CreakyJoints®

In our latest episode of #TheHealthAdvocates, we speak with Biosplice CEO Erich Horsley and CMO Dr. Yusuf Yazici about:
• What an NDA is
• What happens during FDA review
• What osteoarthritis patients should realistically expect

🎧 Listen: omny.fm/shows/the-he...
#Osteoarthritis

No disease is too rare to care. February 28 is Rare Disease Day.

Over 300 million people worldwide live with one of 7,000+ rare diseases.

Many face delayed diagnosis, limited treatment options, and barriers to care.

#RareDiseaseDay #PatientAdvocacy #RareDisease #HealthEquity

Rest is not laziness.
It’s part of managing your health.

Taking intentional breaks, pacing your energy, and listening to early signals from your body are strategies — not weaknesses.

This weekend, give yourself permission to slow down before your body has to slow you down.

The 11 Moods of Rheumatoid Arthritis — and How I’ve Learned to Cope with Them Learn about one RA patient’s struggle with the mental health issues that come with rheumatoid arthritis, and she learned to cope with her depression and emotions.

“I was told, ‘It’s just arthritis. You’ll be fine.’”

Rheumatoid arthritis is an autoimmune disease — not “just” joint pain.

Beyond inflammation and flares, RA affects mood, mental health, fatigue, and daily function.

Here are the 11 moods of RA — and how to cope:
creakyjoints.org/living-with-...

Today is World Day of the Sick.

For millions living with chronic illness, “sick” isn’t a day — it’s daily life.

We see you. We advocate for you. We stand with you.

How I Broke the Vicious Cycle of Sleep Struggles and Rheumatoid Arthritis Pain “While my rheumatoid arthritis (RA) was responsible for a lot of my sleep problems, at the same time, getting poor sleep was also making my arthritis worse,” says Eileen Davidson, who has RA and osteo...

Sleep and Rheumatoid Arthritis Create a Vicious Cycle. Here’s How I Broke It and Finally Got Some Rest:
🔗 creakyjoints.org/living-with-...

Congress passed a major funding bill with big implications for patients—from telehealth to drug costs.

But not all questions are settled.

On #TheHealthAdvocates we have the break down
Listen now: ghlf.org/the-health-advocates/#episode190

#HealthPolicy #PatientsFirst

Flu vaccines protect more than individual health.

As economist Dr. Wayne Winegarden breaks down, higher adult vaccination rates are directly linked to fewer hospitalizations, lower mortality, and billions saved in avoidable economic losses. Tune in:
ghlf.org/healthcarema...
#vaccines #vaccineswork

How much does the flu really cost the U.S.?
According to new research, it’s tens of billions of dollars, and vaccination rates play a major role in how high that number climbs. Higher vaccination rates don’t just save money; they save lives.

ghlf.org/healthcarema...

RA is also linked to other conditions, including cardiovascular disease, lung complications, osteoporosis, and mental health challenges, making early diagnosis and proper treatment critical.

Common misconceptions about RA:
• It only affects older adults (RA can develop at any age)
• It’s caused by overuse or lifestyle choices (it’s autoimmune)
• It only impacts joints (can affect the heart, lungs, eyes, and more)
• If you “look fine,” you must be fine (RA symptoms are often invisible)

February 2 is Rheumatoid Arthritis Awareness Day.

RA is an autoimmune disease—not just joint pain. It can affect the heart, lungs, eyes, and more, often invisibly. Early diagnosis, proper care, and believing patients matter.

#RheumatoidArthritis #RAAwarenessDay #AutoimmuneDisease #PatientAdvocacy

Living carefully is not the same as living small.
It’s survival with intention. 🫂

Despite flares, exhaustion, being unseen and a broken healthcare system. Still showing up.
#chronicillnessawareness #spoonies

27 Things You Understand Only If You Live with Chronic Pain Learn more about what it’s really like to live with chronic pain from patients with various kinds of arthritis and chronic pain conditions.

