Cheers! Funnily enough, I was diagnosed w/dysfunctional breathing in 2019 (which I disagreed with!), then had over a year's worth of respiratory physio from a lovely person who just couldn't wrap their head around ME/PEM.
But Binita knows LC/ME, so I'll check this out, nothing to lose! Thanks ๐
25.11.2024 12:07 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Hope I can manage it soon! Just having a bit of an enforced break at the moment due to health crap but good to see more ME people moving over here too.
24.11.2024 10:16 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0
Pretty funny that I was user #211,848 on here, haha
19.09.2024 17:09 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by Good Morning Britain
โOur Daughterโs Death Was Preventableโ Calling for Change in the Care of M.E. Patients
They're both usually pretty unpleasant people, Madeley in particular but this was surprisingly good segment (if you ignore the regular interruptions toward the end).
youtu.be/ibTCzXcKhpk?...
14.08.2024 15:07 โ ๐ 5 ๐ 1 ๐ฌ 0 ๐ 0
Breaking News - Superglue MishapsPlease note: This is satire
Gaslight News - #SuperglueMishap - #ChronicIllness - #MECFS
youtu.be/cpdbTts5tPc
19.09.2023 13:23 โ ๐ 2 ๐ 4 ๐ฌ 0 ๐ 0
Thรฉodore Gรฉricault's epic 1819 painting "The Raft of the Medusa", depicting the wretched survivors of a shipwreck signalling to rescuers
"Twitter users arriving at Bluesky", Thรฉodore Gรฉricault, 1819
20.09.2023 10:10 โ ๐ 2913 ๐ 872 ๐ฌ 52 ๐ 47
So you decided to join BLUE SKY
[it's not twitter]
#1 upload an avatar
#2 set Moderation Settings
(box showing moderation hand symbol) Moderation (arrow pointing to) Content Filtering
(arrow pointing to drawing of toggle) Toggle to enable Adult Content
THEN choose Hide, Warn, or SHOW
(star) tip: images are AI moderated so some slip thru & some G-rated images get tagged as "explicit", so "Warn" may be the bet choice atm
#3 Go to SETTINGS
(box with drawing of toggle) toggle require alt text on images (please โฅ)
(arrow points to) Home Feed Prefs
(star) Use these settings to control seeing reposts & replies on your TL
#4 Go to My Feeds
Go to "Discover New Feeds" to search for interesting feeds like "Only Posts"
Click the "+" to add the feed
(box) Go to the (gear icon) [edit my feeds] here you can pin and unpin feeds
(side note) pinned feed will appear at the top of your TL
Don't forget to "โฅ" the feed when you click on it to preview, this helps others find it!
Hey I made a quick welcome guide to BlueSky :)
There's tons more, but I think these few steps will get you up and enjoying it quickly.
21.08.2023 22:35 โ ๐ 6889 ๐ 4135 ๐ฌ 169 ๐ 313
Hey! Yeah, that's what instigated me setting this up over the summer. So it has it's upsides, I suppose haha
20.09.2023 08:15 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Start as you mean to go on!
17.07.2023 13:48 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
Nah, reluctant to sign up for that one given it's so closely linked to the other rich fella. Will just stand in the corner and see how it all goes over the next few months.
10.07.2023 08:43 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0
Suspended from Twitter (for saying that a person could choke on a glass of water with 6g of salt in ๐คทโโ๏ธ) so milling around Bluesky properly for the first time.
Definitely seems to have a different energy here. The lack of toxicity is... refreshing. It's like a strange new world..
09.07.2023 22:26 โ ๐ 16 ๐ 0 ๐ฌ 2 ๐ 0
๐ thanks! I only watched this last night, recognise that baby
09.07.2023 20:41 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
That's superb, ha! Thanks for the tag ๐
04.07.2023 22:26 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
A Crip led grassroots group working Nationally to fight Government Cuts and reduce isolation through community.
๐ป๐ฉโ๐ฆฏ๐ฆฎ๐ฆพ๐ง ๐ฉโ๐ฆผ๐ฆป
๐๐ณ๏ธโโง๏ธ๐ณ๏ธโ๐โ๐ฟโ๐พโ๐ผ
Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
Animal lover ๐ฟ๐โโฌ๐๐ฆ
Wears a mask. Not interested in antimaskers, antivaxers or Covid minimisers. Woke as f***
UK
#WearAMask FFP2 /FFP3.
#MasksinHealthcare
#CovidIsAirborne
Disabled.
Fed up with the abuse and block lists on here. Not coming back.
Iโm an #ActuallyAutistic AuDHD elder Democratic Socialist who is still trying to fight for human rights of all people despite... all this! Iโm a bit sweary sometimes and hate unfairness or bullying. Love reading, stoicism, motorbike racing and my 7 dogs๐ป๐๐ต๐ธ
Dreamer . Earth warrior โฎ๏ธโค๏ธ
Being kind is my superpower
#vegasstrong #vote #longcovid #POTS #MCAS
Visual Artist and Writer #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #VisualPoetry #PostdigitalPoetry #PoeticWeb
http://www.diktgymnasiet.com
Life is a shipwreck but we must not forget to sing in the Lifeboats ~ Voltaire
#ME #MyalgicEncephalomyelitis #pwme
#diabetes #hypertension #menopausal
Unapologetically Disabled. Film Lover. Creative Dabbler. They/Them. NO unsolicited advice. 13 Years Severe #MECFS #PWME #YYC
Same username on Twitter.
Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb
n=50 @remissionbiome.bsky.social
Poetry @diktgymnasiet.bsky.social
Trying to leave finance for music but escape plan thwarted by Long-Covid
Public health and health tech enthusiast. Professional socialist. Amateur potter. ๐ฆ๐ณ๏ธโ๐. Stuck in the worst timeline.
We are a UK charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile ๐ Registered Charity Number 1185760 ๐ฉต www.smileforme.org.uk
I like you guys. Now if you all would just goddamn wear a respirator inside, maybe I could get out of the house more. But I'm sure you mean it for the best and are just stunningly ignorant, not malevolent.
Right? [padme] Right??
Disabled mum just trying to make the most of life! Passionate about equality issues, inclusion and accessibilty.