Jenelle Dorner's Avatar

Jenelle Dorner

@jenelledorner.bsky.social

Health Coach, Patient Advocate, and Science Writer. Living with Joy, Passion & Confidence! I am a voice for those living with chronic health conditions. Advocating for mitochondrial disease, hEDS, gastroparesis, dystonia, dysautonomia and more.

45 Followers  |  66 Following  |  17 Posts  |  Joined: 21.01.2025  |  1.7165

Latest posts by jenelledorner.bsky.social on Bluesky

Before they paved paradise and put up a parking lot.

Before they paved paradise and put up a parking lot.

24.10.2025 22:55 โ€” ๐Ÿ‘ 259    ๐Ÿ” 64    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
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This is what democracy looks like. #NoKings

18.10.2025 23:22 โ€” ๐Ÿ‘ 89398    ๐Ÿ” 29080    ๐Ÿ’ฌ 2326    ๐Ÿ“Œ 1870
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Philadelphia Pennsylvania: #NoKings is a huge success! Letโ€™s go!

18.10.2025 18:14 โ€” ๐Ÿ‘ 343    ๐Ÿ” 141    ๐Ÿ’ฌ 8    ๐Ÿ“Œ 6
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๐ŸšจWhatโ€™s up Washington D.C.?!? Message clear: No Kings. 1/2

18.10.2025 18:12 โ€” ๐Ÿ‘ 1781    ๐Ÿ” 562    ๐Ÿ’ฌ 42    ๐Ÿ“Œ 21
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Chicago Illinois: #NoKings. You guys never stop to amaze me! Never stop you are wonderful!

18.10.2025 18:31 โ€” ๐Ÿ‘ 89    ๐Ÿ” 26    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 5
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No Kings protest aerial view in Boston.
๐Ÿšซ๐Ÿ‘‘๐Ÿ‡บ๐Ÿ‡ธ๐Ÿธ

18.10.2025 18:18 โ€” ๐Ÿ‘ 681    ๐Ÿ” 134    ๐Ÿ’ฌ 26    ๐Ÿ“Œ 9
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Ten Things We Can All Do to Protect Democracy From Marc | The most common question I receive is how everyday citizens can help in the fight for democracy.

The most common question I receive is how everyday citizens can help in the fight for democracy. My advice, take the first step, start with something small and see what works for you. Here are ten things all of us can do. www.democracydocket.com/opinion/10-t...

25.01.2025 14:59 โ€” ๐Ÿ‘ 17166    ๐Ÿ” 8161    ๐Ÿ’ฌ 710    ๐Ÿ“Œ 665

Something to celebrate! ๐ŸŽ‰ First approved drug for mitochondrial disease could pave way for more treatments. buff.ly/f6qmmWP

13.10.2025 02:47 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Cursive text reads โ€œFear only has the power we give it. Hope works the same way. -Bob Goffโ€ It is written on a watercolor rainbow pattern background.

Cursive text reads โ€œFear only has the power we give it. Hope works the same way. -Bob Goffโ€ It is written on a watercolor rainbow pattern background.

Fear only has the power we give it. Hope works the same way. -Bob Goff

13.10.2025 02:35 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Pride flag made up of flowers, from the Toronto Botanical Garden website.

Pride flag made up of flowers, from the Toronto Botanical Garden website.

Pride is in full bloom.

02.06.2025 21:57 โ€” ๐Ÿ‘ 4264    ๐Ÿ” 800    ๐Ÿ’ฌ 51    ๐Ÿ“Œ 13
A sign in the background says New Hope church, God says homosexuality is in. In the foreground there are two men smiling holding the letter s that they've taken from the sign

A sign in the background says New Hope church, God says homosexuality is in. In the foreground there are two men smiling holding the letter s that they've taken from the sign

Happy pride month โค๏ธ๐Ÿณ๏ธโ€โšง๏ธ๐Ÿณ๏ธโ€๐ŸŒˆ

02.06.2025 05:47 โ€” ๐Ÿ‘ 50122    ๐Ÿ” 7889    ๐Ÿ’ฌ 537    ๐Ÿ“Œ 306
A collage of four black-and-white photos showing people with disabilities and their supports in everyday settings. Top left: An older adult using a cane receives support from a caregiver. Top right: A young woman smiles and uses sign language. Bottom left: A therapist and child build a block tower together. Bottom right: A man in a wheelchair uses a tablet while talking with a coworker in a warehouse.

A collage of four black-and-white photos showing people with disabilities and their supports in everyday settings. Top left: An older adult using a cane receives support from a caregiver. Top right: A young woman smiles and uses sign language. Bottom left: A therapist and child build a block tower together. Bottom right: A man in a wheelchair uses a tablet while talking with a coworker in a warehouse.

