Lydia, 34

thank you! The link is paywalled so I can share screenshots if desired!

Thank you for sharing my story and for all your advocacy work!

If someone would like to read the full article, please DM me as it is quite long!

@oxfordwomenshealth.bsky.social @sam-trevaskis.bsky.social @maritahennessy.bsky.social @rcsipophealth.bsky.social @rcsi-research.bsky.social @drjenirwin.bsky.social @drclairetaylor.bsky.social @immunofever.bsky.social @glenpyle.bsky.social @elisabethalicee.bsky.social @drrebeccaryan.bsky.social

@irishmedicaltimes.bsky.social @irishmedicalorg.bsky.social @irishmecfsassoc.bsky.social @rte.ie @natashaloder.bsky.social @lizs1.bsky.social @lcaireland.bsky.social @thelancet.com @frontiersin.bsky.social @thecovidinfoguy.bsky.social @longcovidkids.bsky.social @longcovidphysio.bsky.social

@longcovidadvoc.com @patientled.bsky.social @meassociation.org.uk @meactionuk.bsky.social @meactionscotland.bsky.social
@polybiorf.bsky.social @bihatcharite.bsky.social @berlin-buyers-club.bsky.social @longcovidsos.bsky.social @remissionbiome.bsky.social @longcovidjustice.org

Long-Covid is still here. I can’t walk, cook, work, socialise or live independently – and I am not alone The country, and the rest of the world, was in the grip of a global pandemic, so when Lydia Fischer Dooley, developed a dry cough, fatigue, weakness and lack of appetite at the start of 2022, she righ...

I am sincerely thankful to @arleneharris.bsky.social and Yvonne Hogan @independent.ie for covering this story. I have had messages of relief from Long Coviders in Ireland and abroad - our voices are being heard. Thank you!

@newstalkfm.bsky.social @hselive.bsky.social @roinnslainte.bsky.social

@longcovidadvoc.com @remissionbiome.bsky.social @meassociation.org.uk @longcovidkids.bsky.social @longcovidfam.bsky.social @longcovidjustice.org @meactionuk.bsky.social @meactionscotland.bsky.social @berlin-buyers-club.bsky.social

Frontiers | Prevalence of post COVID-19 condition and associations with risk factors among U.S. adults: 2023 Behavioral Risk Factor Surveillance System IntroductionDuring the COVID-19 pandemic, between 12 and 20% of US adults were identified as having post-COVID-19 condition, commonly referred to as ‘Long CO...

Poor research article based on self-reported phone interviews and discussing the pandemic in the past tense. Do these types of articles do more harm or add to the understanding of the ongoing COVID-19 pandemic? @frontiersin.bsky.social

@meactnet.bsky.social @longcovidsos.bsky.social

Nevras gofundme attached for ease of access - please consider donating any pennies you might have! 🙏

As support for Severe ME continues to be dire globally, please consider donating to Nevra's support fund.

Nevra is a polyglot, inquisitive, and creative young woman.

Due to DV risks at home and lack of state support in Pakistan, she needs our support to keep her safe whilst living with Severe ME ❤️

I am a living example of this!

Completely fine with my first infection, recovered and back to normal.

Second infection led to long term illness and disability.

The literature repeatedly backs this trend up: reinfections are a detriment to our health!

It's alright Mairead but thank you! It's me and millions of others!

And I am one of them!

2019 fully healthy and working.

2025 chronically ill, disabled and not able to work.

My last healthy year I was 29 years old. A second covid infection got me.

The question is, how many more will continue to fall ill?

Interesting research outcomes - I wonder how this will impact treatment development?

Yes, it's very frustrating, I wish we would move away from a predominantly psychological model to a biomedical one!

Honestly the ME/CFS community has been so kind to me and guided me so well. I'm sorry you've had to fight so long and so hard! I have joined the fight too and I just hope some day future ME/CFSers will be treated better - because your actions have paved the path for better treatment for me! Thank u

Wilhelmina, I hope it's OK to say, but I checked your page and want to thank you for your ongoing advocacy. Falling ill with ME myself in 2022, I was shocked by the history of the condition and am so thankful to my ME/CFS elders who have campaigned endlessly. Thank you!

Very frustrating and completely unhelpful. All this effort should be put into biomedical research, not psychosocial pontification!

ME/CFS, Long Covid, and Disconnection From the Self Clinicians and researchers have observed certain personality traits in many people living with ME/CFS and long Covid. Could they help some people to unravel their illness?

Pop science articles like this do little to further the understanding of ME/CFS. The old adage that correlation is does not mean causation comes to mind.

#me/cfs #longcovid #biopsychosocial #postviralfatigue

Image of newspaper article/interview including description of Mitodicure and picture of patient advocate Patrick Ussher.

Great article in the @irishtimes.com about upcoming drug Mitodicure for ME/CFS, which aims to stop PEM! Investors needed!

@meactnet.bsky.social @meassociation.bsky.social @longcovidadvoc.com @remissionbiome.bsky.social @openmedf.bsky.social @longcovidkids.bsky.social @longcovidjustice.org

It's factors like this that need indepth analysis - and when unclean air has been proven to lead to the spread of pathogens, why do we expose our schools to that?
@intonews.bsky.social @earlychildhoodireland.ie @childreninhospital.bsky.social @thejournal.ie @irishexaminer.bsky.social

Clean Air protects both employees and their organisations! @hselive.bsky.social @intonews.bsky.social @roinnslainte.bsky.social @oireachtasnews.bsky.social @cleanairie.bsky.social @independent.ie @newstalkfm.bsky.social @rte.ie @thejournal.ie

Wow this is shocking

Good advice on how to avoid covid during the upcoming surge - predicted to peak the end of June! @cleanairie.bsky.social @hselive.bsky.social @oireachtasnews.bsky.social @irishexaminer.bsky.social @irishtimes.com @intonews.bsky.social @lcaireland.bsky.social @meactnet.bsky.social

Should I directly get in contact with the NIAC to flag the issues with their criteria? Not including Long Covid patients seems illogical as they are at increased risk already. It does not make sense to exclude this population?

Why does the criteria for the covid booster change so arbitrarily @hselive.bsky.social ? I have Long Covid and am being denied everywhere because I am under 80. My neighbour who is 79 was denied. There is a big covid wave coming this summer with children already in hospital with it. Logic?

@earlychildhoodireland.ie @irishtimes.com @theguardian.com @sterireland.bsky.social @news.rte.ie @fergalbowers.bsky.social @cleanairclassrm.bsky.social @fine-gael.bsky.social @fiannafailparty.bsky.social @esri.ie @social-democrats.bsky.social @oireachtasnews.bsky.social @president.ie

YouTube video by Clean Air Advocacy Ireland Clean Air Advocacy Ireland on Highland Radio, May 21st 2025

Excellent interview on the dire need for #cleanairstrategies at schools by @cleanairie.bsky.social - and how this can reduce absences!

@hselive.bsky.social @childreninhospital.bsky.social @intonews.bsky.social @astiunion.bsky.social @roinnslainte.bsky.social @irishexaminer.bsky.social

Thank you @putrinolab.bsky.social for your work and continued advocacy 👏