“Daily chores turn into all-day chores—when you have #ChronicPain… I feel really embarrassed that basic things are so painful for me and my family doesn’t get it. Sorting clothes/getting a sheet on a bed feel like a medieval torture device.”

creakyjoints.org/support/thin...

‘Listening to Your Body’ Is Not Easy with Multiple Chronic Illnesses — Here Are 6 Ways I Do It Learn more about how rheumatoid arthritis and chronic illness patient Jennifer Walker learned to listen to her body as a form of self-care.

“I present the issue as a need — not a #request. I don’t downplay it as some personal quirk. Putting it out there allows those around us to #accommodate us in a way that works..without making them guess or us feel minimized.”: buff.ly/8r71n7Y

via @creakyjoints.bsky.social
#ChronicIllness #spoonies

Weekend tip: YOU DON'T HAVE TO PROVE YOUR ILLNESS TO
IGNORANT PEOPLE. 🫂😅
#spoonie

How You Can Support Someone with a Chronic Illness (and Some Real Advice on How *Not* To) Learn more about what to do and say to help and support people living with chronic illnesses and what to avoid that can make people feel worse.

How you can support someone with a Chronic Illness (and some real advice on how *not* to)
Start by avoiding ableism and toxic positivity.
👉 Read more 👇
creakyjoints.org/support/how-...
#chronicillness

Napping and Arthritis: What Sleep Experts Wish You Knew Learn more about the pros and cons of daily naps when you have chronic illness, how long to nap for, and tips for a better nap.

Napping and Arthritis: What Sleep Experts Wish You Knew ➡️
creakyjoints.org/living-with-...

Chronic Illness Patients: Here Are 13 Things You Can Say Instead of ‘I’m Fine’ When Someone Asks How You Are Learn more about what you can say instead of ‘I’m Fine’ when you live with chronic illness and someone asks how you are feeling.

Quick read: 13 things you can say instead of ‘I’m fine’ when someone asks how you are.
⬇️
creakyjoints.org/living-with-...

Co-Managing Depression and My Other Chronic Illness Chronic disease and depression often go hand in hand. To the rescue: Real-life tips on how to manage both.

8 Tips for Coping with Depression and Chronic Illness 📌
creakyjoints.org/living-with-...
#chronicillness #depression

7 Ways to Celebrate the Holidays from the Comfort of Your Own Home (or Bed) Read seven festive ideas for people with chronic illness or disability to make new (and more accessible) holiday traditions this year.

7 Ways to Celebrate the Holidays from the Comfort of Your Own Home (or Bed)
creakyjoints.org/living-with-...
#HolidayComfort #AccessibleHolidays #ChronicIllnessCommunity #LivingWell

A major shift in U.S. vaccine policy just happened.
In the newest episode of #TheHealthAdvocates, we explain ACIP’s vote to roll back the universal hepatitis B birth dose — and what this means for parents, clinicians, and public health.
Tune in here: ghlf.org/the-health-a...

Before Rheumatoid Arthritis, I Could Throw Back Shots. Now, a Sip of Booze Makes Me Sick. “I’ve heard friends say passing off a hangover gets harder the older they get, but they haven’t had to pass off a hangover while living with a chronic illness,” says Eileen Davidson, who has RA and os...

Why does one drink feel like five when you live with arthritis?🍷💥

A vulnerable read on how RA can make alcohol trigger inflammation, joint pain, fatigue, and next-day flare-ups.

Full article: creakyjoints.org/living-with-...

#arthritis #weekend

“Prevention isn’t political — it’s essential.”
Texas Rep. Nicole Collier joins The Health Advocates to discuss rebuilding trust in health, expanding preventive care, and strengthening equity across communities.

Listen here 👉 ghlf.org/the-health-a...

#HealthEquity #PublicHealth #VaccinesWork

Before I agree to 2026, I’m gonna need to read the terms and conditions 🥹

#ChronicIllness Thanksgiving reminders

#ChronicIllness Thanksgiving reminders

#ChronicIllness Thanksgiving reminders

#ChronicIllness Thanksgiving reminders