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Global BioData Trust

@biodatatrust.bsky.social

The Global BioData Trust secures, stewards, and ethically governs personal biological material and biodata - protecting individual property and privacy rights while enabling trustworthy and impactful health research. https://globalbiodatatrust.org/

7 Followers  |  22 Following  |  16 Posts  |  Joined: 16.05.2025  |  1.6813

Latest posts by biodatatrust.bsky.social on Bluesky

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Petition - The Global BioData Trust

๐Ÿ”— Thereโ€™s more that can be done, and you can help. Sign the petition today! globalbiodatatrust.org/petition/

#ItsMyDNA

05.08.2025 17:50 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Over 15 million Americans trusted 23andMe with their most personal data- their DNA. Itโ€™s not just data, itโ€™s identity, and it deserves protection.

Join us in building the Global BioData Trust to safeguard our genetic data and give power back to individuals.

05.08.2025 17:50 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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๐Ÿงฌ Patients donโ€™t share their DNA to become commodities.
23andMe is more than a bankruptcy, it's a biodata reckoning.

Itโ€™s time to claim ownership over our biodata and demand informed consent that actually means something.

๐Ÿ”— Click the link to sign the petition!
globalbiodatatrust.org/petition/

31.07.2025 22:18 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Petition - The Global BioData Trust

๐Ÿงฌ Thereโ€™s more that can be done, and you can help! Click the link to sign the petition today.
globalbiodatatrust.org/petition/

30.07.2025 22:28 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Did deleting your #23andMe account really delete your DNA?
Over 2 million people clicked โ€œdelete.โ€ But was that your accountโ€”or your actual data?
What happened to your #DNA sample?
Is it still stored? Still being used? Is it being sold?
#ItsMyDNA

30.07.2025 22:28 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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The Trump administration will push for Americans' personal health data to be uploaded to systems run by 60+ private tech companies.

The plan is to collect Americans' medical records in a "digital health ecosystem."

30.07.2025 18:44 โ€” ๐Ÿ‘ 36    ๐Ÿ” 23    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 2
Preview
Petition - The Global BioData Trust

Thereโ€™s more that can be done, and you can help! Click the link to sign the petition today.
globalbiodatatrust.org/petition/

30.07.2025 21:34 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Your DNA is uniquely yours. Letโ€™s protect it ๐Ÿงฌ

We are building the Global #BioDataTrust to safeguard our genetic data and return power to who it belongs to: You!

Click the link to learn more and stay informed:
globalbiodatatrust.org

#ItsMyDNA #YourBodyYourData

29.07.2025 17:10 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Your DNA belongs to you! 23andMeโ€™s bankruptcy has put millions of genetic records on the auction block... This isnโ€™t just about privacy; itโ€™s about protecting human identity itself.

Watch the full conversation to learn what's really at stake:
www.linkedin.com/events/73385...

#ItsMyDNA

24.07.2025 19:21 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Used #23andMe? Your DNA is being transferred without your opt-in consent.
A court-appointed watchdog (ombudsman) says thatโ€™s a breach of trust.
This data isnโ€™t just personal, itโ€™s generational.
Support the Global BioData Trust and demand dignity in DNA. #ItsMyDNA
globalbiodatatrust.org/petition/

23.07.2025 18:41 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Californiaโ€™s Attorney General is sounding the alarm over #23AndMe โ€™s bankruptcy sale, warning that millions of peopleโ€™s genetic data may be transferred without proper consent.

What do you think about the sale of the 23AndMe Biodata?

Read the article here:
politico.com/news/2025/06/3โ€ฆ

22.07.2025 20:15 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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23andMe BioBankruptcy: Is it a data heist? | LinkedIn As 23andMe faces bankruptcy and mounting legal challenges, urgent questions are surfacing around data ownership, consumer privacy, and the future of genetic information. Join us on Monday, June 16th ...

๐ŸŽง Listen to the full conversation here: www.linkedin.com/events/73385...

22.07.2025 16:39 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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23andMe's bankruptcy hasn't just raised concerns; it has triggered bipartisan investigations from Congress, the FTC, and state attorneys general. This case forces us to ask: Who controls your data and what happens when trust is broken?

#DataDignity #GeneticPrivacy

22.07.2025 16:39 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Concerns over DNA data after 23andMe bankruptcy
YouTube video by Good Morning America Concerns over DNA data after 23andMe bankruptcy

Check out this news clip from Good Morning America.
Itโ€™s informative, heartwarming, and alarming; yet still leaves us with questions.
Who owns your DNA? Who should profit from it? And what happens when trust is broken?
Itโ€™s not over. Thereโ€™s more that can be done. globalbiodatabank.org
#itsmydna

10.06.2025 12:50 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Cornyn, Colleagues Introduce Bill to Safeguard Genetic Data Privacy After 23andMe Bankruptcy | Senator Cornyn News WASHINGTON โ€“ U.S. Senators John Cornyn (R-TX), Amy Klobuchar (D-MN), and Chuck Grassley (R-IA) today introduced the Donโ€™t Sell My DNA Act, which would safeguard customersโ€™ sensitive genetic infor...

U.S. Senators John Cornyn (R-TX), Amy Klobuchar (D-MN), and Chuck Grassley (R-IA) today introduced the Donโ€™t Sell My DNA Act, which would safeguard customersโ€™ sensitive genetic information when an entity that maintains their data files for bankruptcy: www.cornyn.senate.gov/news/cornyn-...

25.05.2025 05:08 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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The #GlobalBioDataTrust is building a new model: where individuals control their biodata and choose to share it for researchโ€”ethically, transparently, and with purpose.
This isnโ€™t just a sale. Itโ€™s a turning point.
๐Ÿ”— globalbiodatatrust.org

20.05.2025 16:58 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Regeneron wants to acquire 23andMeโ€™s genetic assets. Yet nearly 2 million people have already deleted their data โ€” citing a lack of trust.
This isnโ€™t just data. #ItsMyDNA

20.05.2025 16:58 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

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