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International Kidney Cancer Coalition

@ikccorg.bsky.social

International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer. https://ikcc.org/

89 Followers  |  34 Following  |  161 Posts  |  Joined: 03.12.2024  |  1.8181

Latest posts by ikccorg.bsky.social on Bluesky

The application deadline is 18 November 2025.

Learn more: www.aacr.org/professional...Β #AACR26 (3/3)

13.11.2025 16:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

As a global organisation, IKCC is committed to research and knowledge transfer among those focused on improving kidney cancer treatment and care and we are proud to support this initiative and are committed to supporting opportunities for researchers from lower- and middle-income countries. (2/3)

13.11.2025 16:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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We are excited to once again collaborate with @theaacr.bsky.social to support the AACR Scholar-in-Training Award. This award is focused on supporting early-career researchers from around the world to attend the AACR Annual Meeting and participate in this premier clinical event. (1/3)

13.11.2025 16:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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We are looking forward to attending the European Cancer Summit 2025. The Coalition will be represented by Claudia Ungarelli, the new Vice-Chair of IKCC, at the annual event of the European Cancer Organisation. #EuropeanCancerSummit

13.11.2025 15:59 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Join us in recognising Malnutrition Awareness Week. We’re looking forward to learning about this important issue during a webinar on Thursday, which includes Karin Kastrati from Nierenkrebs-Netzwerk Deutschland (IKCC Partner Organization): european-nutrition.org/landing-page... #MAW2025

11.11.2025 18:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We are looking forward to the World Cancer Leaders' Summit 2025 next week in Melbourne. Olivier Exertier, Anne Wilson and Carmen Vallejo Auste will represent IKCC at this event organised by UICC.

11.11.2025 17:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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It’s been a busy month for us at IKCC! Read all the latest in our newsletter: mailchi.mp/ikcc/newslet... #KidneyCancer

11.11.2025 14:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Also, read the 2025 GPS Highlights Report and more findings about kidney health at: ikcc.org/wp-content/u...

#KidneyCancer (4/4)

05.11.2025 12:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

IKCC has created a resource to help people affected by kidney cancer discuss their kidney health with their health team. Download it here: www.worldkidneycancerday.org/wp-content/u... (3/4)

05.11.2025 12:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

In the 2025 Global Patient Survey, 39% of patients said that they were always, frequently or almost always concerned about their kidney function, and yet only 27% felt they had enough information about how to best manage kidney function after a kidney cancer diagnosis. (2/4)

05.11.2025 12:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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People with kidney cancer are concerned about kidney function. (1/4)

05.11.2025 12:15 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

IKCC Medical Advisory Board member Prof Laurence Albiges and others spoke about long-term survival in advanced renal cell carcinoma at #ESMO25. Watch the video here: oncologypro.esmo.org/video-series... (ESMO account required) @myesmo.bsky.social

04.11.2025 15:26 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

IKCC kindly invites you to complete the survey by Friday, 7 November 2025. It takes less than three minutes. forms.office.com/Pages/Respon... @GlobalCCN_org (2/2)

03.11.2025 15:11 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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LAST CHANCE TO PROVIDE YOUR OPINION. Following an event at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. (1/2)

03.11.2025 15:11 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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IKCC is pleased to share the Summary of Kidney Cancer Highlights from #ESMO25 created by members of the IKCC Medical Advisory Board. Learn more in this LinkedIn article: www.linkedin.com/pulse/reflec... #KidneyCancer

29.10.2025 17:30 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Kidney Cancer Highlights from ESMO 2025 - Action Kidney Cancer This year’s European Society for Medical Oncology (ESMO) Congress was held from 17-21 October 2025, in Berlin, Germany. The International Kidney Cancer Coalition (IKCC) went to the meeting to keep up ...

Some affiliates of the @ikccorg.bsky.social attended the recent European Society for Medical Oncology Congress which was in Berlin. They attended to keep dated with the care and treatment of patients with #kidneycancer
To read the kidney cancer highlights:
actionkidneycancer.org/kidney-cance...

29.10.2025 15:55 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Overall, there were great discussions with nurse practitioners and physician assistants at the meeting in National Harbor, Maryland. (2/2)

29.10.2025 16:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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IKCC presented a poster discussing results from the 2025 Global Patient Survey at #JADPROLive. This poster focused on shared decision-making and patient understanding of their #KidneyCancer and treatment options, as well as the patient adherence with oral targeted therapies as prescribed. (1/2)

29.10.2025 16:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

At the #JADPROLive meeting in Maryland, they brought together advocates representing cancer survivorship, breast cancer, genetic cancers, kidney cancer,Β multiple myeloma, as well as organisations representing all cancer patients. (2/2)

24.10.2025 15:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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IKCC was happy to represent the voice of #KidneyCancer patients at the Patient Advocate Council organised by the Advanced Practitioner Society for Hematology and Oncology (APSHO). APSHO is actively engaging patient advocates to bring the patient voice to its members. (1/2)

24.10.2025 15:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

It takes less than three minutes. forms.office.com/Pages/Respon... (2/2)

24.10.2025 15:39 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Following an event last week at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. IKCC kindly invites you to complete the survey by the end of October 2025. (1/2)

24.10.2025 15:39 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

@kidney-cancer.bsky.social

22.10.2025 14:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We were honoured to present a poster at #ESMO25 on the IKCC Global Patient Survey. You can read the Highlights Report on our website: ikcc.org/wp-content/u...

Photo: Olivier Exertier (IKCC), Salvatore La Rosa (Kidney Cancer Association) and Eric Jonasch (IKCC).

#KidneyCancer

22.10.2025 14:42 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Under the guidance of Axel Bex (Vice-Chair of IKCC MAB), key opinion leaders in #KidneyCancer convened at #ESMO25 in Berlin to discuss the next steps for the International Neoadjuvant Kidney Cancer Consortium.

21.10.2025 15:36 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Prof James Larkin (UK), Dr Yoshi Tomita (Japan), Dr Francisco Rodríguez-Covarrubias (Mexico), and Dr Roman Sosnowski (Poland), acknowledging their valuable contributions to IKCC over the past years. Congratulations to Prof Yüksel Ürün (Türkiye), who is becoming an executive member of IKCC MAB. (2/2)

21.10.2025 11:27 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The Medical Advisory Board (MAB) of IKCC convened at #ESMO25 in Berlin to discuss priorities for 2026. The MAB Chair, Dr StΓͺnio de CΓ‘ssio Zequi (Brazil), and Vice-Chair, Prof Axel Bex (UK/NL), expressed their gratitude to four colleagues who have completed their terms: (1/2)

21.10.2025 11:27 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Olivier Exertier presented on the realities and challenges of shared decision-making, including data from the 2025 IKCC Global Patient Survey. (2/2)

17.10.2025 14:33 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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To launch #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen organised a collaborative event on shared decision-making with other global cancer coalitions. (1/2)

17.10.2025 14:33 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

His presentation focused on best practices for the implementation of healthcare policies, and he shared an update about citizen engagement, promoting the patient voice in cancer research. (2/2)

16.10.2025 17:00 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@ikccorg is following 20 prominent accounts