Letter of Support. PxP Resource. Need to write a Letter of Support but don’t know where to get started? We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Need to write a Letter of Support but don’t know where to get started?
We’ve created this resource for you if you’re a patient partner and you’ve been asked to write a Letter of Support for a researcher or research team.
Link: pxphub.org/a-resource-f...
24.07.2025 17:58 — 👍 6 🔁 5 💬 0 📌 0
PxP Logo. PxP Australia. Working Well Together. Webinar. August 19 2025. 8 am GMT +7, 9 am AWST, 10:30 am ACST, 11:00 am AEST, 12 pm GMT +11
📢Introducing PxP Australia! - a regional PxP webinar, led by Janelle Bowden and Letisha Living (2025 PXP Steering Cttee members).
Learn about “working well together" with Janelle, Letisha and Dr. Joan Carlini - pxphub.org/event/pxp-au...
#ForPatientsByPatients #PxP25 #PPI #ConsumerInvolvement
01.08.2025 23:21 — 👍 2 🔁 1 💬 0 📌 0
"Participating as a steering committee member in 2025 has been a great honor. I'm so glad to be here and hear different perspectives from various parts of the world, showing the roots of the real engagement of people living with chronic conditions. PxP is an opportunity to be part of a safe space with exchangeable learning. I hope to see all of you there!" Patrícia de Luca PxP Steering Committee Member 2025
PxP Steering Committee Member Patrícia de Luca shares a quote highlighting the value of diverse, global perspectives, especially from individuals living with chronic conditions.
Learn more about PxP 2025 here: pxphub.org/event/
#PxP25 #PatientEngagement
07.08.2025 22:27 — 👍 2 🔁 1 💬 0 📌 0
PxP Africa. Virtual Meeting. From Research Participants to Patient Partners in Research: Centering African Patients Voices. With Joab Wako, Kwanele Asante, Action Amos, Mbali Ngobese, and Rosebud Ombura.
📢We are very excited to announce that the speakers for PxP Africa will be Action Amos, Mbali Ngobese, and Rosebud Ombura. We are looking forward to connecting with everybody on August 13th!
There is still time to register here: pxphub.org/event/pxp-af...
#PxP25 #PxPAfrica
08.08.2025 16:59 — 👍 2 🔁 1 💬 0 📌 0
My thoughts are with you. I’m sorry for your loss
04.08.2025 03:02 — 👍 2 🔁 0 💬 0 📌 0
Tagging you in @simonrstones.bsky.social
27.07.2025 11:14 — 👍 0 🔁 0 💬 0 📌 0
I'm honoured to serve on the international steering committee for the PxP Conference 2025, a virtual global event championing the leadership of patient experts in healthcare transformation. The time has come to unleash the full power of lived experience... patients are no longer passive participants, but active drivers of research and care that truly reflect the needs of our diverse society. This is the democratisation of healthcare: bold, inclusive, and guided by those with the deepest expertise - people living with health conditions every day. Together, we're redefining what meaningful, equitable, and person-led health systems look like."
PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.
Learn more about PxP 2025 here:
pxphub.org/event/
#PxP25 #PatientEngagement
24.07.2025 17:50 — 👍 1 🔁 1 💬 1 📌 0
So saddened by this loss. Rest In peace, Frank.
22.07.2025 00:40 — 👍 3 🔁 0 💬 0 📌 0
Fantastic postdoc fellowship opportunity @mcgill.ca!
mcgill.wd3.myworkdayjobs.com/McGill_Caree...
16.07.2025 16:13 — 👍 27 🔁 23 💬 0 📌 0
Job Posting: Post-Doctoral Researcher CAMH Bioethics and Education - Everyday Ethics Lab
The Everyday Ethics Lab, part of CAMH Education Research, is currently seeking a Post-Doctoral Researcher to support projects in bioethics led by the Lab (https://www.everydayethicslab.ca). Reporting ...
🚨 Hiring! My lab, the Everyday Ethics Lab at @camhnews.bsky.social is recruiting a postdoc to conduct empirical bioethics research in mental health, substance use health, and chronic pain. Join us for critical, collaborative, impactful work. Details here: bit.ly/4eRc4if Please share!
#Bioethics
15.07.2025 23:47 — 👍 17 🔁 16 💬 3 📌 1
Thanks for reading, sharing, and reflecting, Jeffrey!
