Lupus UK's Avatar

Lupus UK

@lupusuk.bsky.social

The national registered charity supporting people with #lupus

82 Followers  |  27 Following  |  130 Posts  |  Joined: 29.01.2025  |  2.0573

Latest posts by lupusuk.bsky.social on Bluesky

Video thumbnail

For one year only, you can get 5 mystery packs of Christmas cards for Β£10!

Get yours now at lupusuk.org.uk/store/Myster... πŸ’œ

08.10.2025 12:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Did you know that 77% of people with #lupus report symptoms of joint pain?

For more information on the symptoms of lupus, visit www.lupusuk.org.uk/the-symptoms/

Do you experience joint pain?Β Β 

#LupusAwarenessMonth #KnowLupus #JointPain #Autoimmune #SLE #LupusUK

06.10.2025 13:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are pleased to announce guest speaker Professor Ian Bruce, who will be talking about the latest information and developments in lupus, and Occupational Therapist Emma Henry, who will be talking about Occupational therapy and lupus with a focus on self-management and fatigue.

05.10.2025 10:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image Post image

Less than a week to go until our Lupus Information Day in Belfast, and tickets are going fast!Β 

You can register for your free ticket by visiting https://www.eventbrite.co.uk/e/lupus-information-day-2025-belfast-tickets-1581665587349

If you have any questions, please contact InfoDay@lupusuk.org.uk

05.10.2025 10:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image Post image

This #LupusAwarenessMonth, CJ has shared his experience receiving a diagnosis of #lupus as a child, and the impact it has had on his organs.Β 

You can read CJ's full article here: https://lupusuk.org.uk/2025/10/03/my-lupus-experience-cj/

Thank you CJ, for sharing your story! πŸ’œ

03.10.2025 16:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Whatever you decide, be sure to tag our socials or email photos and videos to Nakita@LupusUK.org.uk.Β 

What activities will you be doing? πŸ’œ

03.10.2025 13:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Wear purple throughout the month to raise awareness and spark conversation about lupus.

03.10.2025 13:29 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Post image

Complete some mindfulness colouring and share your artwork with us on social media!

03.10.2025 13:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

Share your story with us to help raise awareness, or spread awareness by resharing our content.

03.10.2025 13:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

Pre order some physical copies of our Lupus Awareness Month poster for 2025 and help spread the word around your local community!

πŸ’œhttps://lupusuk.org.uk/order-awareness-supplies/

03.10.2025 13:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

Complete any fundraising challenge, such as Lunch 4 Lupus.

πŸ’œ https://lupusuk.org.uk/lunch4lupus/

03.10.2025 13:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Lupus Awareness Month 2025 October is Lupus Awareness Month in the UK, which aims to raise awareness of this chronic autoimmune condition. You can find a range of activities to take part in on the Lupus UK website at www.lupusuk.org.uk/lupus-awareness-month

Donate to our JustGiving page or set up a fundraiser. By supporting Lupus UK, you are helping to fund vital support and research for lupus.

πŸ’œ

03.10.2025 13:29 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
Post image

Order free awareness supplies to spread awareness around your community. You could even set up an awareness stand!

πŸ’œhttps://lupusuk.org.uk/order-awareness-supplies/

03.10.2025 13:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

Want to help raise awareness of #lupus this #LupusAwarenessMonth?

Here are 7 ways in which you can get involved throughout the month of October:

03.10.2025 13:29 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Order Awareness Supplies | Lupus UK Order Awareness Supplies Order Awareness Supplies OUR RANGE OF MATERIALS We have a wide range of publicity materials to help you raise awareness of lupus in your workplace, school, hospital and local community. The full range (including bookmarks, leaflets, posters, stickers, badges and more) is ava...

For more information and advice, visit www.lupusuk.org.uk or call our helpline on 01708 731251.

You can download or pre order physical copies of our poster by visiting https://bit.ly/LAM-Poster and https://bit.ly/Awareness-supplies.

Help us raise awareness this Lupus Awareness Month! πŸ’œ

(3/3)

02.10.2025 17:51 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

At Lupus UK, we stand with EVERYONE affected by lupus. For 35 years, we've been dedicated to supporting people living with lupus, as well as their families, friends, and loved ones, and we’re not stopping anytime soon. πŸ’œΒ 

(2/3)

02.10.2025 17:51 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

We’re proud to share our official #LupusAwarenessMonth poster for 2025! πŸŽ‰

Lupus can affect anyone regardless of age, gender, or ethnicity. However, it disproportionately impacts women and people of African, Caribbean, and Asian heritage.

