A group scientists outside a hotel in Italy
The Queen Square Centre for Neuromuscular Diseases team braving the rain in beautiful Stresa, for the Neuromuscular Study Group meeting. Always such a good meeting with great representation from the London team π€©
@uclbrainscience.bsky.social @cnmdrehab.bsky.social #NMSG2025
30.09.2025 16:35 β π 3 π 1 π¬ 1 π 0
Chewing chips and chewing up racists. ππΎ
29.09.2025 08:49 β π 6 π 2 π¬ 0 π 0
Wonderful place to work too π
09.09.2025 20:28 β π 0 π 0 π¬ 0 π 0
Man giving a lecture at a lecturn
Excellent talk by Dr Louie Lee on the hybrid feasibility/implementation trial of a supported self-management intervention, Neuromuscular Bridges: Adapt-NMD.
#BritishMyologySociety #Oxford @ucl-qs-cnmd.bsky.social @ucl-qs-cnmd.bsky.social
08.09.2025 21:17 β π 1 π 0 π¬ 0 π 0
Reads: The Fellowship from the NIHR gives me protected time over the next five years to lead major research projects in two rare neurological conditions, which will aim to improve rehabilitation for patients. Iβll bring on board a postdoctoral research physiotherapist to work alongside me. Itβs a huge opportunity to advance rehabilitation research for people living with rare neurological conditions.
π Many congratulations to Dr @gitaramdharry.bsky.social on being awarded a Β£1.6M NIHR Fellowship!
She will be leading research into two rare neurological conditions: CMT and CANVAS.
Find out more: www.ucl.ac.uk/brain-scienc...
@uclqsion.bsky.social | @uclqsneuromuscular.bsky.social
03.09.2025 14:43 β π 6 π 3 π¬ 0 π 1
"All of the other countries keep just watching us! ... You don't even see us as human beings!"
31.08.2025 06:58 β π 69 π 41 π¬ 3 π 3
A screen grab of a social media post and link to an article about a successful NIHR fellowship
Still pinching myself and can't wait to get started π€
www.uclhospitals.brc.nihr.ac.uk/news/ps15m-n...
29.08.2025 16:53 β π 9 π 1 π¬ 2 π 0
Evolution of "Sunset Over Seggae"
19.07.2025 18:47 β π 4 π 0 π¬ 0 π 0
Congratulations, Louie, Aljwhara and Aleks! ππ½ππ½ππ½
16.07.2025 04:10 β π 0 π 0 π¬ 0 π 0
My brother is a patient and knowledgeable teacher, but his own work is really excellent. You can check it out here:
dhanrazfineart.co.uk
3/3
14.07.2025 10:30 β π 1 π 0 π¬ 0 π 0
An oil painting of a sunset over a tropical beach with two boats in the foreground.
On the right is a recently completed oil painting of a sunset, from my holiday seeing family in Mauritius last year: "Sunset Over Seggae". Here is a close up.
I find painting mindful and it refreshes my thinking. All so important for the day job βΊοΈ
2/3
14.07.2025 10:27 β π 2 π 0 π¬ 2 π 0
I am standing holding two pictures
Science and creativity go hand in hand. I'm blessed to have a brother who is a portrait artist and teacher. He's helped me on my journey to rediscover my love of art. On the left is a charcoal drawing of a bust of Brutus from 2017, the start of that journey 1/3
14.07.2025 10:25 β π 3 π 0 π¬ 1 π 0
A scoping review: POEMS syndrome (Polyneuropathy, Organomegaly, Endocrinopathy, Monoclonal plasma cell disorder and Skin Changes), physical recovery, and rehabilitation - Lucy Johnson, Shirley DβSa, G...
Objective POEMS syndrome is a rare and treatable plasma cell disorder. Although medical advances have improved survival, polyneuropathy β which impairs both sen...
Scoping review highlighting lack of #rehabilitation research in POEMS syndrome,
Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social
journals.sagepub.com/doi/10.1177/...
@uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social
08.07.2025 14:29 β π 4 π 3 π¬ 0 π 0
A key message is how we pay forward to those stepping onto the journey & I've contributed a few thoughts in the last chapter on how we share our privilege.
Supervisors & supervisees, I honestly think this is a great guide that's both practical & human.
Thank you for bringing it to life, Janet! 3/3
01.07.2025 16:05 β π 1 π 0 π¬ 0 π 0
What I love in particular is the inclusion of chapters that focus on the person, such as health and wellbeing, being a care giver while in the PhD journey.
