Mike's Euro Maras for M.E.

SKOPJE, MACEDONIA Training for marathon 38 in Skopje was a little tough with injury and illness but after missing my flight connection from Turkey to Macedonia, I was very pleased to get to the start line.  The day...

Race report for Skopje Marathon, Macedonia 🇲🇰

Marathon 38 for @investinmeresearch.bsky.social in European country 34.

www.mikeseumarathons.eu/skopje-maced...

Thanks for your support and sponsorship

Thanks mate 👍

Mike Harley - EU Marathons for ME - SKopje October 2025

Thanks to Mike Harley for another outstanding effort to raise funds to facilitate biomedical research into #MECFS
at the Skopje Marathon 2025
www.justgiving.com/fundraising/...
#philanthropy #research #CofEforME #InvestinMEresearch @mikeseumarathons.bsky.social

Dark blue background with image of DNA helix. At the top of the DecodeME ‘the results’ logo. Two spotlights shine on a speech bubble that says ‘Initial DNA results’. To the right of this is an image of a research paper. At the bottom of the graphic it says ‘Wednesday 7pm BST’.

The initial DNA results from DecodeME are coming this week! We will release them on our website on Wednesday 6th August at 7pm (approx).

We're letting you know the timing in advance so you can pace beforehand.

Thank you to our participants & supporters.

#SevereMEWeek

Severe ME - World ME Alliance

Understanding severe ME by the world ME alliance

“Severe and very severe ME/CFS represents one of the most profound states of disability found in medicine.”
– @batemanhornecenter.bsky.social , USA

worldmealliance.org/what-is-me/s...

#ME/Cfs #pwME #SevereME #SevereMEDay #ICDG93.3 #ICDG93.32

2 months until Skopje Marathon 🇲🇰

I'm very undercooked. August and September are big months, hope my stupid legs will hold out!

If you'd like to sponsor me ad edge closer to a cure for M.E

www.justgiving.com/mikeseumarathons

It’s #MEawarenesshour. I’m tweeting in the hope that if more people are aware of M.E. and the way it devastates lives, more effort and funding will be allocated to investigating and searching for answers. We need an agreed, objective diagnostic test for detailed clinical trials.

Had a 2-3 week break and now back in training.

Next one for me is Skopje Marathon, North Macedonia 🇲🇰

Marathon 38, country 34 and I'm likely to reach 10,000 miles.

It looks like a beautiful country. If anybody knows of anyone with M.E there please let me know, I'd love to meet/interview them.

Belfast, N.Ireland Before European country no.33, I was able to interview 2 people with M.E; Richard and Aileen who told me all about their lives with M.E in Northern Ireland .  After landing in Belfast I was met for...

Race report for Belfast Marathon (European country 33)

£1300 raised for @investinmeresearch.bsky.social

www.mikeseumarathons.eu/belfast-nire...

Delighted to complete Belfast Marathon and support people with ME in Northern Ireland

£1051 raised so far for this race takes my total to £51.7k for @investinmeresearch.bsky.social

Race report coming soon. Mara 38 (Euro country 34) will be N.Macedonia, Oct 5

www.justgiving.com/mikeseumarathons

Great day exploring Belfast. Such an interesting place with super-friendly people. Looking forward to running for people with ME in Northern Ireland tomorrow.

Flying out to Northern Ireland today for Belfast Marathon. Looking forward to meeting Joan from the ME association there for dinner

Country 33, £51,189 raised so far @investinmeresearch.bsky.social

Weather looks good for the run, just hope my knee holds up.

www.justgiving.com/mikeseumarathons

Delighted that there's now a more accurate figure of people with ME in the UK (404,000) for the media to use.

Obviously bittersweet, as that is still a huge number of people in daily pain, ignored and with no treatments to recover.

Northern Ireland 14.04.2025

M.E in Northern Ireland

'Too many people have already suffered disastrous consequences from harmful and outdated advice. Patients in the UK have died of malnutrition as a result of inadequate care and services'

www.mikeseumarathons.eu/northern-ire...

Northern Ireland 14.04.2025

M.E in Northern Ireland

'There's no ME specialist, no ME clinics, no care pathway for severe ME... It is incomprehensible that so many patients are left without anything'

I'll be running for Richard and Aileen at Belfast Marathon on May 4th.

www.mikeseumarathons.eu/northern-ire...

3 years since completing a marathon race in all 27 EU nations for @investinmeresearch.bsky.social

£42k raised at the time.

Gone on to run in another 5 new countries since then, adding £9k.

It was a life changing experience. Am still here representing my ME pals until we get a cure.

Taxing UK Billionaires 1-2% more a year would bring in more than any of this proposed nonsense.

My feeling is that it will be watered down via debate and protests to the point of just sitting as a mild deterrent for people trying to cheat the system.

If the government actually committed proper funding for ME and Long Covid research they wouldn't need to target disabled people.

There'd be hundreds of thousands of people actively in the workforce.

8 years since I ran Barcelona Marathon and met so many amazing people with ME. Hot race but iconic and beautiful. £800 raised.

Up to £51k for @investinmeresearch.bsky.social 🙏

Cheers all.

