I know a few folks in the #phenylketonuria community have played around with the egoo health pku bloodspot monitoring device, and I was wondering how you found it? Was it accurate? Easy to use? Would you recommend it?
01.11.2025 15:59 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
It's been a while, but I've finished my Magnus Opus
#blood #bloodspot #bloodtest #nhs #health #pku #phenylketonuria #pcu #phenylcetonurie
01.11.2025 15:57 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Watched two films in the cinema today:
* Nobody 2 - a great, fun, silly action film with a lot of humour. I really enjoyed this one.
* Eddington - I thought it was really long and boring. It had a lot of political snipes, but apparently the film was about something bigger.
23.08.2025 23:02 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Just came from the cinema watching Materialists.
I think it was okay. The problem though is the movie is running on vibes, and there isn't enough plot to carry the film. Most of the time it is just long shots with music to communicate how you should feel.
Wait for streaming.
18.08.2025 21:46 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by IGN Movie Trailers
Weapons - Official Teaser Trailer (2025) Josh Brolin, Julia Garner, Alden Ehrenreich
Weapons - Just utterly brilliant. Highly recommend if you are a fan of horror/thriller. If you need to see a trailer, make it only this one www.youtube.com/watch?v=uMhg...
16.08.2025 21:07 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Just saw two films that I need to talk about:
The Naked Gun (Liam Neeson one) - Honestly this film was such a joy. Just jokes after jokes after jokes. There was a part in the middle where it had me grinning like a silly little child. A true feel-good movie that I can pretty much recommend.
16.08.2025 21:07 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Gotta love the fact that as War of the Worlds is trending thanks to the terrible Amazon remake, Netflix is now showing the 2005 version and it's reached #8 in the UK ๐คฃ
10.08.2025 17:02 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I don't know what it is with Amazon Prime films, but they really aren't worth watching the vast majority of the time.
I'm watching The Pickup and I get that this film is trying to tell jokes, but man they just aren't landing at all...
09.08.2025 20:30 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
There is a part where his daughter needs medical attention, and the dad tries to ring 911 from his phone but it doesn't answer. So he says to his daughter that he is coming, and he tries to open the door to his room... BUT IT'S LOCKED!
Forget what I said before, I'm in tears.
04.08.2025 22:24 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I'm watching War of the Worlds on Amazon Prime since I've heard nothing but absolutely terrible things about it, and honestly it feels like an ad for Windows 11 & Teams more than anything.
FWIW, I'm not even halfway through and I'm already tired of it.
04.08.2025 22:18 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
I think for me the Mevalia rice is just uniquely it's own thing and for me tastes even better than the normal rice, which is a hell of an accomplishment.
Normally pku rice just tastes like pasta, but the taste and texture of Mevalia rice is something else!
27.07.2025 17:51 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Rice and vegetable medley
Just tried using the Mevalia rice and it's the one for me (an old photo of the rice with veggies).
For one I have freedom in cooking the rice (I cook it in water with vegetable stock cube mixed for added flavour). Another reason is I can taste each rice grain.
27.07.2025 17:47 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0
With the PKU real rice, I gave the second packet a try (sorry, forgot to take pictures) - this time I boiled it.
It seemed to be better, the rice was still sticky though. I think to me, that's my real problem with the rice - it is far too sticky for my liking. Not for me sadly.
27.07.2025 12:12 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
I have no idea - the welcome pack is a bit botched. Waiting for that to be fixed and then I'll find out!
26.07.2025 21:36 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
Thanks man! I just sent a message on the main site and it seems like the website owner has wonderfully replied and apologised for the misunderstanding, and will look into it on Monday, but it does seem like the book club is going ahead!
26.07.2025 20:21 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0
I really don't get what is going on. It almost feels like the world is conspiring to make sure I stay at home and play videogames all day or something. Sheesh.
26.07.2025 20:01 โ ๐ 2 ๐ 0 ๐ฌ 1 ๐ 0
Wouldn't even be the first time today - I tried to go to an adult art class (my attempts at going outside and trying to make new friends), but the business didn't seem to be open. I called the person and asked for details, they told me to send my email address over. I did. Nothing so far.
26.07.2025 20:01 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
I've tried joining the Facebook group and I've yet to be invited. I've just now tried to message one of the folks in the admin group to help get some clarification. It just feels like I'm being messed around.
26.07.2025 20:01 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
So I've just tried to join up to a book club where I live via Plot Twist Book Club (plottwistbookclub.com)
I registered on Monday, and just a few minutes ago I've got an email from Paypal telling me they've effectively cancelled the monthly payment on my card?
What is going on?
26.07.2025 20:01 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
I get people have rubbish days, but we're literally just trying to find something to eat!!
26.07.2025 18:08 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
I'm really sorry you guys had that experience. I wish I could say I can't relate but yup I can relate.
I went to a local Wagamamas, and they were super helpful, but this one day the manager was just not interested. Really put a dampener on the whole experience.
26.07.2025 18:08 โ ๐ 1 ๐ 1 ๐ฌ 1 ๐ 0
Experience shows people super helpful or super unhelpful. No middle ground. I should learn. 12 year old offered not to eat anything. #pku
26.07.2025 17:46 โ ๐ 4 ๐ 1 ๐ฌ 1 ๐ 0
Rubbish pku experience today. Local eatery. Nothing 12 year old can eat. Previously taken a fast food chips option with us without issue. Today very unsubtly asked to leave. Despite explanation. No effort to try to work something out. Totally get the issue. Some ppl no interest in helping.
26.07.2025 17:42 โ ๐ 7 ๐ 3 ๐ฌ 1 ๐ 1
YouTube video by ANTI- Records
The Drums - "Meet Me In Mexico"
Not quite 80s but a great dance track that I've managed to discover yesterday thanks to the power of music streaming algorithms: The Drums: Meet Me In Mexico
Will be interesting to hear what you think of it!
www.youtube.com/watch?v=fAbZ...
26.07.2025 18:05 โ ๐ 3 ๐ 0 ๐ฌ 1 ๐ 0
Oh those songs are so gloriously 80s!
26.07.2025 18:04 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
Haha no, I didn't see much of Glastonbury. Isn't it on BBC iPlayer? I might have to check it out!
26.07.2025 18:02 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
Nice! It'll be interesting to see how you guys get on with the rice. I'm hoping the rice thing is just a me problem and not an actual problem with the rice itself.
26.07.2025 18:01 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
0.6g for the whole packet/half an exchange. Not bad for rice
26.07.2025 15:53 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0
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