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Paula

@paula890590.bsky.social

@encephalitisint & @ocdaction supporter/advocate epil volunteer. an OCD Advocate Advocate OCDAdvocate & I support @encephalitisint.bsk..

1,213 Followers  |  5,701 Following  |  264 Posts  |  Joined: 20.10.2024
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Posts by Paula (@paula890590.bsky.social)

@livuninews.bsky.social @liverpooluni.bsky.social @livuniresearch.bsky.social @liverpoolecho.co.uk @lincneurosci.bsky.social @meningitisnow.bsky.social @thewaltoncentre.bsky.social @nihrarcs.bsky.social @ukhsa.bsky.social

29.08.2025 08:44 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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After years of campaigning by PATIENT groups &
@brainiigroup.bsky.social, the #chickenpox #vaccine is going to be offered on the #NHS.

No longer will this only be accessible to those able to afford it.

This will save lives from #Brain #Infection #Encephalitis

@encephalitisint.bsky.social

29.08.2025 08:44 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 2    πŸ“Œ 0
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Hours after getting flu, little Lorelei succumbed to brain condition A healthy girl who doted on her cuddly Winnie-the-Pooh bear, Lorelei Cowmeadow seemed 'a bit under the weather' last November. She died a few days later - just before her second birthday.

Tragic fatal case of encephalitis from 'flu.

Medical & scientific context from us:

www.dailymail.co.uk/health/artic...

@brainiigroup.bsky.social @lincneurosci.bsky.social @liverpooluni.bsky.social @livuninews.bsky.social @livuni-ives.bsky.social @abn-info.bsky.social @thewaltoncentre.bsky.social

16.09.2025 08:07 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

Everyone has equal human rights. We always has them and always has had them.

29.01.2026 00:46 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Everyone deserves equal human rights.

29.01.2026 00:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

up all my day and evening right through till bedtime due to my contamination OCD, nonstop showering and disinfecting everything that has been outside and anything associated with or touched it.
Tomorrow I will find out when my first ERP session starts.
#OCDTalkHour

29.01.2026 00:44 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I missed #OCDTalkHour tonight because I was preoccupied with physical medical stuff arranging various medical appointments but next Wednesday I will be free for OCDTalkHour and I will try and join #NotAloneTalk on the nights when I haven't got any appointments because they take

29.01.2026 00:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

I have been on here (Bluesky) a long time now. I detest that platform X/Twitter.

24.01.2026 07:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Launch of the Pandemic Preparedness and Response SIG Launch event for the Pandemic Preparedness and Response SIG with high profile speakers from across the UK, setting out their views for the big questions in this space.

Honoured to be speaking at the launch of the new @fphuk.bsky.social Pandemic Preparedness & Response SIG with such an exceptional panel of colleagues.

Book your place on the link below.

www.fph.org.uk/events-courses-exams/launch-of-the-pandemic-preparedness-and-response-sig/

#pandemicpreparedness

19.01.2026 15:38 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Nobody's rights should be taken away from them, it's not on.

23.01.2026 21:25 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Every human in the world should have equal human rights.

23.01.2026 21:22 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join Us for the next Teen's (12-17) Online Support Group! You can register for the upcoming online support group happening this week on Thursday 15th January. The group will be led by Mia and Laura. Remember to sign up for Zoom! 😊

https://www.ocduk.org/support-groups/online/consent-form/#gf_43

13.01.2026 20:20 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1

Let’s be clear:

Young trans people play school sports for the same reason as anyone: to make friends, have fun, and challenge themselves through practice and teamwork.

13.01.2026 14:01 β€” πŸ‘ 33    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0
Submit Public Comments

Everyone needs to speak up, confront the lies, reject the scapegoating of transgender people, and loudly support trans youth.

Start by sending a comment to HHS to demand access to care without government overreach: hrc.im/Comment

13.01.2026 14:01 β€” πŸ‘ 32    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0
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Our workshops equip professionals with practical knowledge, real-world examples, and a deeper understanding of how ABI affects attention, executive function, emotional regulation, and learning. πŸ”— Book your place now: buff.ly/zO9syVP
These workshops are kindly funded by @edendoratrust.bsky.social πŸ’™

13.01.2026 14:04 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Your opinion about the leaflet β€œWhat is Autoimmune Encephalitis?” β€” healthcare professionals

Encephalitis International are inviting clinicians and healthcare professionals to complete a short survey to help review and improve patient information resources for autoimmune encephalitis. Can you help?

ls.uc.pt/index.php/65...

