When the words come at 4am, I write.
Because my mind doesnโt follow clocksโ
it follows grace, rhythm, and the quiet clarity of night.
This is autistic prayer. This is holy noticing. #ActuallyAutistic #WritingAsPrayer
@michaelmcfc.bsky.social
Autistic Irishman living with HIV, asthma, kidney failure, and MGUS. #Benedictine #Anglican #MStJ #FRSA #Typesetter #MCIPR #MIoL #AMRSPH ๐ Blogging at: www.hivblogger.com michael.mcfarlandcampbell.org https://bio.link/hivblogger
When the words come at 4am, I write.
Because my mind doesnโt follow clocksโ
it follows grace, rhythm, and the quiet clarity of night.
This is autistic prayer. This is holy noticing. #ActuallyAutistic #WritingAsPrayer
Glad to hear that Unite were helpful.
26.08.2025 20:15 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Heading in for a vascular scan today to find a new AV fistula site. Navigating autism-related sensory challenges with hope and advocacy ๐
Read more: hivblogger.com/2025/08/21/t...
#DialysisJourney #AutismAwareness #InclusiveHealthcare #AVFistula #SensorySensitivity
Department of Social Protection office
Fantastic to see a new office being created in #PortLaoise love to see the #GovIE branding.
15.08.2025 09:35 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Dialysis today was chaoticโalarms, a switch from HDF to HD, and an early wrap-up. Still, clearance beat the target. A tough moment reminded me: resilience matters more than perfection. #DialysisJourney #ProgressNotPerfection
hivblogger.com/2025/07/21/%...
Three days a week I sit for dialysis. One pill keeps HIV undetectable. A new inhaler, easier breath. Ten years since I last saw a respiratory specialistโand itโs time. Chronic illness doesnโt define me, but it shapes my rhythm. #HealthJourney #LivingWell hivblogger.com/2025/07/08/u...
08.07.2025 14:47 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Mid & East Antrim will hold their first ever Pride parade this year in Ballymena on 28 June.
M&EA are going to need a lot of us to show up for reasons that should be obvious given what's happening in the town atm.
Numerous counter-protests have already been registered.
This is what Pride is about
And the good news is results from 2025-01-02 Viral load undetectable. CD4 270. So, โ Juluca six months. Stop Dapsone. #UEqualsU.
19.06.2025 12:29 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Another day another medical appointment. This time in Dublin at Beaumont Hospital. For my #HIV checkup.
19.06.2025 10:43 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Collar and insignia of the Order of St Patrick
A vintage st Patrickโs day card with a free background, a blue shield with a gold harp, a white flag with a red saltire, shamrocks, and an Irish view.
Happy St Patrickโs Day โ๏ธ
17.03.2025 09:27 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0White cat hiding in a laundry basket
Niamh has found a new hiding place. One reason for keeping the laundry under control. #cats
23.02.2025 13:42 โ ๐ 4 ๐ 0 ๐ฌ 0 ๐ 0You are a robot ?
23.02.2025 13:39 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0So not school as I understand it. Which was what I asked.
23.02.2025 13:07 โ ๐ 1 ๐ 0 ๐ฌ 2 ๐ 02? That seems a bit young.
23.02.2025 13:00 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0What age do kids start school then? Where I grew up it was age 4.
23.02.2025 12:08 โ ๐ 2 ๐ 0 ๐ฌ 2 ๐ 0So how old?
23.02.2025 12:06 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0What does sixth grade mean?
23.02.2025 11:51 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0I do wonder if it is end of life care, when eating may be easier to stop.
23.02.2025 11:49 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Well, played for Mass this morning. Now in cafe for breakfast. Feeling a bit better. Though still feel like my haemoglobin is too low. FBC was taken on Friday at #dialysis results tomorrow I hope.
23.02.2025 11:47 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0A cat atop my coat of arms.
A lovely image showing our cat Scholastica (โ 2025-02-05) holding her arms sitting on my arms impaling Andrewโs.
06.02.2025 12:00 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0Icon of S. Charles, King and Martyr.
The veneration of Charles I as a martyr โ๏ธ skcm.org/about-s-char...
30.01.2025 06:49 โ ๐ 4 ๐ 1 ๐ฌ 0 ๐ 0A white shield with one purple ermine spot. With a cat supporting a shield with my and Andrewโs arms.
Our eldest cat Scholastica of course in this family has to have arms. Much love shown by Sivane in illustrating them. I love the crest with the cat supporting my arms. A lovely touch.
Scholastica is still with us, not in any pain, but oh so very, very old.
In ED. Influenza. Prayers for healing please.
21.01.2025 10:05 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Todayโs dialysis complication was the extra layers worn due to the low temperature! 8.4kg extra weight on. So only 77.4kg in reality. Weight on arrival 85.8! DMBoots were 1.6kg of that! So set to take 1.5litre Bp 160/109 HR 87 Hb 11.9
08.01.2025 13:41 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Results from 2024-07-18 CD4=290. VL<40. So finish Dapsone. Back to clinic in 6 months. #HIV #healthresults
02.01.2025 11:39 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Christmas wreath surrounding my arms and those of my husband with a scroll saying Merry Christmas
Merry Christmas
26.12.2024 18:43 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Back to dialysis today. Up 1.5kg.
Goal 2.2litres. BP 181/123 HR 85. Ens of therapy 17:16.
www.belfasttelegraph.co.uk/news/norther... Windows smashed and anti Sinn Fein graffiti daubed on community building amid village row.
People complaining about SF doing this make themselves the thugs. It was the Deputy Mayor who was in attendance. I condemn the violence.
Sitting on dialysis this afternoon. No weight gain because of lack of food in hospital yesterday! So, taking 800 ml off to cover the tea I got today here. Going well today. Happy today.
22.11.2024 15:22 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Just blogged: hivblogger.com/2024/11/22/n...
#asthma #EmergencyCare #Gratitude