New paper published @flissmurtagh.bsky.social Funding for palliative research remains very low: out of total of 18,023 health research awards in 2022, only 136 related to palliative research β just 0.26% of the total Β£4.2billion awarded. SeeΒ spcare.bmj.com/content/earl...
07.10.2025 19:20 β π 3 π 2 π¬ 0 π 2
IMPACT CKD β all roads must not lead to dialysis
Version 2.0 March 31st 2025
www.kireports.org/article/S246... If all roads to lead to dialysis, the kidney failure population will experience unmet needs unseen for decades. @lucyselman.bsky.social @flissmurtagh.bsky.social @kidneycoalition.bsky.social @rcpdmeetings.bsky.social @kidneyint.bsky.social
16.06.2025 11:18 β π 5 π 4 π¬ 0 π 0
Congratulations to Susanne de Wolf-Linder from @wolfsonpallcare.bsky.social one of the best 5 posters at @eapcvzw.bsky.social #EAPC2025 #IPOS-Dem is a valid and reliable outcome measure for assessing and monitoring palliative symptoms and concern for those with dementia @flissmurtagh.bsky.social
30.05.2025 12:41 β π 6 π 5 π¬ 0 π 0
Paper infographic about how patient information documents frame dialysis and conservative kidney management in inaccurate ways.
π£ New paper now online @ckj-era.bsky.social: How do patient information documents present dialysis and conservative kidney management? A document analysis.
academic.oup.com/ckj/advance-...
@flissmurtagh.bsky.social @peolcsw.bsky.social @wolfsonpallcare.bsky.social @danafarber.bsky.social
13.05.2025 16:18 β π 5 π 6 π¬ 1 π 0
This work with @katherinesleeman.bsky.social and @flissmurtagh.bsky.social shows how we can use routine data to understand causes and help find ways to address inequality in palliative and end of life care
04.04.2025 17:34 β π 2 π 2 π¬ 0 π 0
First plenary at #PCC2025 - Sarah Mitchell speaking: many people miss out on pall care. Growing need for pall care - change constant, mission the same! Improving access and quality of pall care for people. Data dashboard, currency model. Ambitions partnership. SPC often too late; pushing for change
20.03.2025 10:48 β π 12 π 2 π¬ 1 π 0
First plenary at #PCC2025 - Kirsty Boyd speaking: need for population- based care; multiple conditions (heart, vascular, and frailty) growing fast, cancer increasing - no longer βlinear pathwayβ - Scotland removing term βend of life careβ - identify how pallcare can help. Future care planning key.
20.03.2025 10:38 β π 2 π 0 π¬ 0 π 0
First plenary at #PCC2025 with Feargal Twomey speaking: increasing pallcare need, poor coordination, a lot of work to be done, recognition of system-wide pressures, canβt say βtoo busyβ - we must take responsibility to find a way through! Level 1, 2, 3 pallcare needs - needs assessment required!
20.03.2025 10:29 β π 2 π 0 π¬ 0 π 0
First plenary at #PCC2025 with Idris Baker speaking: case of national government teams and policy makers listening to clinical expertise and research evidence. Importance of good data to underpin person centred and value based (can achieve both!)
20.03.2025 10:18 β π 1 π 0 π¬ 0 π 0
Yesterdayβs webinar lead by Dr Gross was fantastic!
Digging deep into components of high quality communication.
Have you considered how your emotional intelligence may play a role?
We will soon share the recording in our www.epcin.uk Membersβ area (join free)!
Save the date for the next oneπ
20.02.2025 17:45 β π 0 π 4 π¬ 0 π 0
Blog post : How do clinicians communicate about treatment options to older patients with advanced kidney disease β and what difference does it make?
Our blog on findings from the OSCAR study is now online
@ukkidney.org
education.ukkidney.org/blog/oscar
Full paper: bmcnephrol.biomedcentral.com/articles/10....
@peolcsw.bsky.social
@capcbristol.bsky.social
@flissmurtagh.bsky.social
@wolfsonpallcare.bsky.social
@cacenotes.bsky.social
17.01.2025 17:35 β π 8 π 9 π¬ 1 π 2
I've been teaching yoga, breathwork and meditation to patients, caregivers & HCPs in palliative care settings for a long time. My #realist research @wolfsonpallcare.bsky.social unpicks the relational & soothing mechanisms activated by these approaches that lead to down-regulation of distress.
13.01.2025 12:13 β π 3 π 2 π¬ 0 π 0
One of our very own! Congrats, Jordan! ππ§βπ
15.01.2025 21:47 β π 7 π 1 π¬ 1 π 0
Podcast Episode 114 β Speak For Me LPA
What is the quality of care towards end of life in England and Wales? Hear about it here speakforme.co.uk/podcast-epis...
