Alison Twycross RN PhD's Avatar

Alison Twycross RN PhD

@alitwy.bsky.social

Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Covid Support. Former Professor of Children’s Nursing. #FBLC

1,806 Followers  |  4,439 Following  |  325 Posts  |  Joined: 30.11.2024  |  2.1246

Latest posts by alitwy.bsky.social on Bluesky

Promotional graphic for ‘Supporting Healthcare Heroes UK.’ At the top is a ribbon logo with teal, grey, and a small red heart. Next to it, the text reads ‘Supporting Healthcare Heroes UK.’ Below, large teal text says ‘Sign up for our newsletter.’ A circular red stamp on the right reads ‘Subscribe.’ At the bottom, small text states, ‘Charity Registered in England & Wales No. 1205685.

Promotional graphic for ‘Supporting Healthcare Heroes UK.’ At the top is a ribbon logo with teal, grey, and a small red heart. Next to it, the text reads ‘Supporting Healthcare Heroes UK.’ Below, large teal text says ‘Sign up for our newsletter.’ A circular red stamp on the right reads ‘Subscribe.’ At the bottom, small text states, ‘Charity Registered in England & Wales No. 1205685.

✨ Stay Informed. Stay Connected. ✨

📬 Sign up to our newsletter today and join a community committed to supporting the people who care for us every day.

👉 Subscribe now: shh-uk.org/

#longcovid #longcovidawareness #longcovidrecovery

07.12.2025 20:00 — 👍 1    🔁 1    💬 0    📌 0

Clinically vulnerable patients deserve safe NHS care.

This petition calls for better masks, clean air & safer clinics.

Please sign & share 👇
petition.parliament.uk/petitions/74...

08.12.2025 09:22 — 👍 2    🔁 2    💬 0    📌 0
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COVID-19 may accelerate vascular ageing, especially in women and people with Long Covid.

This growing concern needs more awareness.

Details here: shh-uk.org/?p=35296&...

#LongCovid #longcovidawareness #WomenHealth #PublicHealth

08.12.2025 12:15 — 👍 16    🔁 10    💬 0    📌 0
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🚨 The Minister for Children and Families, Josh MacAlister MP, has formally acknowledged that Covid is airborne in a new letter dated 30 Oct 2025.

👉 Read the full letter: shh-uk.org/minister-...

#SafeAir4All #CleanAir #Schools #Health #UKPolitics #loncovid #longcovidrecovery

09.12.2025 06:00 — 👍 21    🔁 12    💬 1    📌 3

This is an important development

09.12.2025 16:32 — 👍 28    🔁 9    💬 0    📌 1

Guys, if you want to carry on pretending nothing can be done about viruses, so doctors with #LongCovid can't successfully sue you for Health & Safety at Work violations, this letter rather lets the 🐈 out of the bag!

Everyone knows #CovidisAirborne

09.12.2025 14:15 — 👍 15    🔁 14    💬 0    📌 0
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Long COVID trajectories in the prospectively followed RECOVER-Adult US cohort - Nature Communications Long COVID has heterogeneous presentation and clinical trajectories are not well defined. Here, the authors define trajectories using data from a prospective cohort study in the United States involvin...

Harvard study identifying Long Covid takes several different paths.

www.nature.com/articles/s41...

08.12.2025 06:59 — 👍 7    🔁 3    💬 0    📌 0

Review article on #Longcovid during pregnancy

As always-if you intend to get pregnant get vaccinated & wear a fitted respirator

Sarkasm-Otherwise you can go on and do alcohol and drugs, eat raw fish and meat & stop washing your hands as well-sarkasm end

www.researchgate.net/profile/Wiku...

08.12.2025 08:54 — 👍 5    🔁 2    💬 0    📌 0
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1) A randomized trial from Boston shows that nicotinamide riboside supplementation (2000 mg/day) probably doesn't improve Long Covid symptoms such as fatigue or cognition.

It increased NAD+ levels substantially (as intended), but there was no similar improvement in symptoms.

08.12.2025 09:14 — 👍 23    🔁 6    💬 1    📌 0
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SARS-CoV-2 Leaves a Lasting Mark on the Immune System A landmark new study shows COVID-19 isn’t ‘just a cold’: One infection left people with long-lasting immune damage, and those with heart disease lost up to 70% of key immune cells. Reinfections may wo...

“Jiang and colleagues conclude, carefully but clearly, that their findings ‘redefine SARS-CoV-2 infection as a condition of long-lasting immune compromise’ and highlight lymphocyte dysregulation as a key immunological feature of Long Covid, particularly in people with cardiovascular disease.”

08.12.2025 09:27 — 👍 99    🔁 47    💬 7    📌 4

Everyone's in denial about post-Covid damage.

"A new study... should end any lingering idea that SARS-CoV-2 is ‘just another cold virus.’ It shows that a single, relatively short Omicron wave left a long, measurable scar on [our] adaptive immune systems"

Lymphocytes, T / B / NK cells.

