Parkinson's - the diagnosis crisis
UK's neurologist shortage continues to bite, says biggest PD audit
open.substack.com/pub/rorycell... Biggest ever audit of Parkinsonβs in the UK says thereβs a diagnosis crisis with a shortage of neurologists leaving thousands waiting up to 5 years to see a specialist
23.10.2025 06:26 β π 257 π 48 π¬ 7 π 1
Screening Accessibility Project: Disability, Neurodivergence and Trans+ β Involving People
We have partnered on research exploring how to improve access to cancer care and services for marginalised groups.
Screening Accessibility Project: Disability, Neurodivergence and Trans+
We are looking for more community researchers, focus group participants and experiences of breast/chest screening.
#Screening #Accessibility #Trans #Neurodivergent #Disabled involvingpeople.org/project/scre...
21.10.2025 15:32 β π 4 π 5 π¬ 0 π 0
OSF
New preprint: Open data in autism research: the views of autistic people and parents of autistic children
osf.io/preprints/me...
Led by @hannahhobson.bsky.social w/ @dramypearson.bsky.social Audrey Linden @cmanning.bsky.social @fsedgewick.bsky.social @lauramaycrane.bsky.social
#AutRes #OpenSci
02.07.2025 12:24 β π 37 π 14 π¬ 3 π 1
AutINSAR 2019: Discussing Autistic Priorities For Autism Research β THINKING PERSON'S GUIDE TO AUTISM
AutINSAR is a conversation between autistic people and/or autism researchers about needed autism research directions and priorities.
Folks at #INSAR2025 who want to participate in our #AutINSAR chat: It will be Saturday, May 3rd, 12:45 to 1:45 in Room 620. Folks are also welcome to participate via BlueSky! here's what the last AutINSAR in 2019 was all about:
thinkingautismguide.com/2019/05/auti...
01.05.2025 18:47 β π 24 π 11 π¬ 2 π 4
How accessible is Dublin?
A blog post by a disabled access charity Euan's Guide on the accessibility of Dublin and Dublin's disabled access.
Exactly how accessible is Dublin? Our Ambassador Tina tells us about how she found it in this blog post buff.ly/rERRj5S
#TravelWithConfidence #AccessibleTravel
25.04.2025 12:00 β π 2 π 2 π¬ 0 π 0
At @journalautism.bsky.social we are recruiting!
Thanks to a massive increase in submissions over recent years, we are dramatically expanding our team to appoint FIVE new editors!
See details of the role and how to apply here, by May 23rd.
journals.sagepub.com/pb-assets/PD...
21.04.2025 15:39 β π 26 π 14 π¬ 0 π 1
Thanks Laura, have already availed of the starter packs. Super helpful, thank you!
16.04.2025 14:49 β π 1 π 0 π¬ 0 π 0
Thanks Nikki, I finally made the move!
16.04.2025 14:08 β π 1 π 0 π¬ 0 π 0
Finally got around to jumping ship from X/Twitter. Nice to see some familiar faces from before Twitter got terrible!
16.04.2025 10:28 β π 4 π 0 π¬ 2 π 0
Journalist, lawyer, NYT-bestselling Trump and Musk biographer, songwriter (Hounds, The Rangers), former CNN & BBC analyst, retired journalism prof.
π€: sethabramson.net/bio
βοΈ: sethabramson.substack.com
πΉ: retrostack.substack.com
πΆ: houndsmusic.substack.com
Comedy wordwench. Author of Drama Queen. Autistic Jewish witchy cat lady. One of those Daily Tism gals. Talkster on Autistic Women Oversharing. Producer of The Daily Tism News.
She / Her
Virgin Media News Correspondent but these are my own views and not those of my employer.
Ireland.
Applied economist working in international development policy
πΉπ΄πΈπ§π»πΊπ«π―π¦πΊπ²π² (etc),
Mostly memes.
Sometimes post about #publicpolicy, research, data science, #PFM and #Rstats
Economist | Independent Consultant
All views my own
The NDA is the independent statutory body providing evidence-based advice & research to Government on disability policy & practice & promoting Universal Design.
We are the national membership association for the congressionally mandated Protection & Advocacy Systems and Client Assistance Programs. https://linktr.ee/ndrnadvocates
Broadcaster RTE,
Radio: rte.ie/johncreedon
TV: https://www.rte.ie/player/find?q=creedon
Mad for road, adventure, discovery and spaciousness.
I come in peace.
Email creedon@rte.ie
Insta. @johncreedonireland
No DMs please.
Broadcaster @lbc.co.uk
Author: https://www.waterstones.com/book/how-they-broke-britain/james-obrien/9780753560365
Founder of Tax Policy Associates Ltd. Tax realist. @danneidle on Twitter
government policy, health policy, evidence, statistics and sometimes other topics
Founder & PI @aial.ie. Assistant Professor of AI, School of Computer Science & Statistics, @tcddublin.bsky.social
AI accountability, AI audits & evaluation, critical data studies. Cognitive scientist by training. Ethiopian in Ireland. She/her
Letβs give this a whirl
πParaprofessional | #ActuallyAutistic | Views are my own (unless RP'd). He/Him
Not an MP.
https://www.penguin.co.uk/books/460169/why-we-were-right-by-holt-rosie/9781529924558
Just to let you know, there are many, many recipes waiting for you on www.nigella.com