CreakyJoints®

“COVID is not in the past. It never will be, because it’s endemic now,” says Dr. Tyler Evans.
Staying up to date on vaccines helps reduce the impact if and when we get infected again. Listen now: ghlf.org/informed-imm...
#COVID19 #Vaccines #PublicHealth #StayProtected

a skeleton of a girl with pink hair and red ribbons ALT: a skeleton of a girl with pink hair and red ribbons

What’s truly spooky? 👻
Having to convince people your pain is real.
#invisibleillness

a man in a suit and tie is saying `` here we go '' while looking at something . ALT: a man in a suit and tie is saying `` here we go '' while looking at something .

The words “your labs came back normal” hit different when your symptoms are anything but.

A new special episode of #TheHealthAdvocates features Kathi, who shares her GCA journey from diagnosis to advocacy — discussing how staying informed, engaged, and connected has empowered her to take control of her care and help others.

🎧 Listen now:
ghlf.org/the-health-a...

#Rheumatology

GCA is a rare autoimmune disease that causes inflammation in the blood vessels — often leading to headaches, scalp tenderness, jaw pain when chewing, and in some cases, vision loss.

Awareness saves sight.

#GCAAwarenessDay #ChronicIllnessCommunity #InvisibleIllness #AutoimmuneWarrior #CreakyJoints

My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.

Invisible ≠ Imaginary.
“You might not be able to see our pain — physical and mental — but we sure can feel it.” — @chroniceileen.bsky.social

👉 Read the full story:
creakyjoints.org/living-with-...
#InvisibleDisabilitiesWeek #InvisibleNoMore #ChronicIllness

What Is Giant Cell Arteritis? These Are the Signs You Could Have It Giant cell arteritis, or temporal arteritis, is an inflammatory disease that affects large blood vessels in the head. Learn about CGA symptoms & treatment.

What Is Giant Cell Arteritis? These Are the Signs You Could Have It...
Read: creakyjoints.org/education/gi...
#GCAAwareness

The hardest part of living with an invisible illness isn’t always the pain — it’s feeling unseen.

This #InvisibleDisabilitiesWeek, we’re standing with everyone living with conditions that don’t always show.

What helps you feel seen, believed, or supported? 💙
#InvisibleNoMore

Stories like this are why we fight for awareness.
October 23 is #GCAAwarenessDay
#GCAAwareness #RareDisease

💙 On #WorldArthritisDay we honor the 350 million people worldwide living with arthritis and RMDs.
Thank you for your resilience, advocacy, and hope in action every day.
Together, we push for awareness, equity, and better care. What keeps you going?

On #WorldMentalHealthDay we honor everyone facing the mental toll of chronic illness — the fatigue, isolation, and uncertainty. You are seen, valued, and not alone. 💚 #YouAreNotAlone #ChronicIllness

Doing Chores with Arthritis Is a Real Pain, But These 12 Tips Can Help a Little This advice from an occupational therapist and fellow patients can help make chores less painful for people with arthritis.

“Relish the #chores you actually like - Believe it or not, some #HouseholdChores may actually help your #arthritis feel better. “I do dishes a lot as the hot water feels wonderful on my hands,” says Debra": buff.ly/SkHaFrX

from @creakyjoints.bsky.social
#ChronicIllness #ChronicPain

📅 Mark your calendars: October 23 is #GCAAwarenessDay. Giant Cell Arteritis can cause sudden vision loss — but awareness saves sight. 👁️💡
#GiantCellArteritis #StopVisionLoss #PatientAdvocacy

My Mini Rant About the Frustrations of a Living with Invisible Disability: A Rheumatoid Arthritis Patient Speaks Out Learn more about a rheumatoid arthritis patient’s take on why it’s challenging to live with an invisible disability that is misunderstood by others.

You can’t see my pain — but I still feel it every day. 💔 Why living with an invisible illness is exhausting & misunderstood →
creakyjoints.org/living-with-...
@chroniceileen.bsky.social

New Health Advocates: Public Health in a Shutdown.

What happens to the CDC, FDA & NIH when Washington stops?
Steven Newmark breaks down the impact on vaccines, food safety & healthcare access.

🎧 ghlf.org/the-health-a...

#TheHealthAdvocates #PublicHealth #GovernmentShutdown

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

Understanding Pain Learn about pain, its various types, and how to communicate your pain effectively to your health care provider.