Think Medicaid is just for doctor visits? Think again.

- The wheelchair that helps someone get to work
- The personal aide that allows someone to live within their own home
- The therapy that helps a child speak their first words

Tell Congress NO CUTS today: ow.ly/rMYr50VV2v9

19.05.2025 15:19 โ€” ๐Ÿ‘ 17    ๐Ÿ” 15    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Detained on verge of U.S. citizenship, Mohsen Mahdawi speaks from Vermont prison Speaking to NPR in his first media interview since his detention, lawful permanent U.S. resident Mohsen Mahdawi finds peace in meditation and hopes "America will fulfill its promise."

Speaking to NPR in his first media interview since his detention, lawful permanent U.S. resident Mohsen Mahdawi finds peace in meditation and hopes "America will fulfill its promise."

29.04.2025 12:35 โ€” ๐Ÿ‘ 16304    ๐Ÿ” 4344    ๐Ÿ’ฌ 317    ๐Ÿ“Œ 159
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We are the cosmos made conscious and life is the means by which the universe understands itself.

- Prof. Brian Cox

28.04.2025 15:08 โ€” ๐Ÿ‘ 6362    ๐Ÿ” 1369    ๐Ÿ’ฌ 196    ๐Ÿ“Œ 117
Signs You May Have HSD (Hypermobility Spectrum Disorder) | Symptoms, Diagnosis & Management
YouTube video by Doctor Clair Signs You May Have HSD (Hypermobility Spectrum Disorder) | Symptoms, Diagnosis & Management

Learn more about symptoms, diagnosis, and management of #HypermobilitySpectrumDisorder ( #HSD) in this video with Dr. Clair Francomano. youtu.be/93u8edKfbMQ?...

20.03.2025 16:25 โ€” ๐Ÿ‘ 9    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
2023 Connecting The Dots between Autism, ADHD, Dyspraxia and EDS and HSD - Jane Gre...
YouTube video by The Ehlers-Danlos Society 2023 Connecting The Dots between Autism, ADHD, Dyspraxia and EDS and HSD - Jane Gre...

Itโ€™s Autism acceptance & as the foremost charity with Patron @bendybrain.bsky.social & Chair @jgjanegreenmbe.bsky.social weโ€™re proud to share our pioneering advocacy. Watch the @ehlersdanlos.bsky.social GLC keynote closing conference here: www.youtube.com/watch?v=McKt...
#AutismAcceptance #Autistic

02.04.2025 19:35 โ€” ๐Ÿ‘ 20    ๐Ÿ” 4    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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US FDA suspends milk quality tests amid workforce cuts The Food and Drug Administration is suspending a quality control program for testing of fluid milk and other dairy products due to reduced capacity in its food safety and nutrition division, according to an internal email seen by Reuters.

they want you sick and preferably dead www.reuters.com/business/hea...

22.04.2025 12:41 โ€” ๐Ÿ‘ 22923    ๐Ÿ” 7523    ๐Ÿ’ฌ 786    ๐Ÿ“Œ 865
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With CDC injury prevention team gutted, 'we will not know what is killing us' Workers who track data on car crashes, drownings, traumatic brain injury, falls in the elderly, and other perils lost their jobs. Advocates worry life-saving work will stop.

Workers who track data on car crashes, drownings, traumatic brain injury, falls in the elderly, and other perils lost their jobs. Advocates worry life-saving work will stop.

21.04.2025 18:46 โ€” ๐Ÿ‘ 17001    ๐Ÿ” 6422    ๐Ÿ’ฌ 818    ๐Ÿ“Œ 526
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Hammock hugs are the best hugs.

22.04.2025 10:24 โ€” ๐Ÿ‘ 8057    ๐Ÿ” 758    ๐Ÿ’ฌ 96    ๐Ÿ“Œ 58
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Understanding #mitochondrial dysfunction in #Huntington's disease may guide potential treatment strategies. Targeting this dysfunction may help to slow disease progression and enhance the quality of life for individuals affected by Huntington's disease.
www.sciencedirect.com/science/arti...

24.01.2025 09:53 โ€” ๐Ÿ‘ 3    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Children with Long COVID have lung abnormalities, according to new research in Radiology. The small, prospective study included 54 participants, 27 with Long COVID and 27 matched controls. Researchers assessed them with an advanced MRI technique that measures both ventilation (flow of air into the lungs) and perfusion (blood flow). Children with Long COVID had worse ventilation and perfusion, and these readings were correlated with worse symptoms.

