Dawn Richards, PhD

Today is the last day to complete our survey about living with polymyalgia rheumatica (PMR)! This is your chance to share your experience and help shape access to treatment.

Learn more + add your voice: buff.ly/2LUuZry

#PMR #Kevzara #PatientInput #PatientVoice

After the Feast: A Turkey Leftovers Cookbooklet - Iva Cheung After a couple decades of editing and indexing cookbooks, I took a stab at writing (a small!) one. After the Feast brings together 25-ish of my favourite ways to use up the leftovers from big turkey d...

I made a li'l cookbook! *After the Feast* suggests ways to use up leftovers from your big turkey dinners.

The PDF is FREE. If you buy a print copy, $2 will support food security initiatives through the Qajuqturvik Community Food Centre.

Please spread the word! 🍗

ivacheung.com/2025/09/afte...

Hello #HamOnt! On Oct 16th I'll be at the @hamiltonlibrary.bsky.social talking about fascinating research on how vaccinations protect the aging brain. It's free, it's fun, and I would love to see you all there. Register below. @miramcmaster.bsky.social

3 quotes with images of the authors: "The truth is, no one of us can be free until everybody is free" - Maya Angelou "My religion is very simple. My religion is kindness" - Dalai Lama "I tell my students, 'When you get these jobs that you have been so brilliantly trained for, just remember that your real job is that if you are free, you need to free somebody else. If you have some power, then your job is to empower somebody else" - Toni Morrison

In need of some inspiration this weekend?

I use these inspirational quotes in my global health courses

Thank you for sharing these🙏

“What we bring to the community and decision makers is that breadth of lived experience. Researchers want to partner with us because we have knowledge, experiences, and values that they don’t have.” - Neil Bertelsen

“What we bring to the community and decision makers is that breadth of lived experience. Researchers want to partner with us because we have knowledge, experiences, and values that they don’t have.” - Neil Bertelsen #PxP25

“Like the idea of us as a global patient movement identifying institutions that claim to be doing health equity work and holding them accountable to these claims.” - Kwanele Asante #PxP25

“Like the idea of us as a global patient movement identifying institutions that claim to be doing health equity work and holding them accountable to these claims.” - Kwanele Asante #PxP25

“Expertise makes the distinction between our experience and our expertise like others on the team (e.g. a biostatistician).” - Greg Merritt

“Expertise makes the distinction between our experience and our expertise like others on the team (e.g. a biostatistician).” - Greg Merritt

“With each passing involvement, my confidence grows in my ability and my place in the process….Crucially I can say no to project that don’t feel right, feel tokenistic, or not right for my family.” - Joel Nelson #PxP25

“With each passing involvement, my confidence grows in my ability and my place in the process….Crucially I can say no to project that don’t feel right, feel tokenistic, or not right for my family.” - Joel Nelson #PxP25

“Even though we may all live with the same disease, doctors need to know that our experiences are all different. We’re not just numbers.” - Marquetta Frost #PxP25

“Even though we may all live with the same disease, doctors need to know that our experiences are all different. We’re not just numbers.” - Marquetta Frost #PxP25

“You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25

“You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25

“One voice is not enough. We need many patient voices- loud, clear, and informed, at every decision-making table.” - Josef de Guzman #PxP25

“One voice is not enough. We need many patient voices- loud, clear, and informed, at every decision-making table.” - Josef de Guzman #PxP25

“Patience, grace, and understanding that changing culture takes time. Patient engagement is fairly new and people are learning together.” - Cheslie Johnston

“Patience, grace, and understanding that changing culture takes time. Patient engagement is fairly new and people are learning together.” - Cheslie Johnston

“A paper that sits locked on a shelf is like a locked medicine cabinet. The medicine is there, but it doesn’t reach the people who need it.” - Marie Ennis-O'Connor

“A paper that sits locked on a shelf is like a locked medicine cabinet. The medicine is there, but it doesn’t reach the people who need it.” - Marie Ennis-O'Connor

