Lorcan Kenny

Identifying as Autistic Without a Formal Diagnosis: Who Self-Identifies as Autistic and Why? - Isaac L. Ahuvia, Emine Gurbuz, Josephine Cuda, Steven K. Kapp, Abigail Houck, Jacquelyn A. Gates, Jessica... Background: Adults increasingly self-identify as autistic without a formal diagnosis, yet little research has systematically investigated (a) the unique charact...

While UK is proposing to narrow diagnoses (!), our new study led by @isaacahuvia.bsky.social: adults w/ self-identified autism had more unmet needs & higher distress, & similar understanding of autism, than officially diagnosed peers. Most wanted formal diagnosis journals.sagepub.com/doi/10.1177/...

Parkinson's - the diagnosis crisis UK's neurologist shortage continues to bite, says biggest PD audit

open.substack.com/pub/rorycell... Biggest ever audit of Parkinson’s in the UK says there’s a diagnosis crisis with a shortage of neurologists leaving thousands waiting up to 5 years to see a specialist

Screening Accessibility Project: Disability, Neurodivergence and Trans+ — Involving People We have partnered on research exploring how to improve access to cancer care and services for marginalised groups.

Screening Accessibility Project: Disability, Neurodivergence and Trans+

We are looking for more community researchers, focus group participants and experiences of breast/chest screening.

#Screening #Accessibility #Trans #Neurodivergent #Disabled involvingpeople.org/project/scre...

Does adding pictures to easy-to-read texts benefit comprehension for people with reading difficulties? A meta-analytic review Individuals with reading problems may experience communication problems in everyday life. Guidelines for creating accessible information generally include the use of visualizations. However, a synt...

New paper focused upon whether the addition of pictures improves understanding of easy read text: www.tandfonline.com/doi/full/10....

New preprint: Open data in autism research: the views of autistic people and parents of autistic children

osf.io/preprints/me...

Led by @hannahhobson.bsky.social w/ @dramypearson.bsky.social Audrey Linden @cmanning.bsky.social @fsedgewick.bsky.social @lauramaycrane.bsky.social

#AutRes #OpenSci

AutINSAR 2019: Discussing Autistic Priorities For Autism Research — THINKING PERSON'S GUIDE TO AUTISM AutINSAR is a conversation between autistic people and/or autism researchers about needed autism research directions and priorities.

Folks at #INSAR2025 who want to participate in our #AutINSAR chat: It will be Saturday, May 3rd, 12:45 to 1:45 in Room 620. Folks are also welcome to participate via BlueSky! here's what the last AutINSAR in 2019 was all about:

thinkingautismguide.com/2019/05/auti...

How accessible is Dublin? A blog post by a disabled access charity Euan's Guide on the accessibility of Dublin and Dublin's disabled access.

Exactly how accessible is Dublin? Our Ambassador Tina tells us about how she found it in this blog post buff.ly/rERRj5S

#TravelWithConfidence #AccessibleTravel

At @journalautism.bsky.social we are recruiting!

Thanks to a massive increase in submissions over recent years, we are dramatically expanding our team to appoint FIVE new editors!

See details of the role and how to apply here, by May 23rd.

journals.sagepub.com/pb-assets/PD...

Thanks Laura, have already availed of the starter packs. Super helpful, thank you!

Thanks Nikki, I finally made the move!

Finally got around to jumping ship from X/Twitter. Nice to see some familiar faces from before Twitter got terrible!