Aviva Seigler's Avatar

Aviva Seigler

@avivaseigler.com.bsky.social

#bleacherhunter #jew #AuDHD. #nonbinary #lgbtqia #queer #intersex #disabledDSP #eds #advocate #activist #photographer pronouns: they/them. podcast once a month on autistic issues avivaseigler.com/link-in-bio

430 Followers  |  10 Following  |  62 Posts  |  Joined: 05.11.2023  |  2.014

Latest posts by avivaseigler.com on Bluesky

I appreciate that. You should really look into the harm your chosen profession has done to my community, including me. I am in my 40’s and still unpacking it

04.10.2025 01:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

You mean child abuser? Excuse me if the opinion people who cause significant harm to our community isn’t considered

04.10.2025 01:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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This is a photo of the color changing leaves in Schroon Lake, NY. I was on my way back from the Albany area and I saw this. I edited the power lines out. It took a while but I like the results. The AI tools don’t work so well but I manually used photoshop.

www.redbubble.com/shop/ap/1746...

04.10.2025 01:26 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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A coworker sprayed Lysol cleaner like we have all done 1 million times. I put my arm on the counter and my arm broke out in a rash.

MCAS is comorbid with Ehlers Danlos Syndrome.

An anti inflammatory cream i use for psoriasis calmed it down but the bumps are itchy as hell.

18.09.2025 01:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

resulting in a range of chronic symptoms, sometimes including anaphylaxis or near-anaphylaxis attacks.

Primary symptoms include cardiovascular, dermatological, gastrointestinal, neurological, and respiratory problems.

18.09.2025 01:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

So I joined the MCAS club. What is MCAS?

Mast cell activation syndrome (MCAS) is an immunological condition in which mast cells, a type of white blood cell, inappropriately and excessively release chemical mediators, such as histamine

18.09.2025 01:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Stop pathologizing ND kids play:

Potato lines up her toy vehicles and put plushies inside.

A bcba would be freaking out bc they are lined up.

Oh no! /sarcasm

Let the kids play.

30.08.2025 20:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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I found the first pendent i bought.

I was cleaning out my bathroom and I found this. It made me proud of who I am and what I will not tolerate.

I am happy this isn’t lost, makes me a little emotional.

Once again, gender has been canceled πŸ˜†

#nonbinary #queer #transition #transgenderawareness

30.07.2025 04:32 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

She came to our small town in upstate NY, unfortunately I was working but my husband went. He was not able to get inside. There were over 1 million people registered. She came outside and addressed the people who could not make it inside the small theatre. That made me so happy to hear.

30.07.2025 04:28 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Ivermectin and COVID-19 The FDA has not authorized or approved ivermectin for use in preventing or treating COVID-19 in humans or animals.

In case anyone needs to know or is in the dark:

Ivermectin is not an antiviral

It’s an anti parasitic used in veterinary medicine mostly and in very few human applications.

Stop spreading pseudoscience

www.fda.gov/consumers/co...

08.06.2025 11:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I know the campaigners well ..

Emma from
@aimautistic.bsky.social
@avivaseigler.com
@melissaeaton.bsky.social

Who have worked for years to stop so called #autism therapies

and people who are Quack anti science
Who were and are abusing #Autistic children & young people

In one article 2/

05.06.2025 09:15 β€” πŸ‘ 10    πŸ” 5    πŸ’¬ 1    πŸ“Œ 0
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Children sick after parents follow influencer’s advice to β€˜cure’ autism with bleach Kerri Rivera claims her chemical β€˜protocol’ rids children of parasites β€” but experts warn it poses serious health risks

@the-independent.com

Just curious why your reporter Jared decided to ignore the 3 main campaigners who are responsible for reporting this bleacher

& why you went to the NAS instead when they had little to do with the campaign ??

#Autistic

1/

www.independent.co.uk/news/health/...

