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Paula

@paula890590.bsky.social

@encephalitisint & @ocdaction supporter/advocate epil volunteer. an OCD Advocate Advocate OCDAdvocate & I support @encephalitisint.bsk..

1,128 Followers  |  5,386 Following  |  224 Posts  |  Joined: 20.10.2024  |  2.2892

Latest posts by paula890590.bsky.social on Bluesky

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We recently funded 'Mpox: Whatโ€™s Your Story' which brings together @lstmnews.bsky.social, @wowfest.bsky.social, @sahirhouse.bsky.social & @lpoolcouncil.bsky.social Public Health to use community storytelling to raise Mpox awareness & tackle stigma: www.thepandemicinstitute.org/news/creativ...

21.11.2025 12:00 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Every childโ€™s journey with acquired brain injury is different; some may face challenges with memory, learning, or behaviour, while others might experience physical or emotional changes.
Together, we can navigate this journey, one step at a time. Because every child deserves the chance to thrive.

21.11.2025 13:02 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Why research must stay at the heart of the NHS When I was a medical student in Mozambique studying hypoglycaemia in children with malaria, I saw how every sample and observation could make a difference. That experience set me on a path investigati...

Research built the NHS and without protected time, proper pathways, and real accountability, we risk dismantling the very engine that drives better care.

www.linkedin.com/pulse/why-re...

#NHS #AOMRC #ClinicalResearch #HealthResearch

21.11.2025 15:56 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Fascinating start to the day at #CCM2025 Tackling challenging topics in #BrainInjurySupport @abisolutions.bsky.social

#ABI #CaseManagement

20.11.2025 10:17 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Speaking of avoidance, I've been struggling a lot lately with just not wanting to be around people. I'm in danger of turning into a misanthrope. This is a long-standing tendency, exacerbated greatly by OCD. Does anyone else find OCD dims your desire to be around people?
#OCDTalkHour

19.11.2025 19:09 โ€” ๐Ÿ‘ 5    ๐Ÿ” 3    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0

Besides familiarity with OCD, what other traits to look for in a therapist? Also has anyone ever done existential therapy? Apparently, it's about finding meaning in life, and it sounds interesting. So far, the only therapist I've seen offering it doesn't take my insurance ๐Ÿ˜  #OCDTalkHour

19.11.2025 19:52 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I missed #OCDTalkHour tonight.

20.11.2025 01:17 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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โ€œBut we donโ€™t have any children with a brain injury in our schoolโ€ฆโ€ ๐Ÿ“š
The truth is, you might. Even if you canโ€™t see it.
Our dedicated ABI coordinators help schools recognise and support these hidden needs. And together, we can make sure no child is left behind. ๐Ÿ™
Learn more at buff.ly/9XQEPaL

15.11.2025 16:01 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Hi Ydrance,
I'm sorry to hear that you are having a bad day.
Things I have ate today oats, I have drank tea. I had a vegetable casserole for my evening meal last night. I often listen to some music to cheer me up.

13.11.2025 15:37 โ€” ๐Ÿ‘ 4    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I think itโ€™d be helpful for more leftists to know about moral OCD because I suspect that the things that make us leftists lend themselves to both a greater incidence of moral OCD, greater severity, and less ability to know you have it even from the same baseline of self awareness

11.11.2025 11:19 โ€” ๐Ÿ‘ 152    ๐Ÿ” 26    ๐Ÿ’ฌ 10    ๐Ÿ“Œ 7
In a black-and-white world, a mature woman holds a kid in her lap. Both are smiling to the camera while wearing purple dresses.

In a black-and-white world, a mature woman holds a kid in her lap. Both are smiling to the camera while wearing purple dresses.

While diagnosis of #epilepsy is common in children, it is NOT just a childhood disease. It can affect anyone of any age. #EpilepsyAwareness

09.10.2025 13:40 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

We often see comments on dashcam videos blaming the crash on a seizure, but the percentage of accidents caused by #epilepsy is dwarfed by drunk, distracted, or drowsy driving. Unfair assumptions fuel stigma and distract from the real biggest threats on the road. #EpilepsyAwareness

17.10.2025 13:46 โ€” ๐Ÿ‘ 6    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

If you're sick stay home. As we head deeper into flu season, it's important for people to know that the common flu (and its affects like lack of sleep) can be a seizure-trigger in some people with #Epilepsy. -- Do you have more seizures when you're sick? #EpilepsyAwareness

28.10.2025 13:35 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 2

Our them for #3 of #NationalEpilepsyAwarenessMonth is "How does Epilepsy affect families?" -- Do you have a story about how your family was affected when a member was diagnosed with #Epilepsy? #NEAM

