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Epilepsy Scotland

@epilepsyscotland.bsky.social

Providing information, support, and services to people living with epilepsy and their families in Scotland. Freephone helpline 0808 800 2200. Find out more at www.epilepsyscotland.org.uk

188 Followers  |  91 Following  |  114 Posts  |  Joined: 09.12.2024  |  2.0164

Latest posts by epilepsyscotland.bsky.social on Bluesky

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πŸ’¬ Join Epilepsy Scotland’s next Online Support Group.

It’s a safe space to share, ask questions, and connect with others living with epilepsy.

To register, email: contact@epilepsyscotland.org.uk
Date: 25 June 2025 Time: 11am – 12 noon

#EpilepsySupport #CommunityCare

11.06.2025 07:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ’œ Thank you to the Student Loans Company team who raised Β£835 in memory of their colleague Emma.

The walk at Chatelherault Park included mindfulness & wildflower planting β€” a true celebration of Emma’s spirit.

#WalkInMemory #EpilepsyScotland

02.06.2025 07:49 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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This #NationalEpilepsyWeek, Epilepsy Scotland is raising awareness of sudden unexpected death in epilepsy (SUDEP). This is especially important given figures of number of people in Scotland with epilepsy could be 40% higher.
Coverage of Epilepsy Scotland: www.scotsman.com/news/spike-i...

26.05.2025 05:41 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Wishing luck to the team from Spiers Gumley & James Gibb climbing Buachaille Etive MΓ²r tomorrow for Epilepsy Scotland!

Emma, diagnosed with epilepsy last year, shares her powerful story on our podcast 🎧 spoti.fi/3XYZtalk

#TalkEpilepsy #Fundraiser

22.05.2025 09:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ’¬ Join Epilepsy Scotland’s next Online Support Group.

It’s a safe space to share, ask questions, and connect with others living with epilepsy.

πŸ“§ To register, email: contact@epilepsyscotland.org.uk

#EpilepsySupport #CommunityCare

22.05.2025 08:30 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Our Glasgow Kiltwalkers raised an incredible Β£18,839.19! We still have another 3 Kiltwalks this summer in Aberdeen, Dundee, and Edinburgh.

If you would like to sign up for the challenge, we would love to hear from you at fundraising@epilepsyscotland.org.uk or call 01414274911.

22.05.2025 08:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Each person's experience with epilepsy is unique, and assuming otherwise can be incredibly frustrating for those living with the condition.

Learn more about how to be a better ally to someone with epilepsy by visiting our website: buff.ly/UtPtQs9

#Epilepsy #SeizuresTriggers #Seizures

04.05.2025 19:02 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Some days are harder than others. Some days it feels like an uphill battle.

But remember. You are stronger than you think. Epilepsy doesn't define youβ€”it's just one part of you.

#TalkEpilepsy #Epilepsy #EpilepsyAwareness #EpilepsyWarriors #Seizures

02.05.2025 19:02 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 Would you know what to do if someone had a seizure right in front of you? 🚨

Tonic-clonic seizures can be scary, but you can make a difference! πŸ’ͺ

Be a seizure superhero! πŸ¦Έβ€β™€οΈπŸ¦Έβ€β™‚οΈ Share this potentially life-saving info!

Learn more via our website: buff.ly/QNvst65

#SeizureFirstAid #Epilepsy

30.04.2025 19:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Over the next few weeks, our team will be breaking down the biggest misconceptions about epilepsy.

➑️ Learn about the different types of seizures on our website: buff.ly/AIlXGUW

#EpilepsyAwareness #KnowTheFacts #BreakingTheStigma #Seizures

29.04.2025 19:02 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Today, 28 April 2025, would have been Hayley's 30th birthday. 10 years ago, Alana's daughter was taken too soon by Sudden Unexplained Death in Epilepsy (SUDEP).

You can read her story via our website: buff.ly/yysZ2ko

#SUDEP #EpilepsyAwareness #Epilepsy #RememberingHayley

28.04.2025 19:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Whether you or someone you love is affected by epilepsy, learning about different seizure types is an important step.

Want to learn more? Check out our factsheet via the following link: buff.ly/AIlXGUW

#Seizures #SeizureAwareness #Epilepsy #EpilepsyAwareness #TalkEpilepsy

27.04.2025 19:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Did you know? Not all seizures require hospitalisation. In most cases, the person simply needs time to rest and recover afterward.

Find out when you should call an ambulance via our website: buff.ly/QNvst65

#Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness #TalkEpilepsy

25.04.2025 19:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Derek was diagnosed with epilepsy when he was a young boy. He shares the challenges he has faced whilst living with epilepsy and what he would say to others who have been recently diagnosed.

πŸ“– Read his story via our website: buff.ly/IhAmaGj

#TalkEpilepsy #Epilepsy #EpilepsyAwareness #Memory

24.04.2025 19:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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This month is #StressAwarenessMonth. It is not always easy to tell if you are stressed. Others might notice it before you do.

