The application deadline is 18 November 2025.
Learn more: www.aacr.org/professional...Β #AACR26 (3/3)
@ikccorg.bsky.social
International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer. https://ikcc.org/
The application deadline is 18 November 2025.
Learn more: www.aacr.org/professional...Β #AACR26 (3/3)
As a global organisation, IKCC is committed to research and knowledge transfer among those focused on improving kidney cancer treatment and care and we are proud to support this initiative and are committed to supporting opportunities for researchers from lower- and middle-income countries. (2/3)
13.11.2025 16:18 β π 0 π 0 π¬ 1 π 0We are excited to once again collaborate with @theaacr.bsky.social to support the AACR Scholar-in-Training Award. This award is focused on supporting early-career researchers from around the world to attend the AACR Annual Meeting and participate in this premier clinical event. (1/3)
13.11.2025 16:18 β π 0 π 0 π¬ 1 π 0We are looking forward to attending the European Cancer Summit 2025. The Coalition will be represented by Claudia Ungarelli, the new Vice-Chair of IKCC, at the annual event of the European Cancer Organisation. #EuropeanCancerSummit
13.11.2025 15:59 β π 0 π 0 π¬ 0 π 0Join us in recognising Malnutrition Awareness Week. Weβre looking forward to learning about this important issue during a webinar on Thursday, which includes Karin Kastrati from Nierenkrebs-Netzwerk Deutschland (IKCC Partner Organization): european-nutrition.org/landing-page... #MAW2025
11.11.2025 18:08 β π 0 π 0 π¬ 0 π 0We are looking forward to the World Cancer Leaders' Summit 2025 next week in Melbourne. Olivier Exertier, Anne Wilson and Carmen Vallejo Auste will represent IKCC at this event organised by UICC.
11.11.2025 17:42 β π 0 π 0 π¬ 0 π 0Itβs been a busy month for us at IKCC! Read all the latest in our newsletter: mailchi.mp/ikcc/newslet... #KidneyCancer
11.11.2025 14:27 β π 0 π 0 π¬ 0 π 0Also, read the 2025 GPS Highlights Report and more findings about kidney health at: ikcc.org/wp-content/u...
#KidneyCancer (4/4)
IKCC has created a resource to help people affected by kidney cancer discuss their kidney health with their health team. Download it here: www.worldkidneycancerday.org/wp-content/u... (3/4)
05.11.2025 12:15 β π 1 π 0 π¬ 1 π 0In the 2025 Global Patient Survey, 39% of patients said that they were always, frequently or almost always concerned about their kidney function, and yet only 27% felt they had enough information about how to best manage kidney function after a kidney cancer diagnosis. (2/4)
05.11.2025 12:15 β π 1 π 0 π¬ 1 π 0People with kidney cancer are concerned about kidney function. (1/4)
05.11.2025 12:15 β π 2 π 1 π¬ 1 π 0IKCC Medical Advisory Board member Prof Laurence Albiges and others spoke about long-term survival in advanced renal cell carcinoma at #ESMO25. Watch the video here: oncologypro.esmo.org/video-series... (ESMO account required) @myesmo.bsky.social
04.11.2025 15:26 β π 1 π 0 π¬ 0 π 0IKCC kindly invites you to complete the survey by Friday, 7 November 2025. It takes less than three minutes. forms.office.com/Pages/Respon... @GlobalCCN_org (2/2)
03.11.2025 15:11 β π 1 π 1 π¬ 0 π 0LAST CHANCE TO PROVIDE YOUR OPINION. Following an event at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. (1/2)
03.11.2025 15:11 β π 2 π 1 π¬ 1 π 0IKCC is pleased to share the Summary of Kidney Cancer Highlights from #ESMO25 created by members of the IKCC Medical Advisory Board. Learn more in this LinkedIn article: www.linkedin.com/pulse/reflec... #KidneyCancer
29.10.2025 17:30 β π 1 π 0 π¬ 0 π 0Some affiliates of the @ikccorg.bsky.social attended the recent European Society for Medical Oncology Congress which was in Berlin. They attended to keep dated with the care and treatment of patients with #kidneycancer
To read the kidney cancer highlights:
actionkidneycancer.org/kidney-cance...
