Brain Ablaze's Avatar

Brain Ablaze

@brainablaze.bsky.social

As people with Epilepsy, we support anyone dealing with seizures.

290 Followers  |  237 Following  |  306 Posts  |  Joined: 22.11.2024  |  1.8971

Latest posts by brainablaze.bsky.social on Bluesky

Preview
a baby is wearing headphones and a headband and says `` gaming time '' . ALT: a baby is wearing headphones and a headband and says `` gaming time '' .

It's a myth that people with #epilepsy cannot play video games. Only about 3-5% of people with Epilepsy are photosensitive. If you are a gamer with Epilepsy, what genres do you enjoy the most? #EpilepsyAwareness

29.06.2025 14:38 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Preview
PST Epilepsy Support Group Session - Brain Ablaze If you are looking for support, we have it. Our PST Support Group Session meets every month on the 26th at 6 PM PST | 9 PM EST. We hope to see you there!

Feel alone in your journey with #epilepsy? Our Epilepsy support group meets virtually this evening. We would love to see you there! #EpilepsyAwareness

Here's everything you need to know (including the invite link):
brainablaze.com/epilepsy-sup...

26.06.2025 13:48 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

DYK about Catamenial #Epilepsy? For many women, seizure frequency or intensity can be directly affected by hormonal shifts during their menstrual cycle. -- Do you or someone you know experiences seizures that worsen around menstruation or other hormonal changes? #EpilepsyAwareness

24.06.2025 13:39 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

It's easy to fall into the trap that one's seizure control is "good enough". If you're taking your meds, but still having seizures, please reach out to your neurologist (or ideally an epileptologist) because there are others treatments in addition to meds that can be tried. #EpilepsyAwareness

22.06.2025 14:31 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Don't know who needs to hear this: good job adapting to your Epilepsy today! Whether you're having seizures or not, if you're working with doctors, taking your meds as you doctor directs, getting your sleep, and minding your triggers you're strill doing wonderfully. #EpilepsyAwareness

20.06.2025 13:15 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
A man wearing scrubs stands in front of an glowing EMERGENCY sign.

A man wearing scrubs stands in front of an glowing EMERGENCY sign.

Life with #epilepsy often means the unpredictable can become an emergency in an instant. -- Have you ever had an emergency because of your Epilepsy (or seizures)? #EpilepsyAwareness

19.06.2025 16:03 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Epilepsy is more than seizures. What's one of your goals in your adaptation to Epilepsy that doesn't involve seizure-reduction? #EpilepsyAwareness

17.06.2025 14:28 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
004: Our Host - The Brain Ablaze Epilepsy Podcast In this episode, the host of our podcast, David Clifford, reluctantly opens up about his twenty-seven-year-long struggle with uncontrolled seizures and describes the great lengths to which he went to ...

Happy 50th Birthday to the host of our #epilepsy podcast: David Clifford. #EpilepsyAwareness

Listen to his story:
brainablaze.com/the-brain-ab...

16.06.2025 13:48 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Happy Father's Day! How did your dad help you better adapt to your #epilepsy (or seizures)? #EpilepsyAwareness

15.06.2025 14:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We really appreciate your effort to help us raise #EpilepsyAwareness. It shows that we're all in this together. Thank you for supporting us with you likes, replies, and reposts!

13.06.2025 13:28 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Preview
014: Faux Pas (Part 1) - The Brain Ablaze Epilepsy Podcast We walk through some of the faux pas that members of the general public often make that often cause confusion or even playful eye-rolls from members of the Epilepsy community.

Should #epilepsyAwareness only be used for posts involving humans? (We see used a lot in posts about pets having seizures.)

brainablaze.com/the-brain-ab...

12.06.2025 13:54 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

A migraine disorder that causes seizures? Never heard of that before. Maybe you mean your migraines trigger your epilepsy? Would definitely love to learn more.

12.06.2025 13:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
The temporal lobe is highlighted purple in a black-and-white figure of the brain.

The temporal lobe is highlighted purple in a black-and-white figure of the brain.

Living with Temporal Lobe Epilepsy (or #TLE) can mean unique experiences like dΓ©jΓ  vu, unusual smells/tastes, or feelings of fear before a seizure. DYK #TLE is the most common form of focal #epilepsy? #EpilepsyAwareness

11.06.2025 13:45 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
Two hands are displayed in front of a 10. One of the fingernails is painted purple.

Two hands are displayed in front of a 10. One of the fingernails is painted purple.

