Emily Johnson

will remember jay as the person who deleted lexi alexander and link, worked hard to cut palestinians off from their one chance at survival, ignored the ongoing abuse of Black and trans users, and then when confronted about the whole thing said 'waffles'. and for that fugly no caesars shirt.

ICE locked up a deaf kid without his hearing aids—and wouldn't let him have them back Rep. Eric Swalwell is working to help the family seek humanitarian parole.

New from me at @motherjones.com: Today, @ericswalwell.bsky.social said he's working to help the family of a Deaf kid seek humanitarian parole so he can continue attending CA School for the Deaf–and his staff brought his hearing aids to Colombia for him to use. www.motherjones.com/mojo-wire/20...

Rarely will I share a disability story centering an at the time non-disabled person, but MY HEART! A GUY CREATED A MOBILITY SCOOTER TO IMPROVE HIS WIFE'S QUALITY LIFE. www.mlive.com/news/saginaw...

boo more internal bleeding, hooray a GI doctor who finally cares about it

please help if you can. i’m disabled and unable to work and asking for help with any and all items for home that can make things easier or just things we are low on. it’s going to get harder for me to ask for help with the new privacy rules. i wish it were easier. i’m sorry to ask. please share

YouTube video by Renegade Research Sleep Dysfunction and Breathing Mechanics. Clinician's Roundtable with Dr. Avram Gold.

Recording of Sleep Dysfunction and Breathing Mechanics, a Clinician's Roundtable with Dr. Avram Gold.

We learn via data & renegade discussion about Obstructive Sleep Apnea (OSA), Upper Respiratory Airway Syndrome (URAS), how you don't have to be a snorer, and more.

www.youtube.com/watch?v=R6XN...

Bluesky: that’s a lovely 25-post marketing thread you spent half an hour constructing, I’m just going to untag all of the tags in the first post just for fun, keep you on your toes

This is going to be a great event! If there’s more clinician, research and patient interest then we’ll look at booking a follow-up panel 🩸

A purple and blue graphic with bubbles, depicting a QR code in the upper left hand corner and the Renegade Research logo in the upper right hand corner. Center and lower left depicts photos of Drs. Douglas Kell, Resia Pretorius, Jill Schofield and Jordan Vaughn. White text reads: Research Roundtable: Hypercoaguability, Clotting and Microclotting, and Blood Issues in ME/CFS and Long Covid. Friday, March 13, 2026, 1 pm ET US. Register: tinyurl.com/renres-03-13-2026. Renegade-Research.org.

Join us March 13 at 1 pm ET (US) for a Research Roundtable with @resiapretorius.bsky.social of @suhealthsci.bsky.social @liverpooluni.bsky.social, @dbkell.bsky.social of @liverpooluni.bsky.social, Jordan Vaughn of MedHelp, Jill Schofield of @cuanschutz.bsky.social

🧵Registration link, research below

But the stories of the conditions at the facility, revealed in data and recordings from more than a hundred 911 calls obtained by The Associated Press - in addition to follow-up interviews and court filings — offer a disturbing portrait of overcrowding, medical neglect, malnutrition and emotional distress. The detainees describe a camp where an average of about 3,000 people have lived per day in loud and unsanitary quarters, diseases spread easily and sleep is a luxury. The center will be closed to visitors until at least March 19 because of a measles outbreak, according to U.S. Rep. Veronica Escobar. Detainees struggle to obtain medication and health care, lose concerning amounts of weight because of a lack of food, and live in fear of private security guards known to use force to put down disturbances. The ceilings in the windowless tents leak when it rains, and detainees only see sunlight during brief outings once or twice a week to a cramped recreation yard. In an email, a Department of Homeland Security spokesperson who did not provide their name rejected claims of subprime conditions, saying Camp East Montana detainees receive food, water and medical treatment in a facility that is regularly cleaned.

Detainee says guards bet on suicide Like other detainees, Ramsingh said that between cleanings the rooms, restrooms and showers were often filthy and infested with insects. He said detainees stole others' food because everyone was hungry due to the small and sometimes inedible meals, which led to fights, and the conditions took a toll on his mental health. At one point he said he overheard a security guard talking about bets made among the staff over which detainee would be next to die by suicide. The guard said he had paid $500 into a pool, with the total pot riding on the outcome. The talk was particularly jarring, he said, because he had contemplated suicide himself.

A Cuban immigrant in his 50s told the AP he requested to receive his medication for diabetes, high blood pressure and an enlarged prostate during a six-week detention at Camp East Montana, but it never arrived. He spoke on the condition of anonymity for fear of reprisals. Desperate, the man said he once refused to leave living quarters when a cleaning crew came. An immigration official offered him ibuprofen and urged him to consider leaving for another country. "He says to me, 'Look, there are a lot of detainees, we don't have enough for everyone," he said. "The man from ICE says to me, 'OK, why don't you decide it's better to leave? Leave for Mexico, go to Cuba. There you can have your medicine, have your things." Fearing death, the man agreed to self-deport to Mexico to Ciudad Juárez — across the international border from his wife and their 11-year-old son in El Paso.

AP has a new report out about the huge El Paso detention facility and the details—from 911 calls, interviews and court records—are as horrific as you’d expect apnews.com/article/suic...

me 🤝 Proton's comms person

explaining that you cannot simply decide a court order doesn't apply to you just because you don't like it

Alice Wong's Celebration of life March 25th, 2026 11am PST This toolkit is an invitation and a resource for individuals and communities to participate in Alice Wong's Celebration of Life. Be it from bed, your living room, local community center, classroom, or in the streets... You can join Alice's Celebration of Life through: * The livestream + virtual reception: Join the livestream and gather for the virtual reception hosted by Calling UP Justice & San Francisco Disability Cultural Center. * In-person livestream watch + your own gathering: host an in-person gathering to join the livestream and connect in person to celebrate Alice. * Detailed Toolkit with links, photos, and resources to make your gathering accessible, plus ways to honor Alice Wong's legacy: https://bit.ly/aliceislove

Dr. Gold, Sleep Medicine / Pulmonary specialist, will speak at next @renegaderesearch.bsky.social Clinician's Roundtable.