Overall, there were great discussions with nurse practitioners and physician assistants at the meeting in National Harbor, Maryland. (2/2)
29.10.2025 16:42 β π 0 π 0 π¬ 0 π 0IKCC presented a poster discussing results from the 2025 Global Patient Survey at #JADPROLive. This poster focused on shared decision-making and patient understanding of their #KidneyCancer and treatment options, as well as the patient adherence with oral targeted therapies as prescribed. (1/2)
29.10.2025 16:42 β π 0 π 0 π¬ 1 π 0At the #JADPROLive meeting in Maryland, they brought together advocates representing cancer survivorship, breast cancer, genetic cancers, kidney cancer,Β multiple myeloma, as well as organisations representing all cancer patients. (2/2)
24.10.2025 15:51 β π 0 π 0 π¬ 0 π 0IKCC was happy to represent the voice of #KidneyCancer patients at the Patient Advocate Council organised by the Advanced Practitioner Society for Hematology and Oncology (APSHO). APSHO is actively engaging patient advocates to bring the patient voice to its members. (1/2)
24.10.2025 15:51 β π 0 π 0 π¬ 1 π 0It takes less than three minutes. forms.office.com/Pages/Respon... (2/2)
24.10.2025 15:39 β π 0 π 0 π¬ 0 π 0Following an event last week at #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen are running a survey on Shared Decision-Making in Oncology. IKCC kindly invites you to complete the survey by the end of October 2025. (1/2)
24.10.2025 15:39 β π 1 π 0 π¬ 1 π 0@kidney-cancer.bsky.social
22.10.2025 14:42 β π 0 π 0 π¬ 0 π 0We were honoured to present a poster at #ESMO25 on the IKCC Global Patient Survey. You can read the Highlights Report on our website: ikcc.org/wp-content/u...
Photo: Olivier Exertier (IKCC), Salvatore La Rosa (Kidney Cancer Association) and Eric Jonasch (IKCC).
#KidneyCancer
Under the guidance of Axel Bex (Vice-Chair of IKCC MAB), key opinion leaders in #KidneyCancer convened at #ESMO25 in Berlin to discuss the next steps for the International Neoadjuvant Kidney Cancer Consortium.
21.10.2025 15:36 β π 2 π 0 π¬ 0 π 0Prof James Larkin (UK), Dr Yoshi Tomita (Japan), Dr Francisco RodrΓguez-Covarrubias (Mexico), and Dr Roman Sosnowski (Poland), acknowledging their valuable contributions to IKCC over the past years. Congratulations to Prof YΓΌksel ΓrΓΌn (TΓΌrkiye), who is becoming an executive member of IKCC MAB. (2/2)
21.10.2025 11:27 β π 0 π 0 π¬ 0 π 0The Medical Advisory Board (MAB) of IKCC convened at #ESMO25 in Berlin to discuss priorities for 2026. The MAB Chair, Dr StΓͺnio de CΓ‘ssio Zequi (Brazil), and Vice-Chair, Prof Axel Bex (UK/NL), expressed their gratitude to four colleagues who have completed their terms: (1/2)
21.10.2025 11:27 β π 1 π 0 π¬ 1 π 0Olivier Exertier presented on the realities and challenges of shared decision-making, including data from the 2025 IKCC Global Patient Survey. (2/2)
17.10.2025 14:33 β π 1 π 0 π¬ 0 π 0To launch #ESMO25 in Berlin, the Global Cancer Coalitions Network (GCCN) and Ipsen organised a collaborative event on shared decision-making with other global cancer coalitions. (1/2)
17.10.2025 14:33 β π 1 π 0 π¬ 1 π 0His presentation focused on best practices for the implementation of healthcare policies, and he shared an update about citizen engagement, promoting the patient voice in cancer research. (2/2)
16.10.2025 17:00 β π 0 π 0 π¬ 0 π 0