Want to understand the connection between stress and epilepsy better? We've created a comprehensive factsheet just for you: buff.ly/VITL0KJ

#Stress #Epilepsy

23.04.2025 19:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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What does epilepsy feel like to you?

#TalkEpilepsy #Epilepsy #EpilepsyAwareness #Seizures #SeizureAwareness

21.04.2025 19:03 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Living with epilepsy isn't easy. What would you add to this list?

If you've been newly diagnosed and are looking for information and support, visit our website to find resources specifically designed to help you navigate this journey: buff.ly/uNqKQ0h

#EpilepsyAwareness #Epilepsy #EpilepsySupport

20.04.2025 19:01 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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Happy Easter from everyone at Epilepsy Scotland! πŸ‡ πŸ₯š

#HappyEaster #Easter #EasterEggs #EasterBunny

20.04.2025 10:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Our free Epilepsy and Memory Guide offers practical strategies and valuable info to help improve your memory and regain confidence in your daily activities.

Get your copy today:

βœ… Download directly: buff.ly/BFp7Tu4
βœ… Email us: contact@epilepsyscotland.org.uk

#Epilepsy #Memory #MoreThanSeizures

18.04.2025 19:02 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Nicole’s husband David was diagnosed with epilepsy after having a seizure while driving in 2017. David lost his license, independence, and eventually his job.

Nicole shares her story and the impact epilepsy has had on both of their lives: buff.ly/TKnWJPH

#Epilepsy #TalkEpilepsy #Seizures

17.04.2025 19:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Our amazing Purple Pandas Youth Group has created something special - an A-Z guide of epilepsy-related words to help spread awareness about the condition!

What would your A-Z of epilepsy include? Share your ideas in the comments below! πŸ‘‡

#PurplePandas #EpilepsyAwareness #Epilepsy #Support

16.04.2025 19:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Epilepsy isn't just seizures and flashing lights.

There's so much about living with epilepsy that remains unseen and misunderstood.

Learn more about epilepsy via our website at: buff.ly/W9P6wwa

#Epilepsy #EpilepsyAwareness #MoreThanSeizures #TalkEpilepsy

14.04.2025 19:04 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Seizures aren't always the dramatic convulsions you see in movies.

There are actually over 40 different types of seizures - many so subtle that only close friends and family notice them happening.

Learn more on our website: buff.ly/AlwOjYN

#Seizures #SeizureAwareness #Epilepsy #EpilepsyAware

13.04.2025 19:01 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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From cognitive challenges and emotional impacts to sleep deprivation and medication side effects - the complete picture of epilepsy extends far beyond what most people understand.

To discover the hidden aspects of epilepsy visit our website: buff.ly/xicy4JmΒ 

#Epilepsy #EpilepsyAwareness

11.04.2025 19:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Diagnosed at just three years old, Marina opens up about her lifelong journey with epilepsy - from childhood to motherhood.

Read her full story and discover how she found reassurance despite the challenges faced: buff.ly/nmbk9rz

#Epilepsy #EpilepsyAwareness #TalkEpilepsy #Seizures

10.04.2025 19:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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People can't see what it's like navigating seizures, medication side effects, and the uncertainty of when the next seizure might occur.

Learn more about epilepsy and how it affects someone by going to our website: buff.ly/wXKW7L8

#Epilepsy #InvisibleDisabilities #TalkEpilepsy #EpilepsyAwareness

09.04.2025 19:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Three years ago, James's life changed forever when he collapsed at work and was diagnosed with epilepsy. Today, he's training for the Edinburgh Half Marathon 2025 to support Epilepsy Scotland! πŸƒβ€β™‚οΈπŸ’œ

Read his inspiring story via our website: buff.ly/XjQ1ikO

#TalkEpilepsy #Epilepsy #EMF

08.04.2025 19:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We've all been there - wanting to support someone but accidentally saying something that might hurt rather than help.

Learn more about epilepsy and how to be a supportive friend, family member, or colleague by visiting our website: buff.ly/yktIj2b

#Epilepsy #EpilepsyAwareness

07.04.2025 19:00 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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For just Β£10 a monthβ€”less than a streaming subscriptionβ€”you can empower young people across Scotland to find their voices through our Youth Service.

πŸ”„ Set up a monthly donation to create lasting change.
πŸ“± Scan the QR code or donate via our website: buff.ly/alclnCT

#MakeADifference #Epilepsy

06.04.2025 19:00 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Did you know? Sleep seizures can happen any time you're sleeping. πŸ’€

How do you know if you've had a seizure while sleeping? Watch for the signs below.

Want to learn more about sleep seizures read our factsheet: buff.ly/24iCf9e

#SleepSeizures #Seizures #Epilepsy

03.04.2025 19:00 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

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