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@philipanini.bsky.social

Primary Care Clinical Pharmacist-frailty polypharmacy. FND sufferer. Christian Rejoined social media from a 10 year silence anonymously (easy to find) to find evidence based answer on FND to combat the primary care “eye role” towards all things functional.

44 Followers  |  55 Following  |  87 Posts  |  Joined: 07.11.2024
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Posts by (@philipanini.bsky.social)

As a patient and health care professional , this is definitely my favourite explanation of FND I’ve encountered so far.

27.12.2025 17:31 — 👍 0    🔁 0    💬 0    📌 0
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@HarvardMedicine have done a great job with this article on FND, focused on the contribution of colleagues working there, including Barbara Dworetzky, David Perez and alumnus Mark Hallett.

magazine.hms.harvard.edu/articles/fun...

21.11.2025 16:18 — 👍 5    🔁 4    💬 2    📌 0

Functional Neurological Disorder does not mean:

* you’re faking
* you’re responsible for becoming ill
* you could stop it if you wanted
* it’s “just anxiety”
* that you don’t really have a disability
* that there’s no hope

10.11.2025 23:19 — 👍 13    🔁 7    💬 0    📌 0

It might be a good idea as a Neurologist not to tell your patient that all your complaints come from FND patients. Maybe reflect instead.
Yes this is a true story! ( and shockingly in a Scottish hospital)

16.10.2025 19:42 — 👍 1    🔁 0    💬 1    📌 0

Latest attempt to try and define predictive brain mechanism in #FND in the simplest terms -

A disconnect in the brain where -

Beliefs/expectations + prior experiences

Outweigh

Incoming sensory input from present reality

Does that seem accurate? Any thoughts appreciated 🙏

19.08.2025 11:16 — 👍 8    🔁 2    💬 3    📌 0
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New NHS England Neurology Service specification.

✅FND is one of seven core subspecialties
✅FND services MUST be provided in each specialised neurology centre.

This is huge recognition of how common FND is in neurology - and unthinkable 20 yrs ago. 1/
t.co/XvGo0NIryA

21.09.2025 13:04 — 👍 17    🔁 6    💬 1    📌 1
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Our conclusions. @fndhope.bsky.social, FND action and @fndsociety.bsky.social

01.10.2025 14:03 — 👍 3    🔁 1    💬 0    📌 0
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FND treatment is multidisciplinary, but there are barriers to care. Here are some thoughts on those. 5/

01.10.2025 14:03 — 👍 3    🔁 1    💬 1    📌 0
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Physio for functional movement disorder has important differences to physio for other conditions in neurological practice

Thanks to Glenn Nielsen for this material . Workbooks and Therapist manuals from the Physio4FMD trial are free to download via www.physio4fmd.org/publications
4/

01.10.2025 14:03 — 👍 1    🔁 1    💬 1    📌 0
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Dont just diagnose - formulate.

An example of a formulation based on Oliver Sacks autobiographical book 'A Leg to Stand on'. 3/

jnnp-bmj-com.eux.idm.oclc.org/content/83/9...

01.10.2025 14:03 — 👍 1    🔁 1    💬 1    📌 0
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Some ideas for communication and explanation of functional movement disorder 2/

01.10.2025 14:03 — 👍 2    🔁 2    💬 3    📌 0

This is amazing!

03.10.2025 05:50 — 👍 0    🔁 0    💬 0    📌 0

Done 👍

13.07.2025 17:12 — 👍 1    🔁 0    💬 0    📌 0

Time to get the facts straight. 🙌

Thanks @jonstoneneuro.bsky.social, Caoimhe McLaughlin and Anna Ross, and the ETUDE team for bringing this to life.

04.06.2025 14:50 — 👍 13    🔁 6    💬 1    📌 1
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Why do people develop #FND? It’s complex and there isn't just one factor.

🔑 Underlying genetics, chronic illness, trauma
⚡ Triggering stress, illness, injury
🔄 Maintaining anxiety, stigma, lack of support

FND = biopsychosocial illness. Real symptoms. Real support is needed.
#FNDawareness #fnd

21.04.2025 17:20 — 👍 8    🔁 4    💬 0    📌 0

Is this app available to the public?