05.06.2025 09:11 β€” πŸ‘ 25    πŸ” 12    πŸ’¬ 2    πŸ“Œ 4

So sorry for my absence. I lost 3 supported people in the last 3 months and not coping well. 2 of them i was extremely close with.

Like i do, i make sure everyone else is ok and ignore myself. Don’t do that.

I am trying to cope and i will be back when i can.

28.05.2025 12:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank you! I have been on hiatus getting the chickens and their new pen ready for spring. Omg they are so happy. Photos to come

29.04.2025 11:28 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

No that was just a very deep search and learning research in college. Maybe @neurodivergentrebel.substack.com ?

28.03.2025 02:28 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Unfortunately no. I know of xem only.

28.03.2025 02:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
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This is a photo I took on my way home. Daylight savings time allows me to get more of these type of photos. The way the barn, tree and the mountains look together is breathtaking. www.redbubble.com/shop/ap/1693...

20.03.2025 02:19 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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On my way home from work and captured this. The light over the garage looked green through my camera and I love how this came out. www.redbubble.com/shop/ap/1693...

20.03.2025 02:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I love him so much. This was when i decided to get something for me when getting things for the kids.

Meet froggie friend. My friejnd is driving so don’t worry.

15.03.2025 17:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Being authentically you means having things you don’t care are β€œchildish.”

I went to the Habitat for Humanity restore in VT and one of the employees did tell me that he loved my froggie plush bag but I didn’t hear him. i apologized.

He took a photo of Froggie Friend.

15.03.2025 17:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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This was taken from my front porch. My oldest was complaining about the quality of their phone camera so i took my camera out and took this. I love how it came out.

www.redbubble.com/shop/ap/1692...

15.03.2025 00:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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I caved and got the mill composter. We have chickens. I wanted to compost but the steps make my ND brain say no.

One advantage I wasn’t anticipating. It takes all the things my pets try to get into that will harm them πŸ˜†

It’s set to automatically ground. We will see.

14.03.2025 21:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Ableist Folk Disorder: Cassandra Syndrome or Cassandra Affective Deprivation Disorder (CADD) When researching this, I wanted to find all the facts about this, including the harmful rhetoric. Read or listen to with caution. What is Cassandra Syndrome? Often an undiagnosed autistic man is in…

This was a request on the website. This was a lot and I did my research on all angles.

Take care when reading

avivaseigler.com/2025/03/09/a...

09.03.2025 21:09 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

Accomplishment! I got all that needed to go into scrapbooks into scrapbooks! For context: i have one for each child. That’s 8 children. I didn’t have things for every child but it was a lot.

Will be starting research on the blog today before we play d and d. It was a request on Cassandra Syndrome

08.03.2025 19:50 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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When An EDSer Sees an Ehlers Danlos Informed Specialist Having an uncommonly diagnosed condition can often lead to seeing providers that have not heard of your condition that impacts your life. This has happened over and over again. This happens so ofte…

So I saw an EDS informed specialist for my had pain and he diagnosed it right away. Story at the link in this post.

avivaseigler.com/2025/02/20/w...

21.02.2025 02:59 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Finally one that is intersex inclusive

13.02.2025 03:44 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Being a Disabled DSP allows me to ensure those who lives in these homes are being treated with dignity. My employer, NY State, values my lived experience and have been able to use it to help people have more dignity.

I am known as the weird one and i am more than fine with that.

09.02.2025 14:12 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

When advocating/ being an activist, don’t spread yourself too thin. This is how I burnt out. I just took on autism as a whole.

I am concentrating on quackery. This is better for my mental health. I hope to be blogging again soon.

09.02.2025 14:11 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Last bnai mitzvah for at least 2 years so we get our year to breath! 6 down, 2 to go. Seeker and Potato are left.

Remember living as your true self is a form of resistance. My disabled kids all became bnai mitzvot. They are part of resistance without being recruited.

09.02.2025 14:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Captain broflake but close enough πŸ˜†

09.02.2025 14:05 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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