#LongCovid

08.12.2025 09:38 — 👍 37    🔁 17    💬 0    📌 2

Fella who has been fingered for 23k excess deaths during COVID, through his shear complacency, laziness, thoughtless and hate for his fellow citizens wonders why so many people are ill or in poor health.
Austerity, you fucking disgrace and long COVID you repugnant twat.

08.12.2025 09:55 — 👍 15    🔁 6    💬 0    📌 0
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Trump just pardoned a person responsible for more American deaths than Bin Laden Trump 100% personally profited from this pardon

K:
deanobeidallah.substack.com/p/trump-just...
Trump was responsible for at least 300-500k Covid deaths and unknowable number of long Covid cases. Which while reported previously went unreported by Big Media during the 2024 campaign.

08.12.2025 09:55 — 👍 3    🔁 1    💬 0    📌 0
The vexatious imbecile Johnson: What the
ETTING
in the
off a plane
US
the
other
day, I noticed a lot of people waiting at the
door. They were all tabarded airport staff, and they
had wheelchairs.
all
That's strange, I thought. It looked as
touentrev
mysterious rise in the numbers
As we went up the jet bridge there were more
and more wheelchairs, like
the lobby of a geriatric hospital.
wondered varuey aloud to one or ce alport stan. wny do so many people seem to require this type of assistance
these days? It's just i
those things, ne
of
passensers are asking for saem
Some flights - he mentioned Toronto to Miam!
wheelchair use.
Imost 40 per
It seemed like ar
ucure.
but I didn't
the winter migration, of flocks of Cana-plane for a burst of
Plorida sunshine
demanding wheelchairs to get to their
They think they are being taken for mugs
plane tells us
months later. I thought no more about the phenomenon.
Apparently, it is everywhere. There is
about the ever
in insatiable popular hunger, at almost
airlines are starting to get fed up.
Tre spiralling costof
many or their passengers are
incapable of getting on to the plane using their own two feet.
They think they
are being taken for
and that at least some of these
the welfare state

The vexatious imbecile Johnson: What the ETTING in the off a plane US the other day, I noticed a lot of people waiting at the door. They were all tabarded airport staff, and they had wheelchairs. all That's strange, I thought. It looked as touentrev mysterious rise in the numbers As we went up the jet bridge there were more and more wheelchairs, like the lobby of a geriatric hospital. wondered varuey aloud to one or ce alport stan. wny do so many people seem to require this type of assistance these days? It's just i those things, ne of passensers are asking for saem Some flights - he mentioned Toronto to Miam! wheelchair use. Imost 40 per It seemed like ar ucure. but I didn't the winter migration, of flocks of Cana-plane for a burst of Plorida sunshine demanding wheelchairs to get to their They think they are being taken for mugs plane tells us months later. I thought no more about the phenomenon. Apparently, it is everywhere. There is about the ever in insatiable popular hunger, at almost airlines are starting to get fed up. Tre spiralling costof many or their passengers are incapable of getting on to the plane using their own two feet. They think they are being taken for and that at least some of these the welfare state

A constant blazing terror that somewhere, somebody might be getting a free cheese sandwich. Or indeed brief use of a wheelchair.

08.12.2025 08:22 — 👍 1092    🔁 239    💬 163    📌 106
Graphic for Supporting Healthcare Heroes UK featuring raised hands with red hearts painted on the palms. Text reads: ‘We Need Volunteers’ with roles listed. Online Support Group Moderator, Social Media Content Creators and Volunteer Co-ordinator. Includes charity registration information.

Graphic for Supporting Healthcare Heroes UK featuring raised hands with red hearts painted on the palms. Text reads: ‘We Need Volunteers’ with roles listed. Online Support Group Moderator, Social Media Content Creators and Volunteer Co-ordinator. Includes charity registration information.

✨ URGENT VOLUNTEER CALL ✨

We’re looking for:

🖥️ Online Support Group Moderators
📱 Social Media Content Creators
🙋 Volunteer Co-Ordinator

📩 Email volunteer@shh-uk.org for more info.
🔗 reachvolunteering.or...

#Volunteer #SupportCommunity #MakeADifference #JoinUs

26.11.2025 08:06 — 👍 3    🔁 1    💬 0    📌 0

📣 Shout out to Mike Ormerod from Long Covid Support who is giving evidence to the @ukcovid-19inquiry.bsky.social today. Thank you Mike for all your incredible hard work, despite your own battle with #LongCovid.

Link for #CovidInquiry livestream below. ⬇️

26.11.2025 09:48 — 👍 6    🔁 3    💬 1    📌 0
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Today in public hearings for Module 9: Economic Response, we will hear evidence from former Secretary of State for Work and Pensions, Baroness Coffey and Mike Ormerod from Long Covid Support.

26.11.2025 09:06 — 👍 3    🔁 2    💬 0    📌 0
Graphic with a torn-notebook-paper background. At the top is the Supporting Healthcare Heroes UK logo. Large text reads ‘Research Summary,’ with the word ‘Summary’ circled in black. At the bottom, small text says ‘Charity Registered in England & Wales No. 1205685.’

