For anyone else wanting to attend there is now a link where you can register! /delighted
Long COVID & Fatiguing Illness Recovery Program ECHO
Thursday, August 14th, 2025
12:00 - 1:00 pm PT
MCAS & Long COVID 2.0
Brayden Yellman, MD
Panelists: Alexis Cutchins, MD; David Kaufman, MD; Cali Wilson
05.08.2025 04:43 — 👍 4 🔁 2 💬 1 📌 0
who's hiring 😭 hyrbid or remote only in the bay area 🥲 im a pleasure to have in the office 🙃
02.08.2025 01:11 — 👍 2 🔁 2 💬 0 📌 0
The world is really not designed for disabled people to get humane and effective care. Whew.
05.08.2025 02:05 — 👍 5 🔁 2 💬 3 📌 0
The worst fucking game
05.08.2025 03:10 — 👍 3 🔁 0 💬 0 📌 0
This is The Way.
05.08.2025 01:47 — 👍 10 🔁 4 💬 0 📌 0
Got Qs about the Disability Rising Fellowship?
Join open office hours with Program Director Keidra Chaney on Aug 11, 12–3pm CT. 1:1 convos to help with your app, questions, or concerns.
Appointments:
calendar.google.com/calendar/u/0...
04.08.2025 21:35 — 👍 2 🔁 1 💬 1 📌 0
My best friend who watches Maddow just called to tell me that she landed the plane and plainly stated that the US is currently being ruled by a consolidating authoritarian regime. Not that it is 'descending into' etc etc but that it is here. Maybe this will move more liberals to say the same.
05.08.2025 01:41 — 👍 3151 🔁 676 💬 29 📌 0
WHEN WILL COVID NO LONGER BE DANGEROUS?
1️⃣ Most buildings have #DavosSafe tech
2️⃣ We've got a cure for #LongCovid
3️⃣ We have vaccines that prevent contraction / transmission
--
UNTIL THEN, WHAT DO WE DO?
😷 Mask up when around others
📈 Use @michael-hoerger.bsky.social's data to plan
✊ Organize for 1️⃣-2️⃣-3️⃣
04.08.2025 21:12 — 👍 61 🔁 23 💬 1 📌 1
Messaging Guidance:
Want to help Trump and fascist MAGA implement their latest policy to dehumanize disabled people? Call what they want to do “institutionalization”
Want to increase opposition to this attack on basic human freedom? Call it “incarceration” (formal, professional) or
“locking up”
04.08.2025 20:44 — 👍 59 🔁 31 💬 0 📌 0
YES!!!!!!!!!!!! Omg im thrilled to hear this!!!!!
04.08.2025 19:56 — 👍 2 🔁 0 💬 0 📌 0
'RECOVER-Treating Long COVID (TLC) 2nd Annual Workshop: Pathways to Treatments'
'Draft Agenda - Subject to Change'
'September 9-10, 2025 at The Bethesdan Hotel in Bethesdan, Maryland'
view.officeapps.live.com/op/view.aspx...
04.08.2025 19:14 — 👍 6 🔁 3 💬 1 📌 0
Association of Military Surgeons article on the impact of LongCOVID on military readiness, says future research is required to delineate, treat, and prevent LongCOVID’s impact on the cognitive, cardiorespiratory, and overall health and fitness for active duty service members.
🚨from Jammer (@AcrossTheMersey) on Twitter:
"Association of Military Surgeons article on the impact of LongCOVID on military readiness, says future research is required to delineate, treat, and prevent LongCOVID’s impact..."
Short 🧵:
threadreaderapp.com/thread/19524...
04.08.2025 19:33 — 👍 14 🔁 6 💬 2 📌 1
Wish I’d seen this sooner—for anyone who might be able to do something in time.
04.08.2025 06:53 — 👍 11 🔁 1 💬 0 📌 0
Love that!!
04.08.2025 05:47 — 👍 0 🔁 0 💬 0 📌 0
Totally! Let me think who would be good to ask and I’ll do that!
04.08.2025 05:30 — 👍 1 🔁 0 💬 0 📌 0
Want to clarify smthg I’ve seen mischaracterized—
To my understanding, this does not, unfort, include any *funding* for the Roadmap. The only dedicated ME $ in the bill is for the CDC.
Requiring the creation of an implementation plan is progress! It just ≠ funding the actual implementation. (Yet!)
04.08.2025 05:29 — 👍 5 🔁 1 💬 0 📌 0
It’s an interesting question tho, if you want we could tag in some air quality researchers and ask for a more expert opinion? Some of them are on here sometimes!
04.08.2025 04:44 — 👍 1 🔁 0 💬 1 📌 0
(That’s a study of outward leakage rather than inward but the research I’ve seen seems to take the one as proxy for the other.)
04.08.2025 04:39 — 👍 1 🔁 0 💬 1 📌 0
Study shows N95 masks near-perfect at blocking escape of airborne COVID-19 | University of Maryland | School of Public Health
COLLEGE PARK, Md. – In a head-to-head comparison of masks worn by people with active COVID-19, the inexpensive “duckbill” N95 came out on top, stopping 98% of COVID-19 particles in the breath of infec...
I do think that’s right about N95s being even better than 95% (here’s a study finding a duckbill N95 “blocked 99% of large particles and 98% of small particles”), but even if it weren’t, I’m not sure the transmission math is linear in that way? (I say that as someone who also got Covid in < 1 min.)
