RemissionBiome MECFS/LongCovid Patient-led Research Project

How patient-led research could speed up medical innovation People with long COVID, ME/CFS and other chronic conditions are taking up science to find symptom relief and inspire new directions for professional scientists.

It's time to invest in biomedical research of complex chronic illness, harnessing patient expertise and community! Thanks @betsyladyzhets.bsky.social for this piece with @remissionbiome.bsky.social @meactnet.bsky.social +.
Gracias for including my voice & #MillionsMissing MX. #ME #LongCovid #POTS

@remissionbiome.bsky.social @tessfalor.bsky.social have been talking about these issues. Here’s a recent talk by Peter Rowe on the subject. I’m wishing you good treatment and support

youtu.be/WaM2mPzR64w?...

#MESpine #CCI #MCAS

Here's the recording of the second Peter Rowe talk!

He covered many topics today, including thoracic outlet syndrome, Craniocervical Instability, cervical stenosis, and MCAS.

youtu.be/WaM2mPzR64w?...

Free webinar tomorrow by Dr Rowe, with Q&A.

#MECFS #LongCovid #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS

Recording of Part 1 here:

Happening tomorrow at 2pm EST!

Register here: us06web.zoom.us/webinar/regi...

(If you already registered for the 1st one, you don't have to register again.)

Part 2 - Peter Rowe, MD

Feb 16 at 2pm EST

Dr. Rowe will cover:

✨Bio-mechanical issues including thoracic outlet syndrome
✨Neuro-anatomic problems including cervical stenosis & CCI
✨Mast Cell Activation

Register here: us06web.zoom.us/webinar/regi...

Want to understand why and how many people are using nicotine patches for #LongCovid and #MECFS?
Start here!
Linktr.ee/thenicotinetest

Register to join us next week, if you didn't register for the first one:

us06web.zoom.us/webinar/regi...

(If you already registered for the first one you don't have to register again. It's the same link.)

Presentation to Renegade Research on February 9, 2024 Peter C. Rowe, MD - orthostatic intolerance, brain blood flow, and venous congestion in ME/CFS

Watch the recording of Dr. Peter Rowe's talk that he just did for the community:

youtu.be/hTNpWjbVhsY?...

It was fantastic! We can't wait to have him back next week and for a clinical roundtable in the future.

Reminder that part 1 of Dr. Rowe's talk is today at 2pm EST!

Sign up link 👇

us06web.zoom.us/webinar/regi...

#MECFS #LongCOVID #CCI #AAI #MEspine #MCAS #hEDS #POTS #TOS

RemissionBiome20 gets you 20% off...
and Healthy Gut donates 10% to help fund @remissionbiome.bsky.social studies. 😀

Thanks for "oversharing" - and Big Congratulations On Your Abnormal Test Results! 🎉

Colorful graphic of the moon that says “moonshot for Long Covid: Demand long Covid funding! 20 million Americans. Zero treatments. Call your reps November 14.”

Just called & emailed my reps asking for their support of a #LongCovidMoonshot 🚀🌝

Have you made your calls yet today?

Call guide here: longcovidmoonshot.com

During my 2009 @remissionbiome.bsky.social event, I was shocked to realize how sick I had really been. I had gotten so used to it that I didn't even know how bad it was until it went away. I started to think that EVERYONE was probably actually sick, but was just used to it.

The @remissionbiome.bsky.social #Renegade50 are spread around the US, Canada, Mexico, EU, and UK. For Biome2 we have people lined up in Australia, Finland, Iceland, & Bali + others in the running in India, Lithuania, Trinidad & Tobago, South Africa, Indonesia, Japan, Brazil, & many more.

The Microbiome's Impact on Health Listen now | With Alessio Fasano, MD

The Microbiome's Impact on Health - my interview with Dr. Alessio Fasano

ancestralhealth.substack.com/p/the-microb...

Privilege and prejudice must be recognized for equitable research partnerships - Nature Medicine Not involving communities throughout the research process may be attributable to prejudice and a failure to recognize privilege. The result is a loss for all involved.

Community engagement makes research better, a win for science!

www.nature.com/articles/s41...

@lifeanalytics.bsky.social machine learning for the win!

www.thecrimson.com/article/2023...

Not protecting the most vulnerable is criminal. We know that cancer patients are at greater risk of contracting and complications from ID. How can we end this madness?

In a world where you can be anything: Be kind, be honest, be in service of others. We only live once & don't take anything with us. At the end of my journey, I want to have been loved & trusted. Today, I want laugh, find joy in the everyday things & never lose my humanity!!!

Throughout my illness, I have gone through financial devastation from medical bills and not being able to work. There were many times when I saw people having access to trx I couldn't even think of having. I clawed myself out some of the worst times by 1/

β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target ... Coronavirus disease (COVID-19), caused by novel severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), is an ongoing pandemic and presents a public health emergency. It has affected millions of...

β-Caryophyllene, A Natural Dietary CB2 Receptor Selective Cannabinoid can be a Candidate to Target the Trinity of Infection, Immunity, and Inflammation in COVID-19 - PMC

www.ncbi.nlm.nih.gov/pmc/articles...

My very first conversation with @tessfalor.bsky.social about what has become @remissionbiome.bsky.social
- I told her right away “I’ll do it ”. Then my abx ready in January 2023 to get started.

Reaction of Human Monoclonal Antibodies to SARS-CoV-2 Proteins With Tissue Antigens: Implications fo... We sought to determine whether immune reactivity occurs between anti-SARS-CoV-2 protein antibodies and human tissue antigens, and whether molecular mimicry between COVID-19 viral proteins and human ti...

Frontiers | Reaction of Human Monoclonal Antibodies to SARS-CoV-2 Proteins With Tissue Antigens: Implications for Autoimmune Diseases

www.frontiersin.org/articles/10....

Researchers identify bacterial mechanism for vitamin B12 uptake A team of scientists led by Dr. Ulrich Kleinekathöfer, professor of Theoretical Physics at Constructor University in Bremen, has now discovered how B12 is absorbed by certain intestinal bacteria. Pub...

phys.org/news/2023-11...

Excellent 🧵 about CDC's new page on "chronic symptoms following infections"
www.cdc.gov/ncezid/what-...

The Immune System Weighs The Same as a Pineapple, Study Finds Depending on the person.

The weight of a pineapple can certainly feel like the weight of the galaxy
www.sciencealert.com/the-immune-s...

ME/CFS and Long Covid Listen now (91 mins) | With Jen Brea

My episode of www.ancestralhealth.org/ today podcast with
@jenbrea.bsky.social is now out. Listen and subscribe on
Substack
ancestralhealth.substack.com/p/mecfs-and-...