Deaths from pneumonia in people with LD are unnecessarily high.
Key risk factors: poor mobility, swallowing difficulties & heart conditions.
Our research shows these vulnerable groups need proactive monitoring, not reactive care
tinyurl.com/5n8pv6yh
@kingsioppn.bsky.social #DoYouSeeMe
20.06.2025 13:34 — 👍 0 🔁 0 💬 0 📌 0
MediChec was developed by
@nihrmaudsleybrc.bsky.social
19.06.2025 15:15 — 👍 0 🔁 0 💬 0 📌 0
Medichec
From research to action: We helped update MediChec, empowering people with learning disability to manage medications safely.
✓ Flags high-risk medications to clinicians
✓ Improves medication reviews
Try it: medichec.com
@kingsioppn.bsky.social
#DoYouSeeMe #LDWeek2025
19.06.2025 15:14 — 👍 0 🔁 0 💬 1 📌 0
LeDeR research reveals 50+% of people with a learning disability were prescribed multiple constipation-causing medications.
This serious issue often goes unrecognised and untreated.
Full findings in our deep dive on constipation:
tinyurl.com/hkrn522d
@kingsioppn.bsky.social #DoYouSeeMe
18.06.2025 12:43 — 👍 0 🔁 1 💬 0 📌 0
LeDeR data: 15% of learning disability bowel cancer deaths occurred under age 50.
Current screening starts at 54. Our research recommends starting at 45 for people with LD.
See our international comparison, Bowel cancer in people with LD:
tinyurl.com/y83n5fyj
#DoYouSeeMe @kingsioppn.bsky.social
17.06.2025 14:02 — 👍 0 🔁 1 💬 0 📌 0
@mencap.org.uk @nhsengland.bsky.social @nhsenglandldn.bsky.social @estiacentre.bsky.social
16.06.2025 12:41 — 👍 0 🔁 0 💬 0 📌 0
#LearningDisabilityWeek
LeDeR research has uncovered critical health inequalities affecting people with a learning disability.
This #LearningDisabilityWeek, we're sharing our deep dives which can inform improvements to care.
@kingsioppn.bsky.social #DoYouSeeMe #LeDeR #LDWeek2025
16.06.2025 12:40 — 👍 3 🔁 2 💬 1 📌 0
If you have any further questions in the meantime, please contact leder@kcl.ac.uk.
07.03.2025 15:20 — 👍 1 🔁 0 💬 0 📌 0
We have submitted the Learning from Lives and Deaths (LeDeR) 2023 report to NHS England a few months ago, where it is now undergoing it’s final checks.
We are unable to say when it will be published, but we will announce it on here when it is available.
07.03.2025 15:20 — 👍 4 🔁 1 💬 1 📌 0
Professor of Intellectual Disability and Palliative Care (Kingston University, London). Let’s talk about dying, death, bereavement and intellectual/learning disability.
Psychiatrist specialised in Intellectual disabilities at the Maudsley and King’s College London. Researcher - Down syndrome, Alzheimer’s disease, treatment trials, health inequalities. NHSE LeDeR partnership lead.
Globally renowned institute for research excellence and education in #Psychiatry, #Psychology, & #Neuroscience based at @kingscollegelondon.bsky.social
www.kcl.ac.uk/ioppn
We are a world-leading interdisciplinary centre for research and teaching in mental health and illness. Part of the UCL Faculty of Brain Sciences
Website: https://www.ucl.ac.uk/psychiatry
NIHR ARC North West Coast is one of 15 @nihrarcs.bsky.social
funded by the National Institute for Health and Care Research (@nihr.bsky.social). We work with our partners in the North West of England on applied health and care research.
Consultant Nurse Intellectual Disabilities/ Advisor WHO Europe / Patron for DanceSyndromeUK /Associate Professor Kingston University /Panel Member Fitness of Practice Nursing Midwifery Council/ Trustee LDnetworkLondon
Director, Azrieli Adult Neurodevelopmental Centre, CAMH
Passionate about mental health & developmental disabilities. Opinions my own (she/her).
Retd. Consultant Psychiatrist for people with Intellectual Disabilities, Visiting Prof U.S.Wales.
Research interests: Death and Dying Biography.
Human interests: music, theatre, garden, visual arts, poetry
Done a few things in Diabetes care
Loves Dogs, Bollywood; Comic books; Whiskey
Failed Tebbitt Test 🏏
Kloppite forever ⚽️
Motto?
“Dance lightly with life”
Involving people with learning disabilities in end-of-life care planning (NIHR202963). Check out our end-of-life care planning toolkit here: https://www.victoriaandstuart.com/!
Royal College of Psychiatrists: Improving the lives of people affected by mental illness.
🖥➡️ rcpsych.ac.uk
An Academic Health Sciences Centre bringing together three NHS Foundation Trusts and a world-leading university, to translate early scientific research, discoveries, and ideas to benefit patients and communities.
🌐 https://www.kingshealthpartners.org
Learning together for a healthier future. Specialist training for health and social care staff who support people with a learning disability and autistic people.
Beyond Words - Using pictures to help people understand the world. Founded by Baroness Sheila Hollins
Charity no. 1183942
www.booksbeyondwords.co.uk
News, articles and debate for professionals working with people with a learning disability and autistic people.
https://www.learningdisabilitytoday.co.uk/
Members of the RCN Learning Disability Nursing Forum Steering Committee account to share RCN and Learning Disability Nursing info. Further info about the forum can be found here https://www.rcn.org.uk/Get-Involved/Forums/Learning-Disability-Nursing-Forum
Our vision is for the UK to be the best place in the world for people with a learning disability to live happy and healthy lives.💜
Find out more: linktr.ee/mencap
Whether you come to us with drug or alcohol issues, a mental health concern, or a learning disability, we can provide the free and confidential support you need ♥
https://www.turning-point.co.uk/
UK disability charity for all families caring for a disabled child ☎️ support, info & advice ❤️ bringing families together 📢 campaigning for change! Find out more: https://linktr.ee/contactfamilies