04.08.2025 04:39 — 👍 2 🔁 0 💬 1 📌 0
Best Picks
In terms of the science, I’ve only heard p100 and above discussed as necc for things like wildfire smoke.
In terms of seals breaking on disposable respirators, Fit Test the Planet is a cool project to stresstest respirators w/what they call “adversarial” quant fit testing. Some hold up p well!
2/2
04.08.2025 04:05 — 👍 1 🔁 0 💬 0 📌 0
So the seal is really the only thing I’d worry about. I totally hear you about high susceptibility, but I have never come across any science saying the N95 filtration level is inadequate for blocking common infections, or even any scientists speculating it might be.
1/
04.08.2025 04:05 — 👍 1 🔁 0 💬 2 📌 0
🙌🏻🙌🏻
04.08.2025 03:58 — 👍 1 🔁 0 💬 0 📌 0
If I’m not mistaken an N95 needs a fit factor of 100 to pass, but I think on Auras for example, some people score over 500. I would not worry if I had a great fit test score with an N95.
04.08.2025 03:17 — 👍 3 🔁 0 💬 0 📌 0
ppl with #LongCovid or #mecfs who are weirdly susceptible to viral illness, would you be comfortable going to work in person wearing a p100 respirator if you were physically able to? I’ve never heard of someone getting sick through one but also far fewer ppl use them than n95s. and they’re of
04.08.2025 02:10 — 👍 12 🔁 3 💬 9 📌 0
If I were well enough and going to need it on an ongoing basis, what I would do is pay* for a quantitative fit test, and then I’d feel comfortable wearing whatever passed, which might well be an N95. I would not assume any given p100 would necc fit me.
*or a local CC group might be able to lend one
04.08.2025 03:03 — 👍 5 🔁 0 💬 3 📌 0
He doesn’t want to “reduce chronic illnesses,” he wants to reduce people with chronic illnesses
04.08.2025 00:56 — 👍 3835 🔁 1127 💬 143 📌 38
YouTube video by Unraveled: Understanding Complex Illness
The Second Appointment--The First Follow Up
Hi All. We finally broke thru 2000 subscribers!!! Thanks and welcome to our new viewers.
youtu.be/E1y8hVjp5xk
04.08.2025 01:07 — 👍 2 🔁 1 💬 0 📌 0
A Shorter "Making Health Technology Great Again" — Feeding Our Health Data To AI, Feeding Chronically Ill People To The Wolves" Version | Matthew Cortland
Get more from Matthew Cortland on Patreon
As a chronically ill healthcare lawyer I think the Trump regime wants to use this new AI initiative to replace our doctors with ChatGPT and use AI to determine who gets their medically necessary treatments (💊) approved by insurance.
Trump voter? You can have meds. Didn't vote for Trump? ☠️
03.08.2025 22:02 — 👍 56 🔁 22 💬 1 📌 1
Optimism of the will/ Pessimism of the intellect.
Strategist, activist, deeply rooted cosmopolitan.
Board member @jfrejnyc/ @thejewishvote cofounder. RTs not endorsements.
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plants, animals, microbes | Managing Editor (ASM Journals) | www.asm.org | ASM Case Reports, Applied and Environmental Microbiology @asm.org
poster
Internet Himbo, biomedical R&D consultant, cat dad, IDIC 🖖 , staunch trans rights defender 🏳️⚧️
do not step to me re: covid unless you have had more than three (3) therapeutics EUA’d by the FDA, seriously shut the fuck up
Human Doctor • Toxicology • Addiction • Emergency • #WTFentanyl & more often just WTF • drugs are misunderstood but people are misunderstood more • he/him • YouTube.com/@RyanMD • #MedSky
Educator & advocate for little ones!
FM Doc/Preventive Med Fellow at the intersection of #Latinsky & #Medsky. Pura vida! 🇨🇺🇨🇷 (He/His/Él)
Posts ≠ Medical advice
Latinsky: @latinsky.social
Medsky: @medsky.social & @medsky.info
STEM Labeler: @stemlabels.xyz
Support: https://ko-fi.com/richferro
connecting disabled communities in the North (@transportforall.org.uk). 🚊
publishing philosophy on knowledge and social change (nataliealanaashton.notion.site). 📚
don't blame my employer for my views, they begged me to stop skeeting. she/her.
The disabled-led group breaking down barriers and transforming the transport system so disabled people can travel with freedom, dignity, ease and confidence.
Join our community for transport justice: https://www.transportforall.org.uk
Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online
Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health.
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Showing Up for Racial Justice (SURJ) organizes white communities into movements for justice. Join us- and we promise to put you to work for good.
Learn more: SURJ.org
Writer specializing in poverty, food/housing insecurity, and safety net programs. Also write about entertainment and lifestyle topics. Fan of all things 80s (plus 60s/70s musical icons). Passionate about animal rescue.
Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Award-winning freelance journalist and editor, Disability Review Magazine. Rep’d by Artellus & WNF. https://lydiawilkins.substack.com/
Co-Founder of Long COVID the Answers
Passionate Advocate of Long COVID awareness
Family Physician
The Pandemic is not over!
journalist @nyc.streetsblog.org, dmeyer@streetsblog.org 🏳️🌈
Science writer, insect enthusiast, part-time pro runner and coach. (she/her)
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author--science & arts journalism, fiction (children & adult), nonfiction (children & adult), poetry, essays.