Sleep Dysfunction & Breathing Mechanics
Friday
March 6, 2026 at 1 pm Eastern US

Free. Invite your networks interested in sleep.

Sign up
us06web.zoom.us/webinar/regi...

YouTube video by Renegade Research March events: Sleep Breathing, Microclotting, Gut-Brain Axis, & LC Awareness Dialogue.

A 43 second video to promote our 4 March events!

Doctors, researchers, patients, caregivers and other members of the public invited.

For registration links, see our website Events page, our Bluesky timeline, or open our YouTube channel and look in the description. www.youtube.com/watch?v=QA5i...

Conspiracy theorists (especially journalism peers) do get blocked, especially engaging with known harassers

You aren’t owed access to me

As a queer disabled woman in media, I’ve long been a target by bad faith actors

I’m a relatively boring person, good luck with that I guess

I make no money from volunteering

I volunteer a very limited amount because (as I have stated many times) I’m on SSDI/Medicare on full disability

The government verified many times why I can’t work due to severe, complex disabilities (unless treatments and luck change that)

Shows a doctor on the edge of a forest trying to put out a small COVID fire. There is a large fire in the forest behind the doctor labeled "long Covid". A frightened deer runs out of the forest to escape the fire. The deer is labeled ME/CFS. The cartoon shows that while Covid is somewhat less prevalent (though still a dangerous threat), the huge problems of Long Covid and ME/CFS still loom.

March is Long COVID Awareness Month. Please offer support to your stricken friends. @thesicktimes.org @guitarmoog.bsky.social @exceedhergrasp1.bsky.social @chromatowski.bsky.social @emilyrj.bsky.social @thecovidinfoguy.bsky.social @davetuller1.bsky.social @mileswgriffis.bsky.social

🚨 Report: ‘Double-tap’ strike killed 165 Iranian schoolgirls in Minab

An investigation by Middle East Eye finds the deadly strike on the Shajareh Tayyebeh girls’ school in Minab, southern Iran, involved 2 explosions, w/ the 2nd blast hitting survivors who had taken shelter after the first attack…

After Covid The Health Impacts That Will Last Generations

“This book is a… reminder that pandemics don't end when case numbers fall.”

We stopped tracking case numbers. Wastewater data suggests the virus still circulates widely. You are situating the ongoing pandemic in the past tense and that’s not the reality.

www.press.jhu.edu/books/title/...

important, informed insights. Like how our researchers regularly gather for conferences unmasked. @emilyrj.bsky.social articulated this brilliantly in a thread today.

@jasongale.bsky.social

bsky.app/profile/emil...

“There were several occasions when Gemini reminded Gavalas that it was a large language model—effectively an appliance—engaging in fictitious role play, according to the transcripts, but the scenario resumed. Gemini also, at times, tried to end the conversation. The chatbot said that for them to truly be together, it needed a robotic body. Throughout September, the chatbot devised missions to do just that, according to the lawsuit. It sent Gavalas to a storage facility near the Miami International Airport to intercept an expensive humanoid robot that it said would be in a truck. Gavalas told the bot that he went to the location, armed with knives, but the truck never showed. Along the way, it suggested that federal agents were monitoring him and that his own father couldn’t be trusted”

Helps you code though, so hard to tell if it’s good or bad.

Looking forward to this! See you there

A black graphic with orange bubbles and white text reads: X Space, Long Covid Awareness Week, Community Dialogue, 4 pm ET US, March 17, 2026. The Renegade Research logo is in the upper righthand corner. The words "Decentralized and Patient-led" are at the bottom with the Renegade Research website URL, Renegade-Research.org.

Please join us for an X/Twitter Space Discussion for Long COVID Awareness Week on March 17 at 4 pm ET US! (in honor of Long Covid Awareness Day on March 15)

Bluesky doesn't have a Spaces-like tool, so we can't host here

Moderators: @isabelrb.bsky.social and @emilyrj.bsky.social

X space link in 🧵

All of this comes from professionalism and good intention

We *need* good medical orgs and businesses that are professional, willing to change for the wellbeing of communities they serve, not afraid to make apologies when they mess up

We can’t afford anything less

Another medical org being unprofessional, like it’s hard to be professional

Streisand effect - Wikipedia

Don’t RT attendees, supporters, other orgs to try to bury criticisms about your behavior

When orgs or businesses do this, the accounts they RT become shields that then try to distance themselves or drop support (especially if they see and agree with criticism) en.wikipedia.org/wiki/Streisa...

What you should do: post an apology ideally crafted with people you harmed and/or people you bring in with experience to help with specific issues

The statement should have specific, tangible goals you budget resources to meet in good faith

Anything else will extend crisis comms and hurt business

As the kids say, “stand on your business”

If you can’t defend your business to communities you serve, and the harm via decisions your org makes

You’ll have to adapt, or lose credibility and support

No business or org deserves to exist — someone else will build you, but better

If you don’t have a marketing person who can engage with professionalism, who is aware the above actions are outdated by 15+ years, that doing the above will harm your business or org

Seek training for them, or seek new marketing staff

The communities you serve deserve it

Orgs and businesses know all of the above, that conferences and events are routine infectious hot spots, yet some choose no masks or clean air tools — expect criticism

Part of PR is defending your choices, and sometimes changing choices if it’s best for communities you serve