I Overcome ME

Will lose sleep tonight over having to use “u” instead of “you” bc the confines of Bluesky. Atleast it’s not 140 characters! 😝

Today’s BREAKING NEWS: If my caretaker got a hearing aide it would GREATLY UNDOUBTEDLY ABSOLUTELY help my #MECFS #LongCovid 🙉⚡️💥 #pwME are in more pain than u can see. My stimuli sensitivities are the worst they’ve ever been. This is truly boredom at its silliest. Thankfully, the world isn’t on fire.

black and white picture taken from above of guus lying in a bed in a living room. On her face lays a large piece of paper with writing on it.

“At this point, I might as well be a brain preserved in a jar: untethered from life, suspended in time, where thought is not just all I have, but the very thing that proves I’m still here.” 🧠🫙
#MEAwarenessMonth #WorldMEDay #MECFS #LongCovid

The Chronic Illness Workbook, American Breakdown, The Future Is Disabled, Disability Visibility, How To Be Sick.

Not an image of my middle finger nails.

Both my middle finger nails grow markedly faster than the others. File under “Things You Notice When Bed/Homebound” #MECFS #BelieveME #LongCovid #pwME

#MECFS #LongCovid ARE *NOT* PSYCHIATRIC DISORDERS. #BelieveME #pwME

‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic never...

‘We’re losing decades of our life to this illness’: long Covid patients on the fear of being forgotten #Science #HealthandMedicine #PublicHealth #LongCovid #ChronicIllness #PatientAdvocacy

IS IT PERIMENOPAUSE 🙃

Pictured: Tangram Puzzle Soap, MOMA 🖼️

Is it the ADHD? Is it the IQ? Is it the brain fog from #MECFS and/or #IBD? Is it the weed? (Did I smoke weed…?) Is it the #CPTSD? Is it the spoons? Is it the pace points? 😵‍💫 It’s #MECFS #LongCovid #BelieveME #pwME

Reminding myself to find the #MicroJoys in this isolated world I live in *atm.* Can’t open my shutters during the day as of 3 months ago. 💔🙈 I’ve worshipped the ☀️🌞 since birth. (CA Or Bust!) Happy to have caught this years jasmine when I peaked outside today 👀☺️🥰😊 #MECFS #LongCovid #pwME #BelieveME

Since my light sensitivity has skyrocketed over the last few months I have had the (soft/warm) lights on earlier in the day, which charges glow pup enough to work ($20 knock-off?)🤪 With #MECFS #LongCovid we have to find the #MicroJoys wherever we can. 🌻 #pwME #BelieveME What gives you warm fuzzies?!

👯‍♀️✊

I am in the exact same position as you. My hair was down my back the first 6 months after I got Covid. First I hacked off 15 inches to a bob for about 6 months and then I just couldn’t take dirty hair anymore. I had to wear a bonnet 24/7 to keep the dirty contained or else get eczema around my eyes

I wear a mask from my bedroom door and don’t take it off until I get back from my appt and walk back into my bedroom 🤣

Feels like a lifetime ago that I was almost never seen without lipstick. Found my stash today. While I’d like to wear them “just for fun” it’s not possible bc it will 100% end up on my bed linens when I plop in and out of exhaustion. My lips miss you all! #MECFS #LongCovid #pwME #BelieveME

My bad! “This, to be honest”

Today one of my best friends got a great new job, an achievement. I’m happy to share his joy but got me thinking about the lack of achievements I have. I hate it, I want to be successful too. Right now I can’t even manage my #MECFS …what a mess. #pwME #MillionsMissing #chronicillness

TTBH 😩

Are you open to sharing what medicine is helping you right now?

“Chronic illness, a silent thief, steals my days and shackles my dreams.

My heart beats with longing, but my body lies heavy,

A weight that anchors me to this bed, a prison of pain” .

~ Words by Miriam Perkins

#chronicillness #disability #me/cfs #disabilitysky #poetry #pain #writer

Hello fellow buzzed head #pwME ☺️👋🏼

1 in every 4 kids will develop #LongCovid symptoms following Covid infection.
It is the result of an analysis of 8373 publications with a total of 80,071 children and adolescents.
Anyone denying this cannot be a Health Secretary anywhere.
www.nature.com/articles/s41...

Stay Sick, and you're not trying hard enough Make improvement, and you were faking all along Share your reality, and you're Seeking attention Keep the Struggle to yourself, and you aren't really sick @Spoonfulsofkindness

One of the most devastating interpersonal side effects of #MECFS #LongCovid #BelieveME #pwME #IRememberME It cuts every time one of these interactions happens. I don’t know how we’re supposed to compel our fellow Americans into listening to our shared experiences as a disabled community. #SOSMECFS

Revolutionary AI Blood Test Detects Long COVID in Children With 93% Accuracy

Revolutionary AI Blood Test Detects Long COVID in Children With 93% Accuracy

SciTechDaily
January 24, 2025
By Universita Cattolica del Sacro Cuore

stillcoviding.ca/en/news/revo...

#COVID #LongCovid #CovidIsntOver #research

TYSM ☺️ It is pretty surreal 😶

Not demure, no rizz, and totally delulu. I don’t usually post about things outside of #MECFS but the insanity of this hellscape we just re-entered is making it hard to find JOY to keep trekking. #LongCovid advocacy and policy changes are getting further away. So far away. #BelieveME #pwME