The same, she invited me to her last Space and I had other crap going on as well as my symptoms and Iβd shut down and now I feel so bad that I wasnβt there with her to laugh with her at least one more time. I just miss her so much and am scared for all of us.
23.07.2025 02:52 β π 3 π 0 π¬ 0 π 0
Bridget was part of a circle of friends that interacted on Twitter for over a year. We all became really close, meeting up in Spaces daily, inboxes. Her passing has broken us, we all miss her so very much and I canβt believe sheβs gone, I just canβt. I keep looking if sheβll see my last message. ππ
22.07.2025 14:18 β π 3 π 0 π¬ 1 π 0
21.05.2025 17:08 β π 3 π 0 π¬ 0 π 0
Thereβd be too much trauma involved. π
02.04.2025 18:12 β π 2 π 0 π¬ 1 π 0
This is work for 3D printing lol. π
02.04.2025 17:59 β π 1 π 0 π¬ 1 π 0
Screenshot of ME Association article/obituary on Robert Courtney
Remembering ME activist (& my friend) Robert "Bob" Courtney, who passed away on March 7, 2018.
This is from the @meassociation.bsky.social
magazine.
One can read about some of the specifics of Bob's work here: me-pedia.org/wiki/Robert_...
#MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME
08.03.2025 14:46 β π 49 π 11 π¬ 1 π 1
They are still developing it, hereβs the link on here. It canβt come soon enough.
bsky.app/profile/skys...
10.03.2025 16:32 β π 0 π 0 π¬ 0 π 0
Itβs the Community and Spaces that drove me back there. I hate it for exactly that reason and more. Everyone is pretty much waiting for a Spaces type feature to be developed.
10.03.2025 16:24 β π 0 π 0 π¬ 1 π 0
I use my real name here, not Arsen Balls or any of my other pseudonyms.
10.03.2025 16:20 β π 0 π 0 π¬ 0 π 0
Miss you heaps on X, itβs still toxic, but seems to be suffering from a possible DOS attack these last few hours.
10.03.2025 16:20 β π 0 π 0 π¬ 2 π 0
Musk canβt even protect his app from crashing and this is the saviour? Mr Doge? America is entrusting the lives of their astronauts to this bozo when every second or third rocket blows to smithereens?
10.03.2025 15:56 β π 2 π 0 π¬ 0 π 0
The other night I took the FUNCAP 55 functional capacity questionnaire and it threw up some extremely low scores, placing in the severe, very severe category even though Iβm still fairly ambulatory. So when my friend this morning called and asked if I wanted adventure, I balked and begged offβ¦
09.02.2025 13:07 β π 5 π 0 π¬ 3 π 0
2025 in a nutshellβ¦
15.01.2025 05:03 β π 32444 π 4532 π¬ 279 π 196
Too much, or just about right? π€·πΌββοΈ
15.01.2025 13:52 β π 30120 π 5325 π¬ 1548 π 468
Letβs clean up Australia by trashing Australia Day, my alter ego on xTwitter is always a font of wisdom.
#auspol #AustraliaDay
15.01.2025 19:46 β π 5 π 1 π¬ 0 π 0
Thrips are different looking, most people hate them as theyβre voracious plant devourers. I just love the word lol.
22.12.2024 06:30 β π 1 π 0 π¬ 1 π 0
The president of peace threatening every nation from Canada, to Panama to Gaza with invasion. π«€
22.12.2024 05:44 β π 0 π 1 π¬ 0 π 0
The president of peace threatening every nation from Canada, to Panama to Gaza with invasion. π«€
22.12.2024 05:44 β π 0 π 1 π¬ 0 π 0
Is that a thrip? My favourite word!
22.12.2024 05:42 β π 2 π 0 π¬ 1 π 0
Exactlyierererer!
22.12.2024 05:41 β π 1 π 0 π¬ 1 π 0
NASAβs FIRMS distributes near real time data on fires globally from infrared satellite images with just a 3 hour delay.
This map gives a sense of the scale of the Grampians fires:
firms.modaps.eosdis.nasa.gov/map/#d:24hrs...
21.12.2024 17:35 β π 14 π 7 π¬ 1 π 2
Nice, at least he isnβt trying to deep fry an elephant, like RFK.
22.12.2024 04:15 β π 0 π 0 π¬ 0 π 0
π¬π·π¨πΎπ·πΈπ¦π²
Designerγ»Architecture photographerγ»Art lover γ»Mof2γ»ME/CFS since 2020
Animation Artist, P100 Droid, Electric Bboy, Surviving the Times, Zero Waste Wannabe.
https://paypal.me/jonjonanimation
https://www.patreon.com/c/jonjonanimation
your least favorite autists favorite autist // disabled as fuck with Extremely Severe ME, POTS & feral MCAS // pronouns are they/them β‘οΈ π²π½π³οΈβπ
Long Covid, ME/CFS, POTSβ¦. For now
former filmmaker II torn from life due to complex chronic illness II #CranioCervicalInstability #MCAS #SmallFiber #PoTS #FluoroQuinoloneToxicity #FlagylToxicity #Lyme #ME II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
π Illustrator-on-hold, #LongCovid (COVID-induced #POTS / #ME)
London, UK
Severe ME after covid infection Feb'22. Young dad. Bedbound. π #MillionsMissing #pwME #ThereForME #GreatestMEdicalScandal #PEM π¬π§π²π«πͺπ¦π§πͺ
Living with moderate/severe M.E. π¦ severely affected by the Pfizer vaccine π in 2021 and health issues from covid infection β23
Not anti-vaccine
Native Salish Lummi/Irish, ADD, Ambidextrous/Dyslexic, Democrat, Atheist
-Field: IT Systems Engineering (16+ yrs)
-Financial/Culture/Class Equality Advocate.
-Not selling, buying or advertising anything.
-I do this shit for free because I want change.
-I don't trust DMs.
-We're at war, let's work on fixing things by any means.
Post-Covid ME/CFS since March 2021. Before then, a life I loved.
Stanford History | 2021 Schwarzman Scholar
Anti-fascist = anti-ableist. We protect us. π·π΄
Iβm @SaliWho on Twitter and me on here.
If I follow you on Twitter, please like my pinned post here, for bureaucratic purposes.
π€ https://x.com/SaliWho
πUK
ποΈMillennial
β‘οΈFairly epileptic
π³οΈβπBi bi bi (she/they)
Official spokesperson for the Silent Majority. Fully Certified Renaissance Man. Leftist, anti-Zionist, Green party member, JC Stan. Ultra longhauler ME, chronic illness sufferer. Egalitarian. Follow me if you want to live.
Born 324 ppm. small spoons & sensory spaces. π₯π§
#ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate
ko-fi.com/ladylonghaul
LongCovidKids
Awareness Banner
5 years since Long Covid Changed Lives
βοΈ Two UK writers dissecting the post-imperial drift of Britain & the US
π Independent, anti-fascist, unafraid to call things out
π° New essays weekly on politics, power & the culture of decay
π plagueisland.com | β buymeacoffee.com/notesfromplagueisland