“The problem is that doctors think they know what patients want”- “how do patients assert their authority and voice, and make doctors and researchers understand more about this?” - Nikhil Jayswal #PxP25

“The problem is that doctors think they know what patients want”- “how do patients assert their authority and voice, and make doctors and researchers understand more about this?” - Nikhil Jayswal #PxP25

“Engagement moves at the speed of trust. If you have no trust, you’ll never have engagement.” - Jeff Ordway

“Engagement moves at the speed of trust. If you have no trust, you’ll never have engagement.” - Jeff Ordway #PxP25

“Trust is important. When you build that trust, you get to the point of being a partner.” - Joab Wako #PxP25

“Trust is important. When you build that trust, you get to the point of being a partner.” - Joab Wako #PxP25

“There are no silly questions, patients ask questions that others on the team don’t.” - Dominique Hamerlijnck #PxP25

“There are no silly questions, patients ask questions that others on the team don’t.” - Dominique Hamerlijnck #PxP25

💚In the thread below, we share a selection of our favourite quotes from today which you can scroll through. Please add your own quotes or reflections too! #PxP25

Day 1: what's happening and what's possible. PxP 2025 logo and grid of photos from day 1 speakers.

💜A big shout out to Joab Wako for hosting our first day of the 2025 conference and to all the speakers who made today possible 👏. Thank you for giving your time, energy and passion - we have learnt so much from you.

“Academia is not conducive to the kinds of relationships we need to create and the safety we need to create for patient engagement. I have started to build in longer deadlines, especially at the start of the research project.” - Michelle Phoenix #PxP25

“Academia is not conducive to the kinds of relationships we need to create and the safety we need to create for patient engagement. I have started to build in longer deadlines, especially at the start of the research project.” - Michelle Phoenix #PxP25

“I’ve learned to not assume what people [patient partners] might be interested in or helping out with. We try to keep the door open in terms of what they would like to contribute to a project.” - Manoj Lalu #PxP25

“I’ve learned to not assume what people [patient partners] might be interested in or helping out with. We try to keep the door open in terms of what they would like to contribute to a project.” - Manoj Lalu #PxP25

“As a patient partner, in projects where there have been longer timelines, that has helped a lot. Having a bit more time to meaningfully participate is so helpful.” - Anna Samson #PxP25

“As a patient partner, in projects where there have been longer timelines, that has helped a lot. Having a bit more time to meaningfully participate is so helpful.” - Anna Samson #PxP25

“When we shift towards inclusion, we include people’s experiences and improve the research.” - BC Pomeroy #PxP25

“When we shift towards inclusion, we include people’s experiences and improve the research.” - BC Pomeroy #PxP25

“Evidence-based advocacy helps understand patient needs in a systematic manner … and it generally has a greater impact.” “You can point to national and global disparities using evidence-based advocacy.” - Rachel Giles #PxP25

“Evidence-based advocacy helps understand patient needs in a systematic manner … and it generally has a greater impact.” “You can point to national and global disparities using evidence-based advocacy.” - Rachel Giles #PxP25

“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25

“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25

“Find your own voice and make it as quiet or as loud as you want it to be.” - Rita Schriemer #PxP25

“Find your own voice and make it as quiet or as loud as you want it to be.” - Rita Schriemer #PxP25

“I’ve found over the years, that once I’m comfortable sharing my other identities, then I’m more comfortable sharing my disability in a way that makes sense for me and in a way that others perceive it.” - Logan Wong #PxP25

“I’ve found over the years, that once I’m comfortable sharing my other identities, then I’m more comfortable sharing my disability in a way that makes sense for me and in a way that others perceive it.” - Logan Wong #PxP25

“You have to figure out where your boundaries are, and then advocate for yourself.” - Edith Mukantwari #PxP25

“You have to figure out where your boundaries are, and then advocate for yourself.” - Edith Mukantwari #PxP25

“We presume that patients need training, and I think we should not assume that researchers know how to engage patients.” - Kwanele Asante #PxP25

“We presume that patients need training, and I think we should not assume that researchers know how to engage patients.” - Kwanele Asante #PxP25