@baziaz.bsky.social
LifeStolenByME 23yrs, ME, POTS, MCAS. Masking to avoid being a eugenics stat. Here to learn & advocate to find a cure. I want to run, walk, work, build community, have a 2 way conversation. Live!
Valentine’s-chest pain, severe flu symptms & exhaustion.
Grueling day in #MyalgicEncephalomyelitis 23 yr journey.
Reason? Few extra steps 3.5 days ago.
Managing PENE(post exertional Neuro immune exacerbation) when it’s delayed +24hrs is impossible for accurate pacing.
HRV or HR aren’t accurate.
Horizontal day.
Watching threads app shred to pieces.
Will we ever have a space that allows free speech, community wout censorship & with good tools to moderate trolls?
How ridiculous I’m to sick & cognitively challenged to share what living in ME hell is like.
25.11.2023 18:21 — 👍 1 🔁 0 💬 1 📌 0Can you contribute? #ME, #Myalgicencephalomyelitis #ME/CFS
29.10.2023 13:49 — 👍 2 🔁 1 💬 0 📌 0🙇🏼♀️Thank you! Needed a laugh!
06.10.2023 12:57 — 👍 1 🔁 0 💬 0 📌 0No words but big empathy.
05.10.2023 16:56 — 👍 0 🔁 0 💬 0 📌 0Is it available on computer wout paywall? Only looked on my phone.
02.10.2023 21:53 — 👍 0 🔁 0 💬 1 📌 0Anyone have a copy not behind a paywall?
02.10.2023 21:51 — 👍 0 🔁 0 💬 1 📌 0
Small statue of a child looking buddha with a smiley face bandana on the head, eyes closed, playing a copper colored flute, sitting cross legged on a natural wood porch with painted white railing. Turquoise glass fishing net float at his feet. Daisy’s slouch over in front of the statue & daisy shadows are scattered on the statue’s tummy, chest & arms.
Loved the shadows playing about on our little porch flautist.
02.10.2023 21:43 — 👍 3 🔁 1 💬 0 📌 0It’s an epic feat! We need Olympic Shower Medals! I hear you. Hope some ease comes & stays.
02.10.2023 21:33 — 👍 2 🔁 0 💬 0 📌 0
So grateful for a unified nudge to gather here before Humpty Dumpty X takes the big fall.
I’ll be donating when I get some invites.
Signed!
30.09.2023 13:43 — 👍 0 🔁 0 💬 0 📌 0
Blond hair, pink skin woman’s from the nose up wearing green glasses. Text across forehead reads “commence self experiment mode”
Always trying to find my reset.
My catapult out of horizontal world.
It would be poetic if green glasses released me back into my native habitat of hiking, kayaking & my feet honoring our green wild spaces that I desperately yearn for.
Red background with white lettering. A sign that says “Fragile Handle with Care”.
#MyalgicEncephalomyelitis per #MEICC w #POTS, #MCAS, #Lyme,
I was always the person who was low maintenance.
Being fragile is sadly accurate & humbling.
Deconstructing my internal ableism.
#ToxicPositivity & inaccurate medical advice to continue to exercise, landed me in a severe condition.
Photo of ceiling fan, window looking to outside, cream colored wall w oak trim & white window casing.Spider plant on right corner reaching for the sun.
28.09.2023 13:06 — 👍 0 🔁 0 💬 0 📌 0
As if inflammation wasn’t rough enough bouncing around my body. My brain is particularly not fond of it. Fall slide is upon me.
28.09.2023 12:53 — 👍 8 🔁 0 💬 1 📌 0