C.H. Romatowski

YouTube video by V. Ashley When Rest Isn't Resistance Presentation

I uploaded the full version of the video that will be shared at the Symposium for Disability and Accessibility at Yale on April 10th. A short version will be played that day. I uploaded this in advance in case ppl wanted to watch and prepare questions to bring to the conference (10-10:30 am ET)

Announcement for a webinar on GLP-1 drugs reducing symptoms in ME/CFS patients, featuring Professor Carmen Scheibenbogen and Dr. Jessica Maya.

Join us for a webinar with Dr. Carmen Scheibenbogen, “GLP-1 Drugs to Reduce Symptoms in People with ME/CFS & Identify Disease Subgroups," and learn how her research could help identify biomarkers & treatments.

Thurs., April 16 @ 8:30 am PT / 11:30 am ET

Register here:
https://ow.ly/AybC50YmL8c

This story broke just as we'd closed the timeline for the week, so we reopened it to get it in and it's such a horrific illustration of the way harm stacks up. Racist local policing + shocking callousness by federal agents killed a disabled Rohingya genocide survivor.

bsky.app/profile/unbr...

I don’t know. I’ve been sick since 2005 and diagnosed since 2018 and still desperately want to undo the misstep that took everything away. But I’m very severe. The answer to “what now?” for me is “not a hell of a lot”.

It’s like 47 out so I put on sunscreen and took the longest walk I have since the mayoral inauguration (like five blocks today). This is not a long covid cautionary tale; this is about how it is often extremely boring.

@c19lap.bsky.social's Long COVID Awareness Month 2026 site is now up!

AFAIK, I haven't gotten COVID yet—but I know I could easily join the millions in the US who have LC. We must invest in research + treatment.

To show my support, I changed my profile; you can too: longcovidawareness.life/graphics

It’s wild to see even a pro athlete be gaslit about his illness by the people around him

Oh amazing thank you so much!!

Adopt A Rent — Stand With Minnesota Adopt the rent of a family impacted by the ICE occupation in Minneapolis

Today is the last day of February and rent is DUE.

I'm working with @ziibiing.com at Stand With Minnesota to raise funds to pay rents for ICE impacted families.

You can send funds to me
V: colocharachel
$:ColochaRachel

OR

submit a form to adopt a rent: www.standwithminnesota.com/adoptarent

🌻🌻

Lol. Hard to buy when that’s what the athlete himself said.

screenshot of a Zoom chat between Miles, betsy, Torie, Funmi, and Madeline. Their names are emphasized in starburst shapes. The text reads, “The Sick Times. Watch now! Expert tips on pitching and writing Long COVID op-eds.”

Help break the stigma around #LongCOVID: share your story by writing an op-ed! To help demystify the process of writing and pitching, we hosted a free webinar with expert guests Torie Bosch, Funmi Okunola, and Madeline Miller.

Watch now, or share with a writer friend! bit.ly/4s1qJxb

Are you going to stick to once a week? I have also heard of people taking it more often.

Yeah! Fingers crossed for you!

No one had proposed even more to me, so far, so yeah I’ll be titrating the other med for several months before I change the rapamycin again. But very interested to hear there’s interest in higher rapa doses!

I know someone else who is def doing better on more but I am not sure what that person’s exact dosage is.

So microdoses of rapamycin are going up? Anyone done the titration from 6 to 12 or 15?

Any changes in how you feel on the higher dose?

I’m at 8. I waited a month and didn’t notice a difference, then also adjusted a different med. Three months later I def have a bit more energy; I’m inclined to attribute it to the second med but it’s possible the added rapamycin just took time to make a difference.

Donate to Help Families in Need from the Adams Community, organized by Gregory Egan To our amazing community: Thank you for supporting our families during thi… Gregory Egan needs your support for Help Families in Need from the Adams Community

Someone close to me asked me to share this gofundme to support families at a Spanish immersion elementary school in Saint Paul. I know there’s a lot of asks but the need is tremendous. www.gofundme.com/f/help-adams...

Donate to Standing with Nurul Amin’s Family in Buffalo, organized by Fatimah Shah Alam GOAL : As much as we can raise. Objective: To raise funds to supp… Fatimah Shah Alam needs your support for Standing with Nurul Amin’s Family in Buffalo

There is now a GoFundMe to support Nurul Amin Shah Alam's family. www.gofundme.com/f/standing-w...

so many people message me and ask “what is the need now? and “are all the needs met?”

the needs are endless. we are trying to patch 1000 holes. fuck ice. fuck trump.

A major challenge for our times is to avoid becoming callous. Some people seem to be truly failing the challenge.

Had a conversation with a friend earlier in the week strongly suggesting that she should get off Twitter. I usually never say anything but I have noticed that she is progressively less well. I think that platform is exacerbating this.

I can’t stop thinking about this.

It sucks that the lack of a social safety net is turning everyone into a case manager for eachother.

A healthy society wouldn't force stressed out broke people to do uncompensated case management labor for more stressed more broke people. And as usual that labor mostly falls on women and queers.

Every anti-vaxxer I encounter seems to love weird unregulated supplements. They hate Big Pharma but they love Little Pharma, Big Pharma’s younger sibling who grew up without any adult supervision.

Alice Wong's Celebration of life March 25th, 2026 11am PST This toolkit is an invitation and a resource for individuals and communities to participate in Alice Wong's Celebration of Life. Be it from bed, your living room, local community center, classroom, or in the streets... You can join Alice's Celebration of Life through: * The livestream + virtual reception: Join the livestream and gather for the virtual reception hosted by Calling UP Justice & San Francisco Disability Cultural Center. * In-person livestream watch + your own gathering: host an in-person gathering to join the livestream and connect in person to celebrate Alice. * Detailed Toolkit with links, photos, and resources to make your gathering accessible, plus ways to honor Alice Wong's legacy: https://bit.ly/aliceislove

Holy hell

Another win for liberal use of the block button: I have *no* idea what discourse we’re referring to.

The U.S. is a country that is unable to handle death but is awash in it. A country with people who often can't process grief. These are terrible things.

Ohh yeah I was seeing some other bugs on Bsky earlier so maybe that’s it!