Preview of my lecture on #ME/CFS 💙🙏🏼🩵 Looking forward to sharing the knowledge and truth on #POTS, #MECFS, #MCAS,#hEDS, #longcovid, & #postvax! 🤗🥄❤️🩹Here’s the link to sign up for Awareness for POTSies’ inaugural virtual conference on June 6th-7th, 2025: www.awarenessforpotsies.org/conference
24.05.2025 09:32 — 👍 5 🔁 1 💬 1 📌 0
Injecting hope and comfort into my patients is an incredibly rewarding experience!🥹Now, I practice medicine from home due #MECFS, #POTS, #MCAS, #hEDS, #longcovid, #postvax, #myocarditis and more. This was not the life I envisioned, but I still find ways to spread my light to help my patients 💫❤️🩹👩🏻⚕️✨🩺
09.05.2025 18:58 — 👍 4 🔁 0 💬 0 📌 0
5+ years battling #LongCovidAwarenessDay, #POTS, #MCAS, #MECFS, #postvax, worsened #hEDS & more. Repeat infections increases the risk—a global crisis impacting 400M+. We deserve accelerated research and treatments for remission now. In unity & solidarity with all fighting this invisible battle❤️🩹😷
15.03.2025 11:33 — 👍 0 🔁 0 💬 0 📌 0
#hEDS is super common in the post-infectious & post-vaccine community, and it’s only “rare” to doctors because of historically minimal recognition and research.~10-30% of the population are hypermobile so immune assault of any kind can worsen it bc of connective tissue inflammation & destruction.❤️🩹
12.02.2025 02:45 — 👍 2 🔁 0 💬 0 📌 0
5 yrs with #longcovid ❤️🩹It doesn’t exactly fill my synapses with joy having these post-exertional malaise crashes and forced rest when my soul wants to do a million things, but this is now my life with #MECFS. I still try to find the small glimmers to help me keep going through this ailing existence.
26.01.2025 15:28 — 👍 12 🔁 3 💬 0 📌 0
😷 + 💉+ 🔄 +🧴 Multi-layer prevention, not infection!
We 🩵 mask & clean air protection.
Public Health Education Platform since 2020.
MaskTogetherAmerica.org
Toolkits:
bit.ly/Fight4HealthJustice
bit.ly/StopMaskBans
instagram.com/masktogetheramerica/
🦋 CEO of Phoenix Rising with Dr. G
🦋 Clinical Health Psychologist (Complex Medical, Rare Disease, Eating Disorders)
🦋 Medical Gaslighting Sensitivity Trainer
🦋 Keynote Speaker
🦋 #IamRare 🦓 ♿
www.phoenixrisingwithdrg.com
formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
Scientific Director, #MEAction
Stanford Med
Université de Montréal
TIME100 Health 2024
#ME, #EDS, #POTS, #LongCOVID
Views my own
exceedhergrasp1 on Twitter
Professor & Chair of Rehab Med at UT Health San Antonio | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
Long COVID and HIV cure clinician and researcher
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
Pediatrician, Author Sigh, See, Start, Contributor Forbes & PsychToday. Parenting, Neurodiversity, Long COVID advocate.
Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 36 years, severe ME 31 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Genderqueer. 36. Long COVID. Aspiring author, 3/4 of a Hamline MFAC degree. Profile pic ID: white person, smiling, with red glasses & blue short hair
ME/CFS | Long COVID | IACC
Mirame Arts || #MECFS || #Jurist ||
ME since 2017 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 ( (Severe)
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc