Charities in action: tackling rare diseases
Published: 29 February 2024 AMRC members account for half of public investment in UK rare disease research, funding across the pipeline from fundamental science to clinical trials. But charities bring...
Tomorrow is #RareDiseaseDay and we want to highlight the vital impact of our members in the rare disease community.
Our Charities in Action report shows how charities are improving diagnosis, transforming clinical trials, accelerating access to treatments and more.
π bit.ly/4aISLWy
27.02.2026 15:34 β
π 2
π 0
π¬ 0
π 0
AMRC member @vivensa.bsky.social recently published an report on the gaps, challenges, and opportunities within the field of ageing-related research. Read our latest blog, by the charity's Senior Communications Manager, Rebecca Perl, to find out more. bit.ly/4aRzxOu
25.02.2026 13:39 β
π 1
π 0
π¬ 0
π 0
AMRC pan flipping three pancakes with text: "Β£1.6 billion was invested by AMRC charities in UK medical research in 2024; Over 25,000 researcher salaries were funded by AMRC charities in 2024, including 9000+ early career researchers; 1,216 research posts in the NHS were funded by 79 AMRC charities in 2024, including doctors, nurses and midwives.
While stacking our pancakes this #PancakeDay, weβre celebrating how our membersβ contributions stack up to make charities one of the largest funders of medical research in the UK. π₯π¬
17.02.2026 09:53 β
π 0
π 0
π¬ 0
π 0
Events Coordinator
Salary: £35,000 - £38,000 depending on experience. Full-time. Fixed term (3-6 months with possibility of extension, secondments welcome) Location: Hybrid working (home and office in centra...
π’AMRC job opportunity - Events Coordinator
We're looking for someone to join our team for 3-6 months to help us plan and deliver our busy 2026 events programme. Find out more and apply on our website.
bit.ly/40aeKRk
13.02.2026 15:02 β
π 0
π 0
π¬ 0
π 0
Consented cohorts such as @ukbiobank.bsky.social, Genomics England and Our FutureHealth will now be able to make use of health data from people who have agreed to their GP records being used in research.
Read our response β¬οΈ
11.02.2026 13:18 β
π 4
π 2
π¬ 0
π 0
Each year our charities provide us with their research expenditure and grants data.
It is vital to the work that we do. AMRC members - donβt forget to submit your charityβs data by 2 March.
Find out more β‘οΈ www.amrc.org.uk/annual-data-collection
09.02.2026 14:28 β
π 0
π 0
π¬ 0
π 0
Data Intern
Salary: £27,000 (pro-rata) Location: Hybrid working (home and office in central London, WC1) Closing date: 15 February 2026 About the role AMRC exists to support our members to be as effective a...
π¨New vacancy π¨
We're looking for a #data intern to join our team for six months. This is a great opportunity to gain hands-on experience working with real-world data in a medical research and funding context.
Find out more and apply π www.amrc.org.uk/data-intern
02.02.2026 12:19 β
π 1
π 0
π¬ 0
π 0
AMRC holds 2026 Medical Research Charity Showcase
Published: 29 January 2026
This weekβs AMRC Medical Research #CharityShowcase brought together 60 of our members, along with MPs and Peers from across political parties, and representatives from the life sciences sector to showcase charity research and discuss the vital role charities play.
You can read our news story hereβ¬οΈ
29.01.2026 12:50 β
π 2
π 1
π¬ 0
π 0
βCharities remain at the forefront of the shift to prevention.β
@zubirahmed.bsky.social, Minister for Health Innovation and Safety, wraps up the #CharityShowcase speeches. Highlighting the impact and importance of the charity sector in achieving the governmentβs three shifts.
27.01.2026 15:39 β
π 2
π 0
π¬ 0
π 1
Host and Chair of AMRC @drlouisewood.bsky.social welcomes attendees at our #CharityShowcase 2026.
27.01.2026 14:27 β
π 3
π 0
π¬ 0
π 0
Weβre all set up and look forward welcoming AMRC members, MPs and Peers to our #CharityShowcase this afternoon in the Terrace Pavillion.
27.01.2026 13:29 β
π 2
π 0
π¬ 0
π 0
HDRS Workshop. In-person event for AMRC members 3 February 2026. To better understand what charities and charity-funded researchers need from the Health Data Research Service, and to help inform AMRC's work. www.amrc.org.uk/events
Have you signed up to our Health Data Research Service workshop? π
Taking place at the AMRC offices on 3 February, the event aims to better understand what charities and charity-funded researchers need from HDRS to help inform AMRC's work.
Find out more and register on Eventbrite: bit.ly/4sTEte8
20.01.2026 10:31 β
π 0
π 0
π¬ 0
π 0
Did you know? Together, AMRC member charities contribute Β£1.6 billion to medical research in the UK.
Did you know that AMRC member charities contributed Β£1.6 billion to UK medical research in 2024?
You can view more statistics like this in our infographic: bit.ly/3MLf45B
Thanks to your annual data submissions weβre able to produce these infographics to highlight the value of the sector.
19.01.2026 11:17 β
π 1
π 0
π¬ 0
π 0
Annual data collection
Each year we ask our members to provide us with their research expenditure and grants portfolio data. The 2026 annual data collection has begun. We've sent out an email to each charity formal rep...
