Phil Latouche

Everything Wrong with Canada's Proposed Long COVID Recommendations The proposed Canadian guidelines for treating Long COVID pose harm to patients and risk psychologizing the disease.

Canada's proposed Long COVID recommendations (CAN-PCC) pose harm to patients.

I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.

#pwME #LongCOVID #CanadaSky

simonspichak.beehiiv.com/p/everything...

25.11.2024 22:16 — 👍 219    🔁 101    💬 17    📌 19

Hey #Canadians, you may have seen me sharing this awesome piece on other platforms, but I want us to rally here too, to push back on the Canadian Post-COVID Condition Guidelines.

They have draft recommendations on exercise and CBT.

I will post a links below for anyone that wants to learn more.

22.11.2024 23:26 — 👍 74    🔁 32    💬 3    📌 4

Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane.
1/

20.11.2024 11:27 — 👍 677    🔁 286    💬 68    📌 60

I treated POTS and ME/CFS in the before times, and was part of one of the first research teams to identify bioenergetic deficits and dysautonomia in people with ME/CFS. I can say ME/CFS screening always has been an unresolved issue in POTS care. There’s a reason exercise works only ~50% of the time.

20.11.2024 14:18 — 👍 179    🔁 53    💬 5    📌 3

Please call for this one, guys, this is a horrific turn.

There is something at the core of these folks that cannot accept patient narrative as a source of real data. They revert to default tropes about exercise rather than listening, or reading up-to-date studies.

21.11.2024 14:17 — 👍 367    🔁 200    💬 24    📌 5

I’m a pwME and pwLC

17.11.2024 00:44 — 👍 0    🔁 0    💬 1    📌 0

A chart titled 'Replicated Findings in ME/CFS and Long Covid from the German Association for ME/CFS that lists studies that found: reduced cerebral blood flow, endothelial dysfunction, autoantibodies, regional hypometabolism in CNS, decreased systemic oxygen supply, lactate levels, arterial stiffness, platelets and blood clots, etc.

I finally found a chart I'd been looking for in prep for @johnvsjonvsme.bsky.social Scary Science!
'Replicated Findings in ME/CFS and Long Covid' by German Association for #MECFS. Reduced cerebral blood flow seen in '92, autoantibodies '03, hypometabolism of CNS '98, etc. #GreatestMEdicalScandal

15.11.2024 01:53 — 👍 144    🔁 37    💬 28    📌 6

@sabrinapoirier.bsky.social

14.11.2024 21:52 — 👍 3    🔁 0    💬 0    📌 0

I’ve added quite a few new connections to my #MECFS and #LongCOVID starter pack.

Still working on getting caught up on requests, but if you visited it before, you may want to visit again for some awesome newbies. 💙

14.11.2024 02:08 — 👍 53    🔁 12    💬 4    📌 0

Des gens qui parlent français et qui ont la #covidlongue #covidlong ou #EM #paE
#quebec #canada ? Pourquoi pas regarder pour partir un #starterpack ?

14.11.2024 01:32 — 👍 2    🔁 0    💬 0    📌 0