My teenager and I had a cold this July. They started showing signs of MECFS at the end of the cold. They have steadily deteriorated since then and are now severe.
26.11.2025 21:56 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0@jcontraire.bsky.social
Interests: Civility | Democracy | Long Covid | ME/CFS | MCAS | Autism | PDA | Alexithymia | Repost/Follow/Like doesn't imply endorsement
My teenager and I had a cold this July. They started showing signs of MECFS at the end of the cold. They have steadily deteriorated since then and are now severe.
26.11.2025 21:56 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0๐๐๐
24.11.2025 00:42 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0Here you go.
23.11.2025 17:17 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Thank you. Literally everyone I'm related to cooks better than I do.
I keep hoping though! I'll use your recipe for New Year's Day. TY ๐
Black eyed peas, ham hock, salt, pepper. I think I see a jalapeรฑo in there. Anything else, if it's not a secret?
23.11.2025 04:38 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0I wish I could cook like that!
23.11.2025 02:50 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0He would've been destroyed if he went after the Bush admin.
There was much less support for that then compared to now, plus racism.
Pple historically haven't had Dems backs, even on important things. They don't elect enough for them to pass legislation, etc.
Collectively, you get what you vote for.
For anyone unaware of real antisemitism, please view this video. The accusation that Jews consume blood/body parts goes back CENTURIES. It's been a convenient distractive narrative for anyone trying to deflect attention from leadership failures, etc.
People die over this lie.
Don't fall for it.
I've imagined that repairman (does repairperson exist?) would fall into this category. Every job is in a new location. There's a variety of problems to analyze and fix. Quite a bit of autonomy in deciding how to handle repairs. It's generally acceptable to arrive hours later than promised.
22.11.2025 22:53 โ ๐ 4 ๐ 0 ๐ฌ 0 ๐ 0This sounds like you're giving her a compliment. There's no silver lining in consistently being a terrible person.
And excuse me if I doubt this is a true departure. This is setting the stage for her next act.
๐ฏ
22.11.2025 04:53 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0๐ฏ
19.11.2025 06:03 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0He attacked a People reporter in 2005 when Melania left the room. It would be nice to think they learned something from that and are standing up for their employee.
people.com/politics/don...
Matt Gaetz was one of her besties in Congress. This has nothing to do with caring about victims.
19.11.2025 04:41 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Screenshot of the top of a Bsky feed, with a red circle around the hamburger menu in the top left.
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18.11.2025 20:00 โ ๐ 14 ๐ 14 ๐ฌ 0 ๐ 0Thank you for your continued support and highlighting these issues. I always look forward to your posts for kindness and understanding of what we're going through.
18.11.2025 22:11 โ ๐ 7 ๐ 0 ๐ฌ 0 ๐ 0It's probably more that humans are social animals and have an innate need to belong to a group, particularly a dominant group, even when it's not good for that person as an individual. We are frequently irrational on an individual level.
18.11.2025 21:59 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0If there's anything they like more than misogyny, it's owning the libs, and this would accomplish that in 2 ways:
They know libs can't stand her.
They know libs want to have the first woman president.
It would be catnip for them to elect her President.
Was she not paying attention when Epstein crossed him?
16.11.2025 02:05 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Thank you for this information. It's helpful to know what's not appropriate.
15.11.2025 05:44 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0past 4 months has gone from being able to travel around the world to almost bedbound.
Maybe this could be a topic for your YouTube show?
Thank you!
@kaufmanmd.bsky.social, are you aware if anyone is researching low-dose rapamycin for pediatric use in MECFS or Long Covid patients? Or any other promising medications?
I'm fairly new to this. I've been ill for almost 4 years. My teenager has had reduced energy the same length of time, but in the...
If it's clear that the treatment group is doing markedly better than the placebo group, would the placebo group also be given the treatmnt? I'm thinking about, among other things, ethics of having sick ppl continue to suffer for a year. I know no one wants that, but establishing data is important.
14.11.2025 22:55 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0๐๐๐
09.11.2025 20:27 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I guess Oct 7th was Russia's wedge 2.0, and it worked again. When will we learn?
09.11.2025 06:32 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Misogyny apparently doesn't end with death. Anyone surprised?
08.11.2025 02:38 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Recommended for those following MECFS scientific history. Approximately half of all Long Covid patients meet MECFS criteria, so it may be interesting for you too.
08.11.2025 02:20 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0Non fascist leaders are at least vulnerable to public pressure. We can usually make them do the right thing, or have the other lawmakers constrain them. Not easy or pleasant, but better than fascism. The fight for people's rights is never over.
06.11.2025 20:14 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0I noticed that as well.
Probably not a good sign if a person is suspected of having increasing dementia.