♜ Kali (she/her) ▴

supporting patients, and funding research for a cure.

#InternationalStiffPersonSyndromeAwarenessDay #StiffPersonSyndromeAwareness #March15th #March15thIsInternationalStiffPersonSyndromeAwarenessDay

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as a reminder to those with the condition that they are not alone in their struggle, fostering community and hope

Finally, ways you can support the International Stiff Person Syndrome (SPS) Awareness Day (March 15th) involve raising awareness about this rare neurological disorder,…

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autoimmune disorder that causes painful spasms, as well as stiffness, often making everyday movements challenging.

Also, the day features campaigns like “#RareLikeYou” and encourages using social media hashtags like #SPSDay and #StiffPersonSyndrome to spread awareness.

Plus, the day serves…

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characterized by muscle stiffness and spasms. And it focuses on advocacy and early diagnosis, notably supported by celebrities like Celine Dion. And the day aims to raise funds for research and support for patients.

And the significance of this day is to shine a light on the rare…

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International Stiff Person Syndrome (SPS) Awareness Day is coming up soon on March 15th, and it is observed annually on March 15th to increase understanding, support research, and honor those living with this rare, progressive, incurable, neurological autoimmune syndrome which is…

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wearing helmets, using seatbelts, and avoiding high-risk activities to prevent TBIs.

#NationalBrainInjuryAwarenessMonth #BrainInjuryAwareness #MarchIsNationalBrainInjuryAwarenessMonth

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followed by traffic accidents, sports injuries, and violence.

Finally, you can participate in National Brain Injury Awareness Month by learning about the signs, symptoms, and long-term effects of TBIs; support legislative issues and better care services for survivors; and prevent TBIs by…

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Month is “#MoreThanMyBrainInjury,” which allows individuals to share their stories and change the narrative around brain injury.

And some facts about brain injuries:

•Approximately 2.8 million Americans sustain a traumatic brain injury (TBI) annually.

•Falls are a leading cause of TBIs,…

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caregivers, and highlighting that injuries from falls, accidents, and sports are often invisible.

And its key purpose is to increase understanding of brain injuries, share prevention messages, and promote advocacy.

Also, the 2024-2026 campaign them for National Brain Injury Awareness…

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This month, March, is National Brain Injury Awareness Month, and it’s held every March and led by the Brain Injury Association of America (BIAA), aiming to educate the public on the causes, effects, and prevention of brain injuries. It focuses on reducing stigma, supporting survivors and…

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of different types affecting 1 in 10 Americans.

And the symbol of Rare Disease Awareness Day is the zebra, which represents the need to look for rare, not just common, diagnoses.

#RareDiseaseAwarenessDay #RareDiseaeAwareness #February28th #RareDiseaseAwarenessDay2026

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diagnosis, treatments, and healthcare for patients, who often face long diagnostic delays.

Its purpose is to educate the public, researchers, and policymakers about the impact of rare diseases, and the significance of this day is that while individual diseases are rare, there are thousands…

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Today, February 28th, is Rare Disease Awareness Day, a global initiative held annually on the last day of February (February 28th or 29th in leap years to signify the “rarest” day) to raise awareness for the 300+ million people living with rare diseases. It aims to improve access to…

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you deserve it so, SO much. ❤️🥳🎂🎈🎁🎉🍾🥂

Love you Josh. 🥰

#Birthday #JoshGroban #JoshGrobansBirthday #February27th #HappyBirthdayJoshGroban

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Happy happy happy happy happy HAPPY birthday to one of the greatest, kindest, nicest, most caring, smartest, funniest, most talented, and just all around amazing people, Josh Groban. I hope you are having a great day and have a great night celebrating with your family and friends. Because…

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Happy Valentine’s Day to everyone out there, including all the fur babies, other animal family members and friends, and all animals period. You guys are awesome. 🥰❤️💝💘💌

#ValentinesDay #February14th #ValentinesDay2026 #HappyValentinesDay #HappyValentinesDay2026

rights and encourages continued advocacy for LGBTQ+ rights.

#NationalFreedomToMarryDay #NationalFreedomToMarry #February12th #Februrary12thIsNationalFreedomToMarryDay #TodayIsNationalFreedomToMarryDay

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Today is National Freedom to Marry Day, a holiday dedicated to promoting, celebrating, and advocating for same-sex marriage equality.

Founded by Lambda Legal in 1998, it falls two days before Valentine’s Day to highlight love and commitment. The day commemorates the fight for marriage…

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support networks, connecting patients and families facing similar challenges, which fosters a community of support and shared resources.

#RareDisease #RareDiseases #RareDiseaseAwarenessMonth #February #FeburaryIsRareDiseaseAwarenessMonth

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professionals and the public about rare diseases.

Also, Rare Disease Month can influence policy, because advocacy efforts for rare diseases can lead to policy changes that improve access to healthcare, support services, and patient rights.

Finally, Rare Disease Awareness Month can create…

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diseases, reducing misconceptions about them, and promoting empathy towards people with them within communities.

And in addition to those things, Rare Disease Awareness Month can lead to people receiving an earlier diagnosis of their disease, by increasing knowledge among healthcare…

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others.

Also, Rare Disease awareness campaigns encourage investments in research, leading to better treatments and hope for cures, since rare diseases often receive less funding and attention.

And Rare Disease Awareness Month also educates the public, increasing knowledge about rare…

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diagnosis, treatment, and finding expert care.

And Rare Diseases Month amplifies voices, because many rare disease patients feel isolated due to the lack of understanding about and resources for their rare disease. So this month gives them a platform to share their stories and connect with…

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these often-overlooked diseases. It’s a time to share stories, drive policy change, and support the rare disease community, highlighting challenges like delayed diagnosis and limited options.

Rare diseases collectively affect many, but individually, they present unique difficulties in…

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This month, February, is Rare Disease Month, culminating in Rare Disease Day on the last day of the month (February 28 or 29), a month to raise global awareness for the over 300 million people living with rare conditions, advocating for research, treatments, support, and better policies for

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ok. Being examined by the doctor hurt, but I dealt with it!

I am a Stiff-Person syndrome warrior! 💪

And love the fight! 💟

#StiffPersonSyndrome #SPS #MoerschWoltmanSyndrome #Neurologist #Neurology #NeurologyAppointment #InPersonNeurologyAppointment #HadAnInPersonAppointmentWithMyNeurologist

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Had an in person appointment with my neurologist, and it didn’t go too bad! Getting me in my wheelchair wasn’t as hard as I thought it would be, the drives to and from the appointment were a little difficult on me, but weren’t as bad as I thought they would be, and the appointment itself was…

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So excited for Josh that this is happening, and for everyone who gets to see it as well. 😄❤️

#Hippies #TheBeatles #SgtPeppersLonelyHeartsClubBand #AllYouNeedIsLove #GivePeaceAChance ☮️✌️❤️😊🌼🌸🌺🌻🌈

#Snow #SnowStorm #MassiveSnowStorm #StaySafe #StayWarm #StaySafeAndWarm