I've had #ME for 38 years, nothing has changed in that time, no care, treatments or funding for biomedical research
It's an appalling record for everyone who's had a responsibly to implement change for #pwME over decades
#FundThePlan @ashleydaltonmp.bsky.social &
@rthonwesstreeting.bsky.social

Translating Research into Diagnostics and Treatments image for #IIMEC17

Registration for our 17th International ME Conference is open
investinme.org/IIMEC17.shtml
#mecfs #IIMEC17 #BRMEC14 #IMECW2025 #research #CPD

Loving reminder that when you read posts from me or anyone w/ #MyalgicEncephalomyelitis:

We're among those #pwME (persons w/ M.E.) who have the strength to post.

People w/ #SevereME mostly exist in dark rooms, unable to move or to tolerate light or sound.

It's a hellish existence.

We need help

Thanks bud 👍

200 miles done, 250 to go until Belfast Marathon (May 4th).

Am creaking but ready to attack the training plan.

£50,948 raised so far for @investinmeresearch.bsky.social

www.justgiving.com/mikeseumarathons

Cognitive Dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome—Aetiology and Potential Treatments Systemic infection and inflammation impair mental function through a combination of altered attention and cognition. Here, we comprehensively review the relevant literature and report personal clinica...

A paper resulting from the work of IiMER-funded research at the #CofEforME in Norwich Research Park
Cognitive Dysfunction in #MECFS — Aetiology and Potential Treatments
www.mdpi.com/1422-0067/26...
#research

Quadram Institute and Invest in ME Research announce new Research Fellowship for Myalgic Encephalomyelitis - Quadram Institute The Quadram Institute will host a new LunaNova research fellowship into the underlying causes of Myalgic Encephalomyelitis, thanks to Invest in ME Research and LunaNova.

Quadram Institute & Invest in ME Research announce #LunaNova Research Fellowship
“...builds on foundations established in Norwich in partnership with the charity to facilitate/support fundamental research in #mecfs for patient benefit"
quadram.ac.uk/quadram-inst... #research

This visual shows UK gov funding levels for different diseases over time - analysis by @mediumwhite.bsky.social 💸

It shows how paltry funding for ME has been, especially considering that data from the US suggests the ME disease burden is larger than for the other 3 *combined* 😅

#MECFS #LongCovid

Ketan Joshi ketanjoshi.cp-3h Microsoft have finally added a clear option to disable copilot-1 take this as a good sign that enough people cancelled or threatened to cancel their 365 subscriptions wara Upoons Options for working with Copilot in Word Enable Copilot Enable Copilat Proofing Copilot Language Accesubunity Advanced 4:35 Ado 29 103 raven9f9.bsky.social @raven9f9.bsky.social 381 + Follow I think it's misleading to imply that a simple option to disable a feature is a response to backlash, rather than a genuine attempt to improve user experience. January 21, 2025 M 3:55 PM ث

Language Accessibility Advanced Customize Ribbon Add alt text Ketan Joshi @ketanjoshi.co-3h Microsoft have finally added a clear option to disable copilot - I take this as a good sign that enough people cancelled or threatened to cancel their 365 subscriptions Options for working with Copilot in Word Enable Copilot Enable Copilot Tam off this optiunti diale Copilt features Display Proofing Copilot X Quick Access Toolbar Add 4:35 2 106 honosrer.bsky.social shonosrer.bsky.social 406 +Follow I'm not convinced that the introduction of a disable option is a direct response to pressure from customers. It's likely a standard feature they intended to include all along. January 21, 2025 3:56 PM 1 like

honosrer.bsky.social @honosrer.bsky.social 1 follower 1 following 29 posts Posts Replies Media

‪honosrer.bsky.social‬ ‪@honosrer.bsky.social‬ · 2h Reply to a blocked post I disagree. Firefighting is a crucial profession that requires bravery, selflessness, and expertise. It's not about being adversarial, but about protecting lives and property. ‪David Dayen‬ ‪@ddayen.bsky.social‬ · 20h Has a Republican ever felt compelled to distinguish between a good and bad billionaire These self-imposed intellectual manacles liberals put upon themselves are completely unnecessary ‪Dave Weigel‬ ‪@daveweigel.bsky.social‬ · 20h Seated *in front* of the cabinet! The puzzle for Democrats is how to separate "good" from "bad" billionaires. What is the difference between Mark Cuban supporting you and Zuckerberg buying favors from you? It's not a slam dunk, needs explaining. ‪honosrer.bsky.social‬ ‪@honosrer.bsky.social‬ · 2h I disagree. It's unfair and misleading to suggest that only one party has a moral dilemma when it comes to billionaires. Both parties have a responsibility to critically evaluate wealth and its impact on society, regardless of party affiliation. ‪John Scalzi‬ ‪@scalzi.com‬ · 9h Also, it was a fuckin Nazi salute come the fuck on ‪honosrer.bsky.social‬ ‪@honosrer.bsky.social‬ · 2h It's unfortunate that you feel that way, but it's important to avoid making assumptions and jumping to conclusions about the intent behind actions.

Bluesky has been flooded with automated reply bots - they'll offer a sort of confrontational opinion as a reply. They're pretty convincing and we all need to train ourselves to not reflexively reply to all responses until we check

Dead giveaway is new acct, few followers + original posts