The real challenge is when an acute problem needs early intervention, but experts refuse to act, fearing the risk of an “acute” situation. You’re pushed to the ER, where your condition worsens due to their lack of knowledge. Die or survive more disabled—pick your side. #LongCovid #MECFS
16.11.2024 21:32 — 👍 25 🔁 3 💬 1 📌 0
Yeah you’re pretty lucky ngl
20.09.2023 17:37 — 👍 0 🔁 0 💬 0 📌 0
And the story begins
20.09.2023 15:56 — 👍 0 🔁 0 💬 0 📌 0
First bluesky tweet. Yeah I’m calling em that. Love to you all
20.09.2023 15:43 — 👍 12 🔁 0 💬 2 📌 0
Hahaha am I that forgettable 🥲
29.08.2023 01:35 — 👍 1 🔁 0 💬 1 📌 0
Whaddup playa
18.06.2023 12:57 — 👍 1 🔁 0 💬 0 📌 0
Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Patient/Caregiver-led non-profit 501c3 focused on #MECFS and #LongCovid • https://Renegade-Research.org 💙 Runs project @remissionbiome.bsky.social • Donate now ▶️ https://tinyurl.com/44azdsxm
The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
26. Former greek Architecture student and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
https://linktr.ee/katiamek
ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Afro Cuban, Husband, Dog Dad, Fmr Business Analyst & an FSU Alum. I was diagnosed w/ #als 10/4/18. Still here, still fighting. #lougehrigsdisease #endals. 💙🏳️🌈
https://linktr.ee/tavaresspeer
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
A neurologist, M.D., mother of a 17-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Disabled writer. Debut novel ALL OUR TOMORROWS out Feb 2025 with CLASH Books. 🖤
Also in X-R-A-Y, The Pinch, Vol. 1 Brooklyn, HAD, Hobart, etc.
https://linktree.com/amykatherrrine
27 | COVID-19, Clean Air & for nasal vaccines that can stop an infection:) // Deutsch & English
🏴🌏🔧🐙😷
ME/CFS sufferer * One of millions missing
* Berlin based * Safe passage
Environmentalism * Politics
Radical left * Craftsman
Outdoor enthusiast * Lab rat 🐀 * he/him *📍BLN
Climate change <—> Social conflicts
🚫Schwurbeln verboten!
Cure Long Covid & ME/CFS berlinbuyersclub.com
Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
disabled baddie 😷 comma splice queen ✨she/her✨
Long covid/ME since 2020. Literary fiction. Em dash fan. Retired junglist. Guiri Madrileño. Socialista.
former filmmaker II torn from life due to complex chronic illness II #CranioCervicalInstability #MCAS #SmallFiber #PoTS #FluoroQuinoloneToxicity #FlagylToxicity #Lyme #ME II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
http://heymp.com.au/sickandtired
http://change.org/LongCOVIDInquiry
http://www.instagram.com/sickandtiredaus
https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09
https://www.facebook.com/share/19nSvtGPNz/
Founder - Renegade Research
#MECFS #LongCovid
MEDICAL ADVOCATE, immune mediated neurologic illness-ie; autoimmune autonomic small neuropathy, POTS, previously Human Service Management for Medically Intensive 24/7 Residential, Disability Advocate, Elder Advocate
