Daniel Lewis

A black and white photo of a dark room. The room’s door is partially open and shows a view of a bright hallway. The light from the hallway lits part of the floor.

For some reason, I haven’t photographed the door of my room. Maybe it is because I’m always faced the other way around. 1/5

#Photography #MECFS #pwME

The political world of caregiving Writer and scholar Laura Mauldin's new book takes on the hidden politics of spousal care.

I had the pleasure of talking to @lauramauldin.bsky.social about her new book “In Sickness and In Health,” which delves into spousal caregiving, including in ways our political system is not set up to help caregivers not burn out, at @motherjones.com.

www.motherjones.com/politics/202...

$35 for me

bought it! thanks for the tip

1) Prof. Scheibenbogen announced that the biopharma company Sanofi is willing to support a drug trial on ME/CFS led by the Charité.

Sanofi also expressed an interest in gaining a better understanding of the disease and its mechanisms.

A List of Things Said to Have Been Ruined by Women

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picked up Inscryption for this past weekend. kind of hard!! but i think it’s meant to be

ain’t nothing wrong with that. take a look at Tiny Bookshop if you want to mix it up. it’s the most creative cozy game i’ve played in a while

so addicting!!

this was the first game i bought for my Switch and i have zero regrets

except for maybe when i think of how i felt that day when i felt that way that i do right now

i feel fantastic and i’ve never felt as good as how i do right now

A Condition Took Away The Use Of My Hands. Silksong Helped Me Rehab Them - Aftermath Last year I woke up with the hands of an alien. Every item I grasped fell to the floor like so many grains of sand; every doorknob became a lock I couldn’t open. It didn’t hurt, but hundreds of dollar...

it feels so good to write again, to play games again, after the worst year of my life. i picked a ridiculous game (that i love!) to relearn controller skills with, but taking my time makes it possible
aftermath.site/silksong-hol...

how dare you, this is just value engineering

“I feel like I’m reading the rules to a board game” 💀💀💀

So fascinating that inverting

- Y only is like using a joystick in flight sims
- both X and Y is moving a camera in third-person adventure games
- neither X nor Y is like embodying the character’s head in first-person shooters

Which you invert depends on which type of game most influenced you

The iWalkFree 3.0 prosthetic-like hands free crutch. A person's lower body is shown in robins egg blue sweatpants. Their left leg is wearing a sensible flat, like TOMS. Their right leg, is affixed at a 45 degree angle, with a boot on it. The leg is then strapped into a T-shaped device that extends where the knee is bent, approximating a lower leg in a way similar to a prosthetic peg leg. The device is affixed to the leg at 3 different points with several straps and blue buckles. The strap around the thigh is tightened and adjusted with 2 knobs to adjust for the circumference of the thigh. There is an adjustment tab right below the knee for length which allows the lowest part of the device to be lengthened. The "foot" of the device looks somewhat like a the head of a golf club driver. The details are a vivid blue save for the "iWalk" text on the fabric strap that restrains the front of the thigh, next to a blue logo of a person walking.

The iWalkFree is a well made product that lets you kinda walk if, like Chris, you have broken several bones in your foot. aftermath.site/iwalkfree-revi...

You can learn more about capillaroscopy and how it's being used in our clinical study MAESTRO, as well as other technologies if you scroll through this thread here of short explainer videos by Caleb Rother, and undergraduate researcher in my lab: bsky.app/profile/immu...

Incredibly exciting diagnostic tool potential — @immunofever.bsky.social MIT team is doing nailfold capillaroscopies on #LongCovid patients before and after a NASA lean test, and said the results have been incredibly striking compared to controls.

My results were very abnormal !

Mr. Perry’s hallucinations, induced by the powerful psychotropic drug ibogaine he had taken about 45 minutes before putting on his eye mask, continued for more than 12 hours. The experience was an ordeal. He vomited intermittently and lost much of his body coordination. It took all of Wednesday to recover. But on Thursday morning, Mr. Perry recalled in describing his experience publicly for the first time, “I woke up very clearheaded, with this very warm feeling in my body. I was as calm and as happy as I’d been in memory.”

could ibogaine treat #LongCovid? it looks like it could work on a range of neurological conditions

warning: may cause ataxia, tremors, or nausea. in rare cases, may cause paralysis, seizures, mania, persistent hallucinations, respiratory failure, or heart failure

www.nytimes.com/2025/08/11/u...

satisfied seal image macro with text “me in the morning after 32 oz. of trioral”

i.imgflip.com/a2pruy.jpg

i really don’t need a customer service voice bot to have vocal fry

ABSTRACT Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a common, poorly understood disease that has no effective treatments, and has long been underserved by scientific research and national health systems. It is a sex-biased disease towards females that is often triggered by an infection, and its hallmark symptom is post-exertional malaise. People with ME/CFS often report their symptoms being disbelieved. The biological mechanisms causing ME/CFS remain unclear. We recruited 21,620 ME/CFS cases and performed genomewide association studies (GWAS) for up to 15,579 cases and 259,909 population controls with European genetic ancestry. In these GWAS, we discovered eight loci that are significantly associated with ME/CFS, including three near BTN2A2, OLFM4, and RABGAP1L genes that act in the response to viral or bacterial infection. Four of the eight loci (RABGAP1L, FBXL4, OLFM4, CA10) were associated at p < 0.05 with cases ascertained using post-exertional malaise and fatigue in the UK Biobank and the Netherlands biobank Lifelines. We found no evidence of sex-bias among discovered associations, and replicated in males two genetic signals (ARFGEF2, CA10) discovered in females. The ME/CFS association near CA10 colocalises with a known association to multisite chronic pain. We found no evidence that the eight ME/CFS genetic signals share common causal genetic variants with depression or anxiety. Our findings suggest that both immunological and neurological processes are involved in the genetic risk of ME/CFS.

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Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome

Full preprint can be read for free here:
www.research.ed.ac.uk/en/publicati...

#MEcfs #PwME

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YouTube video by DecodeME DecodeME Initial DNA Results

Breaking NEWS: 🚨

#DecodeME has discovered 8 possible genetic predispositions in the genes of #MEcfs patients that are not found in the control group.
youtube.com/shorts/0S5u8...

consulted with a new functional medicine doctor who suggested
- brain retraining
- semax
- extracorporeal blood oxygenation and ozonation or other IV ozone therapy
- therapeutic plasma exchange
- testing for and treating potential mold toxicity

COVID-19 re-infection doubles risk of long COVID in kids, young adults, data reveal The second infection was also tied to a 50% or greater increase in several specific long-COVID conditions, including myocarditis and fatigue.

We see officials saying #COVID cases are rising but healthy kids don’t need to worry. This study found reinfection doubles the risk of Long COVID in kids.

Sincerely, families who believed you when you said our kids weren’t at risk — and now they’re disabled.

curious what your criticism is. their approach seems to be “whether we like it or not, many students and even some teachers are using LLMs. here’s how we should make sense of and respond to that reality”

or a side effect of a treatment lmao

Labor Department moves to end disability hiring goal for federal contractors Secretary Lori Chavez-DeRemer plans to axe a longstanding, successful incentive program for disabled workers.

Great article from @juliametraux.bsky.social in @motherjones.com on the Trump administration ceasing to monitor disability inclusion & axing the 7% goal for govt contractors.

After COVID, there are more highly-qualified working disabled people than ever before.

www.motherjones.com/politics/202...

*four empty extra-large pill organizers FTFY