Graphic with a torn-notebook-paper background. At the top is the Supporting Healthcare Heroes UK logo. Large text reads ‘Research Summary,’ with the word ‘Summary’ circled in black. At the bottom, small text says ‘Charity Registered in England & Wales No. 1205685.’

🌍 New research calls for sustainable indoor air quality guidelines.

About 40 countries regulate IAQ but standards vary.

Read more: shh-uk.org/?p=35294&...

#IndoorAirQuality #HealthyBuildings #PublicHealth

01.12.2025 12:15 — 👍 7    🔁 2    💬 0    📌 0
"Informational graphic titled 'Understanding Aerosols and Airborne Spread' featuring a visual representation of red virus particles suspended in transparent bubbles. The top banner reads 'Resource Available' with a hashtag #SafeAir4All, emphasizing public health awareness about airborne transmission.

"Informational graphic titled 'Understanding Aerosols and Airborne Spread' featuring a visual representation of red virus particles suspended in transparent bubbles. The top banner reads 'Resource Available' with a hashtag #SafeAir4All, emphasizing public health awareness about airborne transmission.

Ever wondered how virus laden aerosols (“virosols”) form and spread? 🌬️

The Aerosol Research Centre in Taiwan has a clear, illustrated guide showing how airborne transmission works and what simple steps actually help.

🔗 shh-uk.org/understan...

#CleanAir #Virosols #longcovid

02.12.2025 06:00 — 👍 13    🔁 7    💬 0    📌 0
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✨ URGENT VOLUNTEER CALL ✨

We’re looking for:

🖥️ Online Support Group Moderators
📱 Social Media Content Creators
🙋 Volunteer Co-Ordinator

📩 Email volunteer@shh-uk.org for more info.
🔗 in bio

#Volunteer #SupportCommunity #MakeADifference #JoinUs

03.12.2025 09:00 — 👍 1    🔁 1    💬 0    📌 0

@margaretohara.bsky.social @longcovidsupport.bsky.social @joda.bsky.social @nigelrothband.bsky.social @scribblerpen.bsky.social

27.11.2025 09:58 — 👍 1    🔁 1    💬 0    📌 0

Proud to have co-authored this paper on experiences of #LongCovid and work:

“I've done my job for 30 years and I'm very competent at it, but I couldn't understand what some of the words were meaning… It's almost having to recognise things again and relearn things”

27.11.2025 09:58 — 👍 7    🔁 3    💬 1    📌 1
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🧠 COVID-19 with gut symptoms may affect your brain 🧠

Memory, focus and thinking could be impacted.

Gut-brain connection in action.

Read More: shh-uk.org/?p=35226

#LongCovid #Cognition #GutHealth #longcovidawareness #longcovid #longcovidjourney

24.11.2025 09:00 — 👍 8    🔁 2    💬 1    📌 0
Preview
Long COVID trajectories in the prospectively followed RECOVER-Adult US cohort - Nature Communications Long COVID has heterogeneous presentation and clinical trajectories are not well defined. Here, the authors define trajectories using data from a prospective cohort study in the United States involvin...

This study found that 'among individuals with a known history of #SARSCoV2 infection, 5% had a profile characterized by a persistently high #LongCOVID related symptom burden, an additional 12% had intermittently high burden of symptoms that did not improve over time.'
www.nature.com/articles/s41...

20.11.2025 11:46 — 👍 31    🔁 14    💬 1    📌 2

Great to see our Chair @alitwy.bsky.social quoted in this @bmj.com article.

18.11.2025 10:20 — 👍 3    🔁 1    💬 0    📌 0

Long COVID and the Increased Risk of Food Insecurity Among Participants in Arizona CoVHORT: A matched cohort study. https://www.medrxiv.org/content/10.1101/2025.11.14.25340219v1

18.11.2025 06:43 — 👍 3    🔁 3    💬 0    📌 0

Really sorry to hear this. Nurses and other healthcare workers with Long Covid keep an eye on our social media accounts for info about our online support groups - starting in January.

20.11.2025 10:23 — 👍 2    🔁 1    💬 0    📌 0
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QICN to close long Covid nursing network The Queen’s Institute of Community Nursing (QICN) has made the ‘difficult decision’ to close its long Covid network

QICN to close long Covid nursing network

#QICN #nursing #NHS #covid #longcovid #healthcare #UKnurses

20.11.2025 08:59 — 👍 5    🔁 4    💬 1    📌 0

As I said to a friend some time back, "Covid broke me". Not in terms of my getting Long Covid or such but, rather, because of the destruction of my trust in people in high places as well as the shock of discovering that some people I considered intelligent and were my friends were utter Covidiots.

20.11.2025 08:58 — 👍 17    🔁 3    💬 0    📌 1
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Eat out to Help Out was killing people, but they “kept it out of the news”.

20.11.2025 06:53 — 👍 658    🔁 410    💬 45    📌 40

@alitwy is following 20 prominent accounts