It’s fitting to launch during International Long Covid Awareness Month.
Available now from Johns Hopkins University Press (30% off with code HTWN):
www.press.jhu.edu/books/title/...
#LongCovidHeartbeats #PublicHealth
@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
It’s fitting to launch during International Long Covid Awareness Month.
Available now from Johns Hopkins University Press (30% off with code HTWN):
www.press.jhu.edu/books/title/...
#LongCovidHeartbeats #PublicHealth
After Covid is officially published.
It took 3+ years of reporting—hundreds of interviews & deep dives into more than 2,000 studies & reports—to examine what followed the emergence of SARSCoV2. #LongCovid. Chronic illness. Strained systems. Eroded trust. The risks we face if we don’t learn from it.
I have family in Abu Dhabi so this is personal for me & is making my extremely underfunded neuroimmune disease worse. Fuck the US, man. Stop bombing people, stop abandoning people, & #TripleTheNIHBudget 😭
03.03.2026 20:57 — 👍 15 🔁 5 💬 3 📌 0I'm looking to hear some specific examples of how disabled Minnesotans have been harmed by federal Medicaid pause for reporting I'm doing at @motherjones.com . Please reach out to jmetraux@motherjones.com with any leads.
03.03.2026 22:13 — 👍 158 🔁 120 💬 1 📌 1Journalist Sara Murphy is working on a story about the impact of climate disasters on people with #LongCOVID, focusing on the American South. She would love to connect with people who had to manage the recent ice storms and extreme cold, or even previous disasters. Contact: hello@saramurphyphd.com.
03.03.2026 22:16 — 👍 42 🔁 29 💬 0 📌 0That’s so frustrating. Do you have CCI?
03.03.2026 00:29 — 👍 1 🔁 0 💬 1 📌 0
🧵One thing I’ll always remember from when mask mandates were dropped is how gleefully my colleagues at the time rushed back to normal.
I begged them to consider what it meant for high risk folks like me.
“Everyone has to take personal responsibility,” said my boss. (1/3)
Omg, are you ok??
02.03.2026 23:21 — 👍 1 🔁 0 💬 0 📌 0
we protected my mom from COVID for 5 years. She caught it at the hospital during an outbreak in the dialysis ward (!!) and died 5 days later.
we will do nothing with this information as a society
Some items to consider if your org values inclusion:
02.03.2026 22:59 — 👍 29 🔁 13 💬 0 📌 0Oh no now I am going to cry too
02.03.2026 22:58 — 👍 2 🔁 0 💬 1 📌 0
Home care is needed everywhere- people outside of medicine have no idea how many people are able to keep living at home only because of these services.
But they are ESPECIALLY vital in largely rural (often red) states where the logistics of getting to care are a lot harder. This will be devastating
Mark your calendars! Please support us on Long COVID awareness day and beyond. I'm honoured to be speaking at the Vancouver event. (Begins 11:30am PST outside the Vancouver Art Gallery)!
02.03.2026 07:32 — 👍 29 🔁 9 💬 1 📌 0What if there was a mindful way to steal people’s art, pollute Black neighborhoods, and raise everyone’s electric bill?
02.03.2026 16:51 — 👍 1635 🔁 475 💬 20 📌 6Sorry, you can’t have healthcare or supportive housing or anything because 50 billion dollars have been set aside to ensure ample munitions for Operation Vanquished Toddler
01.03.2026 00:17 — 👍 301 🔁 64 💬 3 📌 1
3) Turns out the vast majority (78%) of ME/CFS patients had both mental and physical PEM.
Only 5% fell in the mental PEM only subgroup. This tended to have more males. Otherwise the differences between groups do not look that big.
Anywho, there's no better time than now to put your ideas out there and invite other people to do things with you. Might as well try. You don't have to know everything before starting. You can just start.
02.03.2026 02:53 — 👍 712 🔁 215 💬 8 📌 0I know that I sound like a broken record but I think once this society was ok with accepting mass covid deaths just to be able to eat at Applebees then all bets were off.
02.03.2026 03:03 — 👍 6289 🔁 1482 💬 104 📌 75I hate that I have to tune out some urgently important things just to survive
02.03.2026 06:52 — 👍 2 🔁 0 💬 0 📌 0
Today is Disability Day of Mourning, remembering disabled people murdered by caregivers/family.
Any journalist who portrays these stories as anything short of murder is doing serious journalistic malpractice, yet it happens so often. disability-memorial.org
NEW, from me: I talked to Aliya Rahman, who was dragged out of Tuesday's State of the Union + arrested for... standing up.
Really.
Rahman, who is autistic and has disabilities, was a guest of Rep. Ilhan Omar + was previously brutally detained by ICE in Minneapolis. www.huffpost.com/entry/aliya-...
Head’s up #NEISvoid —
02.03.2026 02:21 — 👍 14 🔁 4 💬 0 📌 0I uploaded the full version of the video that will be shared at the Symposium for Disability and Accessibility at Yale on April 10th. A short version will be played that day. I uploaded this in advance in case ppl wanted to watch and prepare questions to bring to the conference (10-10:30 am ET)
01.03.2026 19:25 — 👍 21 🔁 10 💬 3 📌 1Announcement for a webinar on GLP-1 drugs reducing symptoms in ME/CFS patients, featuring Professor Carmen Scheibenbogen and Dr. Jessica Maya.
Join us for a webinar with Dr. Carmen Scheibenbogen, “GLP-1 Drugs to Reduce Symptoms in People with ME/CFS & Identify Disease Subgroups," and learn how her research could help identify biomarkers & treatments.
Thurs., April 16 @ 8:30 am PT / 11:30 am ET
Register here:
https://ow.ly/AybC50YmL8c
This story broke just as we'd closed the timeline for the week, so we reopened it to get it in and it's such a horrific illustration of the way harm stacks up. Racist local policing + shocking callousness by federal agents killed a disabled Rohingya genocide survivor.
bsky.app/profile/unbr...
I don’t know. I’ve been sick since 2005 and diagnosed since 2018 and still desperately want to undo the misstep that took everything away. But I’m very severe. The answer to “what now?” for me is “not a hell of a lot”.
01.03.2026 16:49 — 👍 4 🔁 0 💬 0 📌 0It’s like 47 out so I put on sunscreen and took the longest walk I have since the mayoral inauguration (like five blocks today). This is not a long covid cautionary tale; this is about how it is often extremely boring.
28.02.2026 20:17 — 👍 78 🔁 3 💬 1 📌 0
@c19lap.bsky.social's Long COVID Awareness Month 2026 site is now up!
AFAIK, I haven't gotten COVID yet—but I know I could easily join the millions in the US who have LC. We must invest in research + treatment.
To show my support, I changed my profile; you can too: longcovidawareness.life/graphics
It’s wild to see even a pro athlete be gaslit about his illness by the people around him
01.03.2026 16:38 — 👍 9 🔁 1 💬 1 📌 0Oh amazing thank you so much!!
01.03.2026 05:04 — 👍 1 🔁 0 💬 0 📌 0