Children with Long COVID have lung abnormalities, according to new research in Radiology. The small, prospective study included 54 participants, 27 with Long COVID and 27 matched controls. Researchers assessed them with an advanced MRI technique that measures both ventilation (flow of air into the lungs) and perfusion (blood flow). Children with Long COVID had worse ventilation and perfusion, and these readings were correlated with worse symptoms.

A new review in Biomolecules highlighted the overlap of immune dysfunction and metabolic dysfunction in myalgic encephalomyelitis (ME). โ€œMitochondrial dysfunction is a critical factor in the pathophysiology of ME/CFS,โ€ the authors wrote, explaining that this dysfunction can cause a variety of problems in people with ME including fatigue and exercise intolerance. They wrote: โ€œThe further exploration ofโ€ฆimmuneโ€“metabolic disruptions could unveil novel insights into ME/CFS pathophysiology, offering potential biomarkers for diagnosis and targets for therapeutic intervention.โ€

A new review in Biomolecules highlighted the overlap of immune dysfunction and metabolic dysfunction in myalgic encephalomyelitis (ME). โ€œMitochondrial dysfunction is a critical factor in the pathophysiology of ME/CFS,โ€ the authors wrote, explaining that this dysfunction can cause a variety of problems in people with ME including fatigue and exercise intolerance. They wrote: โ€œThe further exploration ofโ€ฆimmuneโ€“metabolic disruptions could unveil novel insights into ME/CFS pathophysiology, offering potential biomarkers for diagnosis and targets for therapeutic intervention.โ€

Another Long COVID clinical trial testing the drug Amantadine is currently recruiting. Amantadine is used to treat symptoms of Parkinsonโ€™s disease โ€” researchers think it could help cognitive function in Long COVID. A second, separate trial, is still recruiting in Columbus, Ohio. The new single-blinded trial will enroll 30 participants in Dallas, Texas. Contact: brittany.wright@utsouthwestern.edu.

Another Long COVID clinical trial testing the drug Amantadine is currently recruiting. Amantadine is used to treat symptoms of Parkinsonโ€™s disease โ€” researchers think it could help cognitive function in Long COVID. A second, separate trial, is still recruiting in Columbus, Ohio. The new single-blinded trial will enroll 30 participants in Dallas, Texas. Contact: brittany.wright@utsouthwestern.edu.

๐Ÿ˜ท Hereโ€™s whatโ€™s happening this week in #LongCOVID research: bit.ly/4btSNl3

๐Ÿ’Œ Sign up for our newsletter and get updates delivered directly to your inbox every week! thesicktimes.org/newsletter/

06.03.2025 16:23 โ€” ๐Ÿ‘ 44    ๐Ÿ” 16    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1
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Mitochondrial complex I deficiency stratifies idiopathic Parkinsonโ€™s disease - Nature Communications Idiopathic Parkinsonโ€™s disease can be stratified according to the severity of neuronal respiratory complex I deficiency. The emerging disease subtypes show distinct molecular and clinical profiles.

Mitochondrial complex I deficiency stratifies idiopathic Parkinsonโ€™s disease | Nature Communications

1) CI deficient subtype - 1/4 of cases present widespread neuronal CI deficiency with non-tremor dominant motor phenotypes. And ๐Ÿ‘‡
www.nature.com/articles/s41...

07.03.2025 10:51 โ€” ๐Ÿ‘ 5    ๐Ÿ” 5    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
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Prince Frederik of Luxembourg dies at 22 from rare mitochondrial disease The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.

The prince had PolG disease, a genetic mitochondrial disorder that prevents the body's cells from producing adequate energy.

10.03.2025 16:30 โ€” ๐Ÿ‘ 57    ๐Ÿ” 11    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 1
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๐Ÿถ

29.03.2025 11:15 โ€” ๐Ÿ‘ 72    ๐Ÿ” 15    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 0
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ADHD research reveals effects of late diagnosis

Excited to be a researcher on this passion project as a late diagnosed neurodivergent woman with ADHD. It's been a privilege to interview women who shared their experiences and work with a team of neurodivergent researchers.

This is a glimpse of our findings so far.

news.csu.edu.au/latest-news/...

15.11.2024 08:24 โ€” ๐Ÿ‘ 59    ๐Ÿ” 7    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 2
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From Mx. Annunaki Ray Marquez on Facebook:

โ€œThoughts for the day:

Intersex medical care is one of the biggest failures in modern-day medicine. Stop doing medically unnecessary cosmetic surgeries on nonconsenting intersex children and infants.

1/5

26.11.2024 02:40 โ€” ๐Ÿ‘ 2    ๐Ÿ” 1    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 0

@jenelledorner is following 20 prominent accounts