03.11.2025 15:17 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Our theme for day 4 of #NationalEpilepsyAwarenessMonth (or #NEAM) is "What type(s) of seizures do you have?" -- There are multiple types of seizures and some people with #epilepsy might experience more than one type. #EpilepsyAwareness

04.11.2025 14:36 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

I just realised this post was a week ago, but I have had a lot of stress it's personal stuff. I'm in the middle of getting another advocate bc he has gone to another job now.
#NotAloneTalk

13.11.2025 00:24 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I've always liked musicals myself like Grease.
#NotAloneTalk

12.11.2025 20:33 โ€” ๐Ÿ‘ 4    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Lovely photo.
#NotAloneTalk

12.11.2025 20:32 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

#OCDTalkHour one of the talks at the conference was "why treatment doesnโ€™t always hit the spot first time" and I wondered if people had any experience of maybe struggling with therapy and then trying again (different therapist, different palce in life, different therapy etc.) and it going better?

12.11.2025 19:14 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 0

That's good to hear Sam.
#OCDTalkHour

12.11.2025 20:30 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I am doing way too many of my usual rituals/"harm mitigations" especially in the kitchen, but it's still better than avoidance (home cooking is better for many reasons). Also, I'm trying to stop the obsessive cleaning a couple steps sooner than before. This is aided by lack of energy.
#OCDTalkHour

12.11.2025 19:08 โ€” ๐Ÿ‘ 4    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Welcome to #OCDTalkHour! This is a weekly chat about OCD. Use the hashtag #OCDTalkHour for new threads/topics (which you can start!) or reply to existing threads.

This is the hi-how-are-you thread. Hi! How are you?

Remember this is a public forum, so only share what you're comfortable with.

12.11.2025 18:58 โ€” ๐Ÿ‘ 3    ๐Ÿ” 2    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 0
A black-and-white first aid case has purple lettering.

A black-and-white first aid case has purple lettering.

If you ever witness a convulsive seizure DO NOT put something in the person's mouth. It's physically impossible to swallow our tongue and we need that airway open. -- What's another myth about seizure first aid you've heard? #EpilepsyAwareness

More on first aid:
brainablaze.com/the-brain-ab...

13.04.2025 14:37 โ€” ๐Ÿ‘ 6    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

As soon as I was old enough and my parents informed me that I was taking medication for #epilepsy .

12.11.2025 03:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Memory challenges are a common experience for many living with #epilepsy. If you struggle with your memory, how does that struggle usually manifest? Word finding? Brain Fog? #EpilepsyAwareness

More on memory and epilepsy:
brainablaze.com/the-brain-ab...

25.04.2025 13:14 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
A mosaic of different nurses. "Join un in Thanking all of the nurses that helped so many!"

A mosaic of different nurses. "Join un in Thanking all of the nurses that helped so many!"

Nurses are often ignored, but today we celebrate their unwavering commitment to our health and well-being! -- How has a nurse helped your adaptation to #epilepsy? #NationalNursesDay #EpilepsyAwareness

06.05.2025 13:07 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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To Take or Not to Take Antiseizure Medications | Neurology Clinical Practice

To Take or Not to Take Antiseizure Medications: Patient-Centered Decision-Making About Discontinuation After Seizure Freedom @amepilepsysoc.bsky.social #epilepsy
www.neurology.org/doi/abs/10.1...

06.05.2025 14:28 โ€” ๐Ÿ‘ 7    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Ian Curtis on the cover of Joy Division album.

Ian Curtis on the cover of Joy Division album.

Ian Curtis, the lead singer for Joy Division, took his own life today in 1980 after struggling with #epilepsy and #depression. Joy Division / New Order have been nominated to the Rock and Roll Hall of Fame in 2025. -- If you're struggling, please reach out. #EpilepsyAwareness #SuicidePrevention

18.05.2025 14:03 โ€” ๐Ÿ‘ 6    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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038: Seizure First Aid - The Brain Ablaze Epilepsy Podcast We talk about all things Seizure First Aid using descriptions and data from the Center for Disease Control and Prevention (CDC).

Similarly to how we teach the Heimlich maneuver, do you believe seizure first aid should be taught in schools? #EpilepsyAwareness

brainablaze.com/the-brain-ab...

23.05.2025 13:18 โ€” ๐Ÿ‘ 4    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Having #epilepsy affects the brain, but it absolutely does not equate to being "dumber". Intelligence comes in many forms, and a neurological condition doesn't define one's cognitive abilities. -- Have people assumed your Epilepsy makes you somehow less smarter than average? #EpilepsyAwareness

27.05.2025 13:36 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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