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Brain Ablaze

@brainablaze.bsky.social

As people with Epilepsy, we support anyone dealing with seizures.

291 Followers  |  244 Following  |  331 Posts  |  Joined: 22.11.2024  |  1.7005

Latest posts by brainablaze.bsky.social on Bluesky

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048: Jacked In - The Brain Ablaze Epilepsy Podcast In this episode, we talk about all things EEG and how it can be used by our Neurologists (or Epileptologists) to classify our different types of Epilepsy.

"Epilepsy Tests and Scans" is our theme for day 7 of #NationalEpilepsyAwarenessMonth (or #NEAM) -- EEG, CT, and MRI are all common Epilepsy tests. -- Which test was the most useful (or annoying) in your treatment of Epilepsy? #EpilepsyAwareness

brainablaze.com/the-brain-ab...

07.11.2025 13:59 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

A very Happy Birthday to our friend Trevor Harris. Trevor came on our podcast to describe his life as a comedian with Cerebral Palsy who experiences #epilepsy. Give a listen! #NationalEpilepsyAwarenessMonth #NEAM

brainablaze.com/the-brain-ab...

06.11.2025 14:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

By not buy. D'oh.

05.11.2025 18:37 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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017: Traumatic Brain Injury - The Brain Ablaze Epilepsy Podcast Our host, David Clifford, talks through how Epilepsy is related to Traumatic Brain Injury including an injury he suffered in a car accident in his teens.

Our theme for day 5 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "Traumatic Brain Injury" -- Brain injuries are a significant cause of acquired #epilepsy. Seizures from damage caused buy the injury can may only appear years later. #EpilepsyAwareness

brainablaze.com/the-brain-ab...

05.11.2025 16:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Our theme for day 4 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "What type(s) of seizures do you have?" -- There are multiple types of seizures and some people with #epilepsy might experience more than one type. #EpilepsyAwareness

04.11.2025 14:36 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Our them for #3 of #NationalEpilepsyAwarenessMonth is "How does Epilepsy affect families?" -- Do you have a story about how your family was affected when a member was diagnosed with #Epilepsy? #NEAM

03.11.2025 15:17 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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002: Classification of Seizures - Part 1 - The Brain Ablaze Epilepsy Podcast In this episode, our host and long-time intractable epilepsy sufferer, David Clifford, introduces the high-level classification of Seizures through a simplified metaphor.

It's day #2 of #NationalEpilepsyAwarenessMonth or #NEAM. Our theme for today is seizure classification. Three major types of seizures: focal, generalized, and unknown. -- what type do you have?

Here's more:
brainablaze.com/the-brain-ab...

02.11.2025 16:44 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Are you looking for ideas about how you can celebrate the #epilepsy community or advocate for #EpilepsyAwareness through National Epilepsy Awareness Month this November?

We've got you covered!
brainablaze.com/blog/ways-to...

30.10.2025 13:39 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
World Stroke Day - 80% of stroke is preventable. Know the signs and act F.A.S.T - Face drooping. Arm pain. Speech slurring. Time to call 911.

World Stroke Day - 80% of stroke is preventable. Know the signs and act F.A.S.T - Face drooping. Arm pain. Speech slurring. Time to call 911.

When a stroke damages brain tissue, the resulting scar tissue can become an area of seizure generation. This means stroke survivors, particularly those over 60, face a much higher risk of developing #epilepsy later on. #WorldStrokeDay #EpilepsyAwareness

29.10.2025 15:32 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

If you're sick stay home. As we head deeper into flu season, it's important for people to know that the common flu (and its affects like lack of sleep) can be a seizure-trigger in some people with #Epilepsy. -- Do you have more seizures when you're sick? #EpilepsyAwareness

28.10.2025 13:35 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

What is a piece of advice about your #epilepsy (or #seizures) you have had to disregard? From whom did it come? #EpilepsyAwareness

26.10.2025 15:13 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

What would be your advice to a kid who is caught bullying others for their disabilities (like #epilepsy)?

What advice would you give to the kids who were bullied?

#EpilepsyAwareness

22.10.2025 13:36 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Two speech bubbles. The first "You STILL have that!?". The second "Yeah. I mean Epilepsy is a chronic illness without a known cure."

Two speech bubbles. The first "You STILL have that!?". The second "Yeah. I mean Epilepsy is a chronic illness without a known cure."

