’t it unintelligence that does the same thing thinking it will produce a different outcome?

Oh dear
Perhaps get a disabled person to report on what being disabled is, unless this person is?!?

Many thanks for sharing @medidier.bsky.social … and thank you for this thread @spichaksimon.bsky.social

💙 #MyalgicEncephalomyelitis

The review is open to everyone. Provide your evidence here. Strongly recommend every family persecuted by social workers too lazy to read NICE G206 make their voices heard. www.gov.uk/government/c...

… and obviously @davetuller1.bsky.social @sunsopeningband.bsky.social which I’m sure you have on your radar already

Sure you have the links to Valerie Eliot Smith and also @rfh1955.bsky.social sites… maybe some countering CBT/GET amongst all the information? Not sure if it will be helpful for you as non specific and a lot of evidence to look at but thought I’d add my contribution here in case 💙

Oh yes I recall that name. It’s so sad how we remember the names of these beautiful souls yet many of us have never had the honour of meeting them in real life. It’s all such a muddle isn’t it and so wrong. All souls will be remembered for their courage in the face of uneccessary&unfair adversity 💙

#Whitburn #ConservationCentre

I’ll be sharing any promotional material in due course, depending on the outcome of Mondays meeting
Thank you,
Madeleine ☁️

It’s likely that for me to be able to run a session that it would only happen once a month and be limited for spaces. I’m thinking 8 people per 2 hour session so I could always rotate a list as some may only be able to attend once every few months for example.

I’d love it if you could support me 💙