Want to receive our News & Views Magazine?
Our Magazine contains:
• Health information & research updates
• Trustee, Head Office, and Regional Group reports
• Fundraising highlights
• Articles from the lupus community
By signing up, you'll be supporting our work: https://bit.ly/lupusuk-member 💜
We’re proud to be a member of The Arthritis and Musculoskeletal Alliance (ARMA) as it launches its bold new strategy.
Together, we can put MSK health at the heart of prevention, care & policy to improve independence and quality of life for 20 million people.
Read the strategy: https://arma.uk.net/
Please take one minute to nominate us (charity no. 1200671) in the #MovementForGoodAwards for a chance to win £1,000. 💜
🔗https://bit.ly/3NnjBvN.
Your nomination could unlock funding that helps us reach and support even more people in the #lupus community!
Thank you! 💜
Interested? We'd love to hear from you!
Please email us at volunteer@lupusuk.org.uk or complete the form here https://lupusuk.org.uk/contact-us/ to request more information.
Whether you're experienced or new to volunteering, we welcome your application! 😊
Want to help make a difference within the lupus community?
We are seeking compassionate and dedicated individuals to join our team as Home-Based Support and Information Line Volunteers. 💜
This role is ideal for someone with lived experience of #lupus who wants to make a meaningful difference.
Lupus UK submitted feedback to the consultation, and we will use the Standard as part of our work advocating for high quality care and services for people with #lupus.
28.02.2026 16:02 — 👍 1 🔁 0 💬 0 📌 0We are delighted to see it published today on #RareDiseaseDay and hope that this will help improve services, care, and outcomes for people with #lupus and those going through diagnosis.
28.02.2026 16:02 — 👍 1 🔁 0 💬 1 📌 0
NICE has published a Quality Standard for Rare Disease which sets out what high-quality sustainable care, treatment, and management should look like for #RareDiseases.
🔗Learn more: https://bit.ly/3OFpAMY
Have you seen our lupus symptom series?
We created this series for #RareDiseaseDay last year, to highlight some of the many symptoms associated with #lupus.
🔗Watch the full series here: https://bit.ly/4r1sh8U.
For more information on lupus, visit https://lupusuk.org.uk/what-is-lupus/ 💜
Learn more about #lupus, which affects 1 in 1000 people in the UK, by visiting https://lupusuk.org.uk/ 💜
28.02.2026 12:03 — 👍 2 🔁 0 💬 0 📌 0
Today is #RareDiseaseDay, and we want to encourage policymakers to provide people living with a rare disease with equitable access to diagnosis, treatment, and care.
300 million people worldwide live with a #RareDisease. Join us in raising awareness! 💜
Did you know, 1 in 6 people in the UK are affected by Raynaud's?
Many people with #lupus also have #Raynauds.
Do you live with Raynaud's?
Learn more at: http://nhs.uk/raynauds
#RaynaudsAwarenessMonth
Take our short, anonymous 15-minute survey (23 Feb – 6 March).
Your voice will help shape support services and be shared at the British Society for Rheumatology conference in April 2026 to help improve NHS care.
Have your say: https://bit.ly/4s7gFlJ
(3/3)
The National Rheumatoid Arthritis Society, National Axial Spondyloarthritis Society, Psoriasis Association and Lupus UK want to change that.
(2/3)
Living with RA, Axial SpA, Lupus, Psoriasis or PsA? These conditions can affect every part of life including intimacy and sexual health - yet this is rarely talked about.
(1/3)
The Wren Project offer free 1:1 and group listening support to anyone in the UK living with an autoimmune disease. They will be giving a short introduction to share more about the listening support they offer, as well as holding a short, engaging listening exercise for the group.
See you there! 💜💙
REMINDER! Our Virtual Young People Lupus Group, in collaboration with The Wren Project takes place this Thursday! 💜💙
If you're a young person aged 18-30 years old living with #lupus or in the middle of receiving a diagnosis, you can register here: https://lupusuk.org.uk/youth-events/
If you follow the Islamic Faith and plan to fast during the holy month of Ramadan, we have a webinar about keeping well during #Ramadan with #lupus, featuring Professor Anisur Rahman from UCLH.
You can watch the #webinar on our YouTube Channel: https://bit.ly/4kGWAQF 💜
If you experience any of these symptoms, we recommend booking an appointment with your GP.
For more information, visit https://www.nhs.uk/conditions/raynauds/
#Raynauds #RaynaudsPhenomenon #RaynaudsSupport #SLE
Did you know that 1 in 3 people with #lupus experience Raynaud's?
Here are some symptoms to look out for in your fingers and/or toes:
- Colour change when cold, anxious or stressed
- pain
- numbness
- pins and needles
#RaynaudsAwarenessMonth
March is #AutoimmuneAwarenessMonth 💜
If you are impacted by lupus, we want to hear your story! This can be in any form you like, such as a poem, photograph, blog article, video, artwork etc.
Want to get involved? Email nakita@lupusuk.org.uk expressing your interest.
Fundraise your way for Lupus UK 💜
Celebrate our 35th birthday by joining the Pick & Mix campaign and help raise vital funds for everyone living with #lupus or waiting for a diagnosis.
👉 Visit https://lupusuk.org.uk/pick-and-mix/ for more information.
Did you know we have a guide for #teachers that provide them with information on #lupus?
You can download the guide for free on our website: https://lupusuk.org.uk/youth-resources/ 🧑🏫
#LupusCommunity #LupusSupport
This #RaynaudsAwarenessMonth we are shedding light on Raynaud's. 💜
#Raynauds is a condition where the small blood vessels in the hands, feet, fingers or toes are over sensitive to even the slightest changes in temperature, cold conditions and sometimes emotional stress.
The Wren Project offer free 1:1 and group listening support to anyone in the UK living with an autoimmune disease. They will be giving a short introduction to share more about the listening support they offer, as well as holding a short, engaging listening exercise for the group. 💜
05.02.2026 17:04 — 👍 0 🔁 0 💬 0 📌 0
Are you a young person aged 18-30 years old living with #lupus or in the middle of receiving a diagnosis? Come along to our next Virtual Young People Lupus Group, in collaboration with The Wren Project.
Register here: https://bit.ly/3LQNlAE 💜
It is often triggered by cold temperatures and stress, so it is important that people with lupus are careful around extreme cold temperatures and try to practice good stress management when possible.
(2/2)
This month is #RaynaudsAwarenessMonth, which raises awareness for Raynaud's phenomenon, a condition affecting blood circulation in fingers and toes in many people living with #lupus.
(1/2)
Our Virtual Dog Walk is officially underway! 🐾
Walk, donate, or cheer us on! Every step helps raise vital funds, awareness, and hope for the #lupus community. 💜
There’s still time to sign up! Join us any time this month by setting up your JustGiving page: https://bit.ly/3NyVPg9
#VirtualDogWalk 🐶
This month is #NationalHeartMonth. #Lupus can impact heart health and it is important to know more about its effects.
You can find out more about how lupus affects the heart through our publication here: https://bit.ly/4bkGMk6
#LupusAwareness #LupusSupport #LupusCommunity #SLE