16.04.2025 19:43 — 👍 0    🔁 0    💬 1    📌 0
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#FND

08.04.2025 11:06 — 👍 9    🔁 6    💬 0    📌 1
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Cost Utility of Specialist Physiotherapy for Functional Motor Disorder (Physio4FMD) | Neurology Clinical Practice Background and ObjectivesFunctional motor disorder (FMD), a motor-dominant variant of functional neurologic disorder, is a disabling condition associated with high health and social care resource use ...

www.neurology.org/doi/10.1212/...

03.04.2025 17:53 — 👍 2    🔁 1    💬 0    📌 0
Living well with Functional Neurological Disorders (FND): How Psychological Therapy Can Empower You
YouTube video by Dr Charlie Tyack - Clinical Psychologist Living well with Functional Neurological Disorders (FND): How Psychological Therapy Can Empower You

✨ It’s UK FND Awareness Day! ✨

I’ve made a video exploring psychological therapies, apps, books, and other tools that can help people with Functional Neurological Disorder. I hope they are helpful!

#FND #FNDAwarenessDay #HopeForFND #MentalHealth #EMDR #ACT

25.03.2025 20:59 — 👍 2    🔁 3    💬 0    📌 0
Quote "when medicine canf explain you, it just abandons you." 
This is fnd awareness day. Let's listen. Let's believe. Let's do better.

Quote "when medicine canf explain you, it just abandons you." This is fnd awareness day. Let's listen. Let's believe. Let's do better.

I’m a neuropsychologist who works with people living with FND.

I was told recently that no one in the UK with #FND falls through the cracks anymore.

But the stories I hear tell a different truth.

This #FNDAwarenessDay, I’m not just raising awareness.
I’m amplifying voices.

25.03.2025 08:16 — 👍 5    🔁 1    💬 2    📌 0
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#FND #FNDAwarenessdayUK @fndsociety.bsky.social @fndportal.bsky.social @timnicholson.bsky.social @jonstoneneuro.bsky.social @gnielsenphysio.bsky.social

25.03.2025 12:31 — 👍 5    🔁 3    💬 0    📌 0
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Functional neurological disorder (FND) is the second most common neurological condition.

This #FND Awareness Day, @nielsdetert.bsky.social explains what FND is and how treatment can vary.

👉 www.bps.org.uk/news/psychology-has-vital-role-play-treating-functional-neurological-disorder-says-bps

25.03.2025 12:26 — 👍 21    🔁 13    💬 1    📌 1

Like a thief in the night FND can come and change everything.

Please tell the world. Like FND recovery , small steps make a big difference.

Please share ❤️

25.03.2025 07:03 — 👍 0    🔁 0    💬 0    📌 0
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Functional neurological disorder Information about functional neurological disorder (FND), including the symptoms, causes, and treatments of this condition. For patients in Scotland.

www.nhsinform.scot/illnesses-an...

It’s FND awareness day.

It’s the most common reason for a neurology referral second to headache.

Why has no one heard of it?

Two years ago I could drive, walk easily, talk easily, think and communicate efficiently, see and hear clearly and sleep soundly.

25.03.2025 07:02 — 👍 0    🔁 0    💬 1    📌 0

It’s FND awareness day, please take a minute to learn about this challenging condition. 🙏

cks.nice.org.uk/topics/funct...

25.03.2025 05:50 — 👍 5    🔁 3    💬 1    📌 0

Well I know why, because the land mine would go off and blow me, up wouldn’t it!!

Not to mention the night time jerks (myoclonic jerks is my self diagnosis). I would def get a great part in Grays anatomy/ Casualty as a dead patient getting shocked, just need hubby to shout CLEAR we’d be sorted🤣

24.03.2025 16:13 — 👍 1    🔁 0    💬 0    📌 0

I’m actually relieved to hear that (sorry😬)

It’s the violence of some the symptoms that takes me by surprise and no-one mentions.

Some days my feet stick to the ground while my body swings violently like a Hawaiian palm tree in a cat 5 tornado. How is that even possible? Why don’t I fall over!

24.03.2025 16:04 — 👍 1    🔁 0    💬 1    📌 0
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A Patients Guide to FND On Overview of Functional Neurological Disorder from a Patient's Perspective

Hi all!
I wrote a comprehensive overview of Functional Neurological Disorder from a patients perspective.

Check it out!

#fnd #fndawareness #disabilityawareness #chronicillness

19.03.2025 13:54 — 👍 5    🔁 3    💬 0    📌 3