Itβs a very apt description!
01.05.2025 14:12 β π 1 π 0 π¬ 0 π 0@emmadimps.bsky.social
Likely to post about: learning disability, epilepsy, caring, lived experience in research, rural life, the menagerie, and cocktails.
Itβs a very apt description!
01.05.2025 14:12 β π 1 π 0 π¬ 0 π 0Thread. It is a great honour to announce the shortlist for the 2025 #Curae prize for unpaid carers
POETRY CATEGORY
Mistletoe. Sam Garvan
Diagnosis. Elizabeth Loudon
Sinkhole. Charlotte Ansell
I Love Him (like salt and water). Emma Wilson
The Shop at the End of a Wave. Ia Kozoboli.
thecuraeprize.uk
βBut talking about my daughter feels like the most important thing I can do. She mattered because she was here and she was exceptional.β
What a beautiful and heartbreaking and important piece of writing this is.
This is a new image from #JWST.
The bright points with spikes are stars in the Milky Way.
Everything else is a galaxy.
Everything. Else. Is. A. Galaxy.
This is so beautifully written and so completely true and I agree wholeheartedly with all of it π«ΆπΌ
27.04.2025 10:37 β π 1 π 0 π¬ 1 π 0π§΅ I want to tell you why I think this is one of the most important prizes running and Iβm sorry that the book press and mainstream publishing hasnβt dived on it with bells on and support β¦
27.04.2025 06:52 β π 7 π 2 π¬ 2 π 0Yes! For me, at least, making publishing the goal changes the purpose - I rarely get to do things just because I want to, and this offers a way to practice and learn without the focus being on βthe outcomeβ. Also, doesnβt rule out publishing for anyone who then wants to explore it later.
24.04.2025 09:12 β π 0 π 0 π¬ 1 π 0LOVE the sound of this!
24.04.2025 08:34 β π 0 π 0 π¬ 1 π 0"This book is both heartrending and gorgeous. It crosses the line many times but, ultimately, itβs about love. He teaches us humanity."
Miriam Margolyes
Published June 5th, available for preorder now.
I hope you find something (love a dawn chorus but pain free (ish) sleep is preferable)
16.04.2025 07:00 β π 2 π 0 π¬ 1 π 0π«ΆπΌ
15.04.2025 11:03 β π 0 π 0 π¬ 0 π 0Strongly resonates with me. I finished my MSc in 2021 and any writing I have done since has been work related - even when unpaid, I somehow legitimise this whereas I struggle to do so with personal writing.
26.03.2025 08:58 β π 1 π 0 π¬ 0 π 0Brilliant, thanks. I will experiment!
26.03.2025 08:43 β π 0 π 0 π¬ 0 π 0Ooh, do you use cashews? Iβm off to gather some of our stuff today and I usually use pine nuts but would be very interested to know what cashews do!
25.03.2025 11:29 β π 0 π 0 π¬ 1 π 0Amy in a love heart frame. Amy is smiling and has auburn hair and bright eyes
On SNJ Today: Our post today remembers βfierce, funny and fabulousβ Amy Reyes, the daughter of our columnist, @catrionamoore.bsky.social & @edreyesjourno.bsky.social whose funeral was today. You can donate to Amyβs hospice #DemelzaCharity at the link in the post.
www.specialneedsjungle.com/r...
Itβs a very easy to use and well composed template. Collective action is all we have right now folks π
20.03.2025 08:37 β π 1 π 2 π¬ 0 π 09 small freezer bags with pieces of damp folded kitchen towel wrapped around chilli seeds, all labelled in marker pen according to the seeds are sitting on a kitchen worktop. Each one is a different variety - there is a bag each of Centi, Aji, Pink Tiger, Orange Habanero, Habareaper, Kashmiri, Curry, Jamaican Yellow and Tequila (a sweet pepper).
Chilli germinating season is upon us πΆοΈ π
17.03.2025 20:31 β π 0 π 0 π¬ 0 π 0Every journo who bangs on about the ease of falsely obtaining PIP: go on then.
11.03.2025 11:56 β π 502 π 166 π¬ 17 π 13I was invited to contribute to an academic text 5 yrs ago, so I said my piece in a publication that I thought was high quality and written for a professional readership (in hopes of going beyond the echo chamber). And I kind of retired after that. 20+ years of no change is evidence enough.
10.03.2025 08:49 β π 1 π 0 π¬ 1 π 0Genuinely think no caregiver at the start of their βjourneyβ wants to believe it can be as awful as more experienced caregivers tell them. I think professionals (including thinkers in that) have a variety of different reasons for what they choose to get on board with.
10.03.2025 08:41 β π 1 π 0 π¬ 0 π 0Also, youβre bloody great and definitely no horrible things to highlight π
09.03.2025 08:13 β π 2 π 0 π¬ 0 π 0Sadly, Iβm even more cynical (if thatβs possible). I tend not to comment on any Education related topic because I donβt see thereβs much point, but I think your comment could too easily be overlooked when, in fact, it exemplifies the whole miserable state of things.
09.03.2025 08:11 β π 1 π 0 π¬ 2 π 0The most horrible thing about that Jarlath, is that itβs not remotely surprising.
09.03.2025 07:31 β π 2 π 0 π¬ 0 π 0Makes me think of Damian Miltonβs excellent work on βwhat exactly are interventions intervening withβ?
Infuriating that we are still saying the same things over a decade on.
In preparation for βI Open My Own Front Door, Do You?β launched today, I asked people to share what βfront doorβ means to them. The blog is about what people told me - beautiful, heartfelt, thoughtful quotes.
www.gloriouslyordinarylives.co.uk/gloriously-o...
@learningdiseng.bsky.social
On the left of the image is a normal X chromosome the extremities of which are smooth. To the right is a Fragile X chromosome showing the fragile sites on the bottom two branches of the X. They are constricted and look as if someone has tied a tight rubber band around them.
For #RareDiseaseDay, here's a series of posts I wrote a while ago about how #FragileX Syndrome affects our family.
#FragileX is a chromosomal abnormality & is the most common form of inherited learning disability. It's called Fragile X as the end of the chromosome looks like it's about to drop off.
Such cruelty at the hands of the system #carers www.theguardian.com/society/2025...
27.02.2025 09:27 β π 0 π 2 π¬ 0 π 0As well as showing deep systemic failures, this piece is so devastating and terrifying to me as the parent and full time carer for an adult child with epilepsy.
The sheer lack of understanding outside of specialist services is truly unacceptable.
What a heartbreaking and needless loss of life.
Why is it important that #Curae exists?
17.02.2025 08:34 β π 8 π 3 π¬ 0 π 0I have many pieces of @beckyrwhin.bsky.social beautiful artwork and would encourage everyone to take a look through her back catalogue as she captures the essence of things in a remarkable way.
16.02.2025 09:33 β π 1 π 0 π¬ 1 π 0