Seethal Jacob, MD, MS

Disappointed w/new commercial form of #hydroxyurea - Xromi by #RareDiseaseTherapeutics. 👎👎

1. No communication to clinics/ppl living with #sicklecelldisease & what it means for them:
- 10x the💰
- frequent prior auths

2. Safety info discusses side effects in myeloproliferative disease, NOT SCD

Heavily co-sign all of these but babies don’t need chiropractors is a truth deep from my soul

The sig of a month focused on BOTH sickle cell disease & childhood cancer isn’t lost on me as a PHO doc. Esp in current state.

Both vulnerable & need our collective voices so they don’t become invisible.

As PHO team members our words hold POWER. Let’s not leave any child we care for behind.

Disappointed w/new commercial form of #hydroxyurea - Xromi by #RareDiseaseTherapeutics. 👎👎

1. No communication to clinics/ppl living with #sicklecelldisease & what it means for them:
- 10x the💰
- frequent prior auths

2. Safety info discusses side effects in myeloproliferative disease, NOT SCD

Overnight Congress approved the big beautiful bill cutting Medicaid, which insures nearly 1/2 of all kids.

You may think this won’t affect you but it will.

More uninsured means crowded ERs, closing practices, higher costs & longer waits.

Call your senators to tell them how ugly this bill is.

Map of the U.S. showing voter support for cuts to the Supplemental Nutrition Assistance Program (SNAP, or food assistance) by congressional district. Support for SNAP cuts ranges from 5% to 14%. Created by Data for Progress.

There is not a single congressional district in the U.S. where more than 15% of voters support cuts to SNAP, the federal program that provides food assistance to millions of low-income Americans.

Had a great time as faculty at the @ash.hematology.org sickle cell disease centers workshop.

An absolute necessity for improving #accesstocare for individuals living with #sicklecelldisease.

Peds Sickle Cell Team representing at PAS! #PAS2025

Medicare stops access to #Telehealth April 1st for almost all. [Even rural pts must drive to a 🏥 office 1st & THEN get telehealth.]

This will lead to:
1️⃣ less access to specialty care
2️⃣ poorer outcomes
3️⃣ higher costs for people with cancer

#Telemedicine was a step forward. Let's not fall back.

I repeat…check on your research friends. They are not well. 😞

I know 😫. And they did so well in Episode 2, but this was an opportunity missed 😭

Check on your research friends.

They are not well.

All NIH study sections canceled indefinitely. This will halt science and devastate research budgets in universities.

No study section...no grant reviews
No grant reviews...no grants awarded
No grants awarded...no research
No research...no functional NIH

When your team has grown so much, you can’t fit them in one shot 🤩

We took time away last week to remind ourselves of why we do what we do, celebrate our successes and plan for the future. Proud of this team and what they’ve accomplished.

#teamwork #sicklecell

Amazon One Medical sued after patient prescribed inhaler dies in ER A lawsuit filed by the family of Philip Tong, 45, claims he was experiencing severe emergency symptoms that staff at Amazon One Medical should have recognized as life-threatening.

Amazon's One Medical #Telemedicine Program being sued should not come as a surprise to anyone. I'll sing telemedicine's praises from the rooftop, but it, like anything, has its limitations. No cutting corners in provider knowledge or expertise.
healthexec.com/topics/healt...

I did this year, but this might be my last MOC cycle…

The best dog 🥰

Yes, next time! ❤️

I can’t believe this happened! Glad you’re ok!

Thanks again for a wonderful time with friends and colleagues, @ash-hematology.bsky.social. #ASH24 was a hit! Until next time, San Diego 👋🏽

Yes, she did! She’s a superstar!

Be sure to check out this presentation today at 445, Room 30 on use of an ED protocol with Intranasal Fentanyl in #sicklecelldisease presented by Dr. Olufunke Martin! #ASH24

The fog is delaying the start to our #ASH24 festivities 😫

This is what #advocacy can do! The medical community and legislators coming together to push back on the monopoly that is health insurance.

Insurers should have NO influence on whether a family can choose a life-saving procedure.

@shematologist.bsky.social @robyncohenmd.bsky.social @pedshemedoc.bsky.social

go.bsky.app/NRkiHT

Thought we needed to put one together before #ASH24!

Please share so we can grow this group.

Excited to see everyone at #ASH24 this week!

#HemeSky

@shematologist.bsky.social @sicklecelldoc.bsky.social do we need this for PHO/HemeOnc?? Still learning who all is here