C.H. Romatowski

frankly everyone is lucky I didn't cuss this man clean out.

Hospitals are being held together through the sheer force of will of clinicians — and that simply isn't at all viable over the long term.

Happy to spend a billion dollars a day attacking Iran, but willing to deny a Veteran a disability claim on the whim of an AI bot 🤦🏻‍♂️🤬🖕🏻

(Big respect to people who are tho, no question the tendency I see the most reliably Putting In The Work)

I love anarchists but will never be one and becoming disabled really deepened that conviction.

ME/CFS folks, if you have spoons for this, I think moderating online groups, esp state-level groups, is a crucial intervention.

Last I was in the loop on this, many of MEAction’s state-level Facebook groups were closed for lack of moderators, and it has really hampered state-level advocacy IMO.

Dysautonomia International @dysautonomia.bsky.social has an email tool to ask Congress to support dysautonomia research and care:

#POTS #LongCovid #NEISvoid

Wait this is interesting to me because my experience of disability activism on the organized left is that it’s very social-model-focused and therefore skeptical of attention to healthcare. No?

Another 5 star review for I IDENTIFY AS BLIND!

“I'm mad I didn't know more about Lachi before reading this EXCELLENT, must-read disability memoir... It was great on audio read by the author with her witty humor and musical excerpts.”

- Shannon, Goodreads ⭐️⭐️⭐️⭐️⭐️

A bill that would allow wounded troops to get both disability and retirement pay, ending the rule against "double-dipping," got blocked by Sen. Johnson over the cost.

📢 Researchers! The Congressionally Directed Medical Research Program (CDMRP) is taking applications for the 2026 Peer-Reviewed Medical Research Program (PRMRP) Awards. Areas include #MECFS, Ehlers-Danlos Syndrome, & Mitochondrial Disease, among others.
Learn more: https://ow.ly/HPv150YrACP.

Tysm!!

ICE locked up a deaf kid without his hearing aids—and wouldn't let him have them back Rep. Eric Swalwell is working to help the family seek humanitarian parole.

New from me at @motherjones.com: Today, @ericswalwell.bsky.social said he's working to help the family of a Deaf kid seek humanitarian parole so he can continue attending CA School for the Deaf–and his staff brought his hearing aids to Colombia for him to use. www.motherjones.com/mojo-wire/20...

ME/CFS LC Following feed Hmm, some kind of issue occurred when contacting the feed server. Please let the feed owner know about this issue. Message from server: Internal Server Error View profile

Sorry to keep pestering you, if the feeds become too much of a hassle to maintain I will def understand!!

When asked which endpoints should ideally be used for studies in ME/CFS, Todd Davenport is absolutely clear about what’s what: FUNCAP and PAQ!
1/4

Somehow even more ominous 💀

Someone call me when the Pitt shows doctors doing this

Right? 😭

I wonder how many people realize this is the norm.

“Households containing an adult w/a work-disability require, on average…an additional $17,690/year…to obtain the same standard of living as a comparable household w/o a member w/a disability.”

www.nationaldisabilityinstitute.org/reports/extr...

I'm doing my 2025 taxes & this year I had $19,984 in unreimbursed medical expenses. It is incredibly expensive for disabled people to stay alive in this country.

Everyone should not have to have a direct line to elected officials in order to ensure that we are not kidnapped by the government.

Omg yes

Tomorrow is the last day you can submit input.
#LongCovid #SGB

The system is so, so broken. (Or rather it works great for its purposes. What those are is what’s so troubling.)

I have wondered if it’s going to hold up like 10 years from now, for this among other reasons

<headdesk>

#LongCovid folks, if anyone has an extra 1-3 metrix tests you’d be willing to sell me + send in the mail this weekend, you’d be doing me a big favor

Share Your Voting Story The Center for American Progress (CAP) is seeking to understand disabled people's voting experiences. Rarely are disabled voters highlighted when talking about their right to vote. CAP's Disability Ju...

We at @americanprogress.bsky.social are gathering stories from disabled voters about voting accessibility (particularly looking for folks from IN, MO, MN, RI, TX, UT, & WY). Please complete this Google form if you're interested in sharing your story:

#CripTheVote

:)

dsausa.org/join