Professor Jonathan Koffman

With thanks to the team: @jonathankoffman.bsky.social, Helene Elliott-Button, Emeka Chukwusa, @jamillahussain1.bsky.social, @sbajwah.bsky.social, @joannamdavies.bsky.social, @felicitydewhurst.bsky.social, @gemma-clarke.bsky.social, Zoebia Islam, @lizdzeng.bsky.social, Rashmi Kumar

Principles for developing, undertaking, and reporting research with minority ethnic populations in palliative and end of life care: A modified Delphi study - Helene Elliott-Button, Emeka Chukwusa, Jam... Background: Minority ethnic populations face persistent inequities in end-of-life care, yet research often fails to capture these disparities due to methodologi...

Read the paper and 13 consensus-based principles for better research now in Palliative Medicine: journals.sagepub.com/doi/10.1177/...

NEW PAPER People from minority ethnic groups face inequities in palliative and end-of-life care, yet research methods often fail to capture them. We worked with patients, carers, clinicians, and researchers to develop 13 principles for better research on ethnicity in palliative care. #palliativecare

With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar, @gemma-clarke.bsky.social Tanya Siriwimala,
@jonathankoffman.bsky.social

Our new study in The British Journal of Cancer shows ethnic inequalities in opioid prescribing for cancer pain at the end of life. www.nature.com/articles/s41...

www.hyms.ac.uk/research/res... @proflizwalker.bsky.social @jonathankoffman.bsky.social

With Emeka Chukwusa, Sophie Law-Clucas, Martin Gulliford
@sbajwah.bsky.social Stephen Barclay, Rashmi Kumar,
@gemma-clarke.bsky.social Tanya Siriwimala, @jonathankoffman.bsky.social

Parents’ experiences of the financial and employment impacts of their child receiving end-of-life care: a national qualitative study - BMC Palliative Care Background Bereaved parents are at higher risk of poor mental and physical health outcomes than people bereaved under other circumstances. These challenges are exacerbated by the continued effects on ...

@wolfsonpallcare.bsky.social
Bereaved parents face lasting financial strain—juggling work, delayed benefits, and sudden loss of support like DLA. We need consistent practical help from healthcare, faster benefits, and tailored job support. #BereavementSupport #ChildLoss

It still concerns me that the only direct consultation with marginalised groups on the #AssistedDyingBill has been the tiny bits I’ve done

I summarise the key findings here

MPs must not take the silencing of these groups as reassurance

#AssistedDying
@katiewhitemp.bsky.social

Community nursing colleagues in the UK - please could you help with our short survey. We have 1300 participants and keen to reach 1400 if we can

Please share too! Survey:
cambridge.eu.qualtrics.com/jfe/form/SV_...

@theqicn.bsky.social @arc-southlondon.bsky.social @arceastofengland.bsky.social

When you were considering being offended at being called a nerd last week
……but you’ve spent the weekend at a #Lego fayre & find yourself excited to take your Dr Hibbert (& his little x-ray! 🩻) to the hospital to show your friends 🏥 🩺
…..& realise its true 🤓😆
#NerdsAreCool 😎

Well done Tara 👏👏👏

Presenting her #PhD #Research
- with a poster at #EAPC2025 on Patient-centred education for assessing & managing cancer #pain for patients from ethnic minority groups

With supervisor @jonathankoffman.bsky.social

Team
@wolfsonpallcare.bsky.social 🙌

#Ethnicity #Inequalities

Smiles all around at the team @wolfsonpallcare.bsky.social @hyms.ac.uk stand at #EAPC2025 in #Helsinki 🇫🇮

We’re all friendly, come by & say hello ☺️
#PalliativeCare #Hpc #hapc #Research
@jonathankoffman.bsky.social @flissmurtagh.bsky.social @sophiepask.bsky.social @miriamjohnsonhyms.bsky.social

Really looking forward to this!

