The system is so, so broken. (Or rather it works great for its purposes. What those are is what’s so troubling.)
07.03.2026 03:52 — 👍 0 🔁 0 💬 1 📌 0@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
The system is so, so broken. (Or rather it works great for its purposes. What those are is what’s so troubling.)
07.03.2026 03:52 — 👍 0 🔁 0 💬 1 📌 0I have wondered if it’s going to hold up like 10 years from now, for this among other reasons
07.03.2026 03:48 — 👍 0 🔁 0 💬 0 📌 0<headdesk>
07.03.2026 03:47 — 👍 4 🔁 0 💬 1 📌 0#LongCovid folks, if anyone has an extra 1-3 metrix tests you’d be willing to sell me + send in the mail this weekend, you’d be doing me a big favor
07.03.2026 02:37 — 👍 3 🔁 5 💬 1 📌 0
We at @americanprogress.bsky.social are gathering stories from disabled voters about voting accessibility (particularly looking for folks from IN, MO, MN, RI, TX, UT, & WY). Please complete this Google form if you're interested in sharing your story:
#CripTheVote
:)
06.03.2026 22:49 — 👍 12 🔁 0 💬 1 📌 0dsausa.org/join
06.03.2026 04:28 — 👍 3 🔁 0 💬 0 📌 0Well done, thank you so much for doing that.
06.03.2026 04:10 — 👍 1 🔁 0 💬 1 📌 0Can anyone point me to a resource on how sign "Long COVID" in American Sign Language? I've seen various ways from spelling it out, to using the sign for "Coronavirus" or "COVID-19" followed by "Long" or "Stay". I'm curious if there is any official guidance/recommendations. Many thanks 🙏
05.03.2026 22:57 — 👍 58 🔁 42 💬 1 📌 1Margot and Anne Frank died in Bergen-Belsen as a typhus epidemic killed 17,000 people
05.03.2026 16:06 — 👍 103 🔁 50 💬 2 📌 0Let me be clear: I’m glad Kristi Noem was fired. But we still have to abolish ICE.
05.03.2026 18:56 — 👍 14805 🔁 2660 💬 305 📌 119#TripleTheNIHBudget
05.03.2026 03:44 — 👍 9 🔁 2 💬 1 📌 0This is absolutely an #NEISvoid issue
05.03.2026 19:58 — 👍 20 🔁 13 💬 3 📌 0Want to help disabled people living in isolation? New project will help disabled people make phone buddies with other disabled people and allies!
05.03.2026 17:34 — 👍 29 🔁 21 💬 0 📌 1
How many disabled people are there?
Graphic from the CDC.
If someone is going to get queer bashed if they show up as their full selves in public. If someone is going to get COVID (and become futher disabled) if they show up in public. I mean-- what is it that you expect THEM to do? Maybe YOU are the one who needs to do something to make things accessible.
05.03.2026 00:54 — 👍 579 🔁 102 💬 3 📌 1really tired of conversations about how we need to get people to spend more time offline that don't acknowledge that one of the reasons people ARE online is their access needs aren't being met in physical spaces. This is especially true for queer people and disabled people.
05.03.2026 00:52 — 👍 3480 🔁 1300 💬 36 📌 62
Retweeting the posts about all the actions @nycplan.org provides not only to flag for New Yorkers, but also as a replicable model for other issues…
#LongCovid #MECFS
6. @nycplan.org's next membership meeting is on March 15 in Brooklyn. If interested, contact info@nycplan.org to connect with us.
04.03.2026 20:51 — 👍 12 🔁 4 💬 0 📌 05. Join NYC PLAN at our Queens People's Assembly on March 21st - nycplan.org/peoples-asse... - Bring your friends!
04.03.2026 20:51 — 👍 19 🔁 9 💬 1 📌 04. Set up a meeting with your council member. Information about how to do this is here: docs.google.com/document/d/1...
04.03.2026 20:51 — 👍 9 🔁 7 💬 1 📌 03. Testify at the city council's preliminary budget hearing on March 12. That's next Thursday. All details for how to do so are here: bit.ly/4b1ze3H
04.03.2026 20:51 — 👍 28 🔁 18 💬 1 📌 02. Call your city council member. There's a call script here: nycplan.org/actions/call...
04.03.2026 20:51 — 👍 10 🔁 9 💬 1 📌 0
There are many ways that NYC residents can fight to fund our public libraries:
1. Send a letter to your city council member (30 seconds): actionnetwork.org/letters/city...
In NY, to get on the ballot candidates need this many valid signatures from people who are both 1️⃣ in the same district and 2️⃣ registered to vote with the same party affiliation:
• 1,250 for Congress
• 1,000 for NYS Senate
• 500 for NYS Assembly
Help our primary challengers. See a petition? Sign it.
🫂🫂
04.03.2026 20:58 — 👍 1 🔁 0 💬 0 📌 0For a story in @thesicktimes.org, seeking organizers in any left movement work who’ve taken a break or fully stepped away from organizing sometime since 2020 due to Long COVID. They can be anonymous in the piece and may reach out directly at longdefeat.08 on Signal #LongCOVID #NEISvoid
04.03.2026 17:20 — 👍 37 🔁 41 💬 1 📌 1
It’s fitting to launch during International Long Covid Awareness Month.
Available now from Johns Hopkins University Press (30% off with code HTWN):
www.press.jhu.edu/books/title/...
#LongCovidHeartbeats #PublicHealth
After Covid is officially published.
It took 3+ years of reporting—hundreds of interviews & deep dives into more than 2,000 studies & reports—to examine what followed the emergence of SARSCoV2. #LongCovid. Chronic illness. Strained systems. Eroded trust. The risks we face if we don’t learn from it.
I have family in Abu Dhabi so this is personal for me & is making my extremely underfunded neuroimmune disease worse. Fuck the US, man. Stop bombing people, stop abandoning people, & #TripleTheNIHBudget 😭
03.03.2026 20:57 — 👍 15 🔁 5 💬 3 📌 0