AMRC charities, itβs that time again: new year, new data collection! π
Weβve sent your Formal Rep an email asking for your research expenditure and grants data. π©
Your charity must submit this data by 2 March. ποΈ
β‘οΈ www.amrc.org.uk/annual-data-collection
14.01.2026 10:49 β
π 0
π 0
π¬ 1
π 0
π’ Our annual data collection has begun! π’
Weβre collecting grants, research expenditure and activities data from all our member charities to help us demonstrate the vital role of the sector and understand what you'd like us to focus on in the future.
β‘οΈ bit.ly/4qnGCNx
13.01.2026 12:16 β
π 0
π 0
π¬ 0
π 0
Image of researchers pointing at a tablet. Accompanying text reads: βMake your impact visible. Find guidance and examples to help you share the impact of the research you fund.β
Looking to share the impact of the research you fund in the coming year? Check out our research impact resource hub for guidance. π
www.amrc.org.uk/research-impact
06.01.2026 15:12 β
π 1
π 0
π¬ 0
π 0
LinkedIn
This link will take you to a page thatβs not on LinkedIn
πThe AMRC festive countdown finale!π
Week 4: Thank You
To all our members - your impact this year has been incredible. We hope you enjoy a well-earned rest over the holidays!
βοΈYou can learn more about each of our members on our website.
www.amrc.org.uk/meet-our-mem...
22.12.2025 10:15 β
π 0
π 0
π¬ 0
π 0
Image of Aisling Burnand with text: Aisling Burnand award 2025. Congratulations to this yearβs winner Yorkshire Cancer Research. www.amrc.org.uk/aisling-burnand-award
Congratulations to the Aisling Burnand Award 2025 winner @yorkshirecancer.bsky.social!π
Read more about their winning entry in our news story. bit.ly/48uyiVG
11.12.2025 12:04 β
π 0
π 0
π¬ 0
π 0
We always love to see positive medical research news, but especially so when it involves AMRC members π°
@braintumourrsch.bsky.social was in the news last week after announcing Β£2.8m of funding for research which "could change the outcome for patients with brain tumours."
Read more π
08.12.2025 14:08 β
π 2
π 0
π¬ 1
π 0
AMRC Supporter @researchconsulting.bsky.social has published a new quarterly roundup of their activities and insights from the last few months. Find out more and sign up to receive future updates π
05.12.2025 15:09 β
π 0
π 0
π¬ 0
π 0
A person writing in a notebook at a table with a laptop and a coffee cup β with text: βRead blogs from AMRC member charities and supporters, sharing best practice, case studies, and insights from across the medical research sector.β
Did you know we publish blogs written by our member charities and supporter organisations?
These blogs share best practice and case studies, covering a range of topics: from drug repurposing to Priority Setting Partnerships.
See for yourself! βοΈ www.amrc.org.uk/blogs
03.12.2025 16:46 β
π 0
π 0
π¬ 0
π 0
UK industry clinical trials: Translating actions into impact
The ABPI annual clinical trials report is an important barometer of the UKβs competitiveness in attracting industry trials over time.
@abpi.bsky.social has published new analysis of UK industry clinical trials. We welcome the increase in trials and the UK's global competitiveness ranking, but it's clear that more needs to be done to to increase the speed of recruitment, and the numbers and diversity of participants. bit.ly/48gnyKo
02.12.2025 14:35 β
π 0
π 0
π¬ 0
π 0
Nicola Perrin, Chief Executive of the Association of Medical Research Charities, said:
"Our member charities repeatedly tell us that the people they represent donβt have the luxury of time. Todayβs announcement is an important step to ensure that patients can access innovations as quickly as possible. It will help cement the UK as one of the best places in the world to discover, test and roll-out new treatments.
"We look forward to working with the Government and NICE to ensure that new ways to assess the value of medicines recognise the wide-ranging economic impacts of diseases on patients and their families, and the wider benefits they bring to society, the NHS and the economy."
βTodayβs announcement is an important step to ensure that patients can access innovative treatments as quickly as possible."
Read our full response to the UK and US governments' announcement of a new deal on pharmaceuticals. π
bit.ly/4iEvQPW
01.12.2025 17:31 β
π 4
π 0
π¬ 0
π 0
The room before the meeting with a slide showing the UK3CR logo
A table feeding back ideas from a breakout discussion
People chatting during a break
Our roundtable Q&A panelists
Thank you to everyone who joined us for the inaugural UK3CR meeting yesterday - in particular to our excellent speakers! We found the discussions incredibly valuable and hope you did too.
28.11.2025 16:34 β
π 2
π 0
π¬ 0
π 0
Pippa presenting
Glen presenting
Chris presenting
Dr Pippa Corrie introduced the meeting by exploring 'What's in it for you, what's in it for us?', before UK3CR Programme Manager, Glen Saffery, and AMRC Director of Research and Impact, Chris Macdonald, provided updates on progress so far and governance.
27.11.2025 10:47 β
π 0
π 0
π¬ 1
π 0
Slide showing UK3CR logo
Attendees arriving at the event
We're welcoming attendees to our inaugural UK Collaborative for Cancer Clinical Research event this morning! The meeting will establish the terms of membership, and we'll discuss key questions on strategic opportunities and challenges for UK cancer clinical research.
27.11.2025 10:05 β
π 0
π 0
π¬ 1
π 0