Did you know that 1 in 10 people will have a seizure sometime in their life? Seizures are incredibly common. -- In what year did you have your first seizure? Did doctors think it was Epilepsy right away or something else? #EpilepsyAwareness

09.06.2025 13:43 β€” πŸ‘ 3    πŸ” 1    πŸ’¬ 1    πŸ“Œ 1

Many people with brain tumors only learn about the condition after experiencing a seizure. About 30% of people with brain tumors will also develop #epilepsy. #WorldBrainTumorDay #EpilepsyAwareness

08.06.2025 14:46 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1
Preview
042: We Care - The Brain Ablaze Epilepsy Podcast In this episode, we argue that Caretakers (or carers) deserve to be full-fledged members in our Epilepsy Community.

Happy #WorldCaringDay! Carers play a vital role in the lives of people with #Epilepsy. #EpilepsyAwareness

brainablaze.com/the-brain-ab...

07.06.2025 13:31 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

To any billionaires looking to save their reputation: why not invest heavily into the cure for #epilepsy? Imagine being the one person who finds a cure for one of the oldest documented conditions! #EpilepsyAwareness

06.06.2025 15:04 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Yo-Yo Man | Tommy Smothers | The Smothers Brothers Comedy Hour
YouTube video by The Smothers Brothers Yo-Yo Man | Tommy Smothers | The Smothers Brothers Comedy Hour

youtu.be/_81L5EbU6KQ?...

06.06.2025 15:02 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
038: Seizure First Aid - The Brain Ablaze Epilepsy Podcast We talk about all things Seizure First Aid using descriptions and data from the Center for Disease Control and Prevention (CDC).

You wouldn't wrap a person having a heart-attack with bandages, why do some people think CPR is part of proper first-aid for a seizure? #EpilepsyAwareness

Here's how to apply proper seizure first aid:
brainablaze.com/the-brain-ab...

05.06.2025 14:34 β€” πŸ‘ 2    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

We hate this myth. πŸ’œ

03.06.2025 23:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

What's a widely held belief about #epilepsy that, even with strong scientific evidence against it, you still hear people say? #EpilepsyAwareness -- We will start. NEVER put something in a person's mouth if you witness a seizure!

03.06.2025 13:21 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0
Preview
013: Neurogenesis and Plasticity - The Brain Ablaze Epilepsy Podcast We walk through the concepts of Adult Neurogenesis and Neuroplasticity, why they are important to the people of Epilepsy, and how they can help with your recovery.

Ever tried to learn a new language? Research shows it actively promotes #neuroplasticity – your brain's ability to rewire itself! For people with #epilepsy, this brain 'exercise' can potentially help strengthen pathways & support cognitive health. #EpilepsyAwareness

brainablaze.com/the-brain-ab...

02.06.2025 14:23 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

So sorry to hear that. We're here if you need to talk. Hang in there. πŸ’œ

02.06.2025 12:56 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Hey, you OK?

01.06.2025 13:13 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
048: Jacked In - The Brain Ablaze Epilepsy Podcast In this episode, we talk about all things EEG and how it can be used by our Neurologists (or Epileptologists) to classify our different types of Epilepsy.

On this day in 1941, Hans Berger passed away. His groundbreaking work in 1924 (in a time where even the vinyl toothbrush hadn't been invented), recording the first human brain waves with the #EEG, laid the foundation for modern neuroscience. #EpilepsyAwareness

brainablaze.com/the-brain-ab...

01.06.2025 13:11 β€” πŸ‘ 6    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

If you don't stand up for getting people with disabilities access to potentially life-saving medical care, what do you even stand up for? #EpilepsyAwareness

31.05.2025 15:44 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
David Clifford of Brain Ablaze On Life With Epilepsy and Being Creative With Your Path - Jennifer Logue Software engineer, entrepreneur, and epilepsy warrior David Clifford talks about the journey to starting 'Brain Ablaze.'

Watch the host of our podcast talk about how he had to get creative when #epilepsy changed his life's path. -- How have you had to get creative? #NationalCreativityDay #EpilepsyAwareness

jenniferlogue.com/2023/11/davi...

30.05.2025 13:31 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Just once, we would love to hear that the side-effect of an anti-seizure medication are positive. Why can't they make you a better basketball player rather than causing depression, weight gain, or confusion? #EpilepsyAwareness

29.05.2025 13:27 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
a young man with freckles is smiling for the camera while wearing a black shirt . ALT: a young man with freckles is smiling for the camera while wearing a black shirt .

Celebrating what would have been Cameron Boyce's 25th birthday by recommitting to the cause he championed. His memory is a powerful reminder of the urgency of #epilepsy advocacy and safety for all people in our community. #CameronBoyceFoundation #EpilepsyAwareness

28.05.2025 13:21 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Agreed.

27.05.2025 14:17 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@brainablaze is following 18 prominent accounts