#encephalitis @encephalitisint.bsky.social

13.01.2026 15:34 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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National Plan for Epilepsy Act (S. 494): Plain-English Summary - Epilepsy Explained πŸ’œ National Plan for Epilepsy Act (S. 494): What It Means in Plain English Epilepsy affects millions of people in the U.S., yet research, care, and data are still fragmented across many federal agencies....

New on EpilepsyExplained: The National Plan for Epilepsy Act (S. 494) in plain English. What it does and why it matters for families.

Also added a simple β€œcontact your reps” section with copy-paste scripts so you can help. πŸ’œ

#Epilepsy #EpilepsyAwareness #Seizures #Disability #HealthPolicy

21.12.2025 19:54 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1
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1 in 5 people are experiencing pain, and in the UK over 34% of adults regularly experience chronic pain.

@benedictneuro.bsky.social and Prof. Michelle Briggs @lincneurosci.bsky.social discuss on the latest episode of Original Ideas πŸ§ πŸ’‘πŸŽ™οΈβ–ΆοΈ liverpool.ac.uk/research/original-ideas/neuroscienceandpain/

10.11.2025 11:11 β€” πŸ‘ 12    πŸ” 7    πŸ’¬ 0    πŸ“Œ 1
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James O'Reilly, a sixth form student and aspiring medical student, joined us on a work placement. He gained experience of clinical practice with @benedictneuro.bsky.social as well as lab skills with @immunecord.bsky.social. Read his blog: tinyurl.com/4usrzdvc

@lincneurosci.bsky.social

20.11.2025 16:05 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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πŸ’« LINC Synapse Award: β€˜How do signals from brain tumour disrupt brain activity?β€™πŸ’« a project linking neuro-inflammation with neuro-oncology.

Congratulations to ECRs @clairehetherington.bsky.social & Ali Bakhsh @thewaltoncentre.bsky.social

➑️ www.liverpool.ac.uk/liverpool-in...

21.11.2025 16:39 β€” πŸ‘ 5    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Fantastic to be chairing another sell out @encephalitisint.bsky.social conference! >500 people from 78 countries! THE go to conference for clinicians, academics and policy makers! @brainiigroup.bsky.social @lincneurosci.bsky.social @liverpooluni.bsky.social

03.12.2025 11:21 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

I'm proud of you and all the marvellous Encephalitis International team.

10.01.2026 22:32 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Thrilled to have our team highlighting important advances in #encephalitis, #braininfection and #neuroinflammation at the
@encephalitisint.bsky.social International Conference 🧠🌍

@benedictneuro.bsky.social @immunecord.bsky.social @sarahaimeeb.bsky.social @clairehetherington.bsky.social

05.12.2025 10:58 β€” πŸ‘ 10    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Liverpool City Region Life Sciences Roundtable 2025 Discover how Liverpool City Region is emerging as a powerhouse for health and life sciences. Read the coverage of the roundtable, where industry leaders, investors and policymakers explored…

"Liverpool City Region is emerging as a powerhouse for health and life sciences"

LINC's Director @benedictneuro.bsky.social joined other senior leaders from the life sciences sector at a recent North West Business Insider Roundtable

➑️ www.insidermedia.com/roundtables/...

15.12.2025 12:05 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0
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We closed the year with an interdisciplinary Epilepsy Workshop

Thanks to everyone who joined, especially Rosemarie Pardington from @epilepsyinst.bsky.social, & Rebekah Smith from Epilepsy Action for insight on patient perspectives & priorities .

19.12.2025 09:22 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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The chickenpox complication that left Roman in a wheelchair aged four Sociable, confident and football-mad, Roman settled in quickly when he started in reception at primary school. But all this changed after Roman contracted chickenpox, aged four, in 2022.

As the vaccine against chickenpox is added to the MMR jab in 2026, Roman's story highlights why we urge parents to protect their children.

Professor @benedictneuro.bsky.social contributed to today's article in @dailymail.co.uk

Full story: www.dailymail.co.uk/health/artic...

06.01.2026 17:09 β€” πŸ‘ 4    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0

Before the measles vaccine in 1963, measles killed 400–500 Americans each year and millions worldwide. It caused 48,000 U.S. hospitalizations and 4,000 cases of encephalitis annuallyβ€”often leading to severe or permanent brain damage.

05.01.2026 11:49 β€” πŸ‘ 9    πŸ” 7    πŸ’¬ 0    πŸ“Œ 0

Good luck on Wednesday with your GP.

10.01.2026 22:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I just saw it.

10.01.2026 21:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Hi Catherine, I have a brain injury and chronic OCD. I'm a part of the disability community.
Welcome to Bluesky.

10.01.2026 21:52 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0