🎉 Delighted to see Fuse Senior Investigator @profbambra.bsky.social elected as a Fellow @acmedsci.bsky.social! A prestigious and well-deserved recognition of her outstanding contribution to public health research understanding and reducing health inequalities, both in the North East and beyond. 👏

How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivat... Background: Family caregivers play a vital role in supporting patients at the end of life, a role that can impact their own well-being. Healthcare professionals...

Family/friend caregivers are an important source of support- but who cares for the #carers?

We #CoProduced a family diary to support carers in making their voices heard when someone is dying
We report the process over the past few years here

#PalliativeCare

journals.sagepub.com/doi/10.1177/...

Photograph of out family’s voice diary which has red Japanese maple leaves on the cover, in front of a Japanese maple tree

PDF of the article

📣 Our 🆕 paper published today in #PalliativeCare & Social Practice 📕 #OpenAccess 🔓

“How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivation” #HaPC

One of the (many) take home messages being that people struggle to communicate about death and dying - even healthcare professionals

As a society we need to normalise talking about dying (since we all will)

#PalliativeCare #EndOfLifeCare
#HaPC #HPC #MedSky

Wonderful! Very persuasive.

Are you a community nurse in the UK?

Our researchers are seeking to understand how much of your work supports people in their last year of life and how often care is deferred or cancelled.

Share your input below:
cambridge.eu.qualtrics.com/jfe/form/SV_...

#CommunityNursing #EndOfLifeCare

Just out - letter in @JAMAInternalMed led by @joannamdavies.bsky.social

“Understanding the risks that MAiD [assisted dying] may pose to individuals living in vulnerable situations … should be a priority.”

Quite the legend. An extraordinary clinician.

YouTube video by European Association for Palliative Care EAPCvzw EAPC Webinar: Family caregiver research in palliative care

Our EAPC webinar on Family Caregiving in Palliative Care is now available and FREE to view.

Hosted by the #EAPC Reference Group for Family Caregivers. Updates on recent research and state of the science in interventions.

www.youtube.com/watch?v=GuSu...

Out today. My amazing PhD student, Miki Fujimoto, supervised with @catherineevans.bsky.social publishes her first PhD paper. This systematic review examines readiness for ACP among frail older adults & develops a logic model to inform intervention development linkinghub.elsevier.com/retrieve/pii...

The Janus Face of Person‐Centred Care Click on the article title to read more.

First bluesky post! My new editorial with Catherine Evans and @proflizsampson.bsky.social calls out the misuse of 'person-centred care' in policy and outcome measurement as vague and oversimplified, especially for those with dementia. Full article on request!

onlinelibrary.wiley.com/doi/abs/10.1...

Research Conference 2025 We're delighted to announce that the Marie Curie Research into Practice Conference will take place the week commencing Tuesday 11 February 2025.

How do you say "I don't know" whilst maintaining trust?

Come to our session on communicating #uncertainty at the free @mariecurieuk.bsky.social Marie Curie Research into Practice Conference on 13.2.25 @2pm to find out.

Register here: www.mariecurie.org.uk/research-and...

#MCResearch2025

People protesting for assisted dying outside Parliament

Terminal illness is already characterised by uncertainty about the future trajectory.

Prognostic uncertainty will become a more central issue if eligibility for assisted dying hinges on prognosis, say @samurray3.bsky.social and @simonnoahetkind.bsky.social
www.bmj.com/content/388/...

Citing the correct evidence in relation to the assisted dying discussion is critical. Letter in the @thetimes.com yesterday

Out today! Walking the fine line with information provision at the end life is highly nuanced and complex but we provide a workable roadmap to minimise harm and promote beneficence.

A lego figure in a doctors outfit holding a checklist

A lego figure holfing s laptop

I see #PhD training is similar to medical training

👩🏼‍⚕️Remember those patients, that say something *completely* different when the consultant arrives?

👩🏼‍💻Now I have #Stata code that tells me it won’t run,
but then suddenly works when @joannamdavies.bsky.social is watching 👀 🤣🤣🤣

#MedSky #AcademicSky