15.07.2025 11:48 — 👍 1 🔁 0 💬 0 📌 0
Frank, how lucky am I to meet you all those years ago at CAN? Seeing and chatting with you at meetings and airports over the years has always been a privilege. Wishing you the best always. 🧡
13.07.2025 13:04 — 👍 1 🔁 0 💬 0 📌 0
Women 18+ in NS, NB & PEI — the IWK Foundation wants to hear from you!
Take a anonymous survey to help improve women’s health care in the region.
📅 Open until July 30.
🔗 iwkfoundation.org/womenshealth...
13.07.2025 11:51 — 👍 4 🔁 9 💬 0 📌 0
Take care- hope everything turns out ok
10.07.2025 01:51 — 👍 1 🔁 0 💬 1 📌 0
I saw a post on Twitter earlier today by @hazie.bsky.social mentioning Hazie's GFM.
Sharing this here so we can reach those who have left the bad place.
If you're able to, please help Hazie. GFM link is in Hazie's profile. ✨
07.07.2025 21:02 — 👍 7 🔁 7 💬 1 📌 0
Are you in BC? If you're looking for an air purifier, you can get $50 off instantly on a bunch of power-smart models thanks to BC Hydro. For instance, one, a Hisense, is $750 normally at Best Buy, and on for $499, so you could save even more with the rebate.
04.07.2025 01:55 — 👍 24 🔁 13 💬 2 📌 0
A Resource for Patient Partners in Research about Letters of Support - PxP
Written by Deb Baranec, Jim Kempster, and Dawn Richards Graphic Created by Tianna Magel What is a Letter of Support […]
📢Patient Partners! Been asked to write a Letter of Support (LOS) and not entirely sure what that is? We co-created a resource with patient partners to explain about LOSs & offer some things you may think/ask about when approached: pxphub.org/a-resource-f... #PatientEngagement #PPI
02.07.2025 20:21 — 👍 7 🔁 3 💬 0 📌 0
Did you know June is Spina Bifida & Hydrocephalus Awareness Month in 🇨🇦?
Learn more from www.hydrocephalus.ca
& Spina Bifida families of 🇨🇦 sbcan.ca
And visit our lab’s website to see our work in this field made possible through the power of clinical & translational science research partnerships 🫱🏽🫲🏻
19.06.2025 23:59 — 👍 3 🔁 4 💬 0 📌 0
🙏
18.06.2025 23:29 — 👍 0 🔁 0 💬 0 📌 0
The ultimate power play in research - partnering with patients, partnering with power - Research Involvement and Engagement
Background Patient and public involvement (PPI), also called patient engagement, patient partnership, or consumer involvement, holds potential to change approaches and outcomes in research and healthc...
The ultimate power play in research - partnering with patients, partnering with power
@dawnrichards.bsky.social, Janelle Bowden, Patrick Gee, Alex Haagaard, Anita Kothari, Annette McKinnon, Codie Primeau, @andreatricco.bsky.social, et al
researchinvolvement.biomedcentral.com/articles/10....
18.06.2025 20:49 — 👍 11 🔁 7 💬 1 📌 1
Thank you for sharing!
18.06.2025 23:28 — 👍 1 🔁 0 💬 0 📌 0
Like a 4 am alarm clock here! I so appreciate this😊
14.06.2025 00:57 — 👍 1 🔁 0 💬 0 📌 0
@erictopol.bsky.social would you consider sharing our resource below👇? It's co-created with patient partners through our work at the Canadian Institutes of Health Research's Institute of Musculoskeletal Health and Arthritis. Hoping to make papers more accessible. 🙏 for considering & for all you do.
13.06.2025 14:32 — 👍 1 🔁 0 💬 0 📌 0
@epiellie.bsky.social would you consider sharing the below resource👇? We co-created it with patient partners to help demystify the parts of a scientific paper. 🙏 for considering it and for all you do to bring evidence and science to people.
13.06.2025 13:49 — 👍 1 🔁 0 💬 0 📌 0
Amazing - thanks for sharing!
12.06.2025 14:29 — 👍 0 🔁 0 💬 0 📌 0
@peterhotezmdphd.bsky.social Thank you so much for the share!
12.06.2025 13:33 — 👍 0 🔁 0 💬 0 📌 0
Some tips for preparing for an RMD flare during pregnancy #eular2025
12.06.2025 12:25 — 👍 4 🔁 3 💬 0 📌 0
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