PurpleSpeedwell

I get burning in my forearms (but it may be for a different reaon, not necessarily PEM). I find a heating pad works for me.

“Our lives are not on hold waiting for us, they are cancelled, in ruins, burned to ashes, gone and lost forever, and even if we got better in a week which would be a dream come true for all of us, we would still be left having to start our lives all over again from scratch”

Ontario, Canada
Please sign this letter asking the Ontario government not to claw back the Canada Disability Benefit from #ODSP payments. #poverty #disability
nwmd.social/s/copylink/4...

Ontario, Canada
Please sign this letter asking the Ontario government not to claw back the Canada Disability Benefit from #ODSP payments. #poverty #disability
nwmd.social/s/copylink/4...

Naheed Nenshi 🇨🇦 -
"Danielle Smith’s comments during her Breitbart interview are antithetical to democracy. I'm old enough to know just how fragile this beautiful nation is, & I’ll be damned if I let a reckless, incompetent and unethical Premier undermine what we’ve built here together." 🇨🇦 #cdnpoli

A reminder that my colleague @ciaranj_farrell (Twitter) managed to locate and ask (successfully) for permission for this to be made public, after over four decades of being archived.

Colin McEvedy's "The Royal Free Epidemic of 1955"
#mecfs #cfsme #myalgice

ora.ouls.ox.ac.uk/objects/uuid...

Lindt to supply chocolate to Canada from Europe to sidestep tariff hit Swiss chocolate maker Lindt & Spruengli will supply chocolate to Canada made in Europe to avoid Canadian tariffs imposed to counter the higher U.S. customs duties imposed by President Donald Trump.

Lindt to supply chocolate to Canada from Europe to sidestep tariff hit

Swiss chocolate maker Lindt & Spruengli (LISN.S), will supply chocolate to Canada made in Europe to avoid Canadian tariffs imposed to counter the higher U.S. customs duties imposed by President Donald Trump.

Please enjoy my cartoon for Thursday's Toronto Star

CrunchME The evidence and insight base to crunch infection-associated chronic illnesses.

Impressive report by @crunchme.bsky.social

This will be useful for advocacy to increase research funding. 👇
crunchme.notion.site/homepage

Amid all the chaos yesterday, you may have missed that Trump also rescinded executive orders promoting racial equity, diversity, inclusion, and protections against discrimination for gay and transgender people.

a red chair sits in front of a wall that has a sign that says new amsterdam on it ALT: a red chair sits in front of a wall that has a sign that says new amsterdam on it

Sharing here a long thread I just shared on Threads about Zuckerberg. Yes, I encouraged folks to come to Bluesky. Anyway, pull up a chair.

I am Canadian. 🇨🇦❤️
I absolutely reject Poilievre.
#NeverPoilievre

The harm caused by these 2 is far beyond what most can imagine.

The diabolical framing of a severe neuroimmune disease #MyalgicEncephalomyelitis as mass hysteria because it affects more women than men. Without any proof, and ignoring the physical reality. Beard and McEvedy never even met any of the patients.

If it involves women, it must be anxiety. In this case, mass hysteria. 🙄 That is why there has been no concerted effort to collaborate on the mystery of CFS/ME.

The usual unevidenced psychiatrist lingo: 'MOST LIKELY due to', etc. That profession always use terms such as 'probably', 'it is thought' , 'it is assumed'; in this case, 'most likely'. Never any actual indisputable proof, just their own personal beliefs. Hence no progress made in decades.

The Sunday Times, UK. 4th January 1970. The only news article we could find on Beard/McEvedy's 'Reconsideration'.

#myalgicencephalomyelitis #myalgice #cfsme #myalgice

Poilievre will destroy Canada ⤵️

This video thread by Paris Marx shows how rotten to the core Poilievre truly is and the destruction he will cause in Canada, he is a bully, a liar, he is pushing a right wing narrative that will definitely hurt millions in Canada. ⤵️⤵️

I know that sometimes working on a "micro" level and just helping individual people figure out stuff like what shower chair to get can seem like you're "not doing much"

But I figure, eugenicists want disabled people to die

Helping us stay alive, and suffer less, *is* important

5 yrs before #MyalgicEncephalomyelitis I started #oilpainting. A friend (who painted) stayed with me when he wasn't working out of town. He left me with his paints and brushes, a homemade easel, a #BobRoss tape and a joint. This is what happened! #myfirstpainting

#art #MEcfs #pwME #longcovid #pwLC

Thanks for this - a nice concise summary of certain facts!
#MyalgicEncephalomyelitis

References:

1. QoL: doi.org/10.1371/journal.pone.0132421
2. Recovery: doi.org/10.1093/occmed/kqi013
3. Treatment: me-pedia.org/wiki/PACE_tr...
4. Med schools: doi.org/10.17226/19012
5. NIH funding: doi.org/10.3233/wor-203173

Myalgic Encephalomyelitis:

1. Sufferers have lower quality-of-life than patients with heart failure, MS & end-stage renal disease.
2. Recovery is rare.
3. Treatment is often more harmful than helpful.
4. <1/3 of med schools include it in curriculum.
5. It's the NIH's least funded disease vs burden.

Jimmy Carter, Who Has Died at Age 100, Spared Millions of People from Guinea Worm, a Debilitating Parasite Former president Jimmy Carter’s charity has helped transform Guinea worm from a disease that used to infect millions to one that infects fewer than a dozen

Guinea worm used to afflict 3.5 million people each year. This year, thanks in part to Jimmy Carter, there have been 7 cases. He negotiated the longest humanitarian cease-fire in history to distribute water filters & larvicides www.scientificamerican.com/article/jimm... via @tanyalewis.bsky.social

Jimmy Carter has passed away. My wife says he was the last decent man in politics.

Remembering Jimmy Carter

YouTube video by Stevie Wonder - Topic Someday At Christmas

A lovely, inspirational Christmas song by a teenaged Stevie Wonder.
www.youtube.com/watch?v=zvPb...

"Celebration of ignorance."