Pain isn’t one-size-fits-all. Understanding what type you live with — and how to talk about it — can change how you’re treated.
Read here:
creakyjoints.org/about-arthri...
#UnderstandingPain #ChronicPain #SelfAdvocacy

A Guide to Setting Boundaries if You’re a People-Pleaser If you have trouble setting boundaries, here’s what you need to know to shift your mindset — and keep yourself healthy.

A Guide to Setting Boundaries if You’re a People-Pleaser

Saying no isn’t always easy — but with practice, it can become a habit.
👉 creakyjoints.org/living-with-...

#Boundaries #SelfAdvocacy #ChronicIllness

Walking with Arthritis: Benefits, Tips, How to Prevent Pain Learn more about walking as exercise for arthritis, including the health benefits of walking and how to avoid injuries and pain.

Walking can help reduce stiffness, boost mood & maintain independence. Start slow, wear good shoes & listen to your body.
Read more ⬇️
creakyjoints.org/diet-exercis...

#ChronicPain #Arthritis #PainAwareness

“Rate your pain 0–10.”
But what if you have three different kinds of pain at once?
📊 The pain scale is broken →

creakyjoints.org/living-with-...

#PainAwarenessMonth #ChronicPain #PatientAdvocate

If you have psoriatic arthritis, please complete this survey from @creakyjoints.bsky.social #psa #psoriaticarthritis

Healthcare Matters Podcast A podcast dedicated to bringing you a simplified rundown of not-so-simple matters in healthcare economic and policy issues.

High Awareness, Low Access.

Dr. Robert Popovian explains what GHLF’s survey reveals about COVID-19 antiviral access — and the barriers keeping high-risk patients from lifesaving treatments.

🎧 Listen: ghlf.org/healthcarema...

#HealthcareMatters #COVID19 #HealthEquity

🚨 New episode of The Health Advocates

ACIP’s vaccine votes and Trump’s Tylenol claims made for another turbulent week in public health. Steven Newmark explains what happened, what the science shows, and why advocacy matters.

🎧 Listen: ghlf.org/the-health-a...

#TheHealthAdvocates #PublicHealth

Living with PsA? Your voice matters.
Take our 15–20 min survey & help improve care for others like you.
Enter a raffle to win 1 of 5 $300 e-gift cards.
Click here for more info:
www.research.net/r/TNYM279
#PsA #PsoriaticArthritis #PatientVoices #CreakyJoints #AutoimmuneLife

Working at Home with Arthritis: 5 Important Tips for Less Pain Learn how to adjust your home work station if you have arthritis to avoid joint and muscle pain and be more comfortable while you work from home.

Working from home isn’t as comfy as it sounds when you have arthritis.

From flares to fatigue, here’s how to make remote work actually work for you 💻🪑

🔗 creakyjoints.org/living-with-...

#PainAwarenessMonth #ChronicPain #Arthritis

You are NOT FAKING IT if people can’t see your pain.
You are NOT FAKING IT if test results say “normal.”
You are NOT FAKING IT if you look “fine” to everyone else.
You are NOT FAKING IT if others don’t understand.
You are NOT FAKING IT if you need to do less.

You are NOT FAKING IT.

Widespread Pain (Beyond Just Joint Pain) Is Common in Psoriatic Arthritis Learn more about a study that found psoriatic arthritis patients have a lot of widespread pain unrelated to joint pain, and how this could affect treatment.

Widespread pain goes beyond joints.
For people with psoriatic arthritis, moderate or high disease activity is linked to worse widespread pain — highlighting the need for better pain and disease management.

Read more: creakyjoints.org/about-arthri...

#PainAwarenessMonth #PsA #ChronicPain

💉 This fall’s Covid-19 vaccine rollout is more confusing than ever.

In a new The Health Advocates, Steven breaks down who qualifies, what “off-label” means, and how coverage is likely to work.

🎧 Listen: ghlf.org/the-health-a...

#TheHealthAdvocates #Vaccines #PublicHealth

Florida’s proposal to eliminate school vaccine requirements risks bringing back diseases like measles & whooping cough. Protecting kids protects everyone — especially the immunocompromised.
📄 Read our full letter to the Florida Department of Health here:
ghlf.org/wp-content/u...
#VaccinesWork

#HispanicHeritageMonth begins today! 🎉

We proudly celebrate the culture, history & contributions of the Hispanic/Latino community — and reaffirm our commitment to health equity.

Explore bilingual resources designed to uplift & empower our community: ghlf.org/national-his...