Lupus UK

Our Head Office remains open Monday to Friday between 9am - 5pm. Thank you.

We now have an additional phone number. For general enquiries and to contact our Head Office, please call us on 02081 830 651.

Our current number still remains as our helpline (01708 731 251). Please do not hesitate to reach out if you require support! 💜

You can take part if you are living in the UK with a diagnosis of SLE which has been confirmed by a clinician. For more information or to sign up, email Francesca Monteiro at francesca@lupusuk.org.uk.

They are interested in how you experience and manage #lupus in your daily lives and

- How you recognise symptoms that may signal a flare
- What you personally consider to count as a “flare”
- What actions you typically take in response
- If you would be interested in a digital tool or application

Researchers are exploring how to improve support for people living with #lupus who experience #flares. 

Participants are invited to take part in a 1-hour virtual focus group (an informal group discussion) run by Dr Koushan Kouranloo and Dr Chris Wincup on Thursday 14th August between 10.30-11.30am.

Accessibility toolbar features include:
● Screen Reader
● Translation to different languages
● Styling Options
● Reading Aids

For more information, to test the tool bar out and to read about the full features, visit: lupusuk.org.uk/recite-me-accessibility-support/.

Did you know, we provide Recite Me accessibility and language support on our website? Access a customisable toolbar to read and understand content in a way that suits your needs. 

Open the toolbar by clicking on “Accessibility tools” in the top right corner of our navigation bar.

If you would like to share your lupus journey, please email nakita@lupusuk.org.uk. 

Your story matters. 💜

Sharing your #lupus story can help us raise awareness and understanding of lupus, and also help to remind others that they're not alone. 

Whether you chose to write a poem or blog article, film a short video or share some photos, the choice is yours!

Ever wondered how new medicines and treatments are developed?

@anisurrahman.bsky.social explains the importance of clinical trials and the vital role they play in bringing safe and effective new treatments to patients.

👉 Watch our full video on #ClinicalTrials here: bit.ly/LupusUKOfficial

⭐️ Happy to share that our article, in collab with CEDAR, is featured in the latest LUPUS UK magazine! 😀 It discusses the refreshed National PREMs 🏴󠁧󠁢󠁷󠁬󠁳󠁿📝 — project winner of the 2024 Health & Care Research Public Involvement Award 🏆

Available to all LUPUS UK subscribers
#Lupus #PREM #PPI #Survey #Wales

🔦 UV light doesn't only come from the sun.

It can also come from

Fluorescent/halogen lights
Some phototherapy lamps
Nail curing lamps
Some medical equipment (dental or dermatology devices)

More ℹ️ in @lupusuk.bsky.social Guide to Artificial Lighting: lupusuk.org.uk/a-guide-to-a...

#KickLupus

Team Administrator | LUPUS UK | CharityJob Apply now for Team Administrator. , £25,895 - £28,028 per year, find a career with meaning today

For more information and how to apply, visit https://www.charityjob.co.uk/jobs/lupus-uk/team-administrator/1029660?tsId=8

If you have any queries or would like to arrange an informal discussion about the role please contact the line manager for the post, via e-mail: Lucy@lupusuk.org.uk

We are recruiting a Team Administrator to play a key role in keeping Lupus UK running smoothly by providing vital support across all teams and functions.

If you enjoy working in a collaborative environment and can confidently manage multiple tasks 
and priorities, this role may be perfect for you!

Production of this video has been supported through a grant by Johnson & Johnson, who have had no influence or involvement in its content, design or development. Lupus UK remain independent of Johnson & Johnson.

Want to learn about Clinical Trials?

Hear from Professor Anisur Rahman (@anisurrahman.bsky.social), Ellie Hawkins, Sherron and Debbie in our brand new video: “What are Clinical Trials? How they Work, Why they Matter & Patient Experiences” over on our YouTube channel!

🎥 bit.ly/LupusUKOfficial

Become a LUPUS UK member | Lupus UK Become a LUPUS UK member Please complete the form below to become a member of LUPUS UK. What Is Lupus? What Is LupusThe SymptomsDiagnosisTreatmentsTreatments - Hydroxychloroquine PrescriptionsPublicationsYeh Hai Lupus Read our Privacy Statement Living With Lupus Eclipse Light Sensitivity Manage Your...

You can purchase a membership here:

Did you know that as a member of Lupus UK, you will receive our News & Views magazine which contains:

• Health information and research updates
• Reports from Trustees, Head Office, and Regional Groups
• Fundraising highlights
• Articles from members of the lupus community 

and much more!

We have 5 spaces available for Vitality London 10k on the 28th September! 🏃

If you would like a space running for Lupus UK, please get in touch with Lisa, our Fundraising and Marketing Development Manager at Fundraising@lupusuk.org.uk

(Minimum sponsorship to take part in this event is £300).

We also extend our gratitude to our fantastic trustees, ambassadors, and everyone who has fundraised or supported the charity. Thank you! 💜

Whether you run regional groups, serve as a telephone contact, fundraise for us, run information and awareness stands, raise awareness online, or create content for us, your contributions are invaluable.

This #VolunteersWeek Lupus UK would like to say a huge thank you to our fantastic volunteers who dedicate their time to help our work supporting people with #Lupus.

We are still accepting applications to join the 2026 Lupus UK Legends London Marathon Team!👟🥇

Apply here: https://lupusuk.org.uk/tcs-london-marathon-lupus-uk/
 
Thank you to everyone who has applied so far. Your applications are so inspiring, we will be in touch very soon!! 💜

To our wonderful #rheumatology nurses across the UK, thank you for supporting the #lupus community in so many ways. Your contributions make a huge difference in the lives of our community. 💜

Happy #InternationalNursesDay 💜

Thank you to all #nurses worldwide for your tireless efforts and hours dedicated to providing excellent health care!

#ThankYouNurses #NurseAppreciation #NursesDay

Cardiff Castle shines purple tonight for #WorldLupusDay, and the sky over the city is putting on a show to match! 💜🦋

#Lupus #CardiffCastle @lupusuk.bsky.social

Those flowers are beautiful!

Happy #WorldLupusDay 💜💜

🟣 The purple flowers are out in the garden for #WorldLupusDay! 🌍
🟣 Please follow the amazing @lupusuk.bsky.social to learn more and find out how you can support patients with lupus 🦋

💜 Today is #WorldLupusDay. Lupus is an autoimmune disease that can cause problems in the body, including the #Kidneys.

In collab with @lupusuk.bsky.social, we spoke with several people who are all living with #KidneyDisease & #Lupus. Read their stories here 👇 kidneycareuk.org/kidney-disea...

🎉 It’s #WorldLupusDay! 💜 Tonight, Cardiff Castle, witness to nearly 2000 years of history, will shine purple to mark it. Huge thanks to @cardiffcouncil.bsky.social for the support. I can’t wait to see it! 🏰 #Lupus #LupusAwareness #CardiffCastle