20.12.2024 21:17 β π 5 π 4 π¬ 0 π 0
Research shows painful truth of end of life care
New research by Hull York Medical School underpins a new Marie Curie report highlighting patchy and inconsistent end of life care.
New research funded by MarieCurie, highlighting patchy and inconsistent end of life care. The report aims to drive change to improve care for people with advanced illness and their families. See www.hull.ac.uk/work-with-us...
03.09.2024 14:33 β π 10 π 9 π¬ 0 π 1
PGCert, PGDip and MSc in Palliative Care: Implementing Best Practice
Learn how to develop, deliver and evaluate care that facilitates best practice in palliative care and care for people living with life-limiting conditions.
Our Postgraduate Taught webinars continue next week! Discover how our PGCert, PGDip and MSc in Palliative Care: Implementing Best Practice programme will help you to make a difference to people living with long-term and life-limiting conditions: www.hyms.ac.uk/postgraduate...
05.12.2024 04:25 β π 5 π 3 π¬ 0 π 0
Research shows painful truth of end of life care
New research by Hull York Medical School underpins a new Marie Curie report highlighting patchy and inconsistent end of life care.
New research funded by MarieCurie, highlighting patchy and inconsistent end of life care. The report aims to drive change to improve care for people with advanced illness and their families. See www.hull.ac.uk/work-with-us...
03.09.2024 14:33 β π 10 π 9 π¬ 0 π 1
New research funded by MarieCurie, highlighting patchy and inconsistent end of life care. The report aims to drive change to improve care for people with advanced illness and their families.
hull.ac.uk/work-with-us/mβ¦
03.09.2024 14:29 β π 0 π 0 π¬ 0 π 0
Supporting development of researchers in palliative and end of life care through events, networking and collaborations.
We promote research into all aspects of palliative care and to facilitate its dissemination. This is a clear vision for Palliative Care Research Society activity which is increasingly important within the palliative care research context.
Assistant Professor - University of Cambridge β Hon. Nurse Consultant Palliative Care β Deputy Theme Lead PEoLC - NIHR ARC East of England. *Views my own*
https://www.jesus.cam.ac.uk/people/ben-bowers
Find us at https://www.hyms.ac.uk/research/research-centres-and-groups/wolfson
Palliative care clinical-academic. Uncertain about uncertainty
Research Fellow, Cicely Saunders Institute, King's College London
Researching #inequalities in palliative and end-of-life care #peolc
#bigdata geek
ACCS Acute Med β©οΈ Palliative Care/GIM Reg & NIHR Doctoral Fellow. Palliative care within the ICU/acute settings & implementation science. Co-chair of @EPCINetwork.
The joint medical school of the Universities of Hull and York, training tomorrow's healthcare professionals through exceptional medical education. Discover more at hyms.ac.uk.
Palliative Medicine Consultant π©Ί
in North East England,
NIHR Doctoral Fellow,
PhD on #Inequalities in lung disease, #Mesothelioma #LungCancer #COPD #ILDπ«
π³οΈβπ #LGBTQ πͺπ» #WomenInMedicine
Book/coffee/travel/photography enthusiast
βοΈππ· πβ°οΈ
Professor of Palliative Care. Nurse. International Observatory on End of Life Care, Lancaster University. Editor, Palliative Medicine. #academicsky #hpm #hapc
Consultant in Palliative Medicine (Isle of Wight, UK); Palliative Care Formulary Editor (neuropharmacology sections)
Senior Research Fellow, Marie Curie Palliative Care Research Department, University College London. Interested in all things medicines. Health services researcher. Pharmacist. Slow runner. #academicsky #pharmsky
avid advocate for palliative care, quality in research, and kindness of hearts πͺπͺ
Senior Clinical Lecturer & physician in #PalliativeCare at Lancaster University, Marie Curie Hospice Liverpool and Liverpool University Hospitals NHS Foundation Trust. Academic interest in #DigitalHealth. Likes Liverpool FC & running #HAPC #LFC #MedSky
Researcher in palliative care, Mum to two gorgeous humans and an unruly labrador, potter, knitter, piano player, ocean loverβ¦TΕ«toi Te Tiriti. Trans Ally.
Te Δrai Research Group, www.tearairesearchgroup.net
Te Kura Neehi (Nursing), Auckland Uni
Former palliative care doctor
Campaigning for better public understanding & conversations about dying
Writer: With The End In Mind & Listen
Speaker
Hopeful despite the circumstances.
www.kathrynmannix.com