01.07.2025 16:04 β π 1 π 0 π¬ 1 π 0
Text book on doctoral study
Chapter page on sharing privilege
I'm so delighted to have received a copy of the new book by Janet Deane: Doctorate. Finding your way as a healthcare professional in research. It's a fantastic mix of topic such as navigating the process, academic writing and defending your thesis in a viva. 1/4
01.07.2025 16:03 β π 2 π 0 π¬ 1 π 0
A statement of peace and plea for humanity
From me to you π
30.06.2025 09:38 β π 0 π 0 π¬ 0 π 0
Thank you, Diarmuid ππ½
28.06.2025 07:16 β π 1 π 0 π¬ 0 π 0
Thank you, Neil ππ½
28.06.2025 06:37 β π 1 π 0 π¬ 0 π 0
Thank you, Toby ππ½
28.06.2025 06:37 β π 1 π 0 π¬ 0 π 0
Thanks, James. Took a while, as you know! Now the hard work starts!! πͺπΌ
27.06.2025 21:31 β π 1 π 0 π¬ 0 π 0
Thank you, Glen ππ½
27.06.2025 19:55 β π 0 π 0 π¬ 0 π 0
I aim to develop a framework of research from mechanistic understanding of balance impairment, targeted interventions & implementation into community settings for people living with NMD & other rare neuro diseases 2/2
@uclh.bsky.social @uclnews.bsky.social @cnmdrehab.bsky.social @nihr.bsky.social
27.06.2025 18:39 β π 5 π 0 π¬ 1 π 0
At the next CNR seminar we are delighted to welcome Professor Derick Wade to discuss 'What is really important in rehabilitation'?
Free registration All welcome onlinestore.ucl.ac.uk/conferences-...
26.06.2025 15:31 β π 2 π 4 π¬ 0 π 0
Title slide from talk
River in Maastricht with bridge
MECC conference centre
It was a pleasure to deliver a keynote lecture on Thurs at the International Congress on Neurorehabilitation & Neural Repair, bringing neuromuscular disease research to this event. Thank you to the organisers & Association of Chartered Physiotherapists in Neurology for the invitation ππ½ #nnr2025
18.05.2025 09:01 β π 7 π 0 π¬ 0 π 0
I really enjoyed talking to the fabulous Dr Anna Mayhew of POD-NMD In the first of two podcasts focusing on inherited neuropathy.
www.pod-nmd.org/resources-by...
06.05.2025 10:31 β π 3 π 0 π¬ 1 π 1
Head of Partnerships and Development @consortium.lgbt⬠| Chair @proudchangemakers.bsky.social | LGBTQ+ Columnist Exposed Magazine
#LGBWithTheT Proud Queer π³οΈβππ³οΈββ§οΈ
www.heatherpaterson.co.uk
Professor of Neurogenetics at the Department of Clinical Neurosciences, University of Cambridge, UK
Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a rare heterogeneous, but treatable autoimmune mediated peripheral neuropathy characterized by demyelination. #CIDP #immunosky #Neurology #NeuroSky #NeuroSkyence #ankylosingspondylitis #ms
Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Postdoc in pain genetics & nociceptor biology @TheCIMR | via @biokent @UCLQSIoN @YaleMed | π¦πΊπ¬π§π±π°
Associate Pro-Vice-Chancellor for Innovation; Associate Professor of Physiotherapy @UEA
Stroke Academic Activist.
Co-Chair European Life After Stroke Forum.
Research: stroke rehabilitation, technology, innovation.
Nature nerd.
Musculoskeletal Physiotherapist & Doctoral Research Fellow at Barts Health & QMUL.
Interested in health equity research and Musculoskeletal conditions, how can we support underrepresented communities better. Views my own.
Pioneering neuromuscular disease research through clinical, genetic, and translational neuroscience to develop therapies and enhance patient care.
Established 1958 | Div 22 #APA πΏ | Working to enhance the well-being of people living with disability and chronic health conditions #RehabPsych
2026 Meeting in Charlotte NC 2/19-22 β¨
Crit Care SLT - Barnet Hospital, RFL | PhD (trache tube sizing) | cross-disciplinary research | dabbling in ultrasound | mama to 3 cool kids
Group Leader at the BHF-UK DRI Centre for Vascular Dementia Research at The University of Edinburgh | Visiting Researcher at UCL | Neuroscientist/dementia researcher | Living with #LongCovid | He/him
Novelist, repβd by @vickyweberbooks.bsky.social. Thrillers: #LittleWhiteLiesπ #SafeAndSoundβ€οΈ #IllNeverTellπ #AGuiltySecretπ§‘ Lives in Lincolnshire, has a cat. Clinical Psychologist by day.
Prof MSK Health and Care at Health Sciences University, Editor Int Jn Osteo Med, President Society Back Pain Research.
Physio working with people with neuro conditions for Hywel Dda University Healthboard. Senior lecturer at Cardiff University
Physio | Research Fellow | Palliative | Rehab |Worthing | Sussex
Professor and Academic Director of Impact at #LSE | Psychologist | Hon FBPsS | Hon Prof @lborouniversity.bsky.social | @IndependentSage.bsky.social Behaviour Group | Conversation Analyst #EMCA | she/her | own views | #AcademicSky
Research lab of @drl-bo.bsky.social based @ucl-hd.bsky.social @uclqsion.bsky.social working on adult and Juvenile-onset Huntington's Disease biomarkers.
Principal investigator of @hob-lab.bsky.social at @ucl-hd.bsky.social. HD researcher and family advocate. Opinions are my own.
Neuro physio working in acute inpatients and rehabilitation.