Oh amazing thank you so much!!
01.03.2026 05:04 — 👍 1 🔁 0 💬 0 📌 0@chromatowski.bsky.social
This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing. ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Oh amazing thank you so much!!
01.03.2026 05:04 — 👍 1 🔁 0 💬 0 📌 0
Today is the last day of February and rent is DUE.
I'm working with @ziibiing.com at Stand With Minnesota to raise funds to pay rents for ICE impacted families.
You can send funds to me
V: colocharachel
$:ColochaRachel
OR
submit a form to adopt a rent: www.standwithminnesota.com/adoptarent
🌻🌻
Lol. Hard to buy when that’s what the athlete himself said.
28.02.2026 19:46 — 👍 2 🔁 0 💬 0 📌 0screenshot of a Zoom chat between Miles, betsy, Torie, Funmi, and Madeline. Their names are emphasized in starburst shapes. The text reads, “The Sick Times. Watch now! Expert tips on pitching and writing Long COVID op-eds.”
Help break the stigma around #LongCOVID: share your story by writing an op-ed! To help demystify the process of writing and pitching, we hosted a free webinar with expert guests Torie Bosch, Funmi Okunola, and Madeline Miller.
Watch now, or share with a writer friend! bit.ly/4s1qJxb
Are you going to stick to once a week? I have also heard of people taking it more often.
27.02.2026 23:40 — 👍 1 🔁 0 💬 1 📌 0Yeah! Fingers crossed for you!
27.02.2026 23:39 — 👍 1 🔁 0 💬 0 📌 0No one had proposed even more to me, so far, so yeah I’ll be titrating the other med for several months before I change the rapamycin again. But very interested to hear there’s interest in higher rapa doses!
27.02.2026 23:39 — 👍 4 🔁 0 💬 0 📌 0I know someone else who is def doing better on more but I am not sure what that person’s exact dosage is.
27.02.2026 23:36 — 👍 2 🔁 0 💬 1 📌 0
So microdoses of rapamycin are going up? Anyone done the titration from 6 to 12 or 15?
Any changes in how you feel on the higher dose?
I’m at 8. I waited a month and didn’t notice a difference, then also adjusted a different med. Three months later I def have a bit more energy; I’m inclined to attribute it to the second med but it’s possible the added rapamycin just took time to make a difference.
27.02.2026 23:35 — 👍 4 🔁 0 💬 2 📌 0Someone close to me asked me to share this gofundme to support families at a Spanish immersion elementary school in Saint Paul. I know there’s a lot of asks but the need is tremendous. www.gofundme.com/f/help-adams...
27.02.2026 18:18 — 👍 85 🔁 59 💬 3 📌 4There is now a GoFundMe to support Nurul Amin Shah Alam's family. www.gofundme.com/f/standing-w...
27.02.2026 20:09 — 👍 149 🔁 126 💬 2 📌 3
so many people message me and ask “what is the need now? and “are all the needs met?”
the needs are endless. we are trying to patch 1000 holes. fuck ice. fuck trump.
A major challenge for our times is to avoid becoming callous. Some people seem to be truly failing the challenge.
27.02.2026 18:37 — 👍 240 🔁 40 💬 5 📌 0Had a conversation with a friend earlier in the week strongly suggesting that she should get off Twitter. I usually never say anything but I have noticed that she is progressively less well. I think that platform is exacerbating this.
26.02.2026 23:04 — 👍 261 🔁 21 💬 9 📌 0I can’t stop thinking about this.
27.02.2026 14:46 — 👍 901 🔁 218 💬 35 📌 5
It sucks that the lack of a social safety net is turning everyone into a case manager for eachother.
A healthy society wouldn't force stressed out broke people to do uncompensated case management labor for more stressed more broke people. And as usual that labor mostly falls on women and queers.
Every anti-vaxxer I encounter seems to love weird unregulated supplements. They hate Big Pharma but they love Little Pharma, Big Pharma’s younger sibling who grew up without any adult supervision.
27.02.2026 15:56 — 👍 4450 🔁 750 💬 142 📌 75Alice Wong's Celebration of life March 25th, 2026 11am PST This toolkit is an invitation and a resource for individuals and communities to participate in Alice Wong's Celebration of Life. Be it from bed, your living room, local community center, classroom, or in the streets... You can join Alice's Celebration of Life through: * The livestream + virtual reception: Join the livestream and gather for the virtual reception hosted by Calling UP Justice & San Francisco Disability Cultural Center. * In-person livestream watch + your own gathering: host an in-person gathering to join the livestream and connect in person to celebrate Alice. * Detailed Toolkit with links, photos, and resources to make your gathering accessible, plus ways to honor Alice Wong's legacy: https://bit.ly/aliceislove
27.02.2026 15:23 — 👍 243 🔁 125 💬 1 📌 2Holy hell
27.02.2026 18:44 — 👍 1 🔁 0 💬 0 📌 0Another win for liberal use of the block button: I have *no* idea what discourse we’re referring to.
27.02.2026 18:42 — 👍 13 🔁 0 💬 0 📌 0The U.S. is a country that is unable to handle death but is awash in it. A country with people who often can't process grief. These are terrible things.
27.02.2026 04:45 — 👍 1810 🔁 338 💬 32 📌 0Ohh yeah I was seeing some other bugs on Bsky earlier so maybe that’s it!
27.02.2026 04:52 — 👍 1 🔁 0 💬 1 📌 0Screen shot of the ME/CFS LC Following feed Hmm, some kind of issue occurred when contacting the feed server. Please let the feed owner know about this issue. Message from server: Internal Server Error View profile
Sorry to bother you!!
27.02.2026 04:14 — 👍 1 🔁 0 💬 1 📌 0chuffed.org/project/crip... this is my regular reminder that we are still here and working to stay out of the red. Celebrate and honor Ramadan by considering spreading the word and donating to us. Let Gaza communications ring freely. You can't stop the signal.
25.02.2026 03:04 — 👍 41 🔁 56 💬 0 📌 6Today (2/26) at 9:55AM at a local hospital near my home
26.02.2026 21:12 — 👍 7 🔁 3 💬 0 📌 0
Stanford Medicine: Patients Find Peace and Answers at Stanford’s Long Covid Clinic
"Because of the sheer scale of the pandemic..we’re talking about millions & millions of people at the same time experiencing these mysterious symptoms" – Linda Geng, MD
domannualreports.stanford.edu/patients-fin...
Open question:
26.02.2026 21:13 — 👍 0 🔁 0 💬 0 📌 0
One of the most tangibly lifesaving efforts of @standupforscience.bsky.social to date was to send an on-the-ground investigator to Guinea Bissau to understand the context of the unethical &CDC funded Hep B infant vaccines study.
We presented to a packed room of horrified House and Senate folks.
I think this is such a good idea. Question, what outcome measures would you want to see such a trial use?
26.02.2026 21:12 — 👍 5 🔁 0 💬 2 📌 1