Despite medical advances, there is currently no global cure for #epilepsy. #EpilepsyAwareness

20.10.2025 13:45 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

We often see comments on dashcam videos blaming the crash on a seizure, but the percentage of accidents caused by #epilepsy is dwarfed by drunk, distracted, or drowsy driving. Unfair assumptions fuel stigma and distract from the real biggest threats on the road. #EpilepsyAwareness

17.10.2025 13:46 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

We're glad it has helped! ๐Ÿ’œ

16.10.2025 14:28 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Sleep deprivation is a major seizure trigger for many people with #epilepsy. Do you underestimate how a good night of #sleep affect your seizures? #EpilepsyAwareness

brainablaze.com/the-brain-ab...

16.10.2025 13:35 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Happy #TrainYourBrainDay! Neuroplasticity is your brain's amazing ability to reorganize itself by forming new neural connections throughout life. #EpilepsyAwareness

Here's an episode that describes some tips on how to kick it into high gear:
brainablaze.com/the-brain-ab...

13.10.2025 13:27 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
In a black-and-white world, a mature woman holds a kid in her lap. Both are smiling to the camera while wearing purple dresses.

In a black-and-white world, a mature woman holds a kid in her lap. Both are smiling to the camera while wearing purple dresses.

While diagnosis of #epilepsy is common in children, it is NOT just a childhood disease. It can affect anyone of any age. #EpilepsyAwareness

09.10.2025 13:40 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

That can definitely happen. We hope your doctor can help. ๐Ÿ’œ

08.10.2025 14:56 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
A purple shoe is about to step on a banana peel.

A purple shoe is about to step on a banana peel.

No one is perfect. What is a mistake you've made while dealing with #epilepsy? #EpilepsyAwareness

08.10.2025 13:40 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
A portrait of Edgar Allen Poe

A portrait of Edgar Allen Poe

On this day in 1849, the world lost the Master of the Macabre, Edgar Allan Poe. While we will never know for sure, some researchers think that Poe may have had #epilepsy based on the descriptions of seizures he added to his works. -- Which is your favorite of his stories? #EpilepsyAwareness

07.10.2025 13:29 โ€” ๐Ÿ‘ 4    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

Cerebral Palsy and #epilepsy are often connected, reminding us how closely neurological conditions intertwine. In this episode of comedian Trevor Harris describes living with both conditions. #WorldCerebralPalsyDay #EpilepsyAwareness

brainablaze.com/the-brain-ab...

06.10.2025 13:27 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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026: Mortality - The Brain Ablaze Epilepsy Podcast We stare down the monster that has plagued our Epilepsy community for decades, SUDEP, or SUdden Death from EPilepsy.

SUDEP or SUdden Death in Epilepsy affects about 1 in 1000 people with Epilepsy annually. - Have your doctors told you about your risks of SUDEP? #EpilepsyAwareness

brainablaze.com/the-brain-ab...

05.10.2025 15:03 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Thank you. ๐Ÿ’œ

13.08.2025 14:00 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Despite the necessary safety measures, many people with #Epilepsy still have a fierce desire to live their lives to the fullest. We want adventure, spontaneity, and joy, just like anyone else. Finding that balance is the true challenge. #EpilepsyAwareness

13.08.2025 13:33 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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a baby is wearing headphones and a headband and says `` gaming time '' . ALT: a baby is wearing headphones and a headband and says `` gaming time '' .

It's a myth that people with #epilepsy cannot play video games. Only about 3-5% of people with Epilepsy are photosensitive. If you are a gamer with Epilepsy, what genres do you enjoy the most? #EpilepsyAwareness

29.06.2025 14:38 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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PST Epilepsy Support Group Session - Brain Ablaze If you are looking for support, we have it. Our PST Support Group Session meets every month on the 26th at 6 PM PST | 9 PM EST. We hope to see you there!

Feel alone in your journey with #epilepsy? Our Epilepsy support group meets virtually this evening. We would love to see you there! #EpilepsyAwareness

Here's everything you need to know (including the invite link):
brainablaze.com/epilepsy-sup...

26.06.2025 13:48 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

DYK about Catamenial #Epilepsy? For many women, seizure frequency or intensity can be directly affected by hormonal shifts during their menstrual cycle. -- Do you or someone you know experiences seizures that worsen around menstruation or other hormonal changes? #EpilepsyAwareness

24.06.2025 13:39 โ€” ๐Ÿ‘ 3    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

It's easy to fall into the trap that one's seizure control is "good enough". If you're taking your meds, but still having seizures, please reach out to your neurologist (or ideally an epileptologist) because there are others treatments in addition to meds that can be tried. #EpilepsyAwareness

22.06.2025 14:31 โ€” ๐Ÿ‘ 6    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Don't know who needs to hear this: good job adapting to your Epilepsy today! Whether you're having seizures or not, if you're working with doctors, taking your meds as you doctor directs, getting your sleep, and minding your triggers you're strill doing wonderfully. #EpilepsyAwareness

20.06.2025 13:15 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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