(1/3)

02.10.2025 17:51 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image Post image

Happy #LupusAwarenessMonth! πŸ’œ

October is Lupus Awareness Month in the UK, which aims to raise awareness and understanding of lupus amongst the public and medical profession.Β 

Join us in helping to #MakeLupusVisible! πŸ’œ

01.10.2025 12:07 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

We are extremely pleased to announce we are PIF TICK re-certified. 😊

26.09.2025 12:33 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Video thumbnail

🌟 @lupusuk.bsky.social is now PIF TICK re-certified.
This means its health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand

Get PIF TICK certified: pifonline.org.uk/pif-tick/how...

See our full PIF TICK Directory here: piftick.org.uk/members/tick...

24.09.2025 11:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 1
Post image

Today is #WorldGratitudeDay, which serves as a gentile reminder to pause, reflect, and appreciate the people, moments and experiences that bring light into our lives.Β 

Who or what are you grateful for today? Tell us in the comments below! πŸ’œ

21.09.2025 10:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Imagine if sharing a meal could change lives...

By hosting a Lunch 4 Lupus, you'll be raising awareness, sparking conversations, and helping to fund vital support and research for people living with lupus. πŸ’œ

Get involved today at www.lupusuk.org.uk/lunch4lupus/ or by emailing lisa@lupusuk.org.uk

12.09.2025 13:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

October is Lupus Awareness Month in the UK, which plays a crucial role in increasing knowledge & awareness of lupus.πŸ’œ

Help us raise awareness by ordering free awareness supplies here: http://bit.ly/4nludI6 πŸ”—

#LupusAwarenessMonth #LupusUK #LupusAwareness #Autoimmune #ChronicIllness

08.09.2025 13:02 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image

Lupus UK would like to say a huge THANK YOU and GOODLUCK to those running the Great North Run tomorrow! πŸ…πŸƒ

We are SO proud of you all!! πŸ’œ

#GreatNorthRun #GreatNorthRun2025 #Lupus #SLE #LupusCommunity #Fundraising #MarathonRunners #Running #HalfMarathon

06.09.2025 13:01 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

When you give, you’re not just donating. You’re standing alongside everyone living with lupus. πŸ’œ

Thank you!

#Lupus #LupusUK #LupusAwareness #LupusSupport #Charity #InternationalDayOfCharity #CharityDay

05.09.2025 16:14 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

Behind every #lupus diagnosis is a person, a family, and a story. Lupus UK is here for our community offering support, connection, and understanding while funding research that brings hope for a brighter future.Β Β 

Please consider donating today http://bit.ly/465ICRD πŸ’œ

#InternationalDayOfCharity

05.09.2025 16:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Post image

In celebration of Lupus Awareness Month, we are hosting an Information Day in Belfast on Saturday 11th October!Β 

For more information and to register your free ticket, visit https://www.eventbrite.co.uk/e/lupus-information-day-2025-belfast-tickets-1581665587349

03.09.2025 11:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image

From 1st September 2025, anyone who has a weakened immune system (β€œimmunocompromised”) aged 18 or over can have the #shingles #vaccine. Some people with #lupus will be eligible depending on what treatments you take.

For more information, read our article here: http://bit.ly/4n75xTc

01.09.2025 13:45 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Working From Home - Arthritis Action David Vaux, Arthritis Action Therapies Manager and Exercise Lead, has put together some simple tips to keep your joints and muscles more mobile, with useful stretches and strategies to help those of u...

As we head back to work after the summer break, its important to remember the importance of taking breaks and moving and stretching to reduce joint stiffness and pain. Try our simple advice to stay active while working from home.

www.arthritisaction.org.uk/working-from...

29.08.2025 08:17 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Production of this video has been supported through a grant by Johnson & Johnson, who have had no influence or involvement in its content, design or development. Lupus UK remain independent of Johnson & Johnson.

#ClinicalTrials #Research #ClinicalResearch #MedicalResearch #HealthInnovation

28.08.2025 15:12